Aa
Awww - help with muscle/bone pain please..
Hi all,
And here I was thinking that I was going into remission because some of my symtoms were starting to lessen and I get the mother of all pain this afternoon. Argh.. I have put up with this problem for years but I'm getting to the point where I'm going to need alternative pain medication and definitely something stronger.
I have mentioned in other posts that I experience pain so deep in my muscles that it feels like my bones are breaking, but I'm aware that it is a muscle problem. I came home from work today about 6pm and was experiencing a little pain but only half an hour later I was in excruiciating pain in both legs.
I went to a school concert tonight thanks to a colleague who picked me up and by 5 mins in I knew I was in trouble. At interval I got up and tried to walk around but found that my muscles were cramping so bad that I couldn't pick my feet up normally - I was dragging my right one and my left one couldn't go straight so it was kind of going out to the side. Apparently it looked like a hobbled shuffle action. The pain moved into my arms and hands, as well as my lower back. Then my right ankle went numb and it still is (3 hours later).
Whilst I have experienced the pain before, my walking hasn't been this bad during this particular 'relapse'. I am undiagnosed but have neuro appointment on 26th. I am taking Arthrexi when the pain comes on and Capadex for the pain. It has helped a little but I'm really needing something stronger. I don't want to go to the hospital because what are they really going to do? And anyway I would have to drive there or call my Mum to come and get me. At what point is someone unwell enough to go to the ER?
I have already called my Mum to drive me to work tomorrow and have alerted her and my colleague that I may need to use the wheelchair tomorrow, it's that bad. I don't see how I could get around school and I just can't afford to take another day off work. I know that people will think I'm weird getting around in a wheelchair but I just don't see how I will be able to navigate the school without it - some of the buildings are two stories (lift available) and some are quite far away. I have said before that I would be fine with using a wheelchair at work but now that I may have to use one I'm not so sure. My legs are just spazzing out though hehe
Any thoughts??
Mel :-)
And here I was thinking that I was going into remission because some of my symtoms were starting to lessen and I get the mother of all pain this afternoon. Argh.. I have put up with this problem for years but I'm getting to the point where I'm going to need alternative pain medication and definitely something stronger.
I have mentioned in other posts that I experience pain so deep in my muscles that it feels like my bones are breaking, but I'm aware that it is a muscle problem. I came home from work today about 6pm and was experiencing a little pain but only half an hour later I was in excruiciating pain in both legs.
I went to a school concert tonight thanks to a colleague who picked me up and by 5 mins in I knew I was in trouble. At interval I got up and tried to walk around but found that my muscles were cramping so bad that I couldn't pick my feet up normally - I was dragging my right one and my left one couldn't go straight so it was kind of going out to the side. Apparently it looked like a hobbled shuffle action. The pain moved into my arms and hands, as well as my lower back. Then my right ankle went numb and it still is (3 hours later).
Whilst I have experienced the pain before, my walking hasn't been this bad during this particular 'relapse'. I am undiagnosed but have neuro appointment on 26th. I am taking Arthrexi when the pain comes on and Capadex for the pain. It has helped a little but I'm really needing something stronger. I don't want to go to the hospital because what are they really going to do? And anyway I would have to drive there or call my Mum to come and get me. At what point is someone unwell enough to go to the ER?
I have already called my Mum to drive me to work tomorrow and have alerted her and my colleague that I may need to use the wheelchair tomorrow, it's that bad. I don't see how I could get around school and I just can't afford to take another day off work. I know that people will think I'm weird getting around in a wheelchair but I just don't see how I will be able to navigate the school without it - some of the buildings are two stories (lift available) and some are quite far away. I have said before that I would be fine with using a wheelchair at work but now that I may have to use one I'm not so sure. My legs are just spazzing out though hehe
Any thoughts??
Mel :-)
No, you're right - I am young and shouldn't have to feel like this, but the truth is that I have had problems since I was 13, and they never found out what was wrong then. Luckily it was only a short episode and I eventually got better.
Ahhh... the thigh bones, well I do get the pain there too but I guess for me often it's more in the shin bone, whatever that is, the hips and the lower back. Luckily for me though that, although I often get the pain every day, I don't see it as necessarily continuous because it will ease sometimes, and some days maybe I won't get it as bad.
