Aa
Doubting diagnosis
Perhaps it's merely my periodic attempt at denial but I've been having doubts about my MS diagnosis lately. This is especially odd since I've had a huge increase in severity of rapid muscle fatigue the last few months.
Often these days I don't go further than about 100 strides before I need to rest. If I keep going my steps get short, my gait gets sloppy, and the fatigue turns to pain. Sometimes I have to actually sit down for a spell to recover any strength. Used to be I could just stop and rest while standing. Used to be I complained about not being able to walk more than a mile! I should really learn not to complain.
The muscle fatigue is in my arms as well. I can't keep both arms up on the steering wheel when I drive for long periods of time. Can't sit and write for long either without my hand giving out and the writing looks like crap.
I 'recover' pretty rapidly only to repeat the same routine over and over. It takes me forever to get anything done around the house because I am constantly rotating tasks in order to use/rest a variety of muscles. I can't focus on getting any one thing finished.
I've been wondering if this isn't more characteristic of myasthenia gravis than multiple sclerosis. I've also realized that the vast majority of my symptoms are more motor than sensory. That doesn't seem to fit with all the tingling, numbness and pain I hear other people here talk about.
Yet, even as I write this I realize that just this evening in the grocery store I thought my lower leg was wet. Checked it out. Guess what? Dry as a bone on skin and clothes. Maybe I just don't remember the stuff that doesn't impact my functioning so much?
Please help me out with your input. Do others here have muscle fatigue followed by relatively rapid recovery of strength? More motor than sensory symptoms? A mind that was relieved to hear a diagnosis and then turned around and tried to deny it? Anyone think being tested for MG is worth asking about?
This is my first spring since diagnosis. It's a time of year that has been hard for me in years past even though I look forward to it with big plans. I did call the neuro's office to try and verify if this is from the early heat wave we've had here or if it's an exacerbation. After conferring with the doc, the nurse told me "He thinks you're having MS symptoms". Very helpful, eh? They did put me on the cancellation call-back list and I got my appointment moved up from 8/11 to 6/28. Just trying to get myself prepped I guess.
Thanks to anyone who stuck with me through this long process of a post.
All response welcome and in fact begged for.
Mary
Often these days I don't go further than about 100 strides before I need to rest. If I keep going my steps get short, my gait gets sloppy, and the fatigue turns to pain. Sometimes I have to actually sit down for a spell to recover any strength. Used to be I could just stop and rest while standing. Used to be I complained about not being able to walk more than a mile! I should really learn not to complain.
The muscle fatigue is in my arms as well. I can't keep both arms up on the steering wheel when I drive for long periods of time. Can't sit and write for long either without my hand giving out and the writing looks like crap.
I 'recover' pretty rapidly only to repeat the same routine over and over. It takes me forever to get anything done around the house because I am constantly rotating tasks in order to use/rest a variety of muscles. I can't focus on getting any one thing finished.
I've been wondering if this isn't more characteristic of myasthenia gravis than multiple sclerosis. I've also realized that the vast majority of my symptoms are more motor than sensory. That doesn't seem to fit with all the tingling, numbness and pain I hear other people here talk about.
Yet, even as I write this I realize that just this evening in the grocery store I thought my lower leg was wet. Checked it out. Guess what? Dry as a bone on skin and clothes. Maybe I just don't remember the stuff that doesn't impact my functioning so much?
Please help me out with your input. Do others here have muscle fatigue followed by relatively rapid recovery of strength? More motor than sensory symptoms? A mind that was relieved to hear a diagnosis and then turned around and tried to deny it? Anyone think being tested for MG is worth asking about?
This is my first spring since diagnosis. It's a time of year that has been hard for me in years past even though I look forward to it with big plans. I did call the neuro's office to try and verify if this is from the early heat wave we've had here or if it's an exacerbation. After conferring with the doc, the nurse told me "He thinks you're having MS symptoms". Very helpful, eh? They did put me on the cancellation call-back list and I got my appointment moved up from 8/11 to 6/28. Just trying to get myself prepped I guess.
Thanks to anyone who stuck with me through this long process of a post.
All response welcome and in fact begged for.
Mary
I meant to add that when I am fatigued by, say, walking, it shows up in all of the areas that I have weakness. So, after walking too much, my right arm is also fatigued even though I have done nothing with it.
Your description of your problems begs for a real check for MG.
