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867787 tn?1318936230

Do your toes move by themselves causing spasms??

I know thats a weird question but this happens daily with me & its getting worse. I can be laying down watching tv or whatever & usually its 1 or 2 toes will move down(not the rest of them ) & then I have awful spasms in my foot & up my calf muscle. At 1st my Big Toe would move out sideways from the rest of my toes & then the spasm would hit but now it can be any of my toes. The Dr. just looked at me like I was crazy but can you move just one toe (especially one of your middle ones & not the rest?). Right before the spasm hits I get a feeling in whichever toe(like a pulse or shock) then the toe move & the spasm hits. I woke up this morning with pains shooting in my feet so thats a new one but the spasm thing has happened over a year & getting worse. It used to be only when I was trying to relax now I can be sitting up or even standing. Its tooooooo strange. You can also see other muscles moving under my skin at times (looks like a wave under my skin). When the moron e/r Dr. basically said it was all in my head my family told him it must be in their heads too because they watch this happening. I have twitches & the zaps & zings also but does anyone else have this happening too?? Does anyone else wake up with their hand drawn into fists to the point it leaves indentations in your hands?? Please tell me I'm not crazy as I plan to print my replies to this post & take them to my Dr. Thanks !!!
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Avatar universal
I have expressed similar movements to my Dr. but it happens in my fingers. It's like they have a world of thier own. They move in multiple directions at the same time. It dosen't hurt, it just occures at will. I believe my Dr. thing I'm a little out there because he says it nothing he's heard of before. I've had ms for 30 years.
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Avatar universal
Well now....... At least I know I'm not alone in this fun house of toe spasms :-)

I never mentioned it previously but I have the same issue. Very annoying when it occurs and no remedy but to let the action have its way until it decides to cease.

Informed my neurologist about this and she viewed me as if I had two heads or that it was not relevant to my symptoms.  

It truly is an odd and sometimes painful experience to see your toes react in this way. In my experience it seems to do better if I apply pressure but not always.

It's been happening more often in the last three months. Thx for sharing your experience as it provides me a sense of non craziness about the toe spasm issue I endure.

Ox
SC
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Avatar universal
I have something similar going on as well. My 3 last toes on my right foot will become very tight and pull off to the right. It is painful when it happens. I wanted to upload a picture to show exactly what happens but can't. It has been happening on and off for the last year or so. It will happen for a few days and go away, sometimes for months. It's back now and has been quite frequent in the past 2 weeks. It's like the whole right side if the foot gets tight while those toes veer outward. I have referred to it as frozen toes. Eventually it will let up on its own.
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Avatar universal
Another similar weird symptom was when doing the Atkins like ketogenic diet I had been on for a few years, I tried this ridiculous "carb note" diet where you deplete all your carb stores for 10 days and then on the evening of the 10th day you had a carb note where you would binge on simple carbs and high sugar candy/ junk to get a insulin spike and then you go back to keto the next day. Well the blood sugar spike would give me the worse spasms in my shins and my feet would cramp in a upward position. It didn't last but it happened ever time I was carb depleted and the ate sugar. That was right before I had that flare last year and it happened right before the one this year that began this nightmare. It also was happening on a much lesser degree in the early days if this flare that has just evolved and is not ending.

So me thinks the high blood sugar spike was a trigger to a phsudo flare... Or maybe even it trigger the actual flares. I think cutting out sugar is a good idea as far as MS goes.
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Avatar universal
Hmmm... Just another missing piece to this MS puzzle that now fits. I had this happen, not often but I can remember it happening once or twice in my childhood. Thought it was charlie horse.

Recently its happened  a few times over the last 3 years or so. I thought it was arthritis from me working standing on my feet for years and years not wearing  the right shoes.

My toes, and I can't recall if it was just my left or my right too but I know it was the left toes, they would cramp in a locked position and it would be painful but if I put my foot flat on the floor and put weight on it, it would stop. I thought it was a Charlie horse. It happened a couple of years ago when I was cutting hair, left hand middle finger just locked, very painful but a after a minute it let up. It happened twice during that time. I thought it was how I was putting too much pressure on it by the way i was holding the comb. I thought it was just wear and tear from doing the job for over 20 years.

Now I know its the MS. The last 2 weeks I can feel that middle finger feeling like it might lock. That feeling has let up a bit in the last few days but its still feeling like it.
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Avatar universal
I too have this and it is in both feet where my fourth toe takes on a downward pulling position and also spreads outwards.  I also get this in my hands where my small finger gets pulled down to the palm, almost like the tendon or ligament has been pulled very tightly...I found your question whilst looking for answers myself.  I can be sitting relaxed or exercising when this happens.  I also get leg calf cramps.  I do have neck and back problems, so was wondering if anyone else has neck/back pain and could it be connected to the spine...Lornaelizabeth x
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