Do your toes move by themselves causing spasms??

[Tammy826]

I know thats a weird question but this happens daily with me & its getting worse. I can be laying down watching tv or whatever & usually its 1 or 2 toes will move down(not the rest of them ) & then I have awful spasms in my foot & up my calf muscle. At 1st my Big Toe would move out sideways from the rest of my toes & then the spasm would hit but now it can be any of my toes. The Dr. just looked at me like I was crazy but can you move just one toe (especially one of your middle ones & not the rest?). Right before the spasm hits I get a feeling in whichever toe(like a pulse or shock) then the toe move & the spasm hits. I woke up this morning with pains shooting in my feet so thats a new one but the spasm thing has happened over a year & getting worse. It used to be only when I was trying to relax now I can be sitting up or even standing. Its tooooooo strange. You can also see other muscles moving under my skin at times (looks like a wave under my skin). When the moron e/r Dr. basically said it was all in my head my family told him it must be in their heads too because they watch this happening. I have twitches & the zaps & zings also but does anyone else have this happening too?? Does anyone else wake up with their hand drawn into fists to the point it leaves indentations in your hands?? Please tell me I'm not crazy as I plan to print my replies to this post & take them to my Dr. Thanks !!!

[JAM_36]

I'd LOVE to video tape it and show it to my neurologist...but I'm in so much pain when the spasms happen, I doubt I could hold a camera!  My latest foot spasms start with the toes, then my foot bends in half.  One of these times I expect the bones in my arch will break!  All the neurologist says is that I have nerve degeneration, a narrowing of the spinal column, a bulging disc...none of which tells me what to do.   Used to be I'd get these for 2-3 weeks at a time, then go months without anything.  Now the incidences last longer, without much of a break in between.  Too bad doctors aren't more curious, like they used to be.  They used to LIKE a challenge.  Now they just want to pigeon-hole everyone, to avoid extra work.

[Lynnlinpaint]

as far as I know I do not have MS. I have been to a foot Dr who referred me to a neurosurgeon who referred me to a Neurologist who said L5 was bad in my lower spine and referred me Back to a neurosurgeon. My regular MD doesn't know.  I have had four knee surgeries, four ankle surgeries, and two back surgeries. I was wondering if all these surgeries as well as many breaks may have damaged the nerves causing the toe "erections" and spasms. I have EDS. ( ehlos Danlos Syndrome. Sp? ) it's a collagen disorder. Wonder if there is a connection. I am 69 yrs old and have had EDS all my life ( it's heredity) but the Spasms are only a year or so. Am very tired of it all.

[smarty20000000000]

I also feel same spasm in my right feet toes 4th and 5th .... They move towards extreme right and slightly upwards  automatically ...
After pain starts.

I have gone through all your posts ... Searched ... And experienced also...

May be this could be useful for someone...

My experience.
1. When my feets are up in air/ sleeping ... i.e.  when having less blood supply at my feet .... I start feeling some pain .... That become alarm for me ..... I stand up immediately .... So the pain subsides and do not increase.

   I mean to say study your bodies posture/position which invites spasm .... And avoid that posture/ spasm ...(for me if I will sleep on my stomach and fold my knee to keep my feet up in air .... Within 5 mins a will have toe spasm)
    Try may be useful

2. One thing is clear that we all do have neuropathic problem ... Our neurons are misbehaving .... But where doctors even unable to answer
  

3.I know that potassium and sodium are essencial component of neurons ...

     As suggested by many members here banana will be very helpful because banana contains potassium
    
    Sodium is our daily eating salt which is very abundant in our daily diet.

     Coconut water also contains potassium

      Daily dose of potassium per day is 40 milieuuivalent max
  
       Try out some potassium chloride supplement(it may cause hyperkalamia also ) so don't take for long period

      
4. For more details about this condition .... Search for neuron working/damage/cure .... Your view will get cleared

5. This is the best page where I can read the experience of ppls facing exactly same situation like me ...

Thanks for all information you all given

Am not alone

[smarty20000000000]

Thank you all for sharing your experience

[Jdraw]

I have the same problem but thought it was a cramp in the arch of my foot that spread my toes apart. I found relief with a simple free solution.

Muscles are more likely to cramp when they are cold. Try wearing warm socks to keep your feet warm. Does it work for you? It works most the time for me unless my feet are still cold in my socks.

[suspiciouscombo]

Indeed yes..... Isn't it the strangest phenomenon? When my middle toes tighten up and move on their own I can't help but to watch and almost laugh at their own will to move beyond my control  :-)

When the tightening happens ...it actually hurts but I've learned to let them have their temper tantrums and move on :)

Oh boy oh boy!!!!