Aa
Been living with MS since 07
In 2007 I lost right eye sight
Diagnosed after second MRI in April 2008
Nil cure
Nil medication
Doing fine
Gained back sight in right eye but it's like looking through a glass covered in grease
Diagnosed after second MRI in April 2008
Nil cure
Nil medication
Doing fine
Gained back sight in right eye but it's like looking through a glass covered in grease
Hiya Malbert -
I did a search on McDougall and MS and came up with Dr. John McDougall. Is this the guy you're talking about? If so, I'm leery of folks with solutions that have ecommerce attached to their websites.
There are several dietary approaches to the treatment of MS. Most of the evidence provided is anecdotal rather than scientific. If dealing with MS was as easy as changing your diet I think we'd all be eating differently :-)
Each of us has to choose our own MS path. As has been mentioned here, DMD's work for many of us. I believe in doing everything I can to slow or halt the progression of my MS. I do use DMD's to help in this fight. Currently I'm getting Rituxan therapy.
The other main component of my fight is healthier living. I've lost weight, cleaned up my diet, get more exercise...All things that will benefit everyone, not just those with MS.
As my father used to say "We're all going to hell our own way." :-)
Kyle
I did a search on McDougall and MS and came up with Dr. John McDougall. Is this the guy you're talking about? If so, I'm leery of folks with solutions that have ecommerce attached to their websites.
There are several dietary approaches to the treatment of MS. Most of the evidence provided is anecdotal rather than scientific. If dealing with MS was as easy as changing your diet I think we'd all be eating differently :-)
Each of us has to choose our own MS path. As has been mentioned here, DMD's work for many of us. I believe in doing everything I can to slow or halt the progression of my MS. I do use DMD's to help in this fight. Currently I'm getting Rituxan therapy.
The other main component of my fight is healthier living. I've lost weight, cleaned up my diet, get more exercise...All things that will benefit everyone, not just those with MS.
As my father used to say "We're all going to hell our own way." :-)
Kyle
Hi there,
I must say I read your statement yesterday and was quite taken back so I decided to not respond to your post until I had thought long and hard about you have said.
I think JJ has hit the nail on the head and I wish I was as good as expressing myself as she is. I can only say that you firstly explain how your journey with MS has been a pretty darn good which is lovely to hear...really! You then suggest that fellow MS sufferers should hold off for as long as they can before reaching out for band aid solutions in regards to medications hmmm.
I have MS and I spend a lot of time with fellow MSers who have only a mild impact from their MS and I also see others who are severely disabled by their MS. It is a personal choice on taking a DMD or not but I tend to not push my choices onto others. I just know that some of my fellow MSers would give their hind leg to have had the opportunity back in their day to slow the disease down.
My MS nurse told me of a young man once who took DMD's for many years but then someone convinced him he was doing so well so why not stop them as he clearly doesn't need them anymore and maybe he doesn't have MS after all. This young man did cease his DMD and consequently a couple of months later had a massive relapse where he was placed into hospital as he was unable to walk and talk effectively. He still hasn't recovered enough to have regain where he was but he has subsequently commenced his DMD again.
You could say well this would have happened anyway but we don't really know do we. I guess the point I'm trying to get across is that statements like you are making are not based on medical facts rather your personal beliefs which you are very entitled to have...sure. I do feel though that your statement is a little judegemental and not helpful to many who have just been dx and making their personal decisions on what they should for their MS.
I have tried my best to express how I feel here without being rude at the same time and I really hope I have done this. Welcome to the MS community!
Karry.
I must say I read your statement yesterday and was quite taken back so I decided to not respond to your post until I had thought long and hard about you have said.
I think JJ has hit the nail on the head and I wish I was as good as expressing myself as she is. I can only say that you firstly explain how your journey with MS has been a pretty darn good which is lovely to hear...really! You then suggest that fellow MS sufferers should hold off for as long as they can before reaching out for band aid solutions in regards to medications hmmm.
I have MS and I spend a lot of time with fellow MSers who have only a mild impact from their MS and I also see others who are severely disabled by their MS. It is a personal choice on taking a DMD or not but I tend to not push my choices onto others. I just know that some of my fellow MSers would give their hind leg to have had the opportunity back in their day to slow the disease down.
