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199882 tn?1310184542

Bladder Problems anyone???

I know that several of you complain with bladder problems and I was just wondering if anyone has had to have a urostomy done because of your MS?  I had the surgery in January of this year (no fun at all) and had a couple of questions about it.. If you haven't had it done what do you do for your problems???

Thanks,
Carol
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199882 tn?1310184542
  I feel 100% better than what I did pre-surgery... The constant infections had really taken a toll on my body and I was pretty much bed ridden... Always running fever and never felt like seeing, talking, or being around people...

  I don't know what the future holds for this type of surgery but as of right now it has been the best thing I ever did...

Thanks for the concern,
Carol
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Avatar universal
Carol,
      That surgery doesn't sound  very fun but are you feeling better now with less problems?  Is it something that will permately fix your bladder problems? I hope so :)
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199882 tn?1310184542
  Thank you for your replies... I know exactly how you feel and it does take a toll on the fatigue that we suffer from... Getting up every 2 yours is so hard on our bodies...

  I started out by having constant kidney/bladder infections... It was one or the other constantly... I lived on antibiotics... Then I lost feeling down there and didn't even know when I was urinating...

  That's when the catheters came into play... The only good thing about it was that I didn't have to worry about being wet all the time but the downfall was never ending bladder infections because of the catheter...

  My Urologist finally told me that a urostomy was the only option I had left because my bladder was becoming so damaged from the constant catheter...

  I had the surgery in January 2011... No more bladder/kidney infections is a big bonus... It has it's hassles but in the long run I'm glad I had it done... I'm here for any of you if you need to talk...

I'll be praying,
Carol
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Avatar universal
Hi metalbender and grannyhotwheels

I am in the same boat of going to the loo every 2 hrs or so, and yes it takes a while to get going and is uncomfortable, and sometimes I feel that my kidneys will get affected.

For quite a few months now it has been taking some time to get it going (urinating) and when it starts it comes in short bursts and then flows like it should. I have been getting the "hug" on the left side of my torso and sensation issues down my left keg, and my left leg is weak to the point that I cannot lift it. However here are my observations:-

- for a while now it has taken time to get it flowing, and my neuro prescribed flotral but this doesnt do much.
- it seems that with the hug, the muscles that control bladder-emptying is weak and therefore gives the feeling of being emptied but does not fully get emptied and therefore every couple of hours I have to go again.
- my bowel muscles are weak and I am hoping this doesnt cause problems.

I am not on any medication as my symptoms have been coming abt once every year or every two years. But I am going through this hug exacerbation and I am not sure what to do or how to handle it.

Hope this helps.
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Avatar universal
I haven't had a urostomy...I have a neuro appointment on Tuesday...I have been having problems with my bladder at night....That is, I can't sleep for more than two hours without having to get up to go to the bathroom...This has been happening for about 8 weeks...Obviously this is interrupting my sleep so therefore really contributing to unnecessary fatigue...

When I try to urinate it takes a bit to get going and is somewhat uncomfortable....I don't know if I'm completely emptying my bladder, but going every hour and a half or so doesn't seem quite right....Is it?
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