I am curious as to whether this infection, chlamydia pneumoniae, is an MS mimic, or if there are other stories like this one. I though perhaps someone here might be familiar with this. This is the transcript of a TV story on a doctor who said he 'cured' his wife of supposed MS by treating her for c.pneumoniae. I am wondering if she never had MS, but rather this infection that produced similar symptoms.
"Our identification of Chlamydia pneumoniae in the cerebrospinal fluid (CSF) of a patient with multiple sclerosis (MS) led us to examine the incidence of this organism in the CSF from 17 patients with relapsing-remitting MS, 20 patients with progressive MS, and 27 patients with other neurological diseases (OND)." ... "C. pneumoniae was isolated by tissue culture from the CSF in 64% of MS patients versus 11% of the controls. PCR assays demonstrated the presence of C. pneumoniae major outer membrane protein (MOMP) gene in the CSF of 97% of MS patients and 18% of the controls. Finally, 86% of the MS patients had increased CSF antibodies to C. pneumoniae EB antigens, as demonstrated by enzyme-linked immunoadsorbent assay adsorbance values that were 3 standard deviations greater than those seen in the controls."
Anybody know if this has been confirmed? This study obviously doesn't show cause, merely a relationship.
Has anyone heard about this infection from MS docs?
I have also seen a couple claims that the equivalent of the Paleo diet stops or reverses MS when adopted early in the MS process (up tp 5 years). Some claim that eliminating all cereal grains, including oats and rice, and liquid milk somehow resets the immune system. That sounds far fetched to me, but maybe is does work for some people. A friend got her chronic fatigue under control by going gluten free and sugar free. I want to help my immune system, but don't want to embark on a severe diet change if this is mostly snake oil. I'd love to hear others' thoughts on this.
This was the TV programe that i mentioned in another post regarding anitbiotics and MS, you should note that infections are known to negatively affect people with MS. It is common to have whats called a pseudo exaserbation during an infection, and if the infection lasts long or is bad enough, its quite common to end up in a full relapse. I dont see how that situation is any different, even he doesn't equate what he did as a cure for MS. More that his wife was not in a position to wait for the research to prove the theory, they chose to treat the chlamydia pneumoniae and her MS sx improved significantly but dont forget that this infection in some people is very bad.
So its really not suprising that with also having MS, she was a very sick lady and with the chlamydia pneumoniae no longer causing such wide spread havoc, her sx's and quality of life significantly improved. Remember the dr's were attributing her condition to the MS, he discovered she also had chlamydia pneumoniae. She has improved whilst treating the infection, though by the look and sound of her, she very much still had MS, she has not been cured of MS!!
As far as i can see, this study is isolated and i can't find anyone looking into an MS and chlamydia pneumoniae. Sx's of chlamydia pneumoniae are respitory and consistent with the usual sx's of pneumonia, the sx's of MS are very different, though just because a person has MS doesn't mean they can't get pneumonia or anything else. I very much doubt chlamydia pneumoniae will be classed as an MS Mimic, there similarities just aren't there.
I, too, think that a healthy diet has to be a positive. I am thinking that sugar plays a role in the immune system function. We now know that Vitamin D plays a big role. I can't help but wonder what else could be a significant factor.
I decided to give it a try. Decided, what the heck, it's only food... and I LOVE Food, and cooking, but I was going off meds and wanted to try something beneficial for me, too.
It wasn't difficult for me because there are many variations and it all depends on what you are trying to achieve. The most challenging was no grains or legumes.
Some people with MS east dairy, but they say soy causes inflamation? so no tofu or soy products... it's all a bit complex and I grew tired of it after two weeks.
I rarely eat red meat and always incorporate fish weekly. I've been on soy milk since 2005 (waay before dx) and we rarely eat pasta so, I figured: To hell with it. All good things in moderation.
It's difficult, yes, because there is so much restriction and so little you can eat. Was I left hungry? No, because there is no limit to the amount of items you can eat. In fact, it encourages you to eat until you are full.
I ate tons of protein, fresh fruit and steamed veggies. There are good recipes books outs there for how to cook paleo chinese, mexican, thai, italian, etc... you don't miss out on much. There are also great websites: Chowstalker.com dedicated to paleo much like pinterest.
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