Aa
Doc says no MS- go to therapy,labeled "undiagnosable", SO MAD!
You guys were right about Mayo neurology. During my initial consultation in Nov, my new neuro said that he was leaning towards MS, an if not that then there is some sort of issue based on my MRI (unspecified white spots), symptoms. and clinical exam ( he noted L side face hypersensitivity and arm weakness and areas of parasthesia.
He then schedules and Head MRI w/contrast, head CT, all three types of evoked potentials, LP, and blood work.
WELL..... I went back yesterday for my follow up visit, and for a rheumy consult. Rheumy says I do have slight central sensitization, (basically sensitive to certain smells, times of pain stimulus), but it's NOT fibro, and there are no auto immune issues- so this doesn't account for all my symptoms, that most are true neurological symptoms.
He runs one more set of specific blood work that I will get the results for on friday, but he is sure they will be negative, He called it "extra measures". He said my white spots are not consistent with microvascular damage, so no ischemia or vasculitis. He also says that I have one medium lesion on my MRI that the neuro will discuss with me. Super nice guy- spent an hour with me!
SO then I go see neuro---- He says based on "o-bands alone" I do not have MS, and I should be happy and go home and enjoy the news. However, I asked him then why does he think these symptoms persist, if not MS what could it be:
-numb genitals
-spontaneous hearing loss
-ABNORMAL brainstem auditory evoked potential
-toes on right foot going gimp
-left side of face vibrates
-double vision getting worse
-right hand coordination decreased
(that's the main issues)... he says "I don't know. You are undiagnosable within my scope. Have you tried cognitive behavior therapy?" So I asked him about my abnormal hearing test, TN, thunder in ears- things which he seemed concerned about in the original visit. Should I be concerned in the future? Are there home remedies to try? Any idea if I need repeat brain MRi in the future? What is that medium lesion the rheumy noted earlier in the day?
He says being negative for MS negates all those concerns and to go home and just deal. He then sat there and silently stared at hubby and I for 5 minutes as we waited for him to say additional info, but nope, nothing. Basically lying based on what he said at the first apt- if it's not MS then it's something. Well, he sure gave up quick on helping me figure out that "something"! It's like I had a visit with two different docs- like split personalities!
I am ready after seven years to turn my back on conventional medicine and turn to alternative med. BUT, I am worried about my loss of function and how it will persist. I have three kiddos, a hubby, and a dog. I need to know why my body won't cooperate. What should I do??
I am so upset, I just can't shake this anger....
He then schedules and Head MRI w/contrast, head CT, all three types of evoked potentials, LP, and blood work.
WELL..... I went back yesterday for my follow up visit, and for a rheumy consult. Rheumy says I do have slight central sensitization, (basically sensitive to certain smells, times of pain stimulus), but it's NOT fibro, and there are no auto immune issues- so this doesn't account for all my symptoms, that most are true neurological symptoms.
He runs one more set of specific blood work that I will get the results for on friday, but he is sure they will be negative, He called it "extra measures". He said my white spots are not consistent with microvascular damage, so no ischemia or vasculitis. He also says that I have one medium lesion on my MRI that the neuro will discuss with me. Super nice guy- spent an hour with me!
SO then I go see neuro---- He says based on "o-bands alone" I do not have MS, and I should be happy and go home and enjoy the news. However, I asked him then why does he think these symptoms persist, if not MS what could it be:
-numb genitals
-spontaneous hearing loss
-ABNORMAL brainstem auditory evoked potential
-toes on right foot going gimp
-left side of face vibrates
-double vision getting worse
-right hand coordination decreased
(that's the main issues)... he says "I don't know. You are undiagnosable within my scope. Have you tried cognitive behavior therapy?" So I asked him about my abnormal hearing test, TN, thunder in ears- things which he seemed concerned about in the original visit. Should I be concerned in the future? Are there home remedies to try? Any idea if I need repeat brain MRi in the future? What is that medium lesion the rheumy noted earlier in the day?
