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I have googled this and all I can find is withdrawal from antidepressants, or something related to MS. I have never taken antidepressants, and I haven't been on anything else recently either.
I get a very freaky brain shock/zap. I get about a 1 second warning as it is coming and have to hold my head until it passes. (About 3 to 4 seconds) It is horrid. It starts on my left side above left eye. No pain, no neck or spine involvement. It moves through my head like a freight train. And then it's over.
I know what you mean it feels like someone has stripped an electrical cord and while its pluged (plugged) in they touch you with it right? I have got the same thing happen to me for years and there has not been the 1st doctor tell me what it was.Good LUCK.
That is EXACTLY what it feels like. I was just afraid to word it that way....lol Most of the time it doesn't hurt, it just feel really strange. When mine does it repeatedly that's when it starts to bother me.
Welcome to the "tingle" group. I totally can relate to the tingling or buzzing feelings you have. As you may know, I have been dx with MS for over a decade and this tingling has been my constant companion since the very beginning. I now think of it as more of a nuisance, where I used to be very fearful of it. I guess with time, it's something that I learned to accept as part of my life with MS. I sometimes describe it as being plugged into a light socket. Sound familiar?
Again, welcome to the "tingling group." There are alot of "members."
I haven't been diagnosed with anything yet. I have been to 3 or 4 different Neuros over the past 6-7 years and they all have tried to diagnose me with migraines. In the very beginning I did have major bad headaches, until one day it progressed to the facial numbness where my husband thought I had had a stroke. The headaches continued along with the numbness for about 2 years, and then the headaches just stopped and now all I have is the numbness. Along with all the other things that are starting to happen. I feel pretty certain it is not just migraines causing all of this.
Things are just so hard right now. I am in school, I have a family of my own, and I also take care of my mentally ill father, so I am pretty stressed most of the time. Problem is that's what everybody wants to blame it on!! The symptoms were there before all of the stress was. The symptoms have been with me for quite a while, I just didn't start to notice all of it until recently, and now my family thinks I'm going nuts....lol
Hi Mschvusangel, I have the shock sensations you are describing, and I have Fibromyalgia. They are super annoying. My shocks come with eye movement! If I can hold my eyes straight, and not move them at all, I am okay! But, you know, that it not easy to do while driving, walking, talking, etc! So, I am constantly being shocked. It has become worse in the last year. I have been dx for 6+ years. You are so young, and I hate so bad all of the things you are going through. If there is anyway at all that you can reduce your stress level, DO IT NOW!!!! Do not allow anyone to tell you that you are going crazy, because you are not. THIS STUFF IS REAL. Just continue on until you are diagnosed. Prays will be sent on your behalf.
Those shocks are what I believe landed me in the ER the other day. I don't get them often, but they are in my leg, head or occasionally in my arm. My friend is an RN. She put the shooting pain w/ my looking awful, slurring, and brain fog (room was HOT) and thought I was having a heart attack or stroke, so she called 911. Can't blame her I guess. I've told her about what happens when I get hot, but she's never actually seen it. Apparently it's scary, lol!
I just wanted to ask those of you who have the shock sensations if there is anything that seems to aggravate it? I guess thats what I'm asking anyway...lol
When I start having the sensation it seems to happen a lot for several days to weeks and then it just kind of tapers off for a while, but during the times that it is happening my head seems to be very tender (I am not tender headed at all). I can brush my hair and it cause the shocks, or sometimes just touching a certain place on the top of my head.
I have Lhermitt'es, so consistent with this, I get the shock/buzzing sensation when I bend my neck forward. However it only seems to be brought on following some kind of activity (climbing stairs, treadmill, etc). If I am just sitting around, I can bend my neck forward with no buzzing involved.
I get other 'zaps' on different parts of my body, often the arch of my foot, the base of my thumb, wrist, etc. Usually these zaps happen out of the blue, but I have noticed that I often get it in my right foot, immedately after stepping out of the shower. I don't take hot showers so I don't think it's temperature related. It feels like it has more to do with stretching the arch of my foot. Weird.