My MS nurse told me of a young man once who took DMD's for many years but then someone convinced him he was doing so well so why not stop them as he clearly doesn't need them anymore and maybe he doesn't have MS after all. This young man did cease his DMD and consequently a couple of months later had a massive relapse where he was placed into hospital as he was unable to walk and talk effectively. He still hasn't recovered enough to have regain where he was but he has subsequently commenced his DMD again.
You could say well this would have happened anyway but we don't really know do we. I guess the point I'm trying to get across is that statements like you are making are not based on medical facts rather your personal beliefs which you are very entitled to have...sure. I do feel though that your statement is a little judegemental and not helpful to many who have just been dx and making their personal decisions on what they should for their MS.
I have tried my best to express how I feel here without being rude at the same time and I really hope I have done this. Welcome to the MS community!
Karry.
COMMUNITY LEADER
Hi and welcome to our little MS community,
I haven't personally seen any thing written by that author but please don't make the mistake of inadvertently misinterpreting the authors meaning, and choosing to forgo 'all' medical treatment until you can no longer cope or have become more permanently damaged.....
MS Disease Modifying Drugs are necessary, long term 'preventative' treatment, because whilst they do not cure, they reduce relapses and in turn reduce disability and prolong function etc. DMD's are what changes the course of the disease it's self and why the expected quality of life for an MSer diagnosed today, without question is totally different to what it once was.
MS symptom treatment varies depending on the specific issues an MSer is dealing with, symptom treatments are what minimises the negative effect a particular symptom has on their day to day lives but medication alone is not usually the only type of treatment an MSer is doing to maintain their function and quality of life.
It's a little unfair to make a judgement call against medical intervention because of your erroneous belief, that those MSer on treatment are not coping long enough, being totally dependent and reaching out for band aid solutions.......if you're MS journey has so far not put you into similar shoes to theirs!
It's great if you haven't as yet experienced a disabling symptom or a symptom that greatly impacts your ability to function day to day but that's not the typical MS journey and I hope you don't allow your experience to cloud your judgement towards others that have chosen the preventative benefits of Disease Modifying drugs and are treating their symptoms to improve their quality of life.....
Cheers........JJ
I haven't personally seen any thing written by that author but please don't make the mistake of inadvertently misinterpreting the authors meaning, and choosing to forgo 'all' medical treatment until you can no longer cope or have become more permanently damaged.....
MS Disease Modifying Drugs are necessary, long term 'preventative' treatment, because whilst they do not cure, they reduce relapses and in turn reduce disability and prolong function etc. DMD's are what changes the course of the disease it's self and why the expected quality of life for an MSer diagnosed today, without question is totally different to what it once was.
MS symptom treatment varies depending on the specific issues an MSer is dealing with, symptom treatments are what minimises the negative effect a particular symptom has on their day to day lives but medication alone is not usually the only type of treatment an MSer is doing to maintain their function and quality of life.
It's a little unfair to make a judgement call against medical intervention because of your erroneous belief, that those MSer on treatment are not coping long enough, being totally dependent and reaching out for band aid solutions.......if you're MS journey has so far not put you into similar shoes to theirs!
It's great if you haven't as yet experienced a disabling symptom or a symptom that greatly impacts your ability to function day to day but that's not the typical MS journey and I hope you don't allow your experience to cloud your judgement towards others that have chosen the preventative benefits of Disease Modifying drugs and are treating their symptoms to improve their quality of life.....
Cheers........JJ
Yeah I'm doing great I hear of other sufferers of ms opting for medical treatment but they become totally dependant on the medical service
I read a book about living with ms by this professor named mc dougle it was an interesting read and I think suffers should try to cope as long as possible prior to reaching out for medications that are only band aid solutions not cures.
I read a book about living with ms by this professor named mc dougle it was an interesting read and I think suffers should try to cope as long as possible prior to reaching out for medications that are only band aid solutions not cures.
Hi Malbert - Welcome to the group.
You'll find lots of folks here to share concerns and questions with :-)
Kyle
You'll find lots of folks here to share concerns and questions with :-)
Kyle
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