He says being negative for MS negates all those concerns and to go home and just deal. He then sat there and silently stared at hubby and I for 5 minutes as we waited for him to say additional info, but nope, nothing. Basically lying based on what he said at the first apt- if it's not MS then it's something. Well, he sure gave up quick on helping me figure out that "something"! It's like I had a visit with two different docs- like split personalities!
I am ready after seven years to turn my back on conventional medicine and turn to alternative med. BUT, I am worried about my loss of function and how it will persist. I have three kiddos, a hubby, and a dog. I need to know why my body won't cooperate. What should I do??
I am so upset, I just can't shake this anger....
I was on Lyrica for Peripheral Neuropathy (common with my cancer or from the cancer meds also). so yes, there were nerve issues with me, jut not of the MS kind... lol. two pills twice a day. I took it for 6 months. Worked great for pain, no longer felt like I was walking around on broken glass all the time! Coming off it you have to cut your dose in half for a few weeks, then in half again for a few weeks. until you are on a very small dose and can just stop it. I had a lot of Nausea when I stopped it, but that could also be related to my other issues / meds.
Hi,
Your symptoms sound just like what mine are doing right now--exactly! I have some additional ones, but yep...nice to know I am not alone.
I am going to message you and ask you some questions about onset, etc., of that is okay.
Just so you know, you deserve better. Do not let this deter you from finding a neurologist who has more evolved people skills than our ancestor homohabilis.
Your symptoms sound just like what mine are doing right now--exactly! I have some additional ones, but yep...nice to know I am not alone.
I am going to message you and ask you some questions about onset, etc., of that is okay.
Just so you know, you deserve better. Do not let this deter you from finding a neurologist who has more evolved people skills than our ancestor homohabilis.
I had a hard time coming off Lyrica too, it took me quite awhile, the first thing to come back with a vengance was the pain! but I made it and will never take it again.
just do it gradually, don't go cold turkey like this idiot did, and I should know better, the nurse in me lost to the hot headed me in that battle..
just do it gradually, don't go cold turkey like this idiot did, and I should know better, the nurse in me lost to the hot headed me in that battle..
Thanks for everyone's support!!
I spent a few days alone with my grumpy mood away from technology, or else I would've replied sooner. I am feelign ok, now, onward to a natural approach.
I am currently trying to get of lyrica- as I have been planning to do for a long time anyways. Goodness these withdrawals are hard!!
Not sure what to do next, but either way i wanted to pursue healthier eating and more vitamins, etc.
Love and blessings <3
I spent a few days alone with my grumpy mood away from technology, or else I would've replied sooner. I am feelign ok, now, onward to a natural approach.
I am currently trying to get of lyrica- as I have been planning to do for a long time anyways. Goodness these withdrawals are hard!!
Not sure what to do next, but either way i wanted to pursue healthier eating and more vitamins, etc.
Love and blessings <3
I have never seen a Neruo who didn't Make me second guess that yeah, maybe it was my head? I was told i was stressed out, had an anxiety disorder etc. The one dr. who was an "ms guy" told me: "a lot of young women who live busy lives come see me because they want me to tell them they have MS, but they don't, they just have busy stressful lives". a few weeks later I collapsed at work and was diagnosed with a rare form of bone marrow cancer.
So yes, maybe he was correct I did not have MS, but the problem with Medicine is that specialists are so intent on telling you what you don't have they are not trained to look at the whole picture and tell you what you do have! In my case blood work was very irregular, so if stuff had been followed up on I would have avoided two + years of going doctor to doctor looking for help.
Even now that my cancer is in remission I have issue that my specialist just glances over. Early chemo menopause for instance. After almost three years of hot flashes etc I finally was referred to a clinic for Premature Ovarian Failure, by chance, because of a transplant dr I saw about infections. it just so happens that his wife is the head urogynocologist who runs the clinic.
