Bowel Incontinence

Hello all,
My newest/latest symptom seems to be bowel incontinence, & sexual problems. Is this somethings that affects in the early or late stage of the disease? I've had symptoms for 4 years now.

[Lulu54]

Freddie,
there is no time table as to when these symptoms may or may not appear.  It has to do with where your lesions are located and what those lesions do to disrupt the signals.  

I'm sorry that you are encountering these new problems.  It just compounds more frustration on top of frustration.  Be sure to let your doctor know of these new problems.

-Lulu

[sllowe]

Hi Freddie,

Nice to meet you. Are you worried about progression? I hope Lu's answer helped put your mind at ease about that because chronic symptoms from existing damage doesn't always mean progression.  

I hope you don't mind me asking, but have you found anything to help? This topic does come up from time-to-time and I have problems myself. It's something that comes so naturally to those without problems. But for us, it's a chore. When it becomes dreadful I find my mind doesn't help the sitch at all.

Hope you can get back w/us for a bit more info. Are you on a DMD?

See you around,
Shell

[freddie2]

Thanks Lulu, I definitely will.........Trying to get to the new Neuro next week instead of the 15th

[freddie2]

Thank you. Nice to meet you as well. Yes, Lulu does definitely comfort me with my issues. I am worried about progression, as well as this horrible "thing" that's happening to me. I haven't been diagnosed yet, but going to see a new Neuro soon. Every time I have a "flare-up" my old symptoms get worse & I get "new friends". I don't know what helps but urinary/bowel dysfunction was something I never expected. I mean, it doesn't happen all the time, but it's happened about 2-3 times within the last 2 months. Sorry, I don't know what a DMD is? but I will keep you posted with any info.
May I ask a question?
They said on my latest cat scan & MRI that the csf spaces appear prominent for my age & that there's a degree of parenchymal atrophy as well. The neuro that spoke to me in the hospital where I received the procedure, stated that there's brain shrinkage,--(but of course, they can't find lesions as yet)-this isn't normal right?  

[sllowe]

Hi there,

Sure, ask anything.

When I asked about DMD I was thinking you were dx'd with MS and worried about advanced stages. DMD stands for disease modifying drugs.

In ref. to shrinkage they could be talking about atrophy and as for csf spaces this would be the cerebrospine fluid.  

Since this imaging was ordered for you I'm sure they are looking into what could be the cause of your current problems.  Though what they are seeing may or may not be normal, it's best to try to stay as calm as you can.

What did your current neuro say? And, you mention flare ups and symptoms. What are you experiencing?

Hope we can help,
-shell

[msgrigioilcavallo]

I have bladder and bowel incontinence and I've yet to find anything to help mine.  I wish there were something to help.  Mine is also just on occasion.  Not everyday all day.  I've only known about my MS for 3 years but have had these problems even before my dx.  I sure hope you find something to help you.  I sure sympathize with you, freddie.

As for myself, I don't take DMD's.  I am being treated symptomatically.  I'm not really sure why I've not been placed on DMD's but I couldn't afford it if I were.  I have something else wrong with my brain but right now, the Neuro doesn't know what's wrong with me besides the RRMS.  It may be that she's waiting to see what else is wrong with my brain.

[RedFlame]

One thing that comforts me is the fact that there are remedies, adaptive equipment and things for everything.  I have bowel issues as well and found that there is all kinds of things and tricks to help with that.  Sometimes we get down and 'dirty' with the facts of what is happening to our bodies.  

If you frequent places for paralyzed etc. you will find the products.  

I will go and look for them.

Red

[freddie2]

Hey there,

I'm seeing the new Neuro next week-possibly. My symptoms are: tremors, dizziness, vertigo, migraine headaches, trouble concentrating, memory loss, can't walk a straight line if I wanted to, I'll have a sudden burst of laughter for a few minutes, or can be depressed the next few days later, my skin feels like it has a sunburn at times, where it hurts to touch it, especially my back, as well as back/neck pain, my leg(s) get heavy, arms as well, urinary/bowel incontinence, blurred vision, tongue get numb at times, inner ear problems, trouble swallowing sometimes, flashing lights when moving eyes, tingling/burning sensations down my arms & legs, nausea, speech problems,(sometimes I get real slow), and did I mention fatigue!!! This has been progressing now for 4 years on & off, lately more on. This week since Monday I've been too dizzy to go to the gym.
Can't wait to go to the new Neuro. i hope & pray that he's interested in really helping me.