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335728 tn?1331414412

Dealt with outside world...one step at a time...

I wasn't going to start a new thread because I wanted all to see that I was still dealing with a bit of the outside world right in here but I decided to leave well enough alone and hope that some problems do what they say that will and "go away"!

I just wanted you to know that my husband and I went and met those people that I had dealt with last Saturday at a coffee shop and just said that we had to discuss something with them.  We figured it would be more fair if we were on middle ground rather than at one or the other's homes.  It was VERY interesting!

I started out by telling them that I understand if they are not sure how to deal with my illness because there are a lot of times I don't know either.  I asked them if that is how they felt?  I got a few shrugged shoulders and a few nods in response.

I asked them, why after all we have been through together, did they not feel comfortable enough to ask questions about it?  They didn't have an answer...just shrugged shoulders.  I told them that if they have questions about what is going on with me, I wouldn't make them feel uncomfortable if they asked questions!

I asked if they would mind if we did a little experiment...they agreed.  I asked the hostess who is the woman that had the liver transplant with her granddaughter to please sit at the table next to us.  I then asked secretly for everyone else to cut her off if she tried to talk, ignore her if she tried to start a conversation, plan a future trip to the movies while not including her.  They all agreed and it went on for a good 45 minutes!  SHE CERTAINLY GOT THE MESSAGE!

I then asked them to think back to last Saturday and look at the room as though from above...the seating plan, the conversation and when did the seating plan change by someone disappearing.  They knew exactly what I was talking about...me leaving!

I point blank asked them how the he** do they think I did my Christmas shopping last year?  Did they forget that I can't drive?  More shrugging shoulders.  Did they just have a hearing problem only when I called to ask for a ride to the mall and an hour of their time?  I told them, I am not trying to lay a guilt trip on anyone!  One person responded quite viciously that it sure sounded like it!  I responded that I didn't think any of you would be that passionate about it...unless of course you felt guilty!

I did not bring up anything from the past about the transplant or anything else that I have done for them...if they wanted to do anything to help me I figured that they would do it cause they want to not out of a guilty consciousness. (sp)

My husband then piped up (finally!) and asked the male members of this group, some of whom he grew up with and works with now, how the he** they thought he managed to work 12 hours shifts with overtime that he had to work and on everyday off he either had to go to the grocery store, the g.p's office, the neurologists office, and run every other errand that was required because Rena can't do it!  He asked them if they knew what was going on in the house or are they really that stupid? (guys can get away with talk like that I guess)  WELL, two of them admitted to being that stupid and said that they will make more of an effort to help.  My husband said that was only a small part of it though...why didn't they back Rena up when they are supposed to be her friend as well...why were they part of this **** that was pulled on the weekend...(by this time I am in tears of course, which I didn't want because I don't want any guilt trips!)

One of the fellas speaks up and says that he doesn't know how to talk to me because I talk weird.  FINE...WE ARE GETTING SOMEWHERE!  YEE HAW!!!  I explained to him (and all the rest) that yes I do have trouble with my speech sometimes but I am still Rena and I still have all the same thoughts and ideas in my head...just be a little more patient...it will come out, just a little slower and it's not like that all the time!  

Well that started the flow of questions and answers (or the best ones I could give) and I am SO HAPPY THAT I DID THIS!!!  We sat there and talked for about 2 hours about MS, not MS, Drug Overdose, my disabilities, other's disabilities (one of the fellas can not play darts for the life of him...can't even hit the board so we have decided that he has a dart disability but we won't hold it against him)!  We talked about how other people with disabilities are treated and why and what can be done by our little group to spread the word and ensure that people with disabilities are treated with respect.  

I explained that I really have no other life right now other than my lack of good health and I don't want to speak about my health all the time...BUT does that mean I want to listen to all the **** about all of your jobs and how much trouble your kids are in THIS time...NOOOOO!!!!  What difference does the topic make if it is overdone...NONE!!

I feel pretty good about what went on last night and two of these people called this morning to both say that they forgot to apologize for last Saturday...I told them that I accept their apology but only because I AM THEIR TRUE FRIEND and I want them to be mine as well!

