Hi,
Thanks for responding it means alot..
I have had 2 MRI's brain and spine with dye injected both times and everything was clear on both, i do agree it's a waiting game, i am still suffering from what the doctors call "my 2nd episode" of inflammation somewhere.... ever since this started in June i have kept a diary writing down every little thing that happens hoping that it will help someone to find out what is going on with me!
I hope you also manage to get a diagnosis.
Take Care
Mooky
I second every single thing fishy fish said Ive no dx either but have problems Presently trying to get asecond opinion take care chris
Hi and welcome to the forum! You're in very good company here. There are many people on here (including myself) who have suspicious symptoms but clear tests and no diagnosis.
What sort of MRI's did you have? Just brain? About 10% or so of people with diagnosed MS don't have visible lesions on their MRIs. It would be nice if there was a simple blood test that just said "MS" or "Not MS", but it's a game. They have to rule out lots of other mimics, run all sorts of tests that might further support the idea, have multiple episodes, etc.etc. It's a waiting game for many of us. Some people are "lucky" enough to get diagnosed fairly quickly.
Get yourself a good neuro who will dig for you and get to the root of the problem, and take along your histories. Hopefully it won't be MS, but you want to be sure!
Good luck,
Fishyfish
Hi,
I feel so confused how the doctors reached the decision of my diagnosis, when i got home the first thing i did was to find out more about ..an inflammation of the brain. Encephalitis keeps popping up which basically means inflammation of the brain but it is caused by bacterial infections and viral infections but this is always detected in urine and blood tests, and every test i had was negative and clear and also my symptoms are completely different.
Your completely right when you say to get copies of all the tests carried out and to find one Dr. who can keep track of whats happening to me.
No Dr. has ever been able to explain anything about this inflammation and what causes it....... My consultant said before proof of the MRI scan that he thought it was MS but when the scan was clear he just put it down to inflammation again.
The only meds i was sent home with were to control the tremors and paracetamol for slight headaches.
I am hoping to get answers to all my questions in about 2 weeks time!
Mooky
Hey Mooky,
It does sound like you do have some sort of a diagnosis...an inflamation of the brain....you need to find a Neuro, get copies of all your tests and records and build a history with one Dr. wh can keep track of you and what is happening.
You will need follow up MRI' s and LP's to track the progress and hopefully get on a reliable schedule of meds. Did they say anything about what caused the inflamation? Are you on preventative meds?
Hope you can get some answers!
Jo