Aa
Buzzing Painful legs.
Hi again Guy's, I'm having a lot of trouble with my legs. They are extremely heavy. They feel like they are buzzing and especially my right shin gets a different sensation than my left. It's like i feel a numbness coming and going. This tightening really hurts. My ankles and knees especially get a piercing pain.
I have to rest them a lot to ease the discomfort, but any length of time standing, walking, kneeling. Just kills them. My legs are so uncomfortable. Is this a symptom one would experience in MS? My legs are getting worse since all this began. Pain, odd sensations. buzzing. The pain is so bad i hold onto things for support because of weakness.
I sweat profusely at night, i wake with numb fingers. I am really concerned. I'm due to have my vitamin B12 checked this week. My GP prescribed Cytagon tablets. I did also receive weekly injections for 6 weeks. My GP than said she wanted to try tablet form to see how they would work. I will yet again just talk to her about my symptoms like i have been now for two years.
I think this is MS. If it isn't than why haven't they found what it is, treated it instead of leaving me deteriorate? I cannot understand this, it's dumbfounding?
I'm waiting as you know for clarification on questions which i think if answered will shed light. I know you guy's think perhaps not, but something is causing my symptomsand I'm really concerned it's MS, even though everyone else thinks it's not.
Hugs
Marian
I have to rest them a lot to ease the discomfort, but any length of time standing, walking, kneeling. Just kills them. My legs are so uncomfortable. Is this a symptom one would experience in MS? My legs are getting worse since all this began. Pain, odd sensations. buzzing. The pain is so bad i hold onto things for support because of weakness.
I sweat profusely at night, i wake with numb fingers. I am really concerned. I'm due to have my vitamin B12 checked this week. My GP prescribed Cytagon tablets. I did also receive weekly injections for 6 weeks. My GP than said she wanted to try tablet form to see how they would work. I will yet again just talk to her about my symptoms like i have been now for two years.
I think this is MS. If it isn't than why haven't they found what it is, treated it instead of leaving me deteriorate? I cannot understand this, it's dumbfounding?
I'm waiting as you know for clarification on questions which i think if answered will shed light. I know you guy's think perhaps not, but something is causing my symptomsand I'm really concerned it's MS, even though everyone else thinks it's not.
Hugs
Marian
Hi,
I know this may seem like an odd type of response but have you ever considered seeing a spiritual healer such as a psychic or medium that might be able to tell you if its something spiritual happening to your legs?
The reason why I say this is because if there's a buzzing sensation from your legs, that does not sound like anything very medical however I it is a good idea to see a doctor but perhaps you should also consider other types of avenue too.
I know this may seem like an odd type of response but have you ever considered seeing a spiritual healer such as a psychic or medium that might be able to tell you if its something spiritual happening to your legs?
The reason why I say this is because if there's a buzzing sensation from your legs, that does not sound like anything very medical however I it is a good idea to see a doctor but perhaps you should also consider other types of avenue too.
1 Comments
Buzzing sensations is one of the most common ways to describe paresthesia which can often be symptomatic of a medical condition.
Looking at your posts from the past 24 hours, I believe you wish to be helpful. However, flim-flam will not solve actual medical problems and suggesting otherwise is ethically wrong.
Looking at your posts from the past 24 hours, I believe you wish to be helpful. However, flim-flam will not solve actual medical problems and suggesting otherwise is ethically wrong.
Hi JJ,
For now i will take time out. I need to clear my head. You've helped more than i can say. I just have to relax and what will be will be. I am very thankful for all the support and advice I've been given from you all.
I understand this thread is exhausted. Enough is enough.
I will update you all if this has anything to do with MS. For now it hasn't.
All the best to you and all. I will stay strong and keep you all in my thoughts.
Marian
For now i will take time out. I need to clear my head. You've helped more than i can say. I just have to relax and what will be will be. I am very thankful for all the support and advice I've been given from you all.
I understand this thread is exhausted. Enough is enough.
I will update you all if this has anything to do with MS. For now it hasn't.
All the best to you and all. I will stay strong and keep you all in my thoughts.
Marian
COMMUNITY LEADER
This will actually be my last response to this thread, because honestly, 'i don't feel' like you have been helped by the information that we've provided you, you keep ignoring-avoiding-misinterpreting-skipping-disbelieving or what ever you wish to call it, every point we've already explained in detail.
Your not really asking anything that you haven't asked about and had an explanation for already, and some of us have to spend many hours to write a response, that in effect, are not doing you any good for the effort, that's very hard to keep doing....
You must realise that you can't continue to 'read between the lines', keep assuming alternative meanings, assume more than is verbalised or written etc no one can accurately guess what another person didn't actually say or write, so why your neuro no 1 offered you an appointment to discuss your questions, is anyone's guess.......complaints policy, procedure, concern for a patient, to explain the MRI your stuck on, explain exactly why he doesn't believe you have MS, discuss any additional information he's now received via the other neuro's etc etc etc etc it does no one any good to ask for hypothetical meanings, it's just not useful or valid...
I hope you really want my answer to if I think you have a psychological issue or not, because something is definitely not right with the way you are thinking, if that is your only answer i genuinely can't say but i've had thousands of conversations with different people about MS and many acknowledged that they have health anxiety, conversion, hypochondria etc. You are the only person though who has ever kept repeating everything over and over, the only person who hasn't altered a single thought, paused, taken a step back, considered you might be wrong about something etc because of the information provided...
I know you've mention you over analyse things but over analysing is realistically just one step away from obsession and if this is normal for you, then you know you sometimes get thoughts in your head that you can't easily alter or move past.
Honestly, from reading or being involved in these conversations, i wouldn't in good conscious be able to say your in any way open minded, just nutting this out as you learn more about MS, you are unreasonably convinced about MS and absolutely nothing has changed the way you are thinking and if you were psychologically in a healthy state of mind, you would not be responding as you have.....so to 'me' something seems psychologically abnormal and i strongly advice you to be proactive and seek help before it 'potentially' gets worse.
I may not be right, but i'd rather be completely wrong than not advice someone to seek psychological help when someone genuinely doesn't seem to be in a good head space....take it with a grain of salt if you wish but you did ask..
I do really and truly hope that helps......JJ
Your not really asking anything that you haven't asked about and had an explanation for already, and some of us have to spend many hours to write a response, that in effect, are not doing you any good for the effort, that's very hard to keep doing....
You must realise that you can't continue to 'read between the lines', keep assuming alternative meanings, assume more than is verbalised or written etc no one can accurately guess what another person didn't actually say or write, so why your neuro no 1 offered you an appointment to discuss your questions, is anyone's guess.......complaints policy, procedure, concern for a patient, to explain the MRI your stuck on, explain exactly why he doesn't believe you have MS, discuss any additional information he's now received via the other neuro's etc etc etc etc it does no one any good to ask for hypothetical meanings, it's just not useful or valid...
I hope you really want my answer to if I think you have a psychological issue or not, because something is definitely not right with the way you are thinking, if that is your only answer i genuinely can't say but i've had thousands of conversations with different people about MS and many acknowledged that they have health anxiety, conversion, hypochondria etc. You are the only person though who has ever kept repeating everything over and over, the only person who hasn't altered a single thought, paused, taken a step back, considered you might be wrong about something etc because of the information provided...
I know you've mention you over analyse things but over analysing is realistically just one step away from obsession and if this is normal for you, then you know you sometimes get thoughts in your head that you can't easily alter or move past.
Honestly, from reading or being involved in these conversations, i wouldn't in good conscious be able to say your in any way open minded, just nutting this out as you learn more about MS, you are unreasonably convinced about MS and absolutely nothing has changed the way you are thinking and if you were psychologically in a healthy state of mind, you would not be responding as you have.....so to 'me' something seems psychologically abnormal and i strongly advice you to be proactive and seek help before it 'potentially' gets worse.
I may not be right, but i'd rather be completely wrong than not advice someone to seek psychological help when someone genuinely doesn't seem to be in a good head space....take it with a grain of salt if you wish but you did ask..
I do really and truly hope that helps......JJ
Hi JJ,
I'm just wondering if there is evidence of MS, would i be told. It's just this neurologist has seen my written questions, he has offered an appointment to discuss them. In your opinion does this tell you anything either way.
I would appreciate any of your thoughts on this.
Marian
I'm just wondering if there is evidence of MS, would i be told. It's just this neurologist has seen my written questions, he has offered an appointment to discuss them. In your opinion does this tell you anything either way.
I would appreciate any of your thoughts on this.
Marian
Hi essdipity,
I have tried to send you a private message, but i can't highlight the code on my tablet. I have a problem with the highlight button.
