I have expressed similar movements to my Dr. but it happens in my fingers. It's like they have a world of thier own. They move in multiple directions at the same time. It dosen't hurt, it just occures at will. I believe my Dr. thing I'm a little out there because he says it nothing he's heard of before. I've had ms for 30 years.
Well now....... At least I know I'm not alone in this fun house of toe spasms :-)
I never mentioned it previously but I have the same issue. Very annoying when it occurs and no remedy but to let the action have its way until it decides to cease.
Informed my neurologist about this and she viewed me as if I had two heads or that it was not relevant to my symptoms.
It truly is an odd and sometimes painful experience to see your toes react in this way. In my experience it seems to do better if I apply pressure but not always.
It's been happening more often in the last three months. Thx for sharing your experience as it provides me a sense of non craziness about the toe spasm issue I endure.
Ox
SC
I have something similar going on as well. My 3 last toes on my right foot will become very tight and pull off to the right. It is painful when it happens. I wanted to upload a picture to show exactly what happens but can't. It has been happening on and off for the last year or so. It will happen for a few days and go away, sometimes for months. It's back now and has been quite frequent in the past 2 weeks. It's like the whole right side if the foot gets tight while those toes veer outward. I have referred to it as frozen toes. Eventually it will let up on its own.
Another similar weird symptom was when doing the Atkins like ketogenic diet I had been on for a few years, I tried this ridiculous "carb note" diet where you deplete all your carb stores for 10 days and then on the evening of the 10th day you had a carb note where you would binge on simple carbs and high sugar candy/ junk to get a insulin spike and then you go back to keto the next day. Well the blood sugar spike would give me the worse spasms in my shins and my feet would cramp in a upward position. It didn't last but it happened ever time I was carb depleted and the ate sugar. That was right before I had that flare last year and it happened right before the one this year that began this nightmare. It also was happening on a much lesser degree in the early days if this flare that has just evolved and is not ending.
So me thinks the high blood sugar spike was a trigger to a phsudo flare... Or maybe even it trigger the actual flares. I think cutting out sugar is a good idea as far as MS goes.
Hmmm... Just another missing piece to this MS puzzle that now fits. I had this happen, not often but I can remember it happening once or twice in my childhood. Thought it was charlie horse.
Recently its happened a few times over the last 3 years or so. I thought it was arthritis from me working standing on my feet for years and years not wearing the right shoes.
My toes, and I can't recall if it was just my left or my right too but I know it was the left toes, they would cramp in a locked position and it would be painful but if I put my foot flat on the floor and put weight on it, it would stop. I thought it was a Charlie horse. It happened a couple of years ago when I was cutting hair, left hand middle finger just locked, very painful but a after a minute it let up. It happened twice during that time. I thought it was how I was putting too much pressure on it by the way i was holding the comb. I thought it was just wear and tear from doing the job for over 20 years.
Now I know its the MS. The last 2 weeks I can feel that middle finger feeling like it might lock. That feeling has let up a bit in the last few days but its still feeling like it.
I too have this and it is in both feet where my fourth toe takes on a downward pulling position and also spreads outwards. I also get this in my hands where my small finger gets pulled down to the palm, almost like the tendon or ligament has been pulled very tightly...I found your question whilst looking for answers myself. I can be sitting relaxed or exercising when this happens. I also get leg calf cramps. I do have neck and back problems, so was wondering if anyone else has neck/back pain and could it be connected to the spine...Lornaelizabeth x