Just when I want to sit in a corner and suck my thumb, along comes a strong one to lead the way. Cancer and MS!!! What a combo!!!! Yet, there you are posting to us...just your words give encouragement. It is nice to meet you and I hope you stick around on the board.
Sumana
It's good to see you checking in - those German docs knew what they were doing with your MS dx, it's too bad this new one has to prove it again. But I can understand the precaiution on their part back here in the states.
Congrats on getting through the chemo - you're done, right? I love to hear these success stories.
welcome back - there arelots of new faces and stories - I hope you get to meet many of them as you time becomes available.
be well, L
Hello there, pleasure to meet you. I'm happy to hear your sister rocked her bald look too -- I think it's the best way to go! And I am glad she had great family support too!
Hi all!
Thanks for the well wishes. I'm very happy to be back in touch. My new neuro said he didn't want to start my mess without redoing all off my tests since they were done by a German doc off base and because it's been two years since they were done. Oh well ... Honestly I haven't done them again yet.
I was pretty frustrated -- the whole reason I ended up with cancer was because i was repeated denied a hysterectomy b/c I was too young they said -- didn't want me to go through menopause ... I was at risk for this cancer and they knew it, acknowledged it and still denied treatment, saying my risk wasn't that high. I feel like these docs send you in circles, so I'm just kinda treading water right now. I haven't had really any symptoms as of late ... I guess the chemo is good for that, they say. I am looking for a new neuro. I'm not opposed to some new MRIs but geez ... Not from square one again. LOL
So, how has everyone been?
I am glad you are hanging in there. You do have a special daughter. Sorry about having to start at square one. I had to do that twice and it is frustrating.
Alex
Welcome back, Ali. I don't think I have ever run across you, but it is nice to meet you. It is wonderful to have a loving and supportive family. Definitely makes it easier.
My little sister hated her wig when she lost hers. She decided that if grandpa could walk around bald, then she could, too. And she did it proudly...all three times she had to lose her hair. :)
I hope all is well on your cancer road and sorry you have to start over with neuro. Did he give you a reason why?
Addi
sorry, meant to type after 4 years, show no worse...
Welcome back!
I've missed you too and have thought about you often. You finished your treatments and then even went to the neuro?! Oh my - you are one tough woman. I'm so proud of you. I glad that woman w/no family support met you - how alone she must feel w/that - just horrible.
I'm sorry you are back to square one, lady - but suuure your taking it for what it is just for now. As for me, I'm not worse - so that's a good thing! I do think DMD has done me right - after 4 imaging shows no worse.
Your getting back into the swing? Hows your body feeling?
(((welcome back hugs))))
-Shell