For my migraines I was taking Capadex, which are the equivalent of Panadeine Forte, but lately I've needed stronger meds. I'm giving these new tablets a go, but of course I can't remember what they're called hehe
Anyway, enjoy your weekend and take care!
Mel :-)
Ahhh... the thigh bones, well I do get the pain there too but I guess for me often it's more in the shin bone, whatever that is, the hips and the lower back. Luckily for me though that, although I often get the pain every day, I don't see it as necessarily continuous because it will ease sometimes, and some days maybe I won't get it as bad.
For my migraines I was taking Capadex, which are the equivalent of Panadeine Forte, but lately I've needed stronger meds. I'm giving these new tablets a go, but of course I can't remember what they're called hehe
Anyway, enjoy your weekend and take care!
Mel :-)
Hi Mel - don't ever feel your pain is of no consequence, especially if it gets to the point of almost no return. Also, please print these messages for your mum so she can understand that although at times we look ok on the outside - we could be hurting on the inside and no matter how strong we are taught to be - sometimes a little bit of medical help is the only solution. Anyway at your age - you should not be experiencing this much pain. The femur bones are the long bones in the upper legs, thigh area. I too have difficulty grasping items and have an almost dull ache in arms and hands. The cortizone I am on has been a God send - for the first time in 2 years of continuous leg/bone/muscle pain, I am beginning to feel relief. I am also on a 6 month course of anti-inflammatory called Prexige. For my migraines (which I believe are hormone related) I take aspirin.
Heather, it really is troubling hearing that you are still in sooooooo much pain, even with your diagnosis. As what age were you diagnosed? - I am sure you have mentioned it on a previous posting, but this forum is moving so fast, so please forgive me for asking. I sincerely do hope you find the right meds that work for you and that your own spirit keeps all your pain at bay.
Take care the both of you.
IDA
Heather, it really is troubling hearing that you are still in sooooooo much pain, even with your diagnosis. As what age were you diagnosed? - I am sure you have mentioned it on a previous posting, but this forum is moving so fast, so please forgive me for asking. I sincerely do hope you find the right meds that work for you and that your own spirit keeps all your pain at bay.
Take care the both of you.
IDA
That is so well said!!!! I have visible spasms and ones that aren't too, and also get the burning feelings. Yes, lactic acid - that's the feeling I was getting Wednesday particularly bad.
"I still feel that it's false "signals" from the brain down the spinal cord. Mixed up signals. Like the leg is telling the brain it is moving and the brain is telling the other leg that I am exercising it. It's hard to describe."
I actually described that in very similar words today when I was explaining why I was in the wheelchair!!!!
I am concerned that it is still a problem for you, even with the drugs, because you're actually diagnosed! I'm sure it is different with each person, but still I just wish there was something I could take to get rid of it. Did I mention that, whilst I do get the pain mostly in my legs, I also get it in my arms and hands??? I had this one episode when my WHOLE BODY felt like it was breaking... yuk!!! I should have gone to the ER at that point... hard when you're living alone and you can't really move.
Anyway, thank you for sharing your pain and experiences with me - I really appreciate it as always.
Mel :-)
"I still feel that it's false "signals" from the brain down the spinal cord. Mixed up signals. Like the leg is telling the brain it is moving and the brain is telling the other leg that I am exercising it. It's hard to describe."
I actually described that in very similar words today when I was explaining why I was in the wheelchair!!!!
I am concerned that it is still a problem for you, even with the drugs, because you're actually diagnosed! I'm sure it is different with each person, but still I just wish there was something I could take to get rid of it. Did I mention that, whilst I do get the pain mostly in my legs, I also get it in my arms and hands??? I had this one episode when my WHOLE BODY felt like it was breaking... yuk!!! I should have gone to the ER at that point... hard when you're living alone and you can't really move.
Anyway, thank you for sharing your pain and experiences with me - I really appreciate it as always.
Mel :-)
It seems that you and I have something in common. The severe leg pain. And as you say, like someone is inside your legs breaking them. I can totally relate to this.