I just wanted to say sorry for offending you. It was not intentional. I know you mean well, and only trying to help. I misinterpreted your post and took it personally. I'm sorry and hope this olive branch you will accept.
Marian
I have tried to send you a private message, but i can't highlight the code on my tablet. I have a problem with the highlight button.
I just wanted to say sorry for offending you. It was not intentional. I know you mean well, and only trying to help. I misinterpreted your post and took it personally. I'm sorry and hope this olive branch you will accept.
Marian
1 Comments
Hi guy's, just thought i would let you know, that I've asked for my questions to be answered in writing.
I will let you know when i hear back.
Don't know what to expect.
Thanks for your thoughts
Marian
I will let you know when i hear back.
Don't know what to expect.
Thanks for your thoughts
Marian
I'm glad you've been offered an appointment. Take your questions in written form, take someone with you to record the neurologists answers. It's impossible to do it alone, I find. You have been offered more than I thought you would -- don't hassle them about written answers.
The reason neuro no. ... Um ....
2 (I think) put ms on requests for mris or LPs is not because he
Thought you definitely had it, but because the tests won't be approved
Without it.
Technically a negative LP does not rule out ms. However it might have
Provided a bit more information to guide him since your mris did not show enough evidence. It did not. Limbo then continues.
I lost a year with my negative LP.
Neuro number 2 was also the neuro,
I think, that said highly unlikely you have ms but you should be followed with annual mris. You were not dismissed outright, which means he is still suspicious of Something neurological. Your diagnosis is In process.
Unfortunately they don't need
To talk over what they are thinking with us. Very difficult for those if us who like to know. I believe they feel it is a form of reassurance ... When you are having a lot of trouble this is far from reassuring :(.
You claim over and over again it doesn't add up to you. Of
Course it doesn't .. Last time ... THAT'S LIMBO.
It doesn't matter
Whether it adds up to you or
Not.
You.must.come.to.terms with the process. Limbo is Crazy making.
<3
The reason neuro no. ... Um ....
2 (I think) put ms on requests for mris or LPs is not because he
Thought you definitely had it, but because the tests won't be approved
Without it.
Technically a negative LP does not rule out ms. However it might have
Provided a bit more information to guide him since your mris did not show enough evidence. It did not. Limbo then continues.
I lost a year with my negative LP.
Neuro number 2 was also the neuro,
I think, that said highly unlikely you have ms but you should be followed with annual mris. You were not dismissed outright, which means he is still suspicious of Something neurological. Your diagnosis is In process.
Unfortunately they don't need
To talk over what they are thinking with us. Very difficult for those if us who like to know. I believe they feel it is a form of reassurance ... When you are having a lot of trouble this is far from reassuring :(.
You claim over and over again it doesn't add up to you. Of
Course it doesn't .. Last time ... THAT'S LIMBO.
It doesn't matter
Whether it adds up to you or
Not.
You.must.come.to.terms with the process. Limbo is Crazy making.
<3
1 Comments
Hi aspen2 and thank you for your thoughts. It's neurologist no 1, who I sent my written questions to through the hospital two weeks ago. He has offered an appointment to discuss these questions. But previously when i had asked to discuss them personally, he declined. He is the one who did lumbar puncture.
Neurologist no 2, is the one who said to keep an eye on things.
The hospital told me that i would get written answers from neurologist no 1. I would prefer that i get written answers.
He offers an appointment, and his Secretary says she has written a referral letter to Neurologist no 4, basically saying that I would like a second opinion, and she has included all neurologist no 1's letters. Yet a couple of weeks back, i asked about this referral, and i was told by email, that she was pretty sure she had sent that referral, and would get back to me. She didn't so i asked again only to be told neurologist no 1 had been of the understanding that i already had been seen by neurologist no 4. I replied through email that yes i had been to see him, but did neurologist no 1 send a referral or not. No reply until today, with what I've shared above. A referral is gone to neurologist no 4. But between asking, her and neurologist no 4's Secretary about this referral, i eventually get told by no 4's Secretary that no they had not received any referral from neurologist no 1. I know you will say stop reading into all of this, but as we would say here, it's a bit irish, meaning it's a bit strange.
I'm going to decline his offer of an appointment, and ask for written answers. I would think this shouldn't be a problem he having offered an appointment to discuss them.
I am thankful for the offer to discuss them. At least he's acknowledging to discuss.
I understand that yes, i may not get a definitive answer, but i should get some clarification i think. :)
Limbo land indeed, and maybe nearing an exit or staying right where i am.
Hugs and thanks for your help.
Marian
Neurologist no 2, is the one who said to keep an eye on things.
The hospital told me that i would get written answers from neurologist no 1. I would prefer that i get written answers.
He offers an appointment, and his Secretary says she has written a referral letter to Neurologist no 4, basically saying that I would like a second opinion, and she has included all neurologist no 1's letters. Yet a couple of weeks back, i asked about this referral, and i was told by email, that she was pretty sure she had sent that referral, and would get back to me. She didn't so i asked again only to be told neurologist no 1 had been of the understanding that i already had been seen by neurologist no 4. I replied through email that yes i had been to see him, but did neurologist no 1 send a referral or not. No reply until today, with what I've shared above. A referral is gone to neurologist no 4. But between asking, her and neurologist no 4's Secretary about this referral, i eventually get told by no 4's Secretary that no they had not received any referral from neurologist no 1. I know you will say stop reading into all of this, but as we would say here, it's a bit irish, meaning it's a bit strange.
I'm going to decline his offer of an appointment, and ask for written answers. I would think this shouldn't be a problem he having offered an appointment to discuss them.
I am thankful for the offer to discuss them. At least he's acknowledging to discuss.
I understand that yes, i may not get a definitive answer, but i should get some clarification i think. :)
Limbo land indeed, and maybe nearing an exit or staying right where i am.
Hugs and thanks for your help.
Marian
Hi JJ, and everyone else.
I apologize if that's what it's been like, ramming my beliefs down people's throats. It's not intentional JJ.
Apologies.
Marian
I apologize if that's what it's been like, ramming my beliefs down people's throats. It's not intentional JJ.
Apologies.
Marian
Hi JJ, sorry but my last post to you regarding the email needs to be explained better, the part about the referral that is.
Neurologist no 1 said he would refer me for a second opinion a good while ago. Having told my GP she said she too wanted to write a letter. I got an appointment, thought no more about it until i asked If neurologist no 1 had referred me. I was told that yes, she thought she being neurologist no 1 Secretary had sent one. She would check and get back to me. In the meantime I asked neurologist no 4's Secretary had she received a referral letter from no neurologist no 1. She confirmed she had not. But in between her confirming she didn't, i get another email from neurologist no 1 Secretary, saying neurologist no 1 was of the understanding that i had been seen.
I got back w her and said yes I had, but he was supposed to refer me.
Today i get told a referral has been sent to neurologist no 4, he of the understanding that i had been seen, and I confirming that i had. Isn't this odd JJ?
I just the i better explain better than i did earlier..
Marian
Neurologist no 1 said he would refer me for a second opinion a good while ago. Having told my GP she said she too wanted to write a letter. I got an appointment, thought no more about it until i asked If neurologist no 1 had referred me. I was told that yes, she thought she being neurologist no 1 Secretary had sent one. She would check and get back to me. In the meantime I asked neurologist no 4's Secretary had she received a referral letter from no neurologist no 1. She confirmed she had not. But in between her confirming she didn't, i get another email from neurologist no 1 Secretary, saying neurologist no 1 was of the understanding that i had been seen.
I got back w her and said yes I had, but he was supposed to refer me.
Today i get told a referral has been sent to neurologist no 4, he of the understanding that i had been seen, and I confirming that i had. Isn't this odd JJ?
I just the i better explain better than i did earlier..
Marian
1 Comments
Hi guy's any thoughts would be appreciated regarding,meeting or getting written answers regarding my last couple of posts.
Marian
Marian
Hi aspen2,
I've received an email from neurologist no 1, offering an appointment to discuss my questions. I would prefer them to be answered in written form. I asked to discuss these personally with him before, but he declined.
Can you give me your thoughts, I'm undecided. The hospital did tell me i would get them in written form. I want to get back shortly to neurologist no 1 Secretary to tell her, what I've decided. I think written form would be better.
Marian
I've received an email from neurologist no 1, offering an appointment to discuss my questions. I would prefer them to be answered in written form. I asked to discuss these personally with him before, but he declined.
Can you give me your thoughts, I'm undecided. The hospital did tell me i would get them in written form. I want to get back shortly to neurologist no 1 Secretary to tell her, what I've decided. I think written form would be better.