Quix
Your description of your problems begs for a real check for MG.
Quix
Yip, Denial is far more than a river in Egypt. It's healthy for us not to want this disease or any other that takes so much from us.
Absolutely ask your doc if MG has been ruled out. Or, just have an MGD and forget about it. Either way...
You might read the Health Page on Fatigue. It explains that when the motor nerves are affected in MS, there is fatigue of the muscles with repetitive use. Recovery does happen with rest. I would likely feel the same as MG, but the mechanism is different. In MS the motor nerve just shorts out and in MG the neurotransmitter at the neuromuscular junction gets used up. Resting refreshes MS by allowing the muscle to rest and MG by manufacturing more neurotransmitter.
http://www.medhelp.org/health_pages/Multiple-Sclerosis/Fatigue-in-People-with-MS/show/63?cid=36
I am one who has FAR, FAR more weakness and fatigue than sensory stuff. It just depends on how the disease hits. I'm lucky that most of the sensory stuff I have is overall decreased sensation - worse in some areas than others. This is handy for ignoring mosquito bites. I, too, had the odd sensation of warm liquid draining down my inner thigh and yes, one cannot help but grabbing to take a look. It used to be a false alarm. Now, though, it is the real thing. I just had my worst "Puddling Incident" ever, in a restaurant. It was just awful, though a family member helped out and probably no one ever knew. I NEVER ignore that sensation anymore.
Just to let you know that missing out on the sensory problems does not point away from MS. In a statistical sense it points toward a more serious course with the MS, I'm sad to say.
Quix
Absolutely ask your doc if MG has been ruled out. Or, just have an MGD and forget about it. Either way...
You might read the Health Page on Fatigue. It explains that when the motor nerves are affected in MS, there is fatigue of the muscles with repetitive use. Recovery does happen with rest. I would likely feel the same as MG, but the mechanism is different. In MS the motor nerve just shorts out and in MG the neurotransmitter at the neuromuscular junction gets used up. Resting refreshes MS by allowing the muscle to rest and MG by manufacturing more neurotransmitter.
http://www.medhelp.org/health_pages/Multiple-Sclerosis/Fatigue-in-People-with-MS/show/63?cid=36
I am one who has FAR, FAR more weakness and fatigue than sensory stuff. It just depends on how the disease hits. I'm lucky that most of the sensory stuff I have is overall decreased sensation - worse in some areas than others. This is handy for ignoring mosquito bites. I, too, had the odd sensation of warm liquid draining down my inner thigh and yes, one cannot help but grabbing to take a look. It used to be a false alarm. Now, though, it is the real thing. I just had my worst "Puddling Incident" ever, in a restaurant. It was just awful, though a family member helped out and probably no one ever knew. I NEVER ignore that sensation anymore.
Just to let you know that missing out on the sensory problems does not point away from MS. In a statistical sense it points toward a more serious course with the MS, I'm sad to say.
Quix
Not sure what's already been covered, I only read the OP =)
I for one definitely have more motor than sensory problems. I experience fatigue in my legs that turns to pain after just a few strides on some days. Heck, on some days I wake up with pain - not nerve pain, but pain from sore, overworked muscles that haven't done much working. I am told that this is due to a lesion between C2 and C3. The same one that likely caused sensory problems that I was experiencing before.
I for one definitely have more motor than sensory problems. I experience fatigue in my legs that turns to pain after just a few strides on some days. Heck, on some days I wake up with pain - not nerve pain, but pain from sore, overworked muscles that haven't done much working. I am told that this is due to a lesion between C2 and C3. The same one that likely caused sensory problems that I was experiencing before.
I've had a brain biopsy when they thought I had a tumor. The patholosists were able to determine it is not a tumor, it's a "demyelinating, MS type of thing", so to answer your question, I don't think they can say definitely MS with a biopsy or I woudln't have had to wait till a year later for a dx.
Mike
Mike
Thanks for the ton of support and all the good ideas. I'll definitely take this up with the neuro next Monday and see what he has to say. I do think I read somewhere that having one autoimmune disease can make you more likely to have another. Wonderful!
My body is sort of snapping me out of the denial. I should have known better than to do any bragging. One day back to walking the long halls at work and I was dragging butt again. This past week I had a day when my vision blurred out beyond function level; another two with nerve type pain running through my left thumb, elbow, and armpit; and then I spent the last 24 hours with a spinning, bucket clutching, weave walking vertigo. I guess that's not MG.