I DO have visible spasms in my legs and sometimes I don't. (Remember I have been diagnosed with MS for over a decade) After my legs have spent the day going through the daily ritual, my legs burn, like someone has a blow-torch pointed towards them. It reminds me of when you exercise a muscle to the fatigue point - it then burns. This is exactly what I tell my doctors. I also tell them that my legs feel like the worst toothache you have ever had. Then the heaviness.
This is a daily occurence for me. Despite some really good medications and great doctors, I have not been able to rid myself of this problem. It's a daily struggle for me. As I sit here at 6 am my left leg is on fire and having stabbing pains running down through it.
I have always been told that my leg pain is due to the lesion in my spine. I do not totally believe this and never have. I still feel that it's false "signals" from the brain down the spinal cord. Mixed up signals. Like the leg is telling the brain it is moving and the brain is telling the other leg that I am exercising it. It's hard to describe.
I do undersand how hard it is to live with the pain. It is my constant companion and I have yet to find a way after all these years to relief it.
I am with you.....Heather
I DO have visible spasms in my legs and sometimes I don't. (Remember I have been diagnosed with MS for over a decade) After my legs have spent the day going through the daily ritual, my legs burn, like someone has a blow-torch pointed towards them. It reminds me of when you exercise a muscle to the fatigue point - it then burns. This is exactly what I tell my doctors. I also tell them that my legs feel like the worst toothache you have ever had. Then the heaviness.
This is a daily occurence for me. Despite some really good medications and great doctors, I have not been able to rid myself of this problem. It's a daily struggle for me. As I sit here at 6 am my left leg is on fire and having stabbing pains running down through it.
I have always been told that my leg pain is due to the lesion in my spine. I do not totally believe this and never have. I still feel that it's false "signals" from the brain down the spinal cord. Mixed up signals. Like the leg is telling the brain it is moving and the brain is telling the other leg that I am exercising it. It's hard to describe.
I do undersand how hard it is to live with the pain. It is my constant companion and I have yet to find a way after all these years to relief it.
I am with you.....Heather
Hi there,
I wish I had gotten your message sooner - I had a suspicion that it warranted a trip to the ER, but I didn't want to be silly about the whole thing. I mean, I have put up with a lot with all this and haven't had to go to the ER before. Plenty of times that I should have perhaps, but never did. Guess my Mum has drilled it into me that I should be strong at all times and that even several trips to the Dr is something frowned upon. Not a great thing for someone who has possible MS.
Is the femur the shin bone? My goodness, that sounds sooooo similar to what I have it's not funny! That would have to be another way I can describe the pain... I got new medication for it (a stronger anti-inflammatory) but it really doesn't do much for me either. Myositis? I will have to look that one up.
I did go to work the next day (Wed) but really shouldn't have. Was extra dizzy, nauseous and crampy, but I got through it. Had yesterday off thank goodness and went to the Dr. She didn't even know what to say about my legs, even as they are now. She said that I didn't have muscle weakness because I could still walk but there was obviously something happening there. I spent most of today in the wheelchair - I can still walk but it is so slow, unsteady, uncoordinated and at times painful that it's just not worth trying.
I'll keep you posted on what happens. Thankfully I have the next 3 days off so I will try to rest up as much as possible.
Thanks again for your thoughts - I really appreciate them!
Mel :-)
I wish I had gotten your message sooner - I had a suspicion that it warranted a trip to the ER, but I didn't want to be silly about the whole thing. I mean, I have put up with a lot with all this and haven't had to go to the ER before. Plenty of times that I should have perhaps, but never did. Guess my Mum has drilled it into me that I should be strong at all times and that even several trips to the Dr is something frowned upon. Not a great thing for someone who has possible MS.
Is the femur the shin bone? My goodness, that sounds sooooo similar to what I have it's not funny! That would have to be another way I can describe the pain... I got new medication for it (a stronger anti-inflammatory) but it really doesn't do much for me either. Myositis? I will have to look that one up.
I did go to work the next day (Wed) but really shouldn't have. Was extra dizzy, nauseous and crampy, but I got through it. Had yesterday off thank goodness and went to the Dr. She didn't even know what to say about my legs, even as they are now. She said that I didn't have muscle weakness because I could still walk but there was obviously something happening there. I spent most of today in the wheelchair - I can still walk but it is so slow, unsteady, uncoordinated and at times painful that it's just not worth trying.