Marian
Hi JJ,
I've just received an email from neurologist no 1 Secretary. He has written a letter to Neurologist no 4, for a second opinion, but this was to be done months ago, and according to neurologist no 1 Secretary a couple of weeks ago, he was of the understanding that I had been seen.. I got back to her and said yes, i was seen by neurologist no 4.
Just now, it's confirmed that he's sent a referral letter to Neurologist no 4. Then the email says, that i still have a lot of questions, would i like an appointment to come and discuss them with him.
JJ, Personally i would like my questions answered in written form, as was told to me by the hospital. I've been seen by neurologist no 4, and he's given a diagnosis of chronic fatigue syndrome/ Fibromyalgia. Doesn't want to see me back.
I would prefer though that my questions be answered in written form.
Your thoughts please
Marian
I've just received an email from neurologist no 1 Secretary. He has written a letter to Neurologist no 4, for a second opinion, but this was to be done months ago, and according to neurologist no 1 Secretary a couple of weeks ago, he was of the understanding that I had been seen.. I got back to her and said yes, i was seen by neurologist no 4.
Just now, it's confirmed that he's sent a referral letter to Neurologist no 4. Then the email says, that i still have a lot of questions, would i like an appointment to come and discuss them with him.
JJ, Personally i would like my questions answered in written form, as was told to me by the hospital. I've been seen by neurologist no 4, and he's given a diagnosis of chronic fatigue syndrome/ Fibromyalgia. Doesn't want to see me back.
I would prefer though that my questions be answered in written form.
Your thoughts please
Marian
Hi JJ,
None of the neurologists ever referred to the McDonald Criteria. The only person who ever referred to criteria, was neurologist no 2. He said consensus diagnostic criteria. I did mention the McDonald Criteria to him, and he went on to say along with other Criteria.
I did mention it to neurologist no 4, but nothing was entertained.
I understand that this looks, like I'm obsessed about my symptoms, lesions, location, neurologists. But when you really look at what has been written, by them all, not one of them have written psychological. Neurologist no 1 claimed psychological. I'm sorry but something hasn't added up for me. There is conflicting evidence.
I understand totally where you are coming from, but really when you read all that I've posted, is it any wonder i don't understand it. I simply don't understand why a lesion measuring 6.6 is noted in September 2014, and in 2015 an addendum was offered, then not given. It's like the 6.6mm lesion never existed.
And the more i question it, the more avoidance i get, so yes it's frustrating, and yes it's upsetting, and i don't mean to intentionally take this out on anyone. But something is amiss, and that is as clear as day, when you read between the lines.
I know you've taken time to give explanations, and advice, and I've taken them on board, but i genuinely feel that if it's psychological it's because I'm clinically unwell, along with psychological because of the stress it's causing. And yes my symptoms are having an impact on my psychological health also. But it's not the cause, i know it isn't.
I'm sorry to hear about your mum, and you are doing your best to help her :)
JJ, Do you believe what I'm suffering from is a psychological disorder, due to another organic cause, or I'm unwell due to it being psychological and no other cause?
If you can look at what I've shared earlier to aspen2, can you come to a decision that it's not MS, although neurologist no 1 definitely excluded it.
Big Hugs
Marian
None of the neurologists ever referred to the McDonald Criteria. The only person who ever referred to criteria, was neurologist no 2. He said consensus diagnostic criteria. I did mention the McDonald Criteria to him, and he went on to say along with other Criteria.
I did mention it to neurologist no 4, but nothing was entertained.
I understand that this looks, like I'm obsessed about my symptoms, lesions, location, neurologists. But when you really look at what has been written, by them all, not one of them have written psychological. Neurologist no 1 claimed psychological. I'm sorry but something hasn't added up for me. There is conflicting evidence.
I understand totally where you are coming from, but really when you read all that I've posted, is it any wonder i don't understand it. I simply don't understand why a lesion measuring 6.6 is noted in September 2014, and in 2015 an addendum was offered, then not given. It's like the 6.6mm lesion never existed.
And the more i question it, the more avoidance i get, so yes it's frustrating, and yes it's upsetting, and i don't mean to intentionally take this out on anyone. But something is amiss, and that is as clear as day, when you read between the lines.
I know you've taken time to give explanations, and advice, and I've taken them on board, but i genuinely feel that if it's psychological it's because I'm clinically unwell, along with psychological because of the stress it's causing. And yes my symptoms are having an impact on my psychological health also. But it's not the cause, i know it isn't.
I'm sorry to hear about your mum, and you are doing your best to help her :)
JJ, Do you believe what I'm suffering from is a psychological disorder, due to another organic cause, or I'm unwell due to it being psychological and no other cause?
If you can look at what I've shared earlier to aspen2, can you come to a decision that it's not MS, although neurologist no 1 definitely excluded it.
Big Hugs
Marian
COMMUNITY LEADER
Actually i don't think anyone here has specifically stated that you don't have MS, at this moment in time you honestly don't have the diagnostic evidence or neurological conscientious to be dx with a neurological condition like MS, btw in case you are unaware, repeating the same information over and over like we are just not getting your point, is like yelling from a soap box and trying to ram your beliefs down other peoples throats, we are honestly not confused about MS...
Based on the Mcdonald Criteria the totality of your MRI's don't meet the minimum requirements, you have provided other diagnostic information that wouldn't be suggestive or consistent with MS, you have provided some symptom descriptions that wouldn't be suggestive of MS, you have provided information of having other medical diagnosis that could account for your hard evidence and symptoms which lowers MS as the possible causation, you haven't provided any clinically abnormal neurological signs suggestive or consistent with a neurological condition like MS, you have provided multiple neurological opinions in regards to MS who have explained that you don't meet Mcdonald.....
The information you've provided logically can't place MS at the top of your or anyone's possible causation list, that doesn't mean someone 100% can't have MS, what it mean's is that based on all the information you have provided, MS would not be the 'most likely' explanation over and above any other, there are a lot of alternatives to be considered before a dx of MS can be made.
You seem to have the idea that there is confusion about MS or a difference in opinion but the specific MS information repeatedly provided to you were not 'opinions', all the MS truths, factual information about diagnosing MS, information about your alternate medical issues etc etc may not of been what you understood or expected or even wanted to hear but none of which can be turned into to a 'difference in opinion' when MS facts don't support the understanding you have in your head...
It is never a good idea when reading 'support' based forums to assume emotive meaning and jump to conclusion of negative intent from other peoples sentences. IF you read something or hear something and apply emotive meaning not stated and it upsets, annoys, makes you angry, feel disrespected, dismissed, etc, it honestly has nothing to do with the other person, it is always based on your own feelings, your thoughts, your sensitivities, your emotions, your history etc
In exactly the same way that a doctor who expresses their annoyance, frustrations, aggression, impatience etc will incorrectly lay blame on a patient for pushing their emotional button's, it has nothing to do with anyone else but their own emotional health and self control in the moment...he/she made me feel 'x' is never valid justification for our behaviors, it doesn't matter who you are, it's just never a good thing to take our feelings out on other people online or in the real world.
My mum is dx with bipolar her main issues are anxiety that topples her into major depression and those manic high's everyone thinks of are not the type of high that most people with bipolar experience..."In the past, bipolar depression was lumped in with regular depression, but a growing body of research suggests that there are significant differences between the two, especially when it comes to recommended treatments....
Despite many similarities, certain symptoms are more common in bipolar depression than in regular depression. For example, bipolar depression is more likely to involve irritability, guilt, unpredictable mood swings, and feelings of restlessness. People with bipolar depression also tend to move and speak slowly, sleep a lot, and gain weight. In addition, they are more likely to develop psychotic depression—a condition in which they’ve lost contact with reality—and to experience major disability in work and social functioning." http://www.helpguide.org/articles/bipolar-disorder/bipolar-disorder-signs-and-symptoms.htm#what
I don't know the reliability of the source but it aptly describes what my mum deals with when she's in a major depressive state, we kept a diary entry she wrote many years ago, she doesn't have the memories of a lot of things afterwards, she is a highly intelligent women who at times is incapable of taking in anything and seeing reason but this diary entry in her own words demonstrates just how incredibly illogical and different she actually becomes when her mental health has taken over.
It has never been my intent to shame or make her feel worse about what 'she' has no control over, she has an innocent intent and is completely unaware in the moment but i am brutally honest when she gets stuck on a thought and believes she's making good decisions without being able to see the negative consequences of her actions, i don't tell her what she wants to hear, i tell her what she 'needs' to hear and sometimes in the moment she hates me for it.....understandably it can get to be a bit too repetitive after a life time but i've long accepted that if i didn't do what I do for her she'd be lost to us, she's one of mine and i don't give up on me or mine!
