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My worst symptom is fatigue, I have to lay down mid-morning to make it through the rest of the day. If I don't take a nap, by 5:00 I'm worthless. I used to do the heptathlon and was always very active, but I've given up exercise because if I do I don't have the energy to take care of my responisbilities.
My sister is having problems similar to mine now, and ms was mentioned to her, so we are both wondering what is wrong with us. She just had an mri w/out contrast and it was normal. She and I have always both been very active with no problems, but I haven't been able to work full time for several years and now she is having problems with fatigue which is highly unusual for her.
I didn't mean to go on so long, mostly I am curious about the electric shock in my toe. Thanks for reading this.
Hi Sandpuff, We haven't met yet because I am fairly new and you haven't been here for a while. Glad we are crossing paths. I can't talk particularly about the electric shock feeling but something else you said did jump out at me.
I was just dx'd and started on copaxone. My big concern is to stop any progress this disease is making - we can't turn back the symptoms I already have but the dmd's will hopefully slow any new ones from appearing. I am curious as to why you would not want a diagnosis and the opportunity to take drugs that could delay your potential problems? I'm just wondering, if that's not too personal of a question.
Nice to meet you! I would like a diagnosis, but went to the doctors and neuros about a year ago and was blown off. It made me feel really stupid and I decided I was better off staying away from them. My sister has some serious concerns right now, she sometimes gets really dizzy, has migraines and has tingling on her left side, and she read about how starting meds helps slow progression so she may be going to a neuro soon. If something is discovered for her I may be more apt to go back to the doctor, or if new stuff keeps happening. Today I feel awful and need to go lay back down even though I took a nap earlier. I do have a job (self-employed) so I get frustrated not being able to get my work done. Thanks for your concern, sorry for your diagnosis, but I'm happy you know what you're dealing with so you can get the help you need.
I was just dx'd and started on copaxone. My big concern is to stop any progress this disease is making - we can't turn back the symptoms I already have but the dmd's will hopefully slow any new ones from appearing. I am curious as to why you would not want a diagnosis and the opportunity to take drugs that could delay your potential problems? I'm just wondering, if that's not too personal of a question.
Be well, Lulu
Best Wishes!