Thanks for all of your support people and while I don't recommend confronting everyone with an attitude or lack of knowledge the way I have, I think its worth it to give it a try.

Lots of Hugs,

Rena

p.s.  I am going to be a little on the edge for a while with these people I know, but they have given me another chance being disabled...I would be a small person to not give them a chance as well right?



18 Responses
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335728 tn?1331414412
WELLLLLLL...YOU WON'T BELIEVE IT!!!

I HAVE BEEN INVITED BY THE BOYS TO GO ICE FISHING TOMORROW!!

Now this is something that I LOVE doing and the weather is supposed to be really nice!  The only thing I worry about is if we can't drive on the lake, how will I get out there to fish?  We will have to make a few calls and see how thick the ice is I guess.

I hope that it all works out and I am going to let all of them know about my concerns ahead of time so there are no surprises.....we will work them out and I will catch the most and the BIGGEST!!!  I am soooo excited but I know that these trips can be called off in a pinch for many reasons so I will let you know!

This really isn't a move ahead in the "friends" department because if fishing is involved...I am the first one to call cause I will always go with the boys and we have a blast!  I am the only woman of the group that will go...the rest can go to bingo for all I care!

Rena
Helpful - 0
281565 tn?1295982683
Wow girl, you handled that really well. It was a great step on your part and kudos to your hubby. I hope now your friends have a better understanding of how they made you feel and take steps to change. Way to go Rena!!

Moki
Helpful - 0
Avatar universal
ELT
   Thankyou, yes, I don't think she was hurt, I just felt stupid.  She was quite affable the rest of the time, I think she just didn't know what to say to me.  She was worried she had hurt my feelings somehow.  She's a very nice lady, they all are.  And the way they have been so gracious to include me.  They are a lot of fun, as well.  We exchange recipes and meals.  Fun excursions.  And the...shudder/shudder...hellish gym. lol

   I try hard not to do or say things without thinking.  Cause I can be a little odd at times.  I think I more or less wrote it down, to stop thinking about it.  Talking out loud, or on paper, helps me to clear my head, and get rid of bad thoughts or guilt and such.  Helps me think, somehow. lol.  I don't pretend to understand my brain, the medical world can't, poor things. lol.   And of course, anything you guys have to say in here, is wonderful.  Great site. thanks

   I'm mostly very good about not worrying about things, at least not past the initial talking and getting it out of my system.  Unless my worrying can actually accomplish something, that is.  Then, I can worry.  

   I find that most things will sort themselves out.  But, if I don't talk, I can't make my brain put it in the proper file, so to speak.

   I need to defrag apparently, put all my files in their proper spaces. .lol, HAH, good luck lol

    Thanks tho, for all
Erica
Helpful - 0
147426 tn?1317265632
Amazing!  What a beautiful joint effort and what good sense to do it they way you did.  I am so proud to know you.  (BTW - crying for some/most of that just emphasizes how deeply you felt.  They should see the hurt)

Some will see what has happened.  Maybe a few won't be able to deal with their guilt.  But, you have leveled the emotional playing field and I will always think of that when I am faced with ignorance that leads to cruelty.

It's confrontation done right.  Wow.  Wow.

We await the evolution of this trial of friendship.  Thank you.

Carol - I'm not sure of the timing, but could your sister's silence also be shame at her crime, coupled with fear of losing you?  You could write her and ask those very things.  And point out that by avoiding you, she is losing you and how much you deeply want a relationship with her.  Four years is not at all too long to recover the love and feeling.  I hope you can get back with her, too.

MCBCON - I guess then, it's probably best you don't want Rena's husband.  It indeed, would be awward with your wife, lol.

Erica - We have all been frustrated and blurted out things that brought silence.  An apology next time might set some things straight.  Don't worry about being human.  

It reminds me of a scene from last year's Joan of Arcardia.  It had to do with the ripples we leave as we interact with the world.  Like the ripple from touching still water.  May we all strive to leave "good ripples."