I've seen so many drs now I try not to take poor bedside manner personally, but it is hard. Being in limbo with no treatment was pretty much the worse time in my life. My only advice is to start keeping a journal how you feel, look for patterns and document stuff. try to find a dr who will look at you as a whole not just piece of you.
So yes, maybe he was correct I did not have MS, but the problem with Medicine is that specialists are so intent on telling you what you don't have they are not trained to look at the whole picture and tell you what you do have! In my case blood work was very irregular, so if stuff had been followed up on I would have avoided two + years of going doctor to doctor looking for help.
Even now that my cancer is in remission I have issue that my specialist just glances over. Early chemo menopause for instance. After almost three years of hot flashes etc I finally was referred to a clinic for Premature Ovarian Failure, by chance, because of a transplant dr I saw about infections. it just so happens that his wife is the head urogynocologist who runs the clinic.
I've seen so many drs now I try not to take poor bedside manner personally, but it is hard. Being in limbo with no treatment was pretty much the worse time in my life. My only advice is to start keeping a journal how you feel, look for patterns and document stuff. try to find a dr who will look at you as a whole not just piece of you.
You can't give up. That said, my neurologist once told me that the neurology community knows that for every one disease they can recognize, there are several more that they don't know/understand yet. I'm very happy with both neuros I see, but I had to "kiss" a few frogs first too. You have to keep going. Make sure you keep a diary. I would also request transcripts of every appt, along with tests, and radiologist impressions. These will be helpful to the next doctor, of course- but in time (not to scare you) it's possible you may even need them to prove progression to the government..
I'm sorry if this sounds bad. You probably won't need it, because nowadays- a lot of folks with MS won't become completely disabled. If it's like that for MS, it must be true for other neurological problems too.
*After re-reading this post, I was inclined to delete it all, because it reads very negatively. But I also think it's important for everyone to that is waiting for a diagnosis to keep careful records... So, I'm posting it anyway.
Keep hunting for the doctor that will treat you. They can give you meds to help manage symptoms, even if they can't officially diagnose you yet. You may have to ask for it though.
Hang in there.
Tammy
I'm sorry if this sounds bad. You probably won't need it, because nowadays- a lot of folks with MS won't become completely disabled. If it's like that for MS, it must be true for other neurological problems too.
*After re-reading this post, I was inclined to delete it all, because it reads very negatively. But I also think it's important for everyone to that is waiting for a diagnosis to keep careful records... So, I'm posting it anyway.
Keep hunting for the doctor that will treat you. They can give you meds to help manage symptoms, even if they can't officially diagnose you yet. You may have to ask for it though.
Hang in there.
Tammy
Its so frustrating and scary isnt it. They think they are god in my opinion. I was told to go ride a bike and feel better about myself and become part of my family again, because thats when i broke down and cried, trying to tell them my kids are worried and i cant seem to do the same things i used to with them. By crying he just said i am stressed.
He said to me I can never go back to work in my field again, but wont put that in writing. just said I may never be diagnosed, just one of those things, and to just concentrate on what I can do. Thats it, the door has been closed.
If not for my current doc fighting for me, I would never be seeing anyone again, his words 'the door should never be closed" and I should at the very least have 6 mth appointments to keep check.
So when I tried to see the neuro again because new symptoms have come up he refused to see me. I guess because i hounded him (he took 6 months to fill out paperwork fo my employer) he is angry.
We basically are left to diagnose ourselves, and by everyones comments on here I am learning what helps and what to try, I have had more help from here than by doctors for 2 years. I got to the point whenever something new showed up, or something old flared up, I didnt bother going to docs, now I do because from reading on here at least it is being recorded somewhere.
good luck, I know its frustrating, I wont say stay positive because that peeves me off lol.
He said to me I can never go back to work in my field again, but wont put that in writing. just said I may never be diagnosed, just one of those things, and to just concentrate on what I can do. Thats it, the door has been closed.
If not for my current doc fighting for me, I would never be seeing anyone again, his words 'the door should never be closed" and I should at the very least have 6 mth appointments to keep check.