My opinion...Life is not fair, it's a myth of epic proportions that it's suppose to be, bad things happen to good people but you move on by living the best life that you can with what you have. You do not live a good life by looking back at what might of been, giving in or give up when things get harder, you live a good life by digging deeper and getting busy changing what you can change and accepting what you can't.
No diagnosis can give you that state of mind, you chose to do nothing to help your self or you chose to do something to improve your tomorrows, but doing something is always going to involve a lot of hard, hard work that once you start you keep doing, through all the ups and downs. If your entire focus is fixated on getting a diagnosis or proving the one you have is wrong, you waste every opportunity put before you that may actually be of help to you.
So please take a step back and ask your self, do I actually want to get better or do I just want to be right and keep chasing a dx that may never happen? If you want to get better then stop chasing, stop knee jerk reacting and go see your supportive GP and ask what he recommends you do, ask him if he thinks it might be beneficial to get an occupational or physio therapy assessment to work out what exercises you can do to help with your dizziness etc ask him to help you move forward so you can get better!
I truly hope i've given you something to think about it helps you.....JJ
Based on the Mcdonald Criteria the totality of your MRI's don't meet the minimum requirements, you have provided other diagnostic information that wouldn't be suggestive or consistent with MS, you have provided some symptom descriptions that wouldn't be suggestive of MS, you have provided information of having other medical diagnosis that could account for your hard evidence and symptoms which lowers MS as the possible causation, you haven't provided any clinically abnormal neurological signs suggestive or consistent with a neurological condition like MS, you have provided multiple neurological opinions in regards to MS who have explained that you don't meet Mcdonald.....
The information you've provided logically can't place MS at the top of your or anyone's possible causation list, that doesn't mean someone 100% can't have MS, what it mean's is that based on all the information you have provided, MS would not be the 'most likely' explanation over and above any other, there are a lot of alternatives to be considered before a dx of MS can be made.
You seem to have the idea that there is confusion about MS or a difference in opinion but the specific MS information repeatedly provided to you were not 'opinions', all the MS truths, factual information about diagnosing MS, information about your alternate medical issues etc etc may not of been what you understood or expected or even wanted to hear but none of which can be turned into to a 'difference in opinion' when MS facts don't support the understanding you have in your head...
It is never a good idea when reading 'support' based forums to assume emotive meaning and jump to conclusion of negative intent from other peoples sentences. IF you read something or hear something and apply emotive meaning not stated and it upsets, annoys, makes you angry, feel disrespected, dismissed, etc, it honestly has nothing to do with the other person, it is always based on your own feelings, your thoughts, your sensitivities, your emotions, your history etc
In exactly the same way that a doctor who expresses their annoyance, frustrations, aggression, impatience etc will incorrectly lay blame on a patient for pushing their emotional button's, it has nothing to do with anyone else but their own emotional health and self control in the moment...he/she made me feel 'x' is never valid justification for our behaviors, it doesn't matter who you are, it's just never a good thing to take our feelings out on other people online or in the real world.
My mum is dx with bipolar her main issues are anxiety that topples her into major depression and those manic high's everyone thinks of are not the type of high that most people with bipolar experience..."In the past, bipolar depression was lumped in with regular depression, but a growing body of research suggests that there are significant differences between the two, especially when it comes to recommended treatments....
Despite many similarities, certain symptoms are more common in bipolar depression than in regular depression. For example, bipolar depression is more likely to involve irritability, guilt, unpredictable mood swings, and feelings of restlessness. People with bipolar depression also tend to move and speak slowly, sleep a lot, and gain weight. In addition, they are more likely to develop psychotic depression—a condition in which they’ve lost contact with reality—and to experience major disability in work and social functioning." http://www.helpguide.org/articles/bipolar-disorder/bipolar-disorder-signs-and-symptoms.htm#what
I don't know the reliability of the source but it aptly describes what my mum deals with when she's in a major depressive state, we kept a diary entry she wrote many years ago, she doesn't have the memories of a lot of things afterwards, she is a highly intelligent women who at times is incapable of taking in anything and seeing reason but this diary entry in her own words demonstrates just how incredibly illogical and different she actually becomes when her mental health has taken over.
It has never been my intent to shame or make her feel worse about what 'she' has no control over, she has an innocent intent and is completely unaware in the moment but i am brutally honest when she gets stuck on a thought and believes she's making good decisions without being able to see the negative consequences of her actions, i don't tell her what she wants to hear, i tell her what she 'needs' to hear and sometimes in the moment she hates me for it.....understandably it can get to be a bit too repetitive after a life time but i've long accepted that if i didn't do what I do for her she'd be lost to us, she's one of mine and i don't give up on me or mine!
My opinion...Life is not fair, it's a myth of epic proportions that it's suppose to be, bad things happen to good people but you move on by living the best life that you can with what you have. You do not live a good life by looking back at what might of been, giving in or give up when things get harder, you live a good life by digging deeper and getting busy changing what you can change and accepting what you can't.
No diagnosis can give you that state of mind, you chose to do nothing to help your self or you chose to do something to improve your tomorrows, but doing something is always going to involve a lot of hard, hard work that once you start you keep doing, through all the ups and downs. If your entire focus is fixated on getting a diagnosis or proving the one you have is wrong, you waste every opportunity put before you that may actually be of help to you.
So please take a step back and ask your self, do I actually want to get better or do I just want to be right and keep chasing a dx that may never happen? If you want to get better then stop chasing, stop knee jerk reacting and go see your supportive GP and ask what he recommends you do, ask him if he thinks it might be beneficial to get an occupational or physio therapy assessment to work out what exercises you can do to help with your dizziness etc ask him to help you move forward so you can get better!
I truly hope i've given you something to think about it helps you.....JJ
1 Comments
JJ,
There is one thing that i don't understand, and would appreciate your thoughts please.
Can you tell me, how all my MRI's talk about 3.5mm, through the years. Then in 2014, 6.6mm is noted. 2015/2016 back to 3.5.
Can you tell me how 3.5mm can be seen, and 6.6 can be seen, but the focus is only on the 3.5mm, since 2010.
My double vision and balance problems began in 2014, a 6.6mm lesion was noted. Now either the 6.6mm is relevant or not relevant, but if this lesion is the cause of my symptoms, i will need to know why the focus turned away from that, and the focus is on the 3.5mm.
I need clarification because 6.6 is bigger than 3.5 and this needs clearing up for me.
Marian
There is one thing that i don't understand, and would appreciate your thoughts please.
Can you tell me, how all my MRI's talk about 3.5mm, through the years. Then in 2014, 6.6mm is noted. 2015/2016 back to 3.5.
Can you tell me how 3.5mm can be seen, and 6.6 can be seen, but the focus is only on the 3.5mm, since 2010.
My double vision and balance problems began in 2014, a 6.6mm lesion was noted. Now either the 6.6mm is relevant or not relevant, but if this lesion is the cause of my symptoms, i will need to know why the focus turned away from that, and the focus is on the 3.5mm.
I need clarification because 6.6 is bigger than 3.5 and this needs clearing up for me.
Marian
Happy is the heart. I'm confident my clinical questions will be resolved.
It seems my thread has got people in a conundrum. Well that's why clarification is needed. I don't blame you guy's for getting impatient, angry, but it just goes to show, that people on this forum have more than one opinion on this.
It could be so many things, but it's not MS? I say let's wait for the clinical answers to come back. Until then i wouldn't rush to say it's not MS. I would also not rush to give an opinion on my character, because that's got nothing to do with MS.
It seems my thread has got people in a conundrum. Well that's why clarification is needed. I don't blame you guy's for getting impatient, angry, but it just goes to show, that people on this forum have more than one opinion on this.
It could be so many things, but it's not MS? I say let's wait for the clinical answers to come back. Until then i wouldn't rush to say it's not MS. I would also not rush to give an opinion on my character, because that's got nothing to do with MS.
6 Comments
Actually, some of us said we don't know whether it's ms or not. I never suggested it wasn't . It might be, but if it is, you are not yet disgnosable by the neuro. It might not be. Unfortunately that's limbo. It is a frustrating time of waiting. Getting angry, pushing buttons --
None of that helps you
Survive the unknowns, nor does anger and stress help your symptoms. It will aggravate them.
Please don't remind me of your lesions again. They are not enough for a diagnosis.