Quix
Helpful - 0
195469 tn?1388322888
I guess I can't be Rean when I grow up.  I am already 7 inches taller than she is....

Heather
Helpful - 0
222135 tn?1236488221
You rock! I want to be you when I grow up! Way to go!!!!!!

Penn
Helpful - 0
195469 tn?1388322888
I just wanted to tell you girl, that you have made some real strides in your life this week.  You have also been an inspiration to many in the way you handled the problems with your friends.  BRAVOOOOOOOOOOOO

You did GREAT!!!!!  Keep hanging in there....You are on a great path and a fantastic journey....

Heather
Helpful - 0
231441 tn?1333892766
Rena, you are inspirational Honey!  It takes something to stand up to your friends and to work it out with them.

Carol, I reckon write your sister a letter.  That way at least you get to say everything you want to say.  Don't give up.  Worth a try.

Erica, hang in there!  We have those blurt out things and kick ourselves afterwards.  Keep enjoying your life!

Sally
Helpful - 0
Avatar universal
ELT
   Oh, wow, good for you!!!!!  I had a moment the other day, where I got a little sensitive, I guess I must have, subconciously, I suppose, because I reacted to all the ladies who have had careers, and are retired, with money, in the hiking group I hang out with, and when one too many talked about teachers college, and stuff, i piped up.  

   I said, "Well, I was a stuppid teen girl, I dropped out of school twice, before getting my grade twelve at the alternative school, when my daughter was young, and I was divorced, in my early twenties.  We struggled, on a tiny income, while i went to school and paid a mortgage on a tiny falling apart wartime house.  22ft by 24 ft.  So, a further education at that point was not possible.  Now my health is an issue there, and my mobility, as I have no licence and frequently not any more energy than I need to accomplish daily chores, exercise class a few times a week ( I only managed half today) and tuesday hikes with you guys.  But, I enjoy life."  

   They shut up for a moment.  Then changed the subject.  I realize I over reacted there, these women all have something in common.  But, I feel like I soooo cheated myself out of something bigger than I have.  Not that I'm not happy, mind you.  But, I could concievably been wealthier and more centred than I am???

   Nah, I like me.  lol , poor as i am. lol

   Don't get me wrong, I like all these women, none made any comments which were intended to belittle me, I did that myself, this time.  This particular woman is not a member of my gym, just the hikers, who are all independently comfortable.  And as such, she has no idea who I am, that I am  from the lesser moneyed crowd, or that I'm ill.

   So, whereas in Renas case, she was justified in talking to her friends, after, plus the fact that she did it so well, I was not.  I reacted because I felt lesser, momentarily, and so was defensive.   I'm over it. lol



  Now for a glass of wine, with my dinner.  mmmmmmmmmmmmmm


Erica
Helpful - 0
335728 tn?1331414412
Sorry dude...sometimes it's hard to tell from individual posts and sometimes I can't read all the opening posts so OOPS...sorry...tell your wife she has nothing to worry about ok...with asmile on your face ok?  Again I am so sorry, won't do it again!

Hugs,

Rena
Helpful - 0
398059 tn?1447945633
My wife would have problem with that anyway.
Helpful - 0
335728 tn?1331414412
I AGREE TOTALLY!  My hubby is so supportive and has been there right from the start back in 93 and he is GREAT!

I wish we all had that kind of support...NO YOU CAN'T HAVE MINE...SORRY!!!

Lots of Hugs,

Rena
Helpful - 0
335728 tn?1331414412
Thank you so much for your comments princess...I wish I was a strong as you make me out to be...really I am a terrible crybaby!  I do wish that all of us with disabilities didn't have to go through this sort of heartache but we do and we have to deal with it any way that works for each of us.  

I am hard-headed and stubborn and I don't like to lose...maybe that is why I did what I did last night but I don't know if things will change...I can only hope!

You take care honey and I am here to talk to if you need a shoulder to lean on ok?

Lots of Hugs,

Rena
Helpful - 0
398059 tn?1447945633
Of course I want to congratulqte you on your stqnding up to your friends.   Often thqt is more difficult thqt with strqngers.