Best of health and acceptance to you all.
Mary
My body is sort of snapping me out of the denial. I should have known better than to do any bragging. One day back to walking the long halls at work and I was dragging butt again. This past week I had a day when my vision blurred out beyond function level; another two with nerve type pain running through my left thumb, elbow, and armpit; and then I spent the last 24 hours with a spinning, bucket clutching, weave walking vertigo. I guess that's not MG.
Best of health and acceptance to you all.
Mary
I've been having a spell of doubt recently, too. Clearly something is wrong with me, but what if it's not MS?
I think it's hard not to doubt when there really is no way to have positive proof that you have MS. Well, maybe autopsy or biopsy. Even then, I'm not sure they can say definitely MS or just definitely demyelinating diseases (anybody know?) There's no test, symptom or sign that is unique to MS so especially if you don't have stereotypical MS, it's easy to start worrying that the doctors didn't rule out everything they should have.
I think you're doing the right thing by bringing this up with your neuro and putting your mind at peace.
sho
I think it's hard not to doubt when there really is no way to have positive proof that you have MS. Well, maybe autopsy or biopsy. Even then, I'm not sure they can say definitely MS or just definitely demyelinating diseases (anybody know?) There's no test, symptom or sign that is unique to MS so especially if you don't have stereotypical MS, it's easy to start worrying that the doctors didn't rule out everything they should have.
I think you're doing the right thing by bringing this up with your neuro and putting your mind at peace.
sho
The ol' doubt getting you, huh. It's perfectly natural. Heck, it would be so much better if it were something else - preferrably something curable (that would be my pick).
They should of ruled MG out, but heck go ahead and ask the Dr. because it may make you feel better.
On the eve of my med delivery I called my specialist at Johns Hopkins, asked him all kinds of question, he probably thought I was nuts. I said, what about APS, maybe the labs need to be run again, etc., etc.
And, when my local neuro dx'd me after a spinal tap he said "positive for MS" I said well you said there was no test for MS. (which we know there isn't, but in my case that was the final nail - so he said it) ha/ha. During my initial visit, I even said, "I smoke" maybe I just had too many cigs!
Anyway, what I'm getting at, is line up those questions and ask. Just do it, because it's probably going to be the only thing to make you feel better. Hopefully the Dr. will know exactly where your head is out and run through the long laundry list of reasons he/she dx'd you.
(((hugs)))
p.s. That heavy arm and leg bit is very MSey though it does come w/other diseases as well.
They should of ruled MG out, but heck go ahead and ask the Dr. because it may make you feel better.
On the eve of my med delivery I called my specialist at Johns Hopkins, asked him all kinds of question, he probably thought I was nuts. I said, what about APS, maybe the labs need to be run again, etc., etc.
And, when my local neuro dx'd me after a spinal tap he said "positive for MS" I said well you said there was no test for MS. (which we know there isn't, but in my case that was the final nail - so he said it) ha/ha. During my initial visit, I even said, "I smoke" maybe I just had too many cigs!
Anyway, what I'm getting at, is line up those questions and ask. Just do it, because it's probably going to be the only thing to make you feel better. Hopefully the Dr. will know exactly where your head is out and run through the long laundry list of reasons he/she dx'd you.
(((hugs)))
p.s. That heavy arm and leg bit is very MSey though it does come w/other diseases as well.
I have no dx, but I'm absolutely sure that if they ever do dx me with anything, I'll go through periods of doubt over whether it's correct.
Interestingly, I do have celiac disease and I don't doubt that at all. However, my blood tests and biopsy were both completely positive and I've had massive improvement in health on a GF diet, so there's not much to doubt there. :)
But with the neuro stuff that comes and goes, like MS, if that's what I have, I dont' know that I'll ever be 100% convinced.
Interestingly, I do have celiac disease and I don't doubt that at all. However, my blood tests and biopsy were both completely positive and I've had massive improvement in health on a GF diet, so there's not much to doubt there. :)
But with the neuro stuff that comes and goes, like MS, if that's what I have, I dont' know that I'll ever be 100% convinced.