Many of your symptoms sound like those of ms. My back has been undergoing these "electric shocks" continuously for almost 8 years. It feels like the nerves are being over excited. It tickles, burns, throbs, feels like pins & needles all simultaneously and not I seem to be feeling a weakness in my legs. My condition remains undianosed although a neurologist once diagnosed mild ms only to retract it 2 years later. American medicine doesn't have the incentive to deal with the hard cases anymore, thanks to Medicare. The doc said I was "dying of a broken heart". Psychosomatic syndrome: the "great dumping ground". It does teach patience.
I HAVE THIS FEELING IN MY NECK LIKE CRUNCHING FRICTION WHEN I BEND MY NECK FORWARD.THEN I LISTEN TO IT WITH MY EARS IT SOUNDS LIKE SOMETHING IS RUBBING THE SPINAL CORD AND WHEN IT DOES THAT IT FEELS WEIRD LIKE ITS SHOCKING ME.I ALSO STARTED HAVING TINGLING IN FACE ARMS HANDS AND LEGS AND FEET AND NUMBNESS. I GO FOR A CERVICAL MRI ON FRIDAY AND A LUMBAR SPINE AS I HAVE SOME NERVES BEING PINCHED THEY SAY BUT THEY WANT A BETTER LOOK WITH THE SPINE CLINIC DOCTOR. I ALSO GO TO THE NUEROLOGIST FOR A SENSORY NERVE TEST IN OCTOBER WHICH IS A WAYS A WAY. THERE IS ONLY ONE GUY DOING THE TEST AT kAISER.ANY I HOPE I CAN GET SOME ANSWERS. Marj
Electric Shock sensations have been the one consistent symptom I have had for almost 3 years now. It's actually where all my symptoms started.
Mine started in my left calf, and now happen wherever, whenever. No where is safe, even had them in the privates, fingers, and through the head coming out the eye.
My shocks take on a sporatic pattern, they kind of go "zap, zap, pause, zap, pause, zap, zap, zap, zap, pause"...and electric shock is exactly how I have described it from the first time it happened. I find I usually can't move the body part it's happening in while it's zapping. Like if it's in my finger, I am unable to move my finger while it's actually zapping.
My first neurologist told me he thought it was muscle spasms. I don't know. I know Neurontin helped, when I could take it. I also find there are periods where it's more intense, and periods where it only happens once or twice a day.
Reading on the forum I am struck by how common these zaps and zings are. Start a thread with a complaint of one and instantly there are more people commiserating. Yet, neurologist don't seem to know about them. Are we not telling our doctors? Does it seem too weird that we don't mention it?
NW - Maybe yours are sending you some kind of Morse Code message?
Craig told the NYU neuro about his electric shocks he gets going down his arms. His neuro agreed that they do happen in MS. he thinks it is part of the disease.
Elaine, so if I tell them of this symtom at NYU they won't think i'm crazy like my Dr. DWI did? Laughing.....
This is a part of my life, and I just figured I could tell my dr. and when he gave me that "look" i realized that perhaps it wasn't as usual as I thought.
Another reason to make me glad I'm going to NYU.
~Sunnytoday~
Hey, I just added a new "tingle" today. It's on the front of my left leg, mid-thigh, and started out like the cell phone on vibrate. The dang thing has been ringing all day, though now its spreading out a little more.
I'll definitely mention this to my MS specialist, for what it's worth.
I'm so glad to have found this forum! I am so scared right now. I've had these sensations for about 3 years. They went away for a while, but have now come back stronger. When they first started I went to the doctor who sent me to a neurologist. After MRIs and EEGs, the neurologist had no explanation. He looked at me like I was making it up. I get random shocks through my body. Sometimes they are just in my chest, sometimes down my led or arm. I noticed they happen most frequently when I work out or walk. Moving my neck does seem to play some part, but also I tend to move my neck the most when I'm walking or working out. The shocks don't necessarily hurt, but they are a bit uncomfortable and scary. I spent so much money the first time to be told nothing, that I'm not eager to go hunt down a diagnosis again. And I'm also scared that it's something life-threatening. I've wondered lately if I should have seen the cardiologist rather than the neurologist. Any chance these are heart related? I feel a bit like it's my heart shocking me. Please help!