I'll keep you posted on what happens. Thankfully I have the next 3 days off so I will try to rest up as much as possible.
Thanks again for your thoughts - I really appreciate them!
Mel :-)
Hi Mel - welcome to my world, only difference is my pain started at the age of 32, I am now 37 and you are still very young. I have such severe pain in my legs and arms, mainly in the femur area in both legs. To describe: deep pain as though something is eating away at the bone/muscle. When the pain is at its worse it feels as though the muscle is tearing away from the bone. I have recently been diagnosed with Myositis, after many misdiagnosis and many months/years. I am undergoing cortizone treatment and LIVE on anti-inflammatories. I have swallowing issues and battle to even breathe at times.
I think your case calls for an ER visit - at least there they can record first hand what they see (too often we wait it out ourselves and the Drs never really get to see the real pain). Also they have the means to arrange for all the necessary testings there and then. Should nothing come of it - at least it has been recorded. I will never forget in July this year, when I felt as though my heart was tearing our from my chest and my left arm went lame (my next Neuro app was only scheduled for the end of the month). So what did I do, I sat/stood/cringed the pain out until I hoped it would not bring me down - I survived it, but suffered dearly with chest pain and numbness in my left arm for a few weeks thereafter. I then saw the Neuro and told him about the experience - this man almost blew a blood vessel when he asked me if I went to ER and I said no - he actually said how stupid could I have been and you know what, he was right. Although he did all the necessary ECG's, umpteen bloods etc in that appointment - he still would never be able to tell me what actually happened during that morning, because I did not go to ER and it was almost 4 weeks later. So please, the fact that you are almost wheelchair bound, please don't wait, just go. Let your mum rather take you to ER, she is your mum after all and mums usually carry you to the ends of the earth - and she will take you to work the next day.
Keep us posted
Take care
IDA
I think your case calls for an ER visit - at least there they can record first hand what they see (too often we wait it out ourselves and the Drs never really get to see the real pain). Also they have the means to arrange for all the necessary testings there and then. Should nothing come of it - at least it has been recorded. I will never forget in July this year, when I felt as though my heart was tearing our from my chest and my left arm went lame (my next Neuro app was only scheduled for the end of the month). So what did I do, I sat/stood/cringed the pain out until I hoped it would not bring me down - I survived it, but suffered dearly with chest pain and numbness in my left arm for a few weeks thereafter. I then saw the Neuro and told him about the experience - this man almost blew a blood vessel when he asked me if I went to ER and I said no - he actually said how stupid could I have been and you know what, he was right. Although he did all the necessary ECG's, umpteen bloods etc in that appointment - he still would never be able to tell me what actually happened during that morning, because I did not go to ER and it was almost 4 weeks later. So please, the fact that you are almost wheelchair bound, please don't wait, just go. Let your mum rather take you to ER, she is your mum after all and mums usually carry you to the ends of the earth - and she will take you to work the next day.
Keep us posted
Take care
IDA
Mel
Im glad you were able to make it into work, im sorry for the overwelming amount of comments but im sure they just care, i get that alot at church up the school on collection (if i go) always asking if iv results yet? do they know what it might be? but i know its out of love and care they ask and i know they share my frustration with me and im frustrated i cant tell them anything.
And people tell me they could never cope with going in a wheelchair or being in pain like that but thats daft because there are so many more people out there ten times worse then me and cope fine because they have to they dont like it they have there down times but they deal with it because they have to as it is there life just as it has become ours.
Iv worked in the care industry for 15 years nursed my mum when she had cancer before she went into a hospice and used to see sick people everyday so wheelchair,drugs and pain were normal in a sence as i had seen other people suffer through it, but i think when people work away from that environment or have never had that happen to somebody close seeing wheelchairs,sticks and seeing people in physical pain seems awfull to them and it is its just become a normal part of ours so we dont see it like that its just as you said another sx.
Good luck at the drc i hope it gives you something for the pain and spasms.
