Couple Questions

[MomofTwo83]

UGH!  I'm having that stomach tightening thing along with the MS hug both together tonight!  Actually it's been about 4 days now, in the mornings and afternoons I'm running around so much with two kids I don't notice it as much.  But now that things are settling down and kids are in bed I feel it FULL FORCE!  I feel like I have a corset starting just under my breasts down to about an inch or two below my belly button...but it's way WAY too tight!  
Does anyone have a remedy for the MS hug other than medication?  I don't have any other than tylenol which I have stopped using because of my liver issues.  This is seriously starting to drive me crazy.

Also, has anyone had a problem with only half of their foot going numb?  My heel and calf have gone numb...pins and needles numb!!!  Like I was out in the cold WAY too long.  It's weird...my toes are fine and my shin is fine...but my heel and calf are pins and needle numb/weird!!!  I can't even walk right...frustration cause I live on the 3rd floor and there is no elevator.  I have been walking on my toes on my left foot cause when I put my heel down I feel really REALLY unbalanced...such a weird feeling to have only half of my food numb.  I've had it all the way numb before...but never half numb.  Has anyone else had a half numb limb?  Is that normal for MS...funny to say that too since nothing is normal or abnormal it seems.

Thanks!!

Victoria

[MomofTwo83]

Oh and to add insult to injury...because I am walking so weird, my ankle now is starting to hurt...like I sprang it from walking so weird. hahahaha...it's not funny, but if I don't laugh about it I'll cry.

[MomofTwo83]

Hi!  
Thank you so much for your reply.  I am currently just clinically diagnosed with MS and don't have a full diagnosis...FRUSTRATED.  So my PCP who diagnosed me didn't start me on anything and wanted to leave it up to my neuro.  who can't get me in until the 31st.  He was the one who did my neuro. exam last year in July or August which I failed 3 parts of and my MRI only showed one lesion.  So he didn't diagnose me.  So I'm not sure what they will do or if they'll just tell me to wait until I come in on the 31st.

I know I am in a relapse right now...I know it!  But without a full diagnosis who is going t believe me.  My last doctor after my MRI said "you just need to exercise 6 days a week and go to counseling" and took me off ALL of my medication I was taking (Neurontin, Cymbalta, vicodin and flexeril when I needed the pain killers).  My eyes have been horrible, my cognitive abilities make me feel like I am seriously back in middle school.  I have to read out loud because when I don't I can't understand or retain ANYTHING... It's been horrible for the last 9 days now!  I love my new PCP so far, she was with me for over 30 minutes, listened to EVERYTHING I said and did some tests and told me that there is definitely something going on and she thinks it is MS.  Although she isn't an expert and didn't want to start me on anything until I saw my neurologist.  Which is fine, I understand that.  But I know that I am getting worse...I had about a 3 1/2 month period where everything was awesome!!!  I had energy again, no pain, could think clearly...no tremors or eye pain...I mean I felt awesome from October until almost 2 weeks ago.

I can totally understand how people get so frustrated they just quit trying....go into a deep depression or commit suicide.  Not that I would ever do that to my girls, but I can understand how it would come to that.  I can't believe that some people go 5, 10, 20, lifetime without a diagnosis or answers.  I think that just makes me worried even more because I have always been brushed off by my doctors.  ALWAYS...why in the hell would I make any of this up?  I can get drugs if that's my motive, I have insurance and can do counseling, therapy...etc.  I can't imagine anyone making this stuff up...so why am I always being told this is all in my head...or having my doctor give up on me.  Isn't there an oath they have to take?  Why would any doctor give up on any patient???  Isn't that why they became doctors...to help those people who desperately need help???

Crap...sorry for my rant...I seriously needed to vent and can't really talk to anyone here.  My family doesn't really believe me because they have no idea what I'm going through.  When I got my papers from my doctor said "you were diagnosed with MS" and showed them to my sister and dad...they were seriously shocked!  My husband is in Iraq and I don't want to stress him out with this.  And my friends...well I don't want to tell them till I get my full diagnosis, because I don't want to be thought of a hypochondriac...did I spell that right? Again...sorry for yet another rant!

Thank goodness for this website...otherwise I would explode with all these feelings and worries.

Thanks for listening and helping!

Victoria

[Lulu54]

Victoria - you're right that there is no normal with this MySterious disease.  We require the sensations we get from our nerve endings to send that message to the brain to be able to walk correctly.   That numbness and partial numbness are a serious problem for you - if it continues be sure to contact your neuro and see what is recommended.  

That, in addition to the hug feelings , may indicate a relapse for you and warrant treatment.

I hope the numbness and hugging stops soon.

be well, Lulu