My main concern was your expectation that you would get answers by accusing the neurologist of missing a dx. He didn't miss it. You didn't meet criteria and you refuse to accept it.
I know it's hard -- my first two mris met McDonald criteria according to the radiologist. Neuro said no. He has more training than a general radiologist.
As I've said already ... You will find out eventually. Your questions will be answered. However the process is only fast when your tests and mris are textbook.
Yours are not. Honestly ...
As much as you think they are ...
They are not. Neither were mine.
Keep ruling out mimics ... Some of them are even more life altering and you don't want to miss them.
A psych could be your biggest ally --
Mine was. Don't discount the value of a MH assessment.
For what it's worth ...
None of that helps you
Survive the unknowns, nor does anger and stress help your symptoms. It will aggravate them.
Please don't remind me of your lesions again. They are not enough for a diagnosis.
My main concern was your expectation that you would get answers by accusing the neurologist of missing a dx. He didn't miss it. You didn't meet criteria and you refuse to accept it.
I know it's hard -- my first two mris met McDonald criteria according to the radiologist. Neuro said no. He has more training than a general radiologist.
As I've said already ... You will find out eventually. Your questions will be answered. However the process is only fast when your tests and mris are textbook.
Yours are not. Honestly ...
As much as you think they are ...
They are not. Neither were mine.
Keep ruling out mimics ... Some of them are even more life altering and you don't want to miss them.
A psych could be your biggest ally --
Mine was. Don't discount the value of a MH assessment.
For what it's worth ...
Hi aspen2,
I've got what you're saying, but the very fact that MS is mentioned as a cause for the first time in 2014 and again in 2016, is telling me, that there is evidence to support MS, more than not MS. I presented with double vision and balance problems in 2014.
Post traumatic and ischemia can be ruled out, because i didn't receive an injury to my head, and i didn't suffer stroke.
If i haven't met criteria for MS, then why would this neurologist ever refer to it and nothing else in asking for lumbar puncture. Why check for O Bands when there is nothing suggestive of MS.
If someone is going to make a claim, that i need to rule in or out MS using lumbar puncture as the decider, then i can only come to one conclusion. There is evidence of it. This is why i have asked the questions i have, based on what he himself said. I don't know what criteria he followed.
He has referred to many thing's this neurologist as being a cause for double vision and balance problems. He claimed it was psychological, following me having seen another neurologist for an opinion, which I am entitled to do. He claimed psychological, he needs to have evidence to make such a claim, which he didn't. He referred me to a psychologist, and as the psychologist said to me, did this neurologist know your past? I said he knew nothing of my past. Make out of that what you will.
The psychologist herself said, my physical symptoms cannot be ignored, she understood that i needed more clarification from this neurologist, in order to understand what evidence did he have to claim my symptoms are psychological. He had clinical evidence of changes on my brain Mri 2014, I presented with double vision and balance problems in 2014. He specifically referred to MS in 2014, not psychological, not any other possible cause. He didn't appreciate I going for a second opinion why? My vitamin B12 was within range but just about in his lab results, in 2014, now it's very low. If he is correct and my symptoms are psychological, he first needs to clarify what prompted him to refer to MS following my brain Mri 2014, and why was lumbar puncture the decider. If he can give the answers to this, i will then know whether MS is the most likely cause or not. He cannot rule it in or out definitely on lumbar puncture results alone, without having evidence to suggest why he needed to use it as the decider. Just like he cannot claim its psychological without having evidence to back up his claim. He needs now to decide which it is based on evidence.
I've had enough if running around like a headless chicken, and each time this Mri being avoided. I'm going back to the beginning because this is where my answer is. Let him deal with this, his claims, and his evidence. I have no idea what criteria this neurologist followed, but he is obligated to clear this up, because he made clinical claims of two things, which is it?
Marian
I've got what you're saying, but the very fact that MS is mentioned as a cause for the first time in 2014 and again in 2016, is telling me, that there is evidence to support MS, more than not MS. I presented with double vision and balance problems in 2014.
Post traumatic and ischemia can be ruled out, because i didn't receive an injury to my head, and i didn't suffer stroke.
If i haven't met criteria for MS, then why would this neurologist ever refer to it and nothing else in asking for lumbar puncture. Why check for O Bands when there is nothing suggestive of MS.
If someone is going to make a claim, that i need to rule in or out MS using lumbar puncture as the decider, then i can only come to one conclusion. There is evidence of it. This is why i have asked the questions i have, based on what he himself said. I don't know what criteria he followed.
He has referred to many thing's this neurologist as being a cause for double vision and balance problems. He claimed it was psychological, following me having seen another neurologist for an opinion, which I am entitled to do. He claimed psychological, he needs to have evidence to make such a claim, which he didn't. He referred me to a psychologist, and as the psychologist said to me, did this neurologist know your past? I said he knew nothing of my past. Make out of that what you will.
The psychologist herself said, my physical symptoms cannot be ignored, she understood that i needed more clarification from this neurologist, in order to understand what evidence did he have to claim my symptoms are psychological. He had clinical evidence of changes on my brain Mri 2014, I presented with double vision and balance problems in 2014. He specifically referred to MS in 2014, not psychological, not any other possible cause. He didn't appreciate I going for a second opinion why? My vitamin B12 was within range but just about in his lab results, in 2014, now it's very low. If he is correct and my symptoms are psychological, he first needs to clarify what prompted him to refer to MS following my brain Mri 2014, and why was lumbar puncture the decider. If he can give the answers to this, i will then know whether MS is the most likely cause or not. He cannot rule it in or out definitely on lumbar puncture results alone, without having evidence to suggest why he needed to use it as the decider. Just like he cannot claim its psychological without having evidence to back up his claim. He needs now to decide which it is based on evidence.
I've had enough if running around like a headless chicken, and each time this Mri being avoided. I'm going back to the beginning because this is where my answer is. Let him deal with this, his claims, and his evidence. I have no idea what criteria this neurologist followed, but he is obligated to clear this up, because he made clinical claims of two things, which is it?
Marian
Hi aspen2,
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Hi aspen2,
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Hi aspen2,
This is neurologist no 3 findings in London.
She was alert, lucid, and oriented. Ocular examination. At times there was intermittent opthalmoplegia on lateral gaze which was self correcting. Tone, power and reflex pattern normal. I felt her plantars went up bilaterally with altered heel to toe movements.
I do think she requires further investigation, though her symptom complex is difficult. Mri imaging to be reviewed. Neuropscyometery and neuro ophthalmology is what he advised.
Saw the neuro ophthalmologist, i posted his findings awhile back. Neuropsycometery i will be attending in June. The neuroradiologisit reports from London i also posted awhile back.
The fourth neurologists findings and diagnosis.
Neurological examination was normal, including visual acuity, visual fields, eye movements, fundoscopy, screening tests for pronator drift and ataxia, tandem gait, reflexes and plantar responses. In particular there is no evidence of fatigability on prolonged upgaze or on prolonged activation of the upper. limbs. We looked at her Mri Brain scans. May i add here, he didn't want to view my brain Mri 2014. I showed her that there are some small white matter changes on the brain scan, which are commonly seen as incidental findings. They do not have the pattern and volume typical for demyelination. There is no significant cumulative increases in these white matter changes with time.
In summary the symptoms are more suggestive of chronic fatigue type / Fibromyalgia syndrome. Her story and examination is not typical for MS, She has been doing a lot of reading on MS, and was able to quote the McDonald Criteria to me regarding Mri imaging, and ask me questions about possible juxtacortical lesions. He himself when asked about juxtacortical said yes they are on the tip of the juxtacortical. He didn't however want to discuss my brain Mri 2014, particularly the 6.6mm lesion. Her normal neurological examination would go against her symptoms being related to her borderline low vitamin B12, levels nonetheless i would agree with continuing replacement of this vitamin. I told her multiple sclerosis is very unlikely and would not recommend further neurological imaging at this point. I have not arranged to see her back in clinic routinely. If you meaning my GP, feels she warrants further assessment please don't hesitate to contact me.
That's it all their findings, and opinions. But neurologist no 1 never gave his findings on my neurological examination, before he admitted me to hospital, and while I was there.
Four neurologists, avoided my brain Mri 2014 in some way. Neurologist no 1, doesn't want to discuss it personally, and i got the impression he didn't like i had a copy of the report, because having gone back to see him, following my consultation with neurologist no 2, showing him his letter, and the spinal surgeon's letter, he said to me i don't know my own mind, and stop going to other neurologists. This has to stop right now he said. Your symptoms are psychological.Didn't want to discuss the brain Mri 2014.