Hugs xx
Kristin
Thank-you for your kind words, i never been called a inspiration before, and im not really but i do have compassion and i do have empathy for people as i have dealt with people in pain for years its what i love to do care and how ironic (not sure i spelt that right) that i would end up being cared for.
And i feel peoples pain and feelings too on here and like to offer support i cant really offer medical info like Quix can and others but i can offer cyber hugs advise and a ear to listen, we all support each other on here and look out for each other we are a connected family so we are in a sence an insiration to each other.
Ill take the lemons as long as there coming God has aplan in all this and without those lemons i would not grow and become a better person but a drink of lemonade would be nice now and again lol
I take lyrica 450mg a day for the nerve pain quinine tablets at night for the cramps and was on diazapam 10mg as a muscle relaxer now on temazapam at night 10mg but its not really effective.
Lots of hugs
Samantha x
Im glad you were able to make it into work, im sorry for the overwelming amount of comments but im sure they just care, i get that alot at church up the school on collection (if i go) always asking if iv results yet? do they know what it might be? but i know its out of love and care they ask and i know they share my frustration with me and im frustrated i cant tell them anything.
And people tell me they could never cope with going in a wheelchair or being in pain like that but thats daft because there are so many more people out there ten times worse then me and cope fine because they have to they dont like it they have there down times but they deal with it because they have to as it is there life just as it has become ours.
Iv worked in the care industry for 15 years nursed my mum when she had cancer before she went into a hospice and used to see sick people everyday so wheelchair,drugs and pain were normal in a sence as i had seen other people suffer through it, but i think when people work away from that environment or have never had that happen to somebody close seeing wheelchairs,sticks and seeing people in physical pain seems awfull to them and it is its just become a normal part of ours so we dont see it like that its just as you said another sx.
Good luck at the drc i hope it gives you something for the pain and spasms.
Hugs xx
Kristin
Thank-you for your kind words, i never been called a inspiration before, and im not really but i do have compassion and i do have empathy for people as i have dealt with people in pain for years its what i love to do care and how ironic (not sure i spelt that right) that i would end up being cared for.
And i feel peoples pain and feelings too on here and like to offer support i cant really offer medical info like Quix can and others but i can offer cyber hugs advise and a ear to listen, we all support each other on here and look out for each other we are a connected family so we are in a sence an insiration to each other.
Ill take the lemons as long as there coming God has aplan in all this and without those lemons i would not grow and become a better person but a drink of lemonade would be nice now and again lol
I take lyrica 450mg a day for the nerve pain quinine tablets at night for the cramps and was on diazapam 10mg as a muscle relaxer now on temazapam at night 10mg but its not really effective.
Lots of hugs
Samantha x
Well I went to work today and it was not good. I had so many colleagues and students asking me why I was walking funny and I just said that my back was sore and it made my legs go a bit funny. Some of my coworkers said I looked like an old crippled person, which made me cringe hehe But I know they were saying it out of concern. A couple of them wondered why I hadn't already gone to the Dr about it, I guess because they'd be freaked out completely if it happened to them. For me though it's just another thing to add to my long list of problems.
I was going to use the wheelchair but found that the tyres were flat so I couldn't use it. I was able to get the lift key and use that, which was good because by then my muscles were so tight that they hurt like fire trying to get up the stairs.
I haven't tried Baclofen - I'm off to the Dr tomorrow to see about getting help - this is ridiculous! I don't even know what Arthrexi is - I'm guessing it is an antiinflammatory for arthritis, but can't be sure. I just don't remember what the Dr said. It helps a little bit, but obviously nowhere near enough.
My Mum took me to work this morning and said she didn't want me to start using a wheelchair - she said that it was too early. I think she's just worried that if I start using a wheelchair now, I'll never get out again. I've talked to her tonight though and tried to explain just how bad it is and how much other people can see it, and she said it would be a good idea to look into hiring a chair for a few days. I'm hoping this means she understands. I reminded her that I had to go into a chair for a couple of weeks during the first 'episode' at age 13, which was 11 years ago, and I got better again and was able to walk normally. Not run, or swim well again, but at least walk so not sure why she's worried now.
