Does anyone else have more fatigue when on steroids?

[maxthecat43]

I'm on a course of steroids this week.  My symptoms are improving, but my fatigue is much worse than usual.  This has been my reaction to IVSM and prednisone, every time I've taken them- w/ the exception of the first time.

My doc says that this can happen, but isn't it much more common to have excess energy?  Seriously, this week I could sure use it!

Tammy

[maxthecat43]

I think your experience is the normal one :o)

[kwarendorf]

Sorry you're dragging Tammy. During my one IVSM advnture i was the opposite. My GF was a little ascared a me :-)

[yorkieville]

You're so welcome, Tammy.

I did a quick search-no Entocort wouldn't help you. I get mixed up with my steroids. Too many auto-immune diseases.

Sheila

[maxthecat43]

Thank you Sheila.  

Hugs to you too! :)

Tammy

[yorkieville]

Hi, Tammy.

I feel terrible for you.

Oh, I take Entocort for Lymphcytic Colitis. I don't know if it would help you.

You are NOT whining. You're feeling miserable, and we are here for you.

You should read some of my posts from when I 1st joined in 2007.

And believe me, I still complain.

Just sleep-your body needs it.

(((HUGS)))
Sheila

[maxthecat43]

Today, I am so exhausted I can barely keep my eyes open.  Still, without the steroids, I would be stuck in my wheelchair.  

Sheila, I have never heard if Entocort.  I will ask my neuro about it on Friday.  I wish my insurance covered Acthar gel.  

Sorry, I just can't seem to stop whining...

[yorkieville]

Hi, Tammy.

I'm so glad that your symptoms are improving.

When I had the 3 day IVSM and the tapering down with oral prednisone, I had a lot of energy.

But, now I have been on Entocort, since mid-December for another medical issue, and I have found that I am feeling very fatigued.

I wonder if taking steroids long term makes the difference.

Sheila

[Tiredofbeingnumb]

It is definitely more common to be "revved up" on steroids, but I've experienced them like you--steroids wipe me out. I actually sleep really well while on the 3 day IV infusion.  I don't take steroids for every new symptom but only for those that are really bothersome. As far as my MS symptoms go, the steroids work great for that.  I always see an improvement. Maybe not a dramatic one, but an improvement nonetheless.

It's good that your symptoms are improving!