Neurologist no 2 arranged a second Mri with contrast. He gave no clinical question or previous imaging for comparison to the radiologist. The radiologist wrote in his report that no clinical question was given for which prompted this Mri.
The third neurologist, said it would be very important that a neuroradiologisit view my MRI's. All were viewed, except 2014. Almost a year later, having asked for a copy of the radiologists report, i asked why this was. The clinic in London told me it wasn't listed on their system. No explanation other than that. I returned the disc to be viewed along with my Mri 2016. This is the neuroradiologisits report.
2016 report.
Comparison made with the previously reviews Mri Brain dating back to 2011. The only interval change is some increase in size of nasopharyngeal mucous retention cysts that are of no clinical significance. The few unconcerning previously described tiny predominantly subcortical T2 hyperintense foci in both frontal lobes are unchanged.
2014 report.
Comparison made with the previously reviews Mri Brain studies dating back to 2011, and from 2015. The study under review shows no additional Parenchymal lesions or other adverse features when compared with the penultimate or subsequent study. As previously described, there are a few tiny predominantly subcortical T2 hyperintense foci in both frontal lobes which although non specific are within normal limits for age, a common incidental finding and essentially stable for several years. Very broad terms regarding location are given in both her reports.
The neurologist himself in London never made a comment either way regarding my imaging.
The fourth neurologist, said he doesn't look at past MRI's, only present ones. Twice i asked him to view 2014, he didn't, and when he did load it, he very quickly skimmed through just the sequences that were written, but never brought up any images.
I felt he wanted me out the door and he just didn't want to discuss this Mri with me. None of them want to discuss this, why?
Is it because there simply is absolutely nothing on it, or is there something on it? It's the only one out of all radiologists reports given, noting a 6.6mm lesion. Is this why?
I'm sorry aspen2, but when something is wrong here, and i need clarification. Am i crazy? Or is something else amiss?
Appreciate your thoughts. I have now given the points as to why i need clarification. Have i lost it or what?
Hugs Marian
This is neurologist no 3 findings in London.
She was alert, lucid, and oriented. Ocular examination. At times there was intermittent opthalmoplegia on lateral gaze which was self correcting. Tone, power and reflex pattern normal. I felt her plantars went up bilaterally with altered heel to toe movements.
I do think she requires further investigation, though her symptom complex is difficult. Mri imaging to be reviewed. Neuropscyometery and neuro ophthalmology is what he advised.
Saw the neuro ophthalmologist, i posted his findings awhile back. Neuropsycometery i will be attending in June. The neuroradiologisit reports from London i also posted awhile back.
The fourth neurologists findings and diagnosis.
Neurological examination was normal, including visual acuity, visual fields, eye movements, fundoscopy, screening tests for pronator drift and ataxia, tandem gait, reflexes and plantar responses. In particular there is no evidence of fatigability on prolonged upgaze or on prolonged activation of the upper. limbs. We looked at her Mri Brain scans. May i add here, he didn't want to view my brain Mri 2014. I showed her that there are some small white matter changes on the brain scan, which are commonly seen as incidental findings. They do not have the pattern and volume typical for demyelination. There is no significant cumulative increases in these white matter changes with time.
In summary the symptoms are more suggestive of chronic fatigue type / Fibromyalgia syndrome. Her story and examination is not typical for MS, She has been doing a lot of reading on MS, and was able to quote the McDonald Criteria to me regarding Mri imaging, and ask me questions about possible juxtacortical lesions. He himself when asked about juxtacortical said yes they are on the tip of the juxtacortical. He didn't however want to discuss my brain Mri 2014, particularly the 6.6mm lesion. Her normal neurological examination would go against her symptoms being related to her borderline low vitamin B12, levels nonetheless i would agree with continuing replacement of this vitamin. I told her multiple sclerosis is very unlikely and would not recommend further neurological imaging at this point. I have not arranged to see her back in clinic routinely. If you meaning my GP, feels she warrants further assessment please don't hesitate to contact me.
That's it all their findings, and opinions. But neurologist no 1 never gave his findings on my neurological examination, before he admitted me to hospital, and while I was there.
Four neurologists, avoided my brain Mri 2014 in some way. Neurologist no 1, doesn't want to discuss it personally, and i got the impression he didn't like i had a copy of the report, because having gone back to see him, following my consultation with neurologist no 2, showing him his letter, and the spinal surgeon's letter, he said to me i don't know my own mind, and stop going to other neurologists. This has to stop right now he said. Your symptoms are psychological.Didn't want to discuss the brain Mri 2014.
Neurologist no 2 arranged a second Mri with contrast. He gave no clinical question or previous imaging for comparison to the radiologist. The radiologist wrote in his report that no clinical question was given for which prompted this Mri.
The third neurologist, said it would be very important that a neuroradiologisit view my MRI's. All were viewed, except 2014. Almost a year later, having asked for a copy of the radiologists report, i asked why this was. The clinic in London told me it wasn't listed on their system. No explanation other than that. I returned the disc to be viewed along with my Mri 2016. This is the neuroradiologisits report.
2016 report.
Comparison made with the previously reviews Mri Brain dating back to 2011. The only interval change is some increase in size of nasopharyngeal mucous retention cysts that are of no clinical significance. The few unconcerning previously described tiny predominantly subcortical T2 hyperintense foci in both frontal lobes are unchanged.
2014 report.
Comparison made with the previously reviews Mri Brain studies dating back to 2011, and from 2015. The study under review shows no additional Parenchymal lesions or other adverse features when compared with the penultimate or subsequent study. As previously described, there are a few tiny predominantly subcortical T2 hyperintense foci in both frontal lobes which although non specific are within normal limits for age, a common incidental finding and essentially stable for several years. Very broad terms regarding location are given in both her reports.
The neurologist himself in London never made a comment either way regarding my imaging.
The fourth neurologist, said he doesn't look at past MRI's, only present ones. Twice i asked him to view 2014, he didn't, and when he did load it, he very quickly skimmed through just the sequences that were written, but never brought up any images.
I felt he wanted me out the door and he just didn't want to discuss this Mri with me. None of them want to discuss this, why?
Is it because there simply is absolutely nothing on it, or is there something on it? It's the only one out of all radiologists reports given, noting a 6.6mm lesion. Is this why?
I'm sorry aspen2, but when something is wrong here, and i need clarification. Am i crazy? Or is something else amiss?
Appreciate your thoughts. I have now given the points as to why i need clarification. Have i lost it or what?
Hugs Marian
Sorry aspen2, but can i just say i know you didn't want me to talk about my lesions, but facts are facts. All other Mri reports talk about 3mm over the years. It's 2014 which notes 6.6mm. 2015, 2016, notes 2/3mm in 2015. Up to 3.5mm in 2016. Tell me aspen2 if they can see this 3mm, why can't they see the 6.6mm ?
The same radiologist, sees 2/3 and 3.5mm. Was supposed to do an addendum regarding my Mri 2015/2016 didn't do it. Just verbally confirmed through someone else, there is no change.
6.6mm and 3.5mm are two different measurements. They can all talk about the 3.5mm, but they don't want to discuss the 6.6mm. Is this not odd?
Marian
The same radiologist, sees 2/3 and 3.5mm. Was supposed to do an addendum regarding my Mri 2015/2016 didn't do it. Just verbally confirmed through someone else, there is no change.
6.6mm and 3.5mm are two different measurements. They can all talk about the 3.5mm, but they don't want to discuss the 6.6mm. Is this not odd?
Marian
Hi JJ,
Just to let you know, i will update you when i receive clinical answers. I'm confident my issues will be resolved.
It shouldn't be too long now.
Marian.
Just to let you know, i will update you when i receive clinical answers. I'm confident my issues will be resolved.
It shouldn't be too long now.
Marian.
COMMUNITY LEADER
Gosh your a sweetheart, I've always been calm and patient, brutally honest though, very open minded, and i think it's mainly my desire to understand and support my family members and friends with disabilities, having a life long fascination in psychology, brain plasticity and working with children finding their strengths to work around their weaknesses, has all definitely helped me keep a healthy head space lol and never giving up until it's done is what probably still keeps me climbing ladders no matter how many times i find my self unexpectedly on my butt yet again.....
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
COMMUNITY LEADER
Gosh your a sweetheart, I've always been calm and patient, brutally honest though, very open minded, and i think it's mainly my desire to understand and support my family members and friends with disabilities, having a life long fascination in psychology, brain plasticity and working with children finding their strengths to work around their weaknesses, has all definitely helped me keep a healthy head space lol and never giving up until it's done is what probably still keeps me climbing ladders no matter how many times i find my self unexpectedly on my butt yet again.....