Anyway, I'll let you know what the Dr says tomorrow and if I've managed to get a chair or not.Thanks again for the wonderful thoughts and messages.
Mel :-)
I was going to use the wheelchair but found that the tyres were flat so I couldn't use it. I was able to get the lift key and use that, which was good because by then my muscles were so tight that they hurt like fire trying to get up the stairs.
I haven't tried Baclofen - I'm off to the Dr tomorrow to see about getting help - this is ridiculous! I don't even know what Arthrexi is - I'm guessing it is an antiinflammatory for arthritis, but can't be sure. I just don't remember what the Dr said. It helps a little bit, but obviously nowhere near enough.
My Mum took me to work this morning and said she didn't want me to start using a wheelchair - she said that it was too early. I think she's just worried that if I start using a wheelchair now, I'll never get out again. I've talked to her tonight though and tried to explain just how bad it is and how much other people can see it, and she said it would be a good idea to look into hiring a chair for a few days. I'm hoping this means she understands. I reminded her that I had to go into a chair for a couple of weeks during the first 'episode' at age 13, which was 11 years ago, and I got better again and was able to walk normally. Not run, or swim well again, but at least walk so not sure why she's worried now.
Anyway, I'll let you know what the Dr says tomorrow and if I've managed to get a chair or not.Thanks again for the wonderful thoughts and messages.
Mel :-)
Mel: Have you tried Baclofen, it is a muscle relaxer? The Arthrexi, is that an antiinflammatory med for arthritis symptoms? You sound horrible and I am so sorry I cannot fly over and go to work for you!!! I hope you get some relief of the pain soon! Do the best you can and everything else will work itself out, I truly believe in this. Sometimes the best we can do is stay home and take care of ourselves! I will be praying for you!
Sam: You are such an inspiration to me!! You have an enormous amount of compassion and empathy for us all here and I appreciate you!! I hope that life starts to give you some lemonade soon instead of the lemons you have been dealt recently!! I will be parying for that for you!
Take care,
Kristin
Sam: You are such an inspiration to me!! You have an enormous amount of compassion and empathy for us all here and I appreciate you!! I hope that life starts to give you some lemonade soon instead of the lemons you have been dealt recently!! I will be parying for that for you!
Take care,
Kristin
This illness whatever it is (and we both live in limbo land) is a cruel one it almost gives you a glimmer of hope that just maybe your getting better then snatches it away again and that can really get you down mentally, i know iv now ended up on A/D strong ones but they have helped me cope with the pain better and helped me not feel so low when i get worse. I would say in the 7 months iv been off work iv had three good weeks and i say good as in i didnt need a stick to walk or wheelchair and the pain was copeable.
Its very scary when your body acts so different then it has been, iv almost grieved for a life i no longer have, i was active jogging, working 30 hours plus running a home social life and looking after my three kids all under ten. And now my life is so different but my faith has brought me through and i have met people over here through support groups made wonderfull friends on here and other forums and the plus side im at home with my kids sometimes just sitting on the sofa granted but still there with them which is alot more then i used to be so god has given me many blessing through this.
Take it easy and rest when you can, i dont go to work if your bad, your boss has seen this frist hand now he will understand if you cant go.
Samantha
Its very scary when your body acts so different then it has been, iv almost grieved for a life i no longer have, i was active jogging, working 30 hours plus running a home social life and looking after my three kids all under ten. And now my life is so different but my faith has brought me through and i have met people over here through support groups made wonderfull friends on here and other forums and the plus side im at home with my kids sometimes just sitting on the sofa granted but still there with them which is alot more then i used to be so god has given me many blessing through this.
Take it easy and rest when you can, i dont go to work if your bad, your boss has seen this frist hand now he will understand if you cant go.
Samantha
Aww thanks heaps for that. In a way it's nice to know someone else gets what I'm talking about. It's a nightmare symptom and I pity anyone else who knows it too. I just kinda freaked out tonight because it's turned itself from just the pain into extreme difficulty walking and feeling like my legs won't hold me up.
I did have problems for some time with weakness and stiffness in my legs, which did affect my walking, but this seemed to be starting to clear up last week. I think I'm probably going to be very much like you and will need assistance with walking some days and not others.