Denial is a natural defense mechanism for dealing with information that is too unpleasant to be acceptable in our self-defined little imaginary world of stuff with which we're willing to deal. It actually helps, in small doses, so we don't have those major emotional upheavals that threaten our sanity in a catastrophic way. Instead, we learn bit-by-bit to deal with this bite or that smidgeon of the full problem, and in time, we've swallowed enough of it that we can say it's time to move on to something else.
Like any symptomatic treatment that merely suppresses things, though, this drug is no cure, and can prove more trouble than it's worth if the patient becomes dependent.
Like any symptomatic treatment that merely suppresses things, though, this drug is no cure, and can prove more trouble than it's worth if the patient becomes dependent.
Hi mary
Dont know if this helps but my mum was taken to the emergency hospital over 12 months ago with a suspected stroke.
She had every sympton of a TIA. She had droopy eye for months prior to this, she got worse when she couldnt swallow her food, but worst of all she couldnt chew. When she tried to open her jaw it would shake uncontrollably. She also couldnt hold a sentence together her speech was incredibly slurred.
My mum is 84 and was admitted to the stroke ward, it was while she was there that she got a chest infection and was then moved back to the ER.
While on the ER one very bright Dr suspected Mysathenia Gravis, she was tested and he was correct. The symptoms are very similar to a mild heart attack and mum never had a stroke in the first palce.
The Dr said it can take some 12 years to correctly diagnose MG.
Mums symptoms are more in her face as opposed to her body and if she gets stressed or tired both her eyes seem to go to the back of her head and she cant swallow. Her breathing is affected too. She also had to be admitted to a psychosis ward because her condition made her sort of psychotic for a while.
She had hallucinations and extreme paranoia. Her Mg tablets now control her illness, but so sad only last week she was diagnosed with breast cancer after 14 years following her first mastectomy. Poor mum.. xxx
Jan xxx
Dont know if this helps but my mum was taken to the emergency hospital over 12 months ago with a suspected stroke.
She had every sympton of a TIA. She had droopy eye for months prior to this, she got worse when she couldnt swallow her food, but worst of all she couldnt chew. When she tried to open her jaw it would shake uncontrollably. She also couldnt hold a sentence together her speech was incredibly slurred.
My mum is 84 and was admitted to the stroke ward, it was while she was there that she got a chest infection and was then moved back to the ER.
While on the ER one very bright Dr suspected Mysathenia Gravis, she was tested and he was correct. The symptoms are very similar to a mild heart attack and mum never had a stroke in the first palce.
The Dr said it can take some 12 years to correctly diagnose MG.
Mums symptoms are more in her face as opposed to her body and if she gets stressed or tired both her eyes seem to go to the back of her head and she cant swallow. Her breathing is affected too. She also had to be admitted to a psychosis ward because her condition made her sort of psychotic for a while.
She had hallucinations and extreme paranoia. Her Mg tablets now control her illness, but so sad only last week she was diagnosed with breast cancer after 14 years following her first mastectomy. Poor mum.. xxx
Jan xxx
I think Luulu is right, this week has been a week of uncertainty and second guessing ourselves and our doctors. It's hard to accept illness no matter what it is called.
take care, lois
take care, lois
I *definitely* have my share or more of denial. The thing is, though, if I don't have MS, what do I have? Or am I plain old cuckoo?
None of these is a nice thought, is it.
ess
None of these is a nice thought, is it.
ess
This must be the syndrome of the week because when I woke this morning I was thinking the same thoughts - could they be wrong? Has my doctor made a mistake?
If only wishing could make it so!
be well, Luulu
If only wishing could make it so!
be well, Luulu
Hi Mary
Just thought I would say that nearly every day I wonder if I really have MS. I feel the symptoms and get very tired..but still just wonder..how come I have got this..it is not fair and part of the package that I envisaged for my middle/old age.
So today I went on a new oral drug trial for MS and I was still thinking..have I really got this horrible condition..surely one of these doctors is going to turn round and say "hey this lady doesn't have MS." Anyhow sorry this is not particularly helpful for you except what I was trying to say is that I am sure many of us often question our dx"
Take care and my muscles are acheing more at the moment also
Love Sarah xxx
Just thought I would say that nearly every day I wonder if I really have MS. I feel the symptoms and get very tired..but still just wonder..how come I have got this..it is not fair and part of the package that I envisaged for my middle/old age.