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
JJ, thank you for your always-well-reasoned and calm approach. I am not very knowledgeable about this potential psychiatric issue and tend to take people at face value. (Presumed) abuse could certainly leave scars, I get that. it's odd, though, that this could take the form of verbally attacking someone else, a total stranger who had spent quite a lot of time trying to be of help. Perhaps though, it could form a pattern, and lashing out at others, possibly doctors, is part of that. Live and learn.
Maya Angelou said, 'If someone shows you who they are, believe them (the first time).' Should have. My face-value self tells me that I didn't 'pre-judge,' but now, not venturing into the psychiatric realm and backing out of this fray, I can post-judge at leisure.
Maya Angelou said, 'If someone shows you who they are, believe them (the first time).' Should have. My face-value self tells me that I didn't 'pre-judge,' but now, not venturing into the psychiatric realm and backing out of this fray, I can post-judge at leisure.
JJ,
I asked for all your guy's thoughts. I took them on board. I don't agree that I don't have MS. I'm entitled to agree or disagree, just like you guy's are entitled to agree or disagree with me.
However, not once did i pre judge or condemn anyone's character on this forum, until my character was brought into this by someone else. I defended my character because it was attacked.
I've set the record straight, by letting the person who took it upon themselves to attack my character, that until you walk in my shoes, don't judge me. I have my opinion, you guy's have yours.
Just like you've given your opinion above about seeing a psychiatrist for conversion disorder, I've taken on board. The point I'm making here is I can take criticism to a certain extent, but attack who i am without knowing me just went a step too far.
I hope by me sharing my life sentence, that it shows my strength of character,. I'm proud to say I've achieved tremendous strength of mind, because i didn't have a choice but to find that strength myself, and when i say myself, i mean myself and no one else.
Psychological, psychiatry, I've been there, and I found that for me personally, that I'm my own best councillor when it comes to my mental health. I also know the difference between physical and mental illness. My symptoms are not i firmly believe as a consequence of my upbringing. This is why also I've asked questions of this neurologist, because claimed they were, when i know from experience they are not, anything I've ever suffered with depression, and I've been in the depths let me tell you.
My stance remains the same. When clarification is given first on my MRI's that my symptoms are not related to the changes noted, then i will see psychiatric help.
I read an article on schizophrenia. where brain imaging is concerned, i don't believe I have schizophrenia, not based on the reports of my MRI's, or my symptoms.
Marian
I asked for all your guy's thoughts. I took them on board. I don't agree that I don't have MS. I'm entitled to agree or disagree, just like you guy's are entitled to agree or disagree with me.
However, not once did i pre judge or condemn anyone's character on this forum, until my character was brought into this by someone else. I defended my character because it was attacked.
I've set the record straight, by letting the person who took it upon themselves to attack my character, that until you walk in my shoes, don't judge me. I have my opinion, you guy's have yours.
Just like you've given your opinion above about seeing a psychiatrist for conversion disorder, I've taken on board. The point I'm making here is I can take criticism to a certain extent, but attack who i am without knowing me just went a step too far.
I hope by me sharing my life sentence, that it shows my strength of character,. I'm proud to say I've achieved tremendous strength of mind, because i didn't have a choice but to find that strength myself, and when i say myself, i mean myself and no one else.
Psychological, psychiatry, I've been there, and I found that for me personally, that I'm my own best councillor when it comes to my mental health. I also know the difference between physical and mental illness. My symptoms are not i firmly believe as a consequence of my upbringing. This is why also I've asked questions of this neurologist, because claimed they were, when i know from experience they are not, anything I've ever suffered with depression, and I've been in the depths let me tell you.
My stance remains the same. When clarification is given first on my MRI's that my symptoms are not related to the changes noted, then i will see psychiatric help.
I read an article on schizophrenia. where brain imaging is concerned, i don't believe I have schizophrenia, not based on the reports of my MRI's, or my symptoms.
Marian
COMMUNITY LEADER
sorry marian auto correct changed a word and altered it's meaning, it should read "Childhood sexual-physical-emotional abuse is well recognized 'potential' medical explanation for un-explainable physical issues and should always be investigated by a psychiatrist highly qualified in diagnosing conversion disorders."
COMMUNITY LEADER
As someone who has experienced being in a situation with someone in a full blown paranoid delusional psychotic schizophrenic episode, unfortunately whilst sitting at my kitchen table......I would highly recommend 'IF' you truly fear you may have a serious un-diagnosed mental health issue that can endanger you and or others, please please seek professional mental health assessment and appropriate mental health support!
Considering a supportive side post to me has made you upset enough to give voice to your frustration, I would just like to respectfully remind you that this is an MS community and you are attacking a well respected member of our community who has not done what your attacking her for.....you have unfortunately 'assumed' a supportive post to me was a somewhat back handed attack on your character and for you to have turned something positive for 'me' into a negative against 'you', you would need to be assuming there is more meaning between the lines than the actual words that were written, the only person who has attacked someone from this misunderstanding is actually you, please stop!!
In regards to the tragic situation of your childhood, i personally do think childhood abuse of such magnitude can be a very relevant factor in neur-psychology and warrants further investigation when ever there are mimicking neurological issues without corroborating diagnostic abnormality. Childhood sexual-physical-emotional abuse is well recognized 'potential' medical explanation for explainable physical issues and should always be investigated by a psychiatrist highly qualified in diagnosing conversion disorders.
Please consider the validity of what i've mentioned, take a step back for a moment, take a deep breath and consider taking into account the potential of your childhood being a factor in what you're dealing with in adulthood, if there is even a slight merit to it, then please be proactive and find out for sure...
Peace...........JJ
Considering a supportive side post to me has made you upset enough to give voice to your frustration, I would just like to respectfully remind you that this is an MS community and you are attacking a well respected member of our community who has not done what your attacking her for.....you have unfortunately 'assumed' a supportive post to me was a somewhat back handed attack on your character and for you to have turned something positive for 'me' into a negative against 'you', you would need to be assuming there is more meaning between the lines than the actual words that were written, the only person who has attacked someone from this misunderstanding is actually you, please stop!!
In regards to the tragic situation of your childhood, i personally do think childhood abuse of such magnitude can be a very relevant factor in neur-psychology and warrants further investigation when ever there are mimicking neurological issues without corroborating diagnostic abnormality. Childhood sexual-physical-emotional abuse is well recognized 'potential' medical explanation for explainable physical issues and should always be investigated by a psychiatrist highly qualified in diagnosing conversion disorders.
Please consider the validity of what i've mentioned, take a step back for a moment, take a deep breath and consider taking into account the potential of your childhood being a factor in what you're dealing with in adulthood, if there is even a slight merit to it, then please be proactive and find out for sure...
Peace...........JJ
You said I condemned your character. Look at your own post. I've never mentioned your character, only your own words. But since you've decided to use victimhood, a completely irrelevant factor, to attack me and turn vile, I'll give all future posts of yours all the attention they merit, which is precisely none. Is that how you treat anyone who makes valid points that you don't like? Whatever sympathy you may deserve has been more than eradicated.
1 Comments
Thank you I would appreciate you do that.
I just wanted to state that in no case of MS should abuse be brought up, period!
It has nothing to do with this forum and to even mention it lacks judgement.
Ess and JJ have answered your questions repeatedly and have done so with professionalism and patience. I have the utmost respect and admiration for you both.
Marian, I am truly sorry for your medical problems, I really am. We as a community cannot give you the answers you need to hear and have tried to help as much as we can.
Many of us have been through the ringer and back medically and can have empathy for you.
Good luck in the future,
Barb
It has nothing to do with this forum and to even mention it lacks judgement.
Ess and JJ have answered your questions repeatedly and have done so with professionalism and patience. I have the utmost respect and admiration for you both.
Marian, I am truly sorry for your medical problems, I really am. We as a community cannot give you the answers you need to hear and have tried to help as much as we can.
Many of us have been through the ringer and back medically and can have empathy for you.
Good luck in the future,
Barb
1 Comments
Thanks for your thoughts.
MS or no MS, i will let you know the outcome.
I'm more than thankful for the forum's patience, understanding, and explanations.
But i have my opinion, which is that there are unanswered questions regarding my case, that have yet to be given clarification on. Limboland or not, questions regarding certain issues have not been resolved. I'm waiting patiently for clarification, when i get it which i believe I will, it will hopefully put an end to all of this for me. It's not been easy and I'm nearing an exit, i believe.
I have gone with my gut, i have asked the neurologist clinical questions. I cannot force a neurologist to do anything. But I am entitled to ask questions regarding my health under his care if i feel he didn't adequately address my concerns. That's the law in my country, if you're not happy with a service you can complain.