So when I tried to see the neuro again because new symptoms have come up he refused to see me. I guess because i hounded him (he took 6 months to fill out paperwork fo my employer) he is angry.
We basically are left to diagnose ourselves, and by everyones comments on here I am learning what helps and what to try, I have had more help from here than by doctors for 2 years. I got to the point whenever something new showed up, or something old flared up, I didnt bother going to docs, now I do because from reading on here at least it is being recorded somewhere.
good luck, I know its frustrating, I wont say stay positive because that peeves me off lol.
Oh, great, the chair of the grievance committee. Sounds like something that would happen to me.
The whole thing just reeks.
Hugs, Minnie
The whole thing just reeks.
Hugs, Minnie
Yes!! I vote for refund!!
When you don't get what you paid for.....equals REFUND!! Man if I got a refund from all the doctors I saw, I would be RICH!!!! :D
When you don't get what you paid for.....equals REFUND!! Man if I got a refund from all the doctors I saw, I would be RICH!!!! :D
My biggest gripe is that he lied to me- he kicked me out the door because of no MS....and he said from the beginning that he wouldn't do that.
But, he is the chair of grievance committee, so... oh well.
At least rheumy doc was super nice!! (all conditions there negative, except for CFS....)
But, he is the chair of grievance committee, so... oh well.
At least rheumy doc was super nice!! (all conditions there negative, except for CFS....)
Sorry for the loooooong explanation this morning. I am not as mad now, quite tired really, about to go enjoy family time. Just wanted to say thanks for support!
One more thing, sorry,...
My hubby was there- grilling him as well. doc literally just stared silently at us for five minutes while we waited for him to give us a suggestion for the future at least.
My test monitor for hypertension was negative, and rheumy said i have ZERO signs of vascular issues- so what are those spots in my brain? I get the classic- migraine spots theory. I just read the report he published in my medical record- said that white matter changes WERE seen but do not suggest MS at this time.
He didn't say anything about that in my apt when I asked him. Also, he noted that my auditory test was normal. Later said it was abnormal, but since he couldn't get a hold of the interpreting doctor, that he just cross checked it with a published article that suggests an occasional natural rarity of this type of test...so he said that must be my issue. A rare natural occurance.
I dunno... I would like to just move on. But then I think "Well what if parts of me are functioning even less in a year?"
Also- I would like a REFUND on time and money spent. Who's with me on that, eh?? ;)
Why do neuros think in such black and white terms?
One more thing, sorry,...
My hubby was there- grilling him as well. doc literally just stared silently at us for five minutes while we waited for him to give us a suggestion for the future at least.
My test monitor for hypertension was negative, and rheumy said i have ZERO signs of vascular issues- so what are those spots in my brain? I get the classic- migraine spots theory. I just read the report he published in my medical record- said that white matter changes WERE seen but do not suggest MS at this time.
He didn't say anything about that in my apt when I asked him. Also, he noted that my auditory test was normal. Later said it was abnormal, but since he couldn't get a hold of the interpreting doctor, that he just cross checked it with a published article that suggests an occasional natural rarity of this type of test...so he said that must be my issue. A rare natural occurance.
I dunno... I would like to just move on. But then I think "Well what if parts of me are functioning even less in a year?"
Also- I would like a REFUND on time and money spent. Who's with me on that, eh?? ;)
Why do neuros think in such black and white terms?
Ugh, I so agree with you! Like, just because they say we don't have something, we can just turn off the symptoms and hey, we're fine! Or we can just choose to ignore the symptoms. Really???
I am NOT one of those people who spends tons of money on doctors for the fun of it, and I believe I am safe in saying that those of us here aren't either. In other words, I don't go to the doctor unless something gets bad and/or someone makes me. It is downright insulting to basically be told to pull yourself up by the bootstraps and tough it out simply because that one person doesn't know what's wrong with you!!!