So today I went on a new oral drug trial for MS and I was still thinking..have I really got this horrible condition..surely one of these doctors is going to turn round and say "hey this lady doesn't have MS." Anyhow sorry this is not particularly helpful for you except what I was trying to say is that I am sure many of us often question our dx"
Take care and my muscles are acheing more at the moment also
Love Sarah xxx
Thank you so much for your support. It really has been helpful. So much, that I got busy with other things and had to search out this topic to add my thanks. It was just ready to scroll over to page three. Isn't that the equivalent of going over Niagara Falls in a barrel? LOL
I wonder if denial hits us harder when the warmer weather comes? It's not just that the heat makes us slower or weaker. There are so many more expectations and hopes of what we will do during the way-to-short outside season. For me, it's been years since my springtime goals were met by summer energy and endurance sufficient to achieve them.
Maybe this is a exacerbation (or flair? I still don't know the difference) I've noticed in the last few days that I'm not totally spent when I reach the top of our basement stairs and I can do a little more in a day without needing to rest the whole day after. (Yes, I'm holding a few spoons in reserve each day. A little more confidence and I'll chance using them all in one day.)
Thanks friends,
Mary
I wonder if denial hits us harder when the warmer weather comes? It's not just that the heat makes us slower or weaker. There are so many more expectations and hopes of what we will do during the way-to-short outside season. For me, it's been years since my springtime goals were met by summer energy and endurance sufficient to achieve them.
Maybe this is a exacerbation (or flair? I still don't know the difference) I've noticed in the last few days that I'm not totally spent when I reach the top of our basement stairs and I can do a little more in a day without needing to rest the whole day after. (Yes, I'm holding a few spoons in reserve each day. A little more confidence and I'll chance using them all in one day.)
Thanks friends,
Mary
I will join you in the "MS Denial Week". Mine is most likely due to my one year anniversary since "official" dx. The muscle fatigue has happened to me during a flare.
My PT gal, Clayton (whom I repeatedly use as a reference as she has her doctorate in PT and specializes in neuro diseases) has reinforced some things that I have randomly read on here before. One in particular is that in a flare , it's the nerve firing or misfiring that's causing the muscle to fatigue too quickly due to lack of nerve input. I believe there is a Health Page on this as well.
Clayton only has me due like 2 reps of leg raises if I experience muscle fatigue. She said as the flare subsides, the reps will be easier and cause less fatigue. Until the flare passes, pushing the limits only harms the muscle tissue. That 2 rep scenario occurred just last month. I could do 15 reps last week but after a stressful and hot visit to FL , I'm back to 2 reps.
Have you had EMGs done? It was part of my diagnostic work-up as MG was in the differential dx. My EMGs were normal. I have met someone with both MG and MS and she is an RN who is still working per diem. She is amazing. She, of course, has been the subject of many studies.
My vote is to have the MG ruled out with EMGs and blood work , if not for any other reason than peace of mind.
When I goggled MG vs MS an old MedHelp post was one of the sites. Below is the link which includes a neuro's response. It may prove to be helpful to you.
http://www.medhelp.org/posts/Neurology/Multiple-sclerosis-or-MG-/show/295150
I guess all of this rambling comes down to this. I have had similar symptoms and MG has been ruled out. I think denial is a perfectly acceptable thought when faced with this sometimes frightening disease. Do what makes you feel comfortable.
Hugs,
Ren
My PT gal, Clayton (whom I repeatedly use as a reference as she has her doctorate in PT and specializes in neuro diseases) has reinforced some things that I have randomly read on here before. One in particular is that in a flare , it's the nerve firing or misfiring that's causing the muscle to fatigue too quickly due to lack of nerve input. I believe there is a Health Page on this as well.
Clayton only has me due like 2 reps of leg raises if I experience muscle fatigue. She said as the flare subsides, the reps will be easier and cause less fatigue. Until the flare passes, pushing the limits only harms the muscle tissue. That 2 rep scenario occurred just last month. I could do 15 reps last week but after a stressful and hot visit to FL , I'm back to 2 reps.
Have you had EMGs done? It was part of my diagnostic work-up as MG was in the differential dx. My EMGs were normal. I have met someone with both MG and MS and she is an RN who is still working per diem. She is amazing. She, of course, has been the subject of many studies.
My vote is to have the MG ruled out with EMGs and blood work , if not for any other reason than peace of mind.
