Aa
A
A
Close
1045086 tn?1332130022
Current opportunities to trial stem cell therapy or Tysabri
Attention all Buckeyes (PwMS living in Ohio):

This study is recruiting 24 people diagnosed with RRMS to participate in stem cell therapy research.
Testing and procedure will be conducted through the Cleveland Clinic Mellon Center

http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2525

----------------------------------------------------------

This one is a clinical study being conducted by Biogen to evaluate the effectiveness of Tysabri in people with SPMS.
800 people are being recruited worldwide to participate in a double blind study (meaning some participants will receive Tysabri and some will receive a placebo and you won't be told which group you are in during the study).
The site has a list of USA cities enrolling participants.

http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=5417
Cancel
4 Answers
Page 1 of 1
572651 tn?1333939396
Thanks, Mary, for pointing these out.

Unfortunately you and I are beyond the age limit for the stem cell trial.  I would be willing to do that one, because I think it holds a lot of promise.  I have been saying that for years about stem cells being used to cure a number of serious diseases.  

I sure hope the Tysabri trial for SPMS yields positive results.  There needs to be more therapy options for SPMS and PPMS.  I hope the Gilenya trial for PPMS works, too.



Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1045086 tn?1332130022
I believe you could slip by for the Tysabri if you qualified with SPMS.  It seems odd the age span isn't higher for that one since it so often indicates years of disease.

Maybe this is why we're sometimes told we are "too old" to be diagnosed.  They wouldn't know what to do with us post diagnosis?  Or maybe they just mean too old - period.

Actually just wanted to bump this up but thanks so much for sharing your observations.  I'll have to investigate applying for clinical trial disability status now.

Mary

Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1045086 tn?1332130022
bumping up for a member

Might this be an option for Michelleric?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
645390 tn?1338558977
Thanks for thinking of me.  I checked it out, but I dont Qualify, due to on tysabri already. (you have to have been off for 3 infusions to qualify, which might be me soon)

I also have a dx of Asthma. Another no no for the study :(

Also, the fact I am on Coumdin, would probably be large issure as well, Oh well.

Thanks, sounds like a really worthwhile study!

Michelle
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Multiple Sclerosis Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
667078 tn?1316004535
Blank
Durham, NC
198419 tn?1360245956
Blank
572651 tn?1333939396
Blank
Dayton, OH
144586 tn?1284669764
Blank
751951 tn?1406636463
Blank
Caledonia, OH
Avatar universal
Blank