I understand what you mean about being scared. I have addisons disease, but I don't think it is related. I started having them about 2 years ago, and they will come on really strong for a few months, then just go away. My doc sent me to get a MRI and couldn't see anything. My shocks always involve my head, and I get light headed or maybe even feel high(?) during them. They can also happen any time, any where on my body/ It is so cool to be able to blog with someone about this, because I have had those 'you are crazy' looks myself. My daughter had one episode when she was in Jr. High, but it has never returned.
Mine starts in my neck and shoots into my head, sometimes down my back. Today it started when I was sleeping and rolled to my stomach. Turned my head far to the right and bzzzzzzzt. Mainly on the left side (opposite of turn), but also on the right. It feels like a bzzzt plus almost a muscle cramp? Now it has lodged into aching pain in my ear and in the weakest part of my back. Sometimes I cannot tell if I am in pain because I am nervous and waiting for it again, or if the pain causes it. I just want it to stop!! This is the first one I have had in a couple of weeks.
Hi, and welcome to the forum, you've found a great place with lots and lots of wonderful people.
My shocks are somewhat like yours, and go down my back at times. If I reach too far to pick something up it will happen too. Hurts like heck!!
What other symptoms are you having? Tell us about yourself, we always love hearing everyone's stories, and what is happening with them. Have you had any tests yet or are you already dxed?
I ask a lot of questions, huh? Just want to get to know you so that we can all answer any questions you might have.
I have begun searching for some kind of answer regarding this strange and out of the blue sensation. It is like I am being struck with a cattle prod where the electrical volt just rips through me in a lightening bolt like pattern, which in turn stops me in my tracks until the attack has past & I feel as though nothing just happened. IT’S CRAZY! Generally this occurs along my right rib cage, in fact I should say almost always. It only last a fraction of a second and it’s gone for several months if not longer. So I am unsure if I should be concerned.
I was in a horrible car accident when I was a teenager and have always thought that was the cause of this strange feeling because I don’t remember it happening prior to the accident. I also exhibit numbness in my fingers and toes especially if I am cold. After the accident I did go through therapy to treat the numbness and it seemed to help for the time being, but it has always come and gone since. The numbness is not just a tingling feeling; my fingers and toes turn completely white and almost feel dead until I run them under hot water or an extended period of time passes and they finally decide to return feeling. “It’s not in all of my fingers or toes at once, generally just one or two at a time.”
(Sorry if I am rambling I just feel very anxious and confused)
I am now beginning to wonder if there is something else going on, I have read some of your struggles you have faced with similar symptoms and so far nothing really seems to match exact but I would appreciate any insight. Below I have listed several things that seem to match my symptoms somewhat but I have been unable to determine if any of them can occur out of the blue, without warning, and attack only one shock at a time. I appreciate any advice you have; I am looking for somewhere to start with the doctors rather then flying blind.
Dear sleepless, I just wrote you a message but you may not know where to find it - it is under the "mymedhelp" icon at the top of the page. Please start your questions as a new post so everyone will see it and jump in with answers. This is a great group, but sometimes they don't want to scroll this far down a page to read new posts on an old thread.
I'll be watching for it, Lulu
Thank God I found this post! I have been experiencing the ZAPS for over two years. I have a lesion on my Right Pons that is atypical of MS, therefore I've never been diagnosed with anything. My Neurologist prescribes Provigil, which is primarily prescribed for narcolepsy, but also treats the crushing fatigue of Multiple Sclerosis. I also take Cymbalta, which stop the zapping. However, Cymbalta has a lot of side effects (for me) and I'm ready to stop taking it. I do have Electric Shock sensations that are brough on by eye movement and travel down the back of my neck and into my hands. Like most of you here...it last a split second, but it takes me back and freaks me out when I'm driving! Like a game of Red Light/Green Light. The worst part? I have been artificially "awake" for two years, my symptoms are worsening, and I have not been diagnosed with anything! When someone asks how I'm feeling...I say "I'm doing well, how about you?"