Perhaps another Neuro/Bad Doctor Weenie Roast is in order??? :D
Hugs,
Minnie
I am NOT one of those people who spends tons of money on doctors for the fun of it, and I believe I am safe in saying that those of us here aren't either. In other words, I don't go to the doctor unless something gets bad and/or someone makes me. It is downright insulting to basically be told to pull yourself up by the bootstraps and tough it out simply because that one person doesn't know what's wrong with you!!!
Perhaps another Neuro/Bad Doctor Weenie Roast is in order??? :D
Hugs,
Minnie
I have taken the liberty of cut/paste part of Ess's reply to someone about Mayo that i found very good......am sure she won't mind, the rest of the post pertained to the user's specific problem:
essdipity
Dec 01, 2012
Those of us who have been on the forum for several years or more have heard many negatives about neurology at Mayo, and even have a saying, "Hold the Mayo."
Why their criteria for diagnosis of MS differ from those of all other reputable centers (at least in the US) is a puzzling question, about which there has been quite a bit of speculation. But in any case, many of us here would hestitate to recommend Mayo to newcomers.
Neurologists in general are not known for their interpersonal skills, to put it mildly, and when MS enters the mix, with its difficulty in diagnosis, many patients are put off, hurt or angry by apparent brush-offs and even rudeness on the part of a good many medical practitioners. There are loads of threads here that talk about this.
Nevertheless, there are kind and compassionate MS specialists out there. If you need help finding one, members here can help with suggestions on what to look for.
essdipity
Dec 01, 2012
Those of us who have been on the forum for several years or more have heard many negatives about neurology at Mayo, and even have a saying, "Hold the Mayo."
Why their criteria for diagnosis of MS differ from those of all other reputable centers (at least in the US) is a puzzling question, about which there has been quite a bit of speculation. But in any case, many of us here would hestitate to recommend Mayo to newcomers.
Neurologists in general are not known for their interpersonal skills, to put it mildly, and when MS enters the mix, with its difficulty in diagnosis, many patients are put off, hurt or angry by apparent brush-offs and even rudeness on the part of a good many medical practitioners. There are loads of threads here that talk about this.
Nevertheless, there are kind and compassionate MS specialists out there. If you need help finding one, members here can help with suggestions on what to look for.
yes you can have an MRI, get ahold of your cardiologist, I did, and he said, yes, most have one cardiologist who goes to the MRI with you.
What they do is turn off your pacemaker, no harm to you, this is just to preserve the settings, the pacemaker rep is also there.
After the MRI, then turn it back on and the rep checks it again to make sure all settings are ok.
The cardiologist is in there with the rad doing the MRI............
I thought I couldn't also, but my neuro said yes I could.
always be proactive!
What they do is turn off your pacemaker, no harm to you, this is just to preserve the settings, the pacemaker rep is also there.
After the MRI, then turn it back on and the rep checks it again to make sure all settings are ok.
The cardiologist is in there with the rad doing the MRI............
I thought I couldn't also, but my neuro said yes I could.
always be proactive!
Your doctors says to you ...."I should be happy and go home and enjoy the news"..... What a jerk! I have been told.... "don't worry about your 'symptoms' just go and enjoy your life!" HELLO!!! because of my symptoms I CAN NOT enjoy my life!!! Idiot! Sorry....these kinds of statements from doctors gets my blood boiling!
My idea of a "great" doctor is one who listens, does appropiate testing, and does NOT "kick you out the door" with, you do not have MS, and I should be happy and go home and enjoy the news.
I have unfortunately found that MOST doctors who are considered "good or great" by their patients, is because their patients symptoms in the "diagnostic box".
I am NOT one of those patients.....hense, I have seen MANY doctors.
Funny, but as I look back on all the times I was "sick" in my life...I have NEVER been a 'textbook' case on anything!.......High Blood pressure, hypothyroidism, Mono, Fibromyalgia to name a few, and now MS. ......I still haven't gotten a definate dx of MS....just Probable because again I don't fit completely in the MS dx criteria.
