Baclofen allergy

I had just recently started Baclofen nearly 2 weeks ago.  Starting at 5 mg before bed then going to 5 mg in the morning as well.  I have steadily had more severe reactions to it from extreme difficulty breathing (went to PCP who gave me an inhaler, didn't work) to severe muscle ridgity and weakness.  I stopped it for a few days while I double dosed the benedryl in hopes to avoid the ER cost.  I was then just fine breathing etc great again.  So I tried 5mg before bed last night to see one more time now that I was on gaurd with the benedryl and a ride to the ER if needed.  Yep same problem.  I can feel it coming on this morning so immediately took benedryl and called my ride to come hang out with me by this evening I am fine again as I have taken two more doubles of benedryl as precautionary.  I am yet to be dx am waiting on csf test to come back at the moment.  I would like to hear of others and their experiences with Baclofen.  I am back on Klonopin for the time being as I don't see my Neuro until next week thans so much to everyone!!!!!

[Sarahsmom46]

I was in the hospital when they started me on baclofen.  I woke up the next morning, after only 2 doses, with a rash all over my face, back, chest and arms.  They dx'ed it as an adverse reaction right away and switched my med for ths spasms.  

I tried baclofen again about 6 months ago questioning whether it really was a reaction or something else back then, and I got the same rash again.  

I'm officially allergic.  Too bad we are because baclofen really does help a lot of people.  

Hope you can find another med that works for you.  There are many out there to try.  

Like you've already been advised, tell the doc.

[Guitar_grrrl]

Yep, sounds like an allergy to me...is it really worth it to load up on Benadryl just to take it?  Contact your PCP or Neuro ASAP, please.

[sonic7173]

No it's not, I quit taking it once I was sure it was the Baclofen and am back to normal breathing again.  Thank you so much for your input as a lot of what I read everyone seems to do just fine with it.  Thank you

[PheonixAbove]

I just recently started taking Baclofen this month and have had no reaction to it except I felt a little sleepy the first week. No breathing problems whatsoever. It doesn't sound like you have an allergy to me because you said nothing about a rash or swollen tongue. But, it sure does sound like Baclofen and you don't mix together well. If I were you, I'd try talking to my neuro to see if there's a different type drug for you muscle symptoms.

[sllowe]

Hi there,

Sorry you are allergic to it, but sooooo very glad you knew the warning signs!

I didn't have a reaction from it myself, but did from another med, and sure do wish I was smart enought to know what the heck was happening to me earlier than later.

Report it w/your Dr. and get yourself something else!

Belated welcome to you too, btw,
=Shell

[sonic7173]

You guys are great!!!  Thank you so much for all the advice, I had left a msg with my neuro and am sure to hear from him come monday. (His office is closed on Fridays) I am so new to all of this and It's great to have some place to ask for experiences and opinions!!  Thanks to all of you

[sonic7173]

Oh so glad you reminded me.  I did have a rash, That started after a couple of dosed.  I had a splotchy rash not large hive type and felt like a sunburn on my torso  especially around my waist band and bra line.  Where ofcourse I knew thwre was no sunburn.  I am so glad yuo said something I had forgotten that in the breathing mess.  Infact the rash just finally went away 2 days ago even though the breathing was back to normal.  Also I did take an Aveeno Oatmeal bath to help.  Thank you Thank you Thank you I had missed writing that one in my notebook being so distracted from the other.  But I did notice it too at the time .

[Sarahsmom46]

I was in the hospital when they started me on baclofen.  I woke up the next morning, after only 2 doses, with a rash all over my face, back, chest and arms.  They dx'ed it as an adverse reaction right away and switched my med for ths spasms.  

I tried baclofen again about 6 months ago questioning whether it really was a reaction or something else back then, and I got the same rash again.  

I'm officially allergic.  Too bad we are because baclofen really does help a lot of people.  

Hope you can find another med that works for you.  There are many out there to try.  

Like you've already been advised, tell the doc.

[PheonixAbove]

I now think that you are officially allergic to Baclofen. Is there any other other type of med that can help you with muscle spasms and pain?

[sonic7173]

I can't beleive that there is another person that is allergic also!  I was starting to wonder if I was some odd ball.  What do you take instead?  I am to see my Neuro tomarrow for further discussion on the issue as for now I do the best I can with the Klonopin until then. I am so new with all of this type of medication that I don't know what there is out there.  Thanks for any input you may have.