Aa
Does Tysabri help
Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.
I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.
Hi Miche
Sorry your having problems. Tysabri is a step above Copaxone,Avonex, & Tecfidera in terms of strength. All of them are more designed to stop the forward progress of MS rather than repair damage already done. What does you neuro have to say?
Kyle
Sorry your having problems. Tysabri is a step above Copaxone,Avonex, & Tecfidera in terms of strength. All of them are more designed to stop the forward progress of MS rather than repair damage already done. What does you neuro have to say?
Kyle
I have tried Ampyra and it did not help me, it gave me really bad side effects such as shortness of breath. I don't take anything now and I am just hardly walking at all. I don't know what to do.
PS - If improved walking is a goal talk to your neuro about Ampyra. I take it daily and think it does help.
Don't get scared of its cost. With Acorda's co-pay assistance I get it for $40/month.
Don't get scared of its cost. With Acorda's co-pay assistance I get it for $40/month.
Hi Miche-
Welcome to the group :-)
Tysabri is a Disease Modifying Drug (DMD). It is given to help slow, if not stop, the progression of MS. It is not geared towards relieving current symptoms. It is supposed to help prevent new symptoms from developing or current symptoms from worsening, but not making existing symptoms better.
That's the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion. I received 20 Tysabri infusions and didn't really feel much of either one. The good news was that I did not feel any obvious progression of my MS.
Secondary Progressive MS is the eventual landing spot for 85% of people diagnosed with RRMS. I am among them. In fact, as SPMS was my initial diagnosis, I had it before I ever new I'd had RRMS :-) The way I see it, SPMS is just a label. How I feel is much more important!
Kyle
Welcome to the group :-)
Tysabri is a Disease Modifying Drug (DMD). It is given to help slow, if not stop, the progression of MS. It is not geared towards relieving current symptoms. It is supposed to help prevent new symptoms from developing or current symptoms from worsening, but not making existing symptoms better.
That's the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion. I received 20 Tysabri infusions and didn't really feel much of either one. The good news was that I did not feel any obvious progression of my MS.
Secondary Progressive MS is the eventual landing spot for 85% of people diagnosed with RRMS. I am among them. In fact, as SPMS was my initial diagnosis, I had it before I ever new I'd had RRMS :-) The way I see it, SPMS is just a label. How I feel is much more important!
Kyle
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