I am currently waiting on my MS specialist to look at my recent MS protocol MRI. My appointment is March 26th. Everyone has told me he is the best, he is the MS guru. OK...I will be the judge of that. If my MRI isn't classic MS, what is he going to do? Is he going to say see-ya OR is he going to follow up with me OR refer me to someone who might be able to help me?
When he examined me (back in Nov 2012) he said my exam and history is classic for MS, but my lesions are only in my brainstem. (so no MS dx yet) He said if it was 1983 I would have been easily dxed with MS, but now with the MRI ect....it isn't so simple anymore.
I am SO sorry you are being put through all this! My heart goes out to you. Please do not give up hope! Like me, you don't fit in the "box". Just keep searching....you KNOW your body! Something IS wrong! Don't let a "great" doctor's opinion make you give up on finding the answer!
Hugs and prayers,
Laurie :)
My idea of a "great" doctor is one who listens, does appropiate testing, and does NOT "kick you out the door" with, you do not have MS, and I should be happy and go home and enjoy the news.
I have unfortunately found that MOST doctors who are considered "good or great" by their patients, is because their patients symptoms in the "diagnostic box".
I am NOT one of those patients.....hense, I have seen MANY doctors.
Funny, but as I look back on all the times I was "sick" in my life...I have NEVER been a 'textbook' case on anything!.......High Blood pressure, hypothyroidism, Mono, Fibromyalgia to name a few, and now MS. ......I still haven't gotten a definate dx of MS....just Probable because again I don't fit completely in the MS dx criteria.
I am currently waiting on my MS specialist to look at my recent MS protocol MRI. My appointment is March 26th. Everyone has told me he is the best, he is the MS guru. OK...I will be the judge of that. If my MRI isn't classic MS, what is he going to do? Is he going to say see-ya OR is he going to follow up with me OR refer me to someone who might be able to help me?
When he examined me (back in Nov 2012) he said my exam and history is classic for MS, but my lesions are only in my brainstem. (so no MS dx yet) He said if it was 1983 I would have been easily dxed with MS, but now with the MRI ect....it isn't so simple anymore.
I am SO sorry you are being put through all this! My heart goes out to you. Please do not give up hope! Like me, you don't fit in the "box". Just keep searching....you KNOW your body! Something IS wrong! Don't let a "great" doctor's opinion make you give up on finding the answer!
Hugs and prayers,
Laurie :)
Oh, and my neuro used that "undiagnosed" word yesterday too! As in, "You may end up being one those patients that just remains undiagnosed..." Nice!
I feel your pain!
I sat crying in my neuro's office yesterday trying to explain to him how frustrated I was, how I'm struggling just to be a part of my family (I have three kids, a hubby, and an assortment of pets all relying on me too!) and I just seem to be getting nowhere!
He ended up giving me a referral to a rheumy and I spent all afternoon on the phone being transferred from one person to the next trying to explain to them why I was supposed to see them. They remain doubtful that I belong there and requested I have the neuro send another, more detailed referral explaining just why he thought I should go there. Oy.
I know these things take time, but I am so tired (literally) of being passed around and waiting months and months to see the next person or for a "follow-up". Yet, it seems to be the nature of the beast, so to speak. It's just very upsetting when you're suffering and you don't know why!
You have my empathy and my prayers!
I sat crying in my neuro's office yesterday trying to explain to him how frustrated I was, how I'm struggling just to be a part of my family (I have three kids, a hubby, and an assortment of pets all relying on me too!) and I just seem to be getting nowhere!
He ended up giving me a referral to a rheumy and I spent all afternoon on the phone being transferred from one person to the next trying to explain to them why I was supposed to see them. They remain doubtful that I belong there and requested I have the neuro send another, more detailed referral explaining just why he thought I should go there. Oy.
I know these things take time, but I am so tired (literally) of being passed around and waiting months and months to see the next person or for a "follow-up". Yet, it seems to be the nature of the beast, so to speak. It's just very upsetting when you're suffering and you don't know why!
