Aa
A
A
Close
Blank
Avatar universal
Atypical Migraines
Well, in my quest for a diagnosis, it seems I have come across a new possibility.  While awaiting the results of another round of MRIs, my new neurologists has started me on Topomax, a medication used to treat seizures and migraines.  It seems there is a type of migraine called an atypical complex migraine that can trigger a seizure, cause neurological symptoms, and not even involve a headache.  She is a multiple sclerosis specialists, so she is looking for that too, but in the meantime, she wanted to give this a try since the seizures don't seem to fit any other diagnosis.  So far, I haven't had a seizure since I started on it, and I have felt really good.  It's to soon to tell though because I often have two or three week spells of feeling great with no neurological symptoms and can go weeks without seizures as well.  I'm very hopeful though.  Any one have a comment?

I'm spitting in the wind still, but I do finally have a doctor I trust, who doesn't shrug my symptoms off to stress or panic attack.  Hallelujah!  There's hope out there, and her name is Dr. Tseng.
Cancel
3 Answers
3 Answers
Page 1 of 1
667078 tn?1316004535
Hey I have atypical migraines and MS. The difference is easy for me. When I take Immitrex, Frovia, etc the atypical migraine symptoms go away. I get numbness and weakness down the left and sometimes lose sight out of the left side. It is trial and error for everyone. Topamax and other anti seizures have not helped. My Doctor is going to try another one I can't remember which one. Good luck.

Alex
Comment
Cancel
667078 tn?1316004535
Comment
Comment
Submit Comment
Avatar universal
Hi,
just pleased that you have a neuro that you like and who is working with you, I get migraines too, mainly without the actual headache but I get the pins and needles etc. sometimes for me it's a grey area of what is headache and what is not, but I have given up lately trying to work out which is what and just focus on treating the symptoms.  Of cause you could be like Alex and have both a rare type of migraine and MS.

My migraine meds didn't work but I am thinking about asking the Dr to try a different one.

Cheers,
Udkas
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I forgot to say I have Transverse Myelitis and Migraine, hence why I get confused as to what symptoms are what sometimes.
Depends what day you ask me I think they are all migraine :-)
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Multiple Sclerosis Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
667078 tn?1316004535
Blank
Durham, NC
987762 tn?1331031553
Blank
Australia
Avatar universal
Blank
739070 tn?1338607002
Blank
GA
5112396 tn?1378021583
Blank
Other
1831849 tn?1383231992
Blank
Great Neck, NY