Decided to post my time-line...am I going to be difficult to figure out?

Here is my timeline

2001 eye pain and head ache, fatigue. Numbness in the sole of my right foot. MRI of head and eye orbits -- clear  EMG showed carpal tunnel. Weird thing is they didn't check my right foot! All of the tests were done on my left side????
Should have learned this time with this neurologist! But I didn't, I went back to her and am seeing her again this time.  Stupid.

2002-first bout with TN. Really painful. Lots of fatigue. Lasted about 3 days before it started to let up. I wondered if it was my tooth but the dentist said no. PCP said maybe TN

2003-05 Fatigue off and on with tingling and other odd things. Would last 6 weeks or so and go away. TN pain but tolerable

2005 - TN pain again sent me back to the doctor. He dx'd TN and wanted me to start Dilantin. My sister said don't take Dilantin because it made her sick and sleepy. I didn't need that because I have several young children and had to be awake! I managed TN with Vicoden and got through it.
Doctor not real happy I didn't start medication because it would have given a yes or no on the TN question. Now I am thinking opps.............

2006 - started numbness in my neck and lower scalp. Along with fatigue again and odd sensations here and there.

2007 - started ON, some TN pain, MAJOR fatigue, now my leg feels disconnected. More odd sensations here and there. Brain MRI shows,"abonormal right optic nerve demonstrating enhancement without mass lesion along its intra orbital segment. Imaging findings compativble with optic neuritis. Additional note is made of a small nonspecific area of increased signal and associated enhancement in the right posterior frontal subcortical white matter. This may represent a concomitant area of active inflammatory disease such as that may be seen with actue demyelination. Clinical and MRI follow-up suggested..........."

Abnormal VER. SER and BAER are ok. C-spine is clear.

So, that is my timeline. Am I going to be a difficult case?

[LATW]

I forgot to add to my time line that I have had heat intolerance for some time. Even when I was a teen I would get so over heated and my vison would blur. I would feel like I was going to pass out. While all of the other kids were able to run the track or keep on going, I had to sit. I was not terribly over weight either.

Heat has been a huge problem for me this year with the symptoms I am having.

Weakness. I have had a terrible time with weakness. I was so bad off for couple of weeks I couldn't even cut through a pizza for my kids!

Should I add these to my time line for the doctor?

L

[IUMOM2]

I think your time line looks great. I would add the heat intolerance issue as it is very indicative of MS. I think the weakness is important to note also.

So, you aren't diagnosed yet? It sure seems to me like there is more than enough evidence.

Good luck!

[LATW]

I don't have a dx. I am not sure why though. Either I don't have enough going on, but from what everyone has said it seems I do. Or, I just have not seen the right doctor yet.

Part of this is my fault. I am a Suck It Up and Deal With It type of person. That is not always good. That was the way I was raised though.

My PCP has suspected for about 10 years that I was heading for some sort of dx. He origninally thought it was going to be Lupus because of some of my symptoms. But, I also have a lot of gastrointestinal stuff.

I have been following a gluten free diet for about 4 years now. It has calmed my tummy down a lot. It has also helped clear up my psoriasis. My psoriasis is offically dx'd by a biopsy they did. So, I know that for sure.

They thought I probably have Arthristis. Both of my parents do so I would say that is a safe bet! But this other stuff is weird....I mean, who really gets ON without there being a reason behind it?  Really weird.

Have you found a new doctor yet? I recall you asking about a doctor.

L

[IUMOM2]

I bet it's a matter of you finding the right doctor. I hope it doesn't take as many as me. I'm going to be seeing my 7th (GULP!) neuro next month. Maybe 7 really will be my lucky number.

My situation is a lot like yours. I have four lesions in the brain, have documented cognitive issues, neurogenic bladder, an ENG that came back with CNS abnormalities...yet this isn't enough for a dx?!! It just floors me sometimes.

I just don't get it. I've heard about plenty of people getting dx'd with fewer signs and sx than me. I don't dwell on it, but it makes me wonder about how the dx are handed out. Like some sort of lottery? LOL!

When do you see the neuro next?

[LATW]

I know, it is frustrating. Not that one wants an MS dx, but it would be great to know what is going on....and that we are NOT crazy!!

I go on Sept 11th. My baby will be 2 that day. No more babies for me. I am too tired.  We are expecting our first grandchild in January..Yeah!!

L