Diagnosis Recinded

[Tahiri_Veila]

Well my diagnosis was taken back due to a clean MRI.  The MRI was not even done like they ordered and yet the Physicians Assistant says that even with just these results it can't be MS.  She did another Clinical exam.  I have gained much back but have a baseline of symptoms that just plain scares me.  I cannot close my eyes and stand upright.  I have lost a lot of strengh, there are many other things as well.

Her opinion is that I no longer need to see them.  So don't bother, but if I really insist she will set me up an appointment with the Dr.  after the delivery of the baby.  

I am upset and mad.  I don't even know what to feel at this point.  She says I should try another doctor.  Like what I have tried so many what next.  What tests are even left to do?

Sorry just need a shoulder to cry on.

Tahiri

[jensequitur]

[gives carrot to Rosinante]

[Quixotic1]

I see.  Still, it is stupid (DUMB) to expect suddenly to see a change (more lesions) during a pregnancy when the disease is at its quietest, don't you think?  Certainly that could be asked of the doctor.

I'm so sorry you have to deal with this.  I'll be quiet now.

Quix (always tilting at windmills)

[Tahiri_Veila]

Thanks for the advice.  I appreciate it a lot.  No I think I will take her up on seeing the doctor himself.  

I have never had lesions on any of my MRI's, but I have not had the spine done since the beginning of my symptoms 4.5 years ago other than the one they just did.

I appreciate you commenting and helping me out.

[Quixotic1]

This PA had the power to discharge a patient from the practice??

I'm staggered!

Tahiri - In your shoes I would copy the following and send it to the head of the practice.

"Well, little lady, we don't know what you do have - and are not motivated to look for anything else.  So we'll take away the diagnosis that explained everything.  Off you go.  Lotsa luck!

We know a few things here.

We know that MS typically improves enormously during pregnancy.

We know that lesions can disappear under the influence of a DMD or pregnancy or even spontaneously without either.

Most pregnant women are allowed to enjoy their improvement in symptoms during pregnancy, but no MRI is typically done to document improvement on the MRI.  So who can say that an improved MRI is not due to the pregnancy.

We know that your MRI was not performed correctly.

We know you still are disabled.

We know that the National MS Society and the Consortium for MS Centers both state a small percentage of people with MS have negative MRIs at some point in their disease.

Let's put all those facts together and say that this  one MRI conclusively PROVES you don't have MS!

what? ""
____________________

Let the doctors read that and ponder the obvious.


Quix

[Tahiri_Veila]

The MRI was not done on the strengh they wanted, or with the software ordered, and was done only without contrast.  Again this wasn't the doctor this was the physicians assistant and she admitted the doctor had not looked at it.  Actually the funny thing is in my chart the doctor has written to start treatment after the birth of the child.  

I struggle breastfeeding so I probably wont.  

Yes I read the DUMB doctor thread.  But I think I might just go back to my PCP for a while.  He might do something unlike these idiots.

They ordered the MRI before they knew I was pregnant.  They said they should be able to see any old lesions anyway even if I was pregnant.

Tahiri

[Quixotic1]

Oh, dear!  I just hate it when we see these rescinded diagnoses!  The person is just as disabled, but now without current hope of treatment.

"Well, little lady, we don't know what you do have - and are not motivated to look for anything else.  Wo we'll take away the diagnosis that explained everything.  Off you go.  Lotsa luck!"

We know a few things here.

We know that MS typically improves enormously during pregnancy.

We know that lesions can disappear during the reprieve of a DMD or pregnancy.

Most pregnant women are allowed to enjoy their improvement in symptoms pregnancy, but no MRI is typically done to document improvement on the MRI.

We know that your MRI was not performed correctly.  (What was done wrong or omitted?)

We know you still are disabled.

Let's put all those facts together and say that this MRI conclusively PROVES you don't have MS.

what?

Someone here is fixated on the MRI and wouldn't recognize deductive thinking if it bit him on the bee-hind.  This can be this week's poster child for D.U.M.B.  (Tahiri, did you read that thread?)  I'll bump it.

Their rec to find another doc is more wise than they know.  But, for right now, enjoy the upcoming birth and look for a proper functioning doctor afterward.

The answer to what to do, would be to deliver and breastfeed, if you can.  A couple studies have shown that lactation delays the resumption of the MS symptoms. The studies only looked at this effect for 2 months, but longer would likely also be helpful.  Find out how good the MRI was.  Eventually get a second opinion on the read-out.  And find a new neurologist - one who isn't D.U.M.B.

BTW - why did they do an MRI at this time?

It will all be okay.

Quix