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298737 tn?1206196276

Do i have MS no one will diagnose me!

In June 2007 i started with a tingling feeling around and under my right eye i didnt really think nothing of it until about 30 minutes from when the tingling feeling started, i went to put my coat on and noticed it was happening also to my right upper arm it only took 20 minutes before it was all down my right arm, i decided to call the doctors (after hours service) and got an appointment straight away the doctor said it was nothing to be concerned about. The next morning i woke with a feeling of numbness not tingling still only to the right side mainly my arm i rang my own doctors surgery and made an appointment by 11am the right side of my face was numb and my speech felt slow my mouth looked different on the right to the left, the doctor saw me and sent me to A&E to be seen by a Neurologist after a physical examination he decided to admitt me to a Neurology ward to carry out further test, after having a MRI Scan, blood tests and a lumbar puncture, i was diagnosed with inflammation of the brain, all the tests came back clear but the doctors could see that things were different on the right side and treated me with IV Steroids for 3 days i improved enough to be sent home after 8 days of been admitted and took around 3 weeks longer to make a full recovery. Everything was great until 23rd sept 2007 i noticed that my normal daily routine wasnt as easy i felt so tired and had to make lists to help me through the day, on 26th Sept i was admitted to the same ward with all the same symptoms of numbness but this time having uncontrolable tremors, all the same tests were repeated and i am not back at home with still no diagnosis but inflammable some where?????????????? Can you help
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298737 tn?1206196276
Hi,
Thanks for responding it means alot..
I have had 2 MRI's brain and spine with dye injected both times and everything was clear on both, i do agree it's a waiting game, i am still suffering from what the doctors call "my 2nd episode" of inflammation somewhere.... ever since this started in June i have kept a diary writing down every little thing that happens hoping that it will help someone to find out what is going on with me!
I hope you also manage to get a diagnosis.
Take Care
Mooky  
Helpful - 0
Avatar universal
I second every single thing fishy fish said Ive no dx either but have problems Presently trying to get asecond opinion take care chris
Helpful - 0
Avatar universal
Hi and welcome to the forum!  You're in very good company here.  There are many people on here (including myself) who have suspicious symptoms but clear tests and no diagnosis.  

What sort of MRI's did you have?  Just brain?  About 10% or so of people with diagnosed MS don't have visible lesions on their MRIs.  It would be nice if there was a simple blood test that just said "MS" or "Not MS", but it's a game.  They have to rule out lots of other mimics, run all sorts of tests that might further support the idea, have multiple episodes, etc.etc.  It's a waiting game for many of us.  Some people are "lucky" enough to get diagnosed fairly quickly.

Get yourself a good neuro who will dig for you and get to the root of the problem, and take along your histories.  Hopefully it won't be MS, but you want to be sure!

Good luck,

Fishyfish
Helpful - 0
298737 tn?1206196276
Hi,
I feel so confused how the doctors reached the decision of my diagnosis, when i got home the first thing i did was to find out more about ..an inflammation of the brain. Encephalitis keeps popping up which basically means inflammation of the brain but it is caused by bacterial infections and viral infections but this is always detected in urine and blood tests, and every test i had was negative and clear and also my symptoms are completely different.
Your completely right when you say to get copies of all the tests carried out and to find one Dr. who can keep track of whats happening to me.
No Dr. has ever been able to explain anything about this inflammation and what causes it....... My consultant said before proof of the MRI scan that he thought it was MS but when the scan was clear he just put it down to inflammation again.
The only meds i was sent home with were to control the tremors and paracetamol for slight headaches.
I am hoping to get answers to all my questions in about 2 weeks time!
Mooky
Helpful - 0
286034 tn?1201096840
Hey Mooky,

It does sound like you do have some sort of a diagnosis...an inflamation of the brain....you need to find a Neuro, get copies of all your tests and records and build a history with one Dr. wh can keep track of you and what is happening.

You will need follow up MRI' s and LP's to track the progress and hopefully get on a reliable schedule of meds. Did they say anything about what caused the inflamation? Are you on preventative meds?

Hope you can get some answers!

Jo
Helpful - 0
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