I'm confident based on the evidence that i will get all this confusion regarding my Brain MRI 2014, and previous MRI's that were used for comparison once and for all clarified so i can better understand, the differences noted on them, and if those differences are connected to my symptoms.
Marian
MS or no MS, i will let you know the outcome.
I'm more than thankful for the forum's patience, understanding, and explanations.
But i have my opinion, which is that there are unanswered questions regarding my case, that have yet to be given clarification on. Limboland or not, questions regarding certain issues have not been resolved. I'm waiting patiently for clarification, when i get it which i believe I will, it will hopefully put an end to all of this for me. It's not been easy and I'm nearing an exit, i believe.
I have gone with my gut, i have asked the neurologist clinical questions. I cannot force a neurologist to do anything. But I am entitled to ask questions regarding my health under his care if i feel he didn't adequately address my concerns. That's the law in my country, if you're not happy with a service you can complain.
I'm confident based on the evidence that i will get all this confusion regarding my Brain MRI 2014, and previous MRI's that were used for comparison once and for all clarified so i can better understand, the differences noted on them, and if those differences are connected to my symptoms.
Marian
Ah, victimhood, the last bastion of the hemmed in. No one here, including me, has condemned you or judged your character in any way. What has been pointed out repeatedly is that what you report, over and over, is not consistent with a diagnosis of MS. Moreover, you are not a diagnostician and you cannot force a doctor to agree with your opinion. Therefore, if you truly want relief from your symptoms, you should look elsewhere. I have several times asked what you're doing NOW about your health problems. No response to that. Even though you hope for a review from this doctor, there is nothing to keep you from also getting new help.
You write, 'My struggle to find answers to my symptoms is not what you think it is.' So what is it, if not what you have told us dozens of times? The only conclusions to be drawn must be made from what you have written. Does that not speak for itself?
You further write, 'This forum has given advice, and I have taken it on board.' Possibly so, if 'taken it on board' means rejecting and/or ignoring it. I've been on this forum many years, and I've seen some disagreements in that time. That's all to the good and in fact can be beneficial. Sometimes people who feel strongly enough, though, decide it's not worth the time and trouble, so just let things go. But before now I've never seen anyone repeat vociferously the exact same points, over and over, dozens of times, regardless of universal advice to the contrary. To begin with, I for one thought you really just didn't understand, so I did my best to help in that regard. I ultimately was forced to conclude that whatever you do want from this forum, it's not actually help, and thus I stopped trying. But as JJ is one with more patience than I, my last post before this one is in acknowledgement of that, nothing more.
Although I have not judged you, you certainly have judged me in your comments above. You know precisely nothing about me, including whether or not I've been a victim of anything. That's not something I'd ever post here because it is totally beside the point of this forum. You know nothing about my life experiences, so kindly refrain from further personal attacks. Victimhood does not entitle you to those.
You write, 'My struggle to find answers to my symptoms is not what you think it is.' So what is it, if not what you have told us dozens of times? The only conclusions to be drawn must be made from what you have written. Does that not speak for itself?
You further write, 'This forum has given advice, and I have taken it on board.' Possibly so, if 'taken it on board' means rejecting and/or ignoring it. I've been on this forum many years, and I've seen some disagreements in that time. That's all to the good and in fact can be beneficial. Sometimes people who feel strongly enough, though, decide it's not worth the time and trouble, so just let things go. But before now I've never seen anyone repeat vociferously the exact same points, over and over, dozens of times, regardless of universal advice to the contrary. To begin with, I for one thought you really just didn't understand, so I did my best to help in that regard. I ultimately was forced to conclude that whatever you do want from this forum, it's not actually help, and thus I stopped trying. But as JJ is one with more patience than I, my last post before this one is in acknowledgement of that, nothing more.
Although I have not judged you, you certainly have judged me in your comments above. You know precisely nothing about me, including whether or not I've been a victim of anything. That's not something I'd ever post here because it is totally beside the point of this forum. You know nothing about my life experiences, so kindly refrain from further personal attacks. Victimhood does not entitle you to those.
1 Comments
You're right i don't know you, and no one but you brought character into this, so you get back my observation of your character. If you don't like it , tough luck.
As you said yourself, that's life, it's not fair, etc etc ...
Being a victim does give me rights. Stand up and defend myself when my character has been attacked, even though you were only acknowledging JJ's patience. You most certainly are entitled to acknowledge who you wish, but not at the expense of pre judging my character.
As you said yourself, that's life, it's not fair, etc etc ...
Being a victim does give me rights. Stand up and defend myself when my character has been attacked, even though you were only acknowledging JJ's patience. You most certainly are entitled to acknowledge who you wish, but not at the expense of pre judging my character.
JJ, you have the patience of a saint, which I decidedly do not. You have explained over and over why nothing reported can be the basis for an MS diagnosis, and that hasn't made even a slight impact. I believe that if there were a loud clap of thunder, the heavens opened, and a celestial voice boomed, 'THIS IS NOT MS,' the poster would simply rearrange the same objections that she's posted dozens of times and state them again.
It's been my experience that people who obsess like this, contentiously and with extreme indignation, don't limit this facet of their personalities to one area. Consequently, their lives are full of struggles against lots of individuals and institutions. That makes for a very unhappy life. A sad situation. Of course I am not saying this poster is that way, as I don't know her. Just stating an observation as one who's lived many years.
It's been my experience that people who obsess like this, contentiously and with extreme indignation, don't limit this facet of their personalities to one area. Consequently, their lives are full of struggles against lots of individuals and institutions. That makes for a very unhappy life. A sad situation. Of course I am not saying this poster is that way, as I don't know her. Just stating an observation as one who's lived many years.
1 Comments
essdipity,
Don't judge me till you walk in my shoes. Whether I fit your poster or not doesn't give you the right to condemn my character.
Either way, you shouldn't treat me any different than you yourself would expect to be treated.
It would seem to me, though living long you haven't experienced sexual, physical or emotional abuse together as one. My experiences are that of being given a life sentence to deal with what other people got gratification from. I am a victim. That is sad.
I don't know your life's experiences, but i would just like to give one small bit of advice, think what you may, but be careful how you relay your thoughts. Don't expect, that just because you've lived longer, you've somehow mastered your mind. You clearly have not, because in order to do that, you've got to experience things on another level, and i for one doubt very much that you have.
Your thoughts, and the way you relay them suggest to me that your character is one of little experience when it comes to being a victim, the life sentence it brings with it and the wisdom to know what's right from wrong.
My struggle to find answers to my symptoms is not what you think it is. This forum has given advice, and I have taken it on board. I'm not happy with what's been noted on my Brain Mri 2014. I believe there is more to it, and I'm a pretty good judge where my instinct is concerned, it's got me to where I am today, so I'm going with it like i always have. I trust it so we'll see if it's right or wrong.
Marian
Don't judge me till you walk in my shoes. Whether I fit your poster or not doesn't give you the right to condemn my character.
Either way, you shouldn't treat me any different than you yourself would expect to be treated.
It would seem to me, though living long you haven't experienced sexual, physical or emotional abuse together as one. My experiences are that of being given a life sentence to deal with what other people got gratification from. I am a victim. That is sad.
I don't know your life's experiences, but i would just like to give one small bit of advice, think what you may, but be careful how you relay your thoughts. Don't expect, that just because you've lived longer, you've somehow mastered your mind. You clearly have not, because in order to do that, you've got to experience things on another level, and i for one doubt very much that you have.
Your thoughts, and the way you relay them suggest to me that your character is one of little experience when it comes to being a victim, the life sentence it brings with it and the wisdom to know what's right from wrong.
My struggle to find answers to my symptoms is not what you think it is. This forum has given advice, and I have taken it on board. I'm not happy with what's been noted on my Brain Mri 2014. I believe there is more to it, and I'm a pretty good judge where my instinct is concerned, it's got me to where I am today, so I'm going with it like i always have. I trust it so we'll see if it's right or wrong.
Marian
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Yes, it's confusing. But you are not hearing the explanations. You did say you would consider moving on to a new neuro or ms neuro and that seems like a good decision.
Not much else any of us can do at this point ... Hopefully you can come to peace with your time in limbo. It IS dumbfounding, however you will have an answer at some point.
I had a permanent disability by the time I was finally diagnosed ... It is upsetting and frustrating ... But the diagnostic process depends on certain elements that must be there ... Not for us, but for the diagnosing neurologist.
Don't forget the link I sent you ... ☺️
aspen