You have my empathy and my prayers!
do a search within our posts for mayo neurologist, there were some excellent posts describing their unconventional approach to MS. Its like they are living in the dark ages and refuse to come out into the light.
over to the right usually below the first ad, there is a blank called "search in or within this community", use that I think. If not, am sure someone will tell you how, I have never used it, I confess but I read the Mayo explanations.
over to the right usually below the first ad, there is a blank called "search in or within this community", use that I think. If not, am sure someone will tell you how, I have never used it, I confess but I read the Mayo explanations.
Why are the neuros at Mayo bad? That's where I've been going as I am being looked at for MS but now I am nervous after hearing you guys talk! I am from Rochester MN so it was just automatic for me to go there...
RUN........to a new neuro.........this guy is a jerk.....CBT, what an idiot.
Mayo is known for this unconventional behavior. But that said, I dumped a neuro who told me I had fibro/alzheimers and to "get over this MS fixation I had". My next neuro, recommended from here, found a bunch of lesions on MRi's that Mr. Fibro/alzheimers had not bothered to even look at, just read the rad report. Not all neuro's are alike, we just have to kiss a lot of toads til you find the prince. That's what my neuro's nurse said (the good neuro)
find someone that someone recommends...........be nice when you say you have been to Mayo, just say you are not satisfied with the 'go home and deal with it" theory.
Be kind to yourself, you need answers, be proactive, and hang in there, we're here for unlimited rant sessions!
Mayo is known for this unconventional behavior. But that said, I dumped a neuro who told me I had fibro/alzheimers and to "get over this MS fixation I had". My next neuro, recommended from here, found a bunch of lesions on MRi's that Mr. Fibro/alzheimers had not bothered to even look at, just read the rad report. Not all neuro's are alike, we just have to kiss a lot of toads til you find the prince. That's what my neuro's nurse said (the good neuro)
find someone that someone recommends...........be nice when you say you have been to Mayo, just say you are not satisfied with the 'go home and deal with it" theory.
Be kind to yourself, you need answers, be proactive, and hang in there, we're here for unlimited rant sessions!
I am so sorry. Why do they do the Jeckyll/Hyde thing???? Oh yes, I want to help you, blah blah, but then if you present the least bit of challenge or don't fit into their little box then out you go!
I don't know what I have either. My neruologist is leaning toward MS but after my "slightly abnormal" (I guess not abnormal enough) LP results, he is sending me to an MS specialist, which is fine. I am getting the impression that it is one of those, "Let HIM tell her," kind of things. I'm scared to death.
I do know one thing from reading the Health Pages and the advice of the great people here who have been through this. The LP may help clinch a diagnosis, but a negative one does NOT mean you do not have MS.
I don't want MS (as I'm sure you don't either); rather, just want to know what is wrong.
Sending hugs and good vibes your way. And some Effitol...take prn ;)
Minnie
I don't know what I have either. My neruologist is leaning toward MS but after my "slightly abnormal" (I guess not abnormal enough) LP results, he is sending me to an MS specialist, which is fine. I am getting the impression that it is one of those, "Let HIM tell her," kind of things. I'm scared to death.
I do know one thing from reading the Health Pages and the advice of the great people here who have been through this. The LP may help clinch a diagnosis, but a negative one does NOT mean you do not have MS.
I don't want MS (as I'm sure you don't either); rather, just want to know what is wrong.
Sending hugs and good vibes your way. And some Effitol...take prn ;)
Minnie
Hello there imso sorry that you are upset but i have been there.iwas so sick and the doctor could not diognose me because i have a pacemaker and can not take mri but i new that something was wrong becaus i know my body i was persitence and last nov,2012 i was diognose and i was happy that now i can name it. It took them 4 years.so im saying to you do what you gotta do if it means changeing Neruo...Wishing you all best...and look dont give up.Much love.
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Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