One thing I would like to point out is that you hqve asupportive spouse.  I think that is more important than having all your friends on your side.  My spouse is wonderful too.  So often though thqt is not the cqse .  It would have been so much more difficult if your husband, like many husbands, ran from the situqtion.
Helpful - 0
335728 tn?1331414412
Carol honey...it breaks my heart to know that you have lost a sister in such a way but I don't want to believe that it has to be permanent. I believe that you need to keep trying to contact her if a reunion is truly what you want.  You know that I am one to push being proactive...not only in healthcare but in life in general.

You do have a few choices honey but it is up to you to make them.  You can think of it like this:

You can just knock it up to experience (not a good experience mind you) and move on with your life always wondering if you should have tried a little harder
OR
You can attempt to contact your sister by making a phonecall and hoping that she will respond (which she probably won't as she hasn't in the past and now she is feeling ashamed on top of everything else).
OR
You can write up a letter in which you explain to your sister how you feel about her, how much you miss her, how much you love her, how you understand that she was frightened by your disability (as you were), how you hold nothing over her head, no conditions, no judgements, you just want your sister back.

I always think to myself when I am involved in situations such as this...when I am old and on my final path am I going to look back and have this looming over me as something I should have tried harder at OR is this something that is not going to even enter my mind.  Carol, regret is a strong emotion and can make us feel really horrible but you are far from the point of no return...I think you should go for it!  Draft a letter and read and re-read it and make sure that you feel strong enough about all the points you make to your sister that you have to send it!  If she responds and you are able to start a new relationship with your sister, that is WONDERFUL...BUT if things don't work out and she won't respond...AT LEAST YOU TRIED and gave it your all...time to move on and forge new friendships and get on with your life, no regrets.

Lots of Hugs,

Rena
Helpful - 0
Avatar universal
I have been reading about your situation. I want you to know that you are an inspiration to a lot of people. You did a great job handling your situation, even when no one had given you advice on how to handle your friends (only on how to cope without them). Don't get me wrong, though. I did value all the advice people gave you and took it to heart. I am just learning how to deal with stuff like this. I go through disabling phases, then phases where I am comfortable going out in public, driving, etc. I am undiagnosed (probably an auto-immune disease), but have a lot of similar symptoms to ms. Anyway, I wanted you to know that I think you are a very strong person and I appreciate all of the things that you share (good times and bad times).
Helpful - 0
199882 tn?1310184542
Dearest Rena,

Honey, that took some guts.  That is something that I would never be able to do.  Each person is different though.  I have a sister that hasn't spoken to me since I became disabled.  We are very close in age and for years we where inseparable.  If you saw one of us the other one had not gotten out of the car yet.  Yes, that's how it was.

Lord knows I miss her so much.  What I would give to just be able to have those talks like we used to have.  I miss having my friend not just my sister.

She made a terrible mistake and embezzled some money from her boss.  She repaid the money and had to serve a 2 year probation.  I had to read all of this in the news paper.  I have called her many times just to let her know that I'm here for her but I'm not sure if it's embarrassment on her part or what but she just will not call me back so finally I let it go.

After reading both of your posts you have maybe given me courage to call her one more time.  Like I said before, I'm not sure that I can do it.  After 4 years of silence don't you think it's worth a try?  I know for a fact that I could not confront the group of friends we once had but Cindy is more than a friend she is my sister.

Well, Rena I definitely throw my hat high in the air to you.  You are truly an amazing woman and I think you also have an amazing husband.  Weather or not your friends ever contact you again is waiting to be seen but I think if they are as good as friends as you have implied then they will be there for you.  Who knows they may take you from us cause you'll be so busy.  Please, don't let that happen.

Thank you Rena, you mean more to me than you'll ever know just because of a very valuable lessen in friendship.

I'll be praying,
Carol
Helpful - 0
359574 tn?1328360424
Bravo!  That was very brave, and I'm so happy it turned out well for you.
Holly
Helpful - 0
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