I need the money... but I would get by if I had to... I guess I'll have to wait and see how much pain I'm in in the morning. The best thing about having it happen at work tonight was that my boss (the principal) saw me and the effects of this first hand. He said it seemed like it was affecting my coordination and that I was 'shuffling' along really awkwardly- yes! Finally he's noticed! hehe We only had a conversation today about how I seem to be happier at the moment and might be on the way to remission but it seems that dream was short lived.
Yeah... you're right - I need to get on with it however I can... thanks for your words of advice. Thanks a bunch :-)
I've decided to leave my backdoor unlocked just in case I really need to get help here during the night or in the morning. No one else has a key and if I can't get out of bed I may not be able to get assistance. In 7 months this would have to be one of the more scarier symptoms.
Mel
I did have problems for some time with weakness and stiffness in my legs, which did affect my walking, but this seemed to be starting to clear up last week. I think I'm probably going to be very much like you and will need assistance with walking some days and not others.
I need the money... but I would get by if I had to... I guess I'll have to wait and see how much pain I'm in in the morning. The best thing about having it happen at work tonight was that my boss (the principal) saw me and the effects of this first hand. He said it seemed like it was affecting my coordination and that I was 'shuffling' along really awkwardly- yes! Finally he's noticed! hehe We only had a conversation today about how I seem to be happier at the moment and might be on the way to remission but it seems that dream was short lived.
Yeah... you're right - I need to get on with it however I can... thanks for your words of advice. Thanks a bunch :-)
I've decided to leave my backdoor unlocked just in case I really need to get help here during the night or in the morning. No one else has a key and if I can't get out of bed I may not be able to get assistance. In 7 months this would have to be one of the more scarier symptoms.
Mel
Hi,
I know how you feel, im have no dx yet but been going through this nearly a year now and unable to work since may this year, iv had clear MRI of the spine and brain without contrast and had a EMG and LP and awaiting results of those (six weeks ) im NHS and UK based so it all takes a while iv also got a lumber/pelvic MRI next week too and hope to get back to the consultant before next year.
I get that deep bone pain you talk of i get it in my shoulder hips thighs and feet and hands along with a unbearable nerve pain too an spasms in my feet and legs, i take all sort of meds to relieve this and at time they work and at times they dont.
I was really housebound and missing out on lots so one day my friend just hired a wheelchair and went shopping at first i was really embarrased but i got used to it and now everytime i go out i use a wheelchair and i use a stick at school to pick up kids, people dont understand sometimes as some days im ok and dont have a stick (though that hardly happens anymore) and sometimes i do or they see me in town in a wheelchair and not understand that the other day i was walking but i know my body and what it needs and my life has to move on and not stand still waiting for a dx. So i swallow my pride and what people think and just do what i have to do to get by.
Go to work if you need the money but dont push your body if it is in pain but use the wheelchair if you have to and it makes it easier stuff what people will think its your body and your life hun.
Take Care
Samantha
I know how you feel, im have no dx yet but been going through this nearly a year now and unable to work since may this year, iv had clear MRI of the spine and brain without contrast and had a EMG and LP and awaiting results of those (six weeks ) im NHS and UK based so it all takes a while iv also got a lumber/pelvic MRI next week too and hope to get back to the consultant before next year.
I get that deep bone pain you talk of i get it in my shoulder hips thighs and feet and hands along with a unbearable nerve pain too an spasms in my feet and legs, i take all sort of meds to relieve this and at time they work and at times they dont.
I was really housebound and missing out on lots so one day my friend just hired a wheelchair and went shopping at first i was really embarrased but i got used to it and now everytime i go out i use a wheelchair and i use a stick at school to pick up kids, people dont understand sometimes as some days im ok and dont have a stick (though that hardly happens anymore) and sometimes i do or they see me in town in a wheelchair and not understand that the other day i was walking but i know my body and what it needs and my life has to move on and not stand still waiting for a dx. So i swallow my pride and what people think and just do what i have to do to get by.
Go to work if you need the money but dont push your body if it is in pain but use the wheelchair if you have to and it makes it easier stuff what people will think its your body and your life hun.
Take Care
Samantha
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
