They are not blaming the back on pagets but on DDD. I had two nerve blocks in my neck, the first worked, the second six weeks later didn't, thus the surgery. So far, fingers crossed, the one in my back seems to be working. Mom had AD for about four years, the last one was extremely bad.
Yup, each doc is still finger pointing. I'm waiting to learn when and with who my appointment at JHH will be. In the meantime hubby wants me to see an orthopedic surgeon for my back and my CTS.
moeck
I went off to look up Paget's for you and now it's two days later. I'm sorry for your loss. What a blow. Had she had AD long? It will take some time to recover from an emotionally stressful trip like that. Take careful care of yourself. Do you get the nerve blocks frequently? Do they help?
Yes, you found what you needed to know about Paget's. I'm glad. And I hope it is not the casue of your back problems. Do they think it is?
Where are you now in sorting out of your symptoms and problems? Is each doctor still pointing to someone else?
Again, you're in my thoughts as you grieve, quix
All of my sympathies for your loss.
Jazzy
Thank you all so much, just knowing this group is here is a big help. it was rough on Tuesday, I had a three level lumbar-sacral nerve block in the morning and flew home that afternoon. Right now I'm just worn out. By late afternoon I start to stumble and drop things. i found that the Pagets is not autoimmune but is genetic and there are easy blood tests and xrays to tell if a bad joint is pagets or arthritis. I'lll bring this up to my doctors
thank you all again
moeck
My sympathy to you and your family. As you know this little group will keep you in their prayers.
May God give you HIS comfort and carry you through the difficult times.
Frann
I'm sorry that I can't answer your question but I did want to offer my condolenses for your mothers passing.
How are you holding up? Is there anything that we can say to help you through this? If you just want to talk about her or how your dealing with everything just let me know and I'll be a good listener.
I'll be praying,
Carol
I'm so, so sorry for your loss. :(
Many prayers for you and your family.
Take care, Pat
I have no answer to your question, but just wanted to offer my sympathy for your loss. Are you okay?
Penn