With the medications to slow progression more and more people are like you. I wish you all good health.
Alex
McDougall promotes eating grains, nuts, basically no meat. If you read the whole30 program,and the paleo view about grains, it makes sense that they cause inflammation. When my husband did the paleo/whole30 kind of thing, he felt better, had more energy, had to greatly reduce his diabetes meds, etc.
Hi and welcome to our little MS community,
Gulp lol this was a 'very contentious' discussion which dates back to 2010, and the original poster has not been active on medhelp for years now......
Please consider opening a 'new question box' found at the top of your screen and introduce your self to the community, so we can get to know you!
Cheers........JJ
I have to be honest, from your first post I wondered if this was a sales pitch and in my opinion it seems to be. For those of us that suffer with MS, despite our diets, I find this offensive and I think you should take this somewhere else.
That is odd all you have to do is google it. You are welcome on our site unless you are a troll trying to push the "said diet". We here do not endorse the "said diet" or any other with claims. We promote good nutrition in general for good health but do not talk of diets as cures nor do we wish to open that debate again.
Thank you
Alex
Just read about "Dr. Swank" and his diet for MS patients. I'm having no luck finding any information about this on line - could you please help direct me?
Suzanne
welcome. would you please copy your question and start this as a new thread? You have posted this on the end of a very long and somewhat convoluted discussion about another MS related topic.
I want to be sure that you get answers to your question and don't get overlooked.
Lulu
Hi everyone, what are the classic symtons of ms? I was diagnosed with meneires and had taken dr strand supps recomendation. And I felt well. However lately I felt my head being so light and always feel as if I'm floating I can't describe the feeling well here. And sometimes I felt like my nose had a funny sensation and it creeps up to my head. Ahh my head sometimes felt like a pair of hands creeping. I also suffer from anxiety so sumtimes if there r no symtons I indirectly invite anxiety as I m so used to feel symtons. Pls can someone help me n tell me the symptoms of ms. Thank u.
Thank you COBOB for backing me and all our friends up....
I never knew I was "dramatic." lol
God Bless our forum.....
Best wishes,
terri
I applaud both of you. Wishing I had the knowledge and use of language to have gotten my message across better. Thank you for speaking for me.
I don't see this as an issue about dictatorships. Most of us are very open minded and free thinking people. We also respect each other for the most part. The problem is that we do get people (companies) that open accounts on here and try and sell us their miracle yogurt, etc. We also hope to educate people is how not to get sucked in by scientifically unsupported claims of cure, improvements, etc.
No one on here said that they were against healthy diets, but the "over statement of "cures or control of symptoms" for MS gets our hackles up. We are aware of the MS diets. We are also aware of what the third party research has shown in relation to the diets. Some of the basic ideas are leading to research in Omega-3 and Omega-6 and neural repair, but the diets themselves have not produced repeatable results in designed and blinded clinical evaluations. That is not a negative or abusive slander....it is scientific fact. Sorry. It would be great if I could eat a carrot and not have to take Copaxone, but it doesn't look promising.
I'll try and keep a smile about this, but hearsay is not proof. Convincing myself is not proof (that is conviction.) When a panel of neurologist peers accept the design of a study and the publication of it results, that is leading towards proof. Diets didn't even get that far. The authors results were published in the journals, the publishers printed the books and sold them to a bunch of us desperate MS patients and then the other researchers were not able to consistently duplicate the authors results in controlled blinded studies.
Some of us are Medical Doctors, Allied Heath Professionals, Engineers, etc. In general, scientists. We believe in the scientific method and the rigorous examination of data. The MS Diets have not hit that level of rigor . Neither has CCSVI, but we are holding out hope.
We debate...somewhat civilly and we try and support our claims and research. We go back to source publications. We don't like hearsay or anecdotal claims.
If you have to leave, so be it, but I think you might have been able to learn a few things here. We have some very knowledgeable people here. If you put something out there, you can get called on it. For the most part, the warnings and comments are made to educate folks that you can try any diet you like, but you should have no expectation that it will in any way change the course of MS.
Give me a break Terri. What is this forum a dictatorship? Last time I checked this was a public forum. Aren't you being a bit dramatic!!! I'm pretty sure bornworrier wasn't solicitating or trying to sell you a diet. Its a legit question and topic of discussion.
"Those of us here on the MS forum help and listen to each other...we do not debate..."
Just a bit extreme right there. Guess whatever you say or the majority says everyone else should just sit back and accept?? No debating allowed?? I don't think so..... Any ways I'll take myself off this forum for good. No black sheep allowed I guess.
I should hate to see a new member like myself come to You're MS forum and see how negative close minded individual can be just because the idea is in the minority.
Ditto sslowe... Thank you and well stated....
I have been on this wonderful forum for the past several years and NEVER have seen someone rant on and on as this person has done.
This forum is one that has brought so many of us together to help one another, comfort each other when there are those who do not understand this disease, listen and answer questions.
The only thing that I got from this post was somebody trying to sell a diet.....
As stated previously by others, there is no cure for MS. Once you have it, you will always have it..... There are only a handful of things we can do to try and lessen or slow the progression of the disease.
I would hate to see a new member come to our MS forum and find this negative, ranting post about a diet, which is inconclusive. Our new members usually stumble across our site looking for answers........
To the member who started this post, PLEASE take your dietary comments and soliciting elsewhere. I pray you do not have MS........
