In April of this year (2010) I developed optic neuritis in my left eye (which is still present today). I have done a lot of research on optic neuritis to find it can be brought on by MS. I had a brain MRI at the time of diagnosis that showed no lesions. Since that outbreak of optic neuritis I have had HORRIBLE sciatic nerve/lower back and sacral pain. I was told by the optic neurologist that she was 90% sure I didn't have MS after I had the brain MRI. I have not had a lumbar puncture or spine MRI (they are so expensive). I'm wondering if my pain could be related. Could spinal lesions cause the pain and numbness in my back?? I work in an ER and am in nursing school. I am so frustrated to be in so much pain and not know what is causing it. I am usually a healthy person. I'm not used to being in pain and suffering so much.
I have spine lesions, and it causes a lot of back pain. I can also tell I have spine lesions from the patterns of numbness on my back. Usually the pain is from spasms around the lesions, either all the way around, or in my shoulder area.
What was the strength of your brain MRI? Sometimes a low-tesla MRI won't show MS lesion activity. Try a 3T if you can find it.
I have one little lesion on my brain. The others are on my spinal cord and brain stem. My biggest complaint is lower back pain. It is like a raw open nerve. So yes, spinal lesions can cause back pain...big time back pain!
I agree with jensequitur. Make sure the strength of the machine is strong enough. It is how that little bitty lesion on my brain was missed. It is why the a@@ of a neuro looked no future. It is why my body is in the condition it is today.
Before my latest MRI showed subtle lesions on my spine, my neuro suspected I had them due to many of my symptoms involving pain. His exact words in one of the reports from a visit were "I'm suspicious of lesions in the dorsal column which are notoriously hard to image. I'm concerned that this may progress to a pain syndrome."
I was diagnosed just this past August (symptoms started in Nov of last year). My MRI in the spring, and again just this month, are considered normal because my lesions are very subtle. My lumbar puncture was normal. I was diagnosed based on symptoms and neuro exams.
Thank you all so VERY much!! It is so frustrating to be in so much pain and not know what to do about it!! So next question, what did you all do about your pain?? I don't do well with narcotics.......they make me sick and I hate the feeling I have when I take them! :0(
@ jensequitur- i"ll find out what strength it was.....I'm suspicious now.....
@ Sumanadevii- if you were diagnosed sooner what could you have done to be in better shape now?? Meds?? How do you feel about taking medicine?? I'm kinda a big baby about taking anything. But if it will help me then i'm ok with it. ;0)
@ Wobbly- i've been thinking the same thing too but I just would hate to spend the $$ when I might be over reacting........sounds like I'm not from the posts so far!! THX!! :0)
@ Lovemy6monkeys- VERY interesting that you were diagnosed based on symptoms. I have thought of having a lumbar puncture (spinal tap) done but, honestly, I'm kind of afraid. I have had some neuro tests done, at my PCP and the Optic Neuro, they both say that my neuro function is good. I wonder, does this mean I don't have MS??
I'm learning the more I work in the medical field that not everyone reacts the same to pain and medications as well as presenting with the same symptoms for illnesses. We are ALL individual. I am also learning how hard it is to diagnose certain diseases like MS. Thank you all for your help!! I think I've come to the right place. ;0)
If I had been diagnosed sooner, I would have been on a DMD (disease modifying drug) which would (maybe, perhaps) prevented new lesions in my spine. I would have been given steroids to take the swelling down and not suffered so much pain.
Again, please keep searching. Don't give in. It is worth the battle.
The side effects far outweigh the good I receive from the steroids. It takes the swelling down lessening my pain. I am able to move around better. There are plus and minus in all MS treatment. I just consider this another.
Hi everyone. I am a 29 year old female. About 5 months ago I started having symptoms of bad headaches, dizzyiness, fatique, and seeing a squiggly line in my right eye. I had an MRI done with and without contrast, they found one small lesion in teh white matter of my brain. after that a series of tests. Later a spinal tap, which my nuerologist said showed over five bands that show up in a person with MS. Now since I only have the one lesion on my brain and those bands she is sending me for an MRI on my neck and spine to check for lesions there. I'm getting frustrated because this is so hard to diagnosis. Does anyone know at what point MS would cause lesions on the spine? She said if there are none I have to do follow ups every six months. Any info would be appreciated.
Yes, I totally believe the lesions in the spine cause extreme neck pain and numbness of back of my shoulders...feet and esp L leg up to butcheek. I wouldn't be so adamant to be "diagnosed" by one of those money grabbers (they get kickbacks for everything they rx and all the tests). If it quacks it's a duck and basically be your own Dr. I don't take any conventional "meds" but what I am on is LDN, Microdose Therapy and Armour Thyroid which has helped with the fatigue and bladder issues. Suggested book would be The MS Solution by Kathryn R Simpson.
Also ask yourself what is the real purpose of a "diagnosis" because there's nothing those "drs" can do either way except for prescribing their poison meds which they know NOTHING about. I love my Naturopath and he is my family Dr now, forget all the other bozos.
Jennifer/ My husband was diagnosed with MS in January - Lesions (white matter disease on his brain) and lesions in his spine, causing major shoulder and right side pain.... we are disperate for something that may help. Have they been able to relieve your spinal lesion pain?
I was sent to pain clinic by my neurologist. They have helped me a lot. Each person needs different medications. They found out I had nerve pain and muscle spasms. Neurologist give Gabenpentin, Lyrica, Trileptal and other drugs for nerve pain. Bacleoen is the most used for muscle spasms. They can even put a Baclofen pump in the spine. I also take narcotics for my pain. I have been on them so long I do not notice them at all. They do not make me loopy.
This is an old post. Sometimes people do not look at the older posts.
Feel free to post any new questions.
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