When I goggled MG vs MS an old MedHelp post was one of the sites. Below is the link which includes a neuro's response. It may prove to be helpful to you.
http://www.medhelp.org/posts/Neurology/Multiple-sclerosis-or-MG-/show/295150
I guess all of this rambling comes down to this. I have had similar symptoms and MG has been ruled out. I think denial is a perfectly acceptable thought when faced with this sometimes frightening disease. Do what makes you feel comfortable.
Hugs,
Ren
I agree. Ask to be screened for myasthenia gravis. Nothing is lost by ruling out another disease.
I read your post and thought, "this must be MS denial week" because I want so badly to deny it and find another cause for my symptoms too. I even told the neuro who took care of me in the hospital that I'd rather have conversion disorder than MS.
Last October my pulmonologist wanted me to go see a neuromuscular doctor as my breathing problems did not quite fit with MS at my stage of the disease. The interesting thign about this NM doc is that the first thing he was looking at is MG. There is a blood test for it and he ordered it along with several other enzyme panels. When he had me back in the office for an EMG, he kept asking me about whether my eyelids droop, which is a symptoms of MG. That was after he did the test for it and said it was negative.
So, should you look more into MG? You bet. What can it hurt.
And keep in mind that you can have both MS and another neurological disorder.
That's my 2-cents too.
Hugs,
Julie
Last October my pulmonologist wanted me to go see a neuromuscular doctor as my breathing problems did not quite fit with MS at my stage of the disease. The interesting thign about this NM doc is that the first thing he was looking at is MG. There is a blood test for it and he ordered it along with several other enzyme panels. When he had me back in the office for an EMG, he kept asking me about whether my eyelids droop, which is a symptoms of MG. That was after he did the test for it and said it was negative.
So, should you look more into MG? You bet. What can it hurt.
And keep in mind that you can have both MS and another neurological disorder.
That's my 2-cents too.
Hugs,
Julie
Often, I have found myself right where you are.
"I cant have MS. I "think" I have arthritis, or untreated sprained ankle/knee.., or back to arthritis, or carpal tunnel, or anything but MS."
I think the MS Neuro is wrong. (Of course I am not a doctor, and have no idea about the basics of MS, but I am "always" right...right?!)
These are just some of my thoughts at times, after I received my DX of MS last April 09 from the Mellon Center from the MS Neuro. (but sometimes, I think, I know better ?!)
For me, denial helps me greatly. I think it is a basic instinct that helps us survive.
All I can tell you is you are the 1st person I have met that walks JUST LIKE ME. I have never met another person that walks JUST LIKE ME, so whatever you have, I have.
So, let me know what WE have, will ya?
I felt like I was walking down the hall with myself. That is how I always walk, particularly at the end of the day, or when I am tired, or even in the morning, after I have walked for sometimes only a few minutes.
I also, have mostly motor issues, leg and now arm. I also have sensory crap like my dreaded TN. But truly, I think our DX is the same and mine is MS. So...friend...there you have my 2 cents.
Hugs to you,
Michelle
"I cant have MS. I "think" I have arthritis, or untreated sprained ankle/knee.., or back to arthritis, or carpal tunnel, or anything but MS."
I think the MS Neuro is wrong. (Of course I am not a doctor, and have no idea about the basics of MS, but I am "always" right...right?!)
These are just some of my thoughts at times, after I received my DX of MS last April 09 from the Mellon Center from the MS Neuro. (but sometimes, I think, I know better ?!)
For me, denial helps me greatly. I think it is a basic instinct that helps us survive.
All I can tell you is you are the 1st person I have met that walks JUST LIKE ME. I have never met another person that walks JUST LIKE ME, so whatever you have, I have.
So, let me know what WE have, will ya?
I felt like I was walking down the hall with myself. That is how I always walk, particularly at the end of the day, or when I am tired, or even in the morning, after I have walked for sometimes only a few minutes.
I also, have mostly motor issues, leg and now arm. I also have sensory crap like my dreaded TN. But truly, I think our DX is the same and mine is MS. So...friend...there you have my 2 cents.
Hugs to you,
Michelle
I could not hurt to ask about the MG then the Neurologist could clarify either way. I go through doubt of my diagnosis I guess since I do not have RRMS. I know I have a long running neurological disorder but every once in awhile even though it is classic PPMS I doubt it. But then again I go in denial about every other illness I have from time to time. I think that is only human. I am not sure if my comments help.
Alex
Alex
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