Those of us here on the MS forum help and listen to each other....we do not debate....
terri
Bravo Shelly. Giving you a standing ovation.
Julie
Born,
Grownups know all too well that individuals are entitled to their beliefs and hopefully those beliefs lead individuals to a peaceful existence in life not matter what is thrown at them.
That said, on this forum we are the dx'd, the misdx'd and undx'd and together we get through good and bad times despite our differences.
It's wonderful the diets you mention are helping you and others. I can assure you that no-one on this forum is about to discount anything that makes them feel better even if it's cookies.
DMDs are helping the damage caused by MS - it's a fact, and there is proof. The concrete kind --- drawn from yrs of imaging and clinical evidence. Though decisions to try them or not is very personal and one we don't push because we understand the downsides too.
Diets have changed the course of diseases for decades, it's a fact and there is evidence. Diabetes comes to mind, but only using one for example purposes.
Truth of this matter is that here we all help feel each other feel more comfortable w/the choices available to us. We present those choices based on facts discovered by the medical community and the sciences. We try hard to understand that but we all have our own unique levels of education and experiences.
Having said that, what we don't do however, is use the forum as a vehicle to drive over our differences with hurtful words. It's what sets us apart. If you can, please refrain from calling members to the mat, so to speak, by using such words as mystery disease, or insinuating we don't read literature, or that we are unwilling to try things. It's simply not so, and it has caused more than one of us to become defensive myself included and the reason is this.............
My life and the life of my friends here are working hard to get through each day w/ limitations and consequences directly caused by the damage to our CNS caused by MS. I'm here because I want to learn, and I want to support those affected by this disease and/or the mimics.
We are connected in a way that only those who live the life daily can understand - it's priceless connections.
I hope this discussion can end now with some understanding on both sides.
Thanks,
-Shelly
Personally I think it's not very scientific to claim that your diet has cured your MS symptoms, when #1 - you haven't been diagnosed with MS, and #2 - no clear evidence has been shown that diet has cured MS. As I've said before, any low fat high fiber diet is good for you.
Again, I dreaded posting on this thread cause I knew it could potentially be a minefield. I don't find the comments negative b/c I don't take anything personally anymore. A forum such as this is frought with the possibilities that what you say will be misunderstood. The type-written word doesn't even come close to conveying someone's real meaning or emotion.
I am so grateful for all of you who have contributed b/c I have learned so much, even things about myself. So, everyone keep posting if you have something to say b/c there are those that want to hear the different points of views. Gosh, I love this forum!
Julie
You are looking for hope for a disease that you have stated, " I have had mild MS-like symptoms for 22 years". You admit that in those 22 years you have never been diagnosed. So what are you hoping for? Just general good health? or hope that you won't be given the diagnosis?
I can give you some hope. After 22 years I doubt you will see MS. Surely by now the doctors would have found it.
I think you might mean the Lancet. Again, you need to read the studies. Uncontrolled with small populations. This is the key reason that the National MS Society says that the studies are lacking. Attempts to replicate the original studies return conflicting results. Once you add control populations and blind the investigators, the claims fall short. Picking one person or one case or your personal experience is anecdotal evidence, not proof. I'm not being negative and I'm not knocking the need for a good balanced diet. Grass fed beef is very high in Omega-3 and the essential fatty acids. That is a medical fact. I would never go as far as to say you should only eat grass fed beef on an MS diet.
What links your speculation to outcome? Is the good diet the causality for the reduction is symptoms or relapse? What are the false positive and false negatives in the the cohorts of the study?
I'm sure some people feel better with magnetic bracelets and harmonic whatever. Yes, diet can help for some things: Rickets, Beriberi , etc. Yep. Statistically and scientifically proven. Rebif, Copaxone and the rest of the CRABs....Yep Statistically and scientifically proven for over 20 years. Omega-3 and Omega-6 fatty acids...nope, but may be worthy of study. There have been published articles that caffeine prevented EAE in mice, leech saliva re leaves MS symptoms and amiloride (a diuretic) protects nerve tissue. They all need more research. I support research into diet, but again, the National MS Society and their doctors nurses and scientists stand by the statement:
"MS specialists recommend that people with MS adhere to the same low-fat, high fiber diet that is recommended for the general population.
T
The Problem with Special Diets
While many different diets have been proposed as a treatment, or even a cure, for the signs and symptoms of MS, evidence of effectiveness is very limited. There is some evidence that a diet low in saturated fats and supplemented by Omega 3 (from fatty fishes, cod-liver oil, or flaxseed oil) and Omega 6 (fatty acids from sunflower or safflower seed oil and possibly evening primrose oil) may have some benefit for people with MS.Most of the diets that have been touted as helping people with MS have not been subjected to rigorous, controlled studies, and the few that have been evaluated have produced mixed results. Most of the claims made for dietary treatments are based on personal accounts, and the reported benefits may have been spontaneous changes that would have happened without any treatment.
Some Diets May Be Harmful; Others Are Fine
Some special diets may be harmful because they include potentially toxic amounts of certain vitamins, or exclude important nutrients. Others conform to the low fat, high fiber diet recommendations of the American Heart Association and the American Cancer Society for all Americans."
If it make YOU feel better fine, but don't present this research as medical proof since it is far from proven. This is like the miracle stuff on TV that has the disclaimer: "...has not been evaluated by the FDA and is not for the treatment of any disease or condition."