Calling all Rebif Users both Past and Present

[shelleyannjohnson]

I have been on rebif for 2 years now. My question to all who are on or have been on Rebif is: do the areas where you have injected hurt? I don't mean right after the injection or even 1 week later. For example, both of my upper legs hurt when I lean against a counter top, even though I have not injected there for over 3 weeks. My hip areas where I have injected will ache as well if I turn just right when I am sitting down.

I am actually thinking of taking a break from Rebif. I didn't expect painful areas when I haven't injected for weeks at a time in a certain area. Has anyone else experienced what I am talking about? If so, what did you do about it?

[Mike_Shuswap]

I haven't had quite the same problem, but I did have such a painful injection once in the back of my arm that I quit injecting in the arms.

It really stung during the injection, and continued to hurt for over 2 weeks after. It felt like I had been punched, felt tender and bruised, although there was no visable bruising.

As far as 1 week after injection, no pain, other than that one time, only big red areas, especially in the belly.

Could you just skip injecting in the sore areas, or are all you sites getting sore?

Would you see your neuro before deciding to stop the Rebif? I think you should consult with your neuro first.

If you do quit using Rebif, I think you'd have to taper down and not just quit cold turkey, but I don't know for sure.

Good luck with deciding what to do

Mike

[sllowe]

Hi there,

Sounds like you may have some bruising going in. Do you use an auto injector?  I don't think you need to stop, you just may have to adjust spots or injection technique. Hips and stomach are my best spots, and yes, I do have some soreness too but only once in awhile in my thigh. I only feel it if I push on the spot. So, it doesn't bother me because it's spots that don't get pushed too often.

Question for you - are you injecting high in your thigh? If so, the better spot would be lower, not as low as your knee, but higher than the knee and lower than high thigh.

Hip is less hip and more love handle. So, if you place the palm of your hand on your butt cheek then come straight up and then over to the left or the right. And, that hunk of skin there takes injections well.  The charts they provide are definitely off in my opinion.

I inject straight up and find is way less abrasive than the auto-injector.

Bumping up a DMD user list for you so you can do a shout out to some others if you like.

http://www.medhelp.org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746

Hope to help - please ask anything!

-Shell