2005 February - double vision
2008 December - went numb from the waste to my right toes
2009 February "optic neuritis" prob 80-90% vision loss at the moment
2009 February started the getting zapped sensations in my waste on my right side last night and still happening but was fine all day and still getting dizzy spells.
Notice how it all happens in the winter months, for me anyways, I live in Ontario where we get a lot of cold winters and lots of snow. I thinks it's time to get my Vitamin D levels checked. It feels like my body is out of control.
I too get the buzzing sensation. Feels like a cat is purring in my hands and feet, and it gets worse when I exercise. I wake up with my feet buzzing, and I go to bed w/them buzzing. It doesn't hurt at all, but it's just so strange! I too am undiagnosed.
I know what everyone is talking about I feel those same electric sensations mainly in my neck and between my shoulders not very painful just feels strange.dont knowq what the cause is but its been going on for years! I hope someday I will know what this is and why it is happening,and what to do to stop it! RILY
These terrible shocking sensations wake me in the middle of the night several times, starting sort of above my stomach/ribs tingling then almost immediately piercing, blasting down my arms and through my neck and head, lasting maybe a minute. It is very painful and scary. Has occurred for about a year now. Getting hot seems to make happen. MRI revealed one small lesion, I do have migraines and eye pain on the left side. No dx yet, neurologist has mentioned MS, treating migraines now, follow up in 2 months, otherwise very healthy and busy. Good luck to everyone, this is truly an awful thing!
I couldn't even make it though my first MRI,,,,I thought I was crazy, I ended up in the ER yesterday for this doc gave me Ativan and Neurontin to cope until I get a dx.
The next day I was able to have the MRI but it was on a T1.5
I'm worried its going to be neg, I sneeked a peak and it looked fine but I have all the other MS symptons. I'd take the tingly numbness any day compared to this!
I had these for years but they only happened every once in a while. Now I am getting them all the time, one on top of each other. I feel it in my lips, cheek, and tongue, all the way down to my feet. I get dizzy when I have them and I have to grab onto something.
The right side of my body is weaker and I feel sensations different on that side. I had an MRI 2 yrs ago and there was nothing found. So they doc diagnosed me with anxiety. Anyway, I went to counseling and she said that anxiety symptoms done only happen on one side of your body.
So now since they are worse, I might go back to trying to get a diagnosis. I cant live with these everyday.
Yes, I too get them and have for many years now. For me, 98% of the time, the point of origin is from my spine around the T-sec. Like when you get zapped by an electrical current.
Happened twice when i was sitting in the chair during the VEP last Thr.
An odd sensation since I'm not touching an exposed wire or poking about in a toaster. ;-)
I'm convinced that MS has something to do with dirty electricity. I've also felt weird only explained as a electrical current.
It may sound crazy but it does effect appliances.. cars. I've always noticed lights going off. Appliances stop working. When I get in a car the check engine light will come on and when I get off after a couple minutes the light will go off. It's a fact.
I'm sure other people have noticed this and I'm not the only one this happens too.
I have always been supersensative to electricity, and I also have these shocks either out of nowhere or mostly upon movement. When the volume of one of our tvs is muted and I'm turned around with my hands over my eyes (seeing no light), I can tell when my bf is changin the channel. We tested it. I was right everytime. It's like I could hear it and feel it in my head. He did not have the same experience and failed our test.
I have electric shock sensations as well as shooting pains from my arm to my finger or neck and back. I'm not sure if they're related, as I do have a bad back do to a large chest, but the shocks are undeniably strange.
I have had this sensation many times previously. Mostly occurring when begining to 'relax' or trying to fall asleep. My first memorable experience was while enjoying a cold soft drink on a hot summer day. Mostly occurring in a state of 'come down' - 1-5 days after ingesting abnormal amounts of alcohol, nicotine, drugs and seriously interrupting sleep pattern. (I believe there is a link here with the withdrawals from anti-depressant drugs)
It is quite frightening, especially when it happens frequently. On one perticular day I had small shocks almost constantly. I would estimate at least 200 over the day. I also had flu at this period. Unpleasant.
Over months i learned to control them slightly, to 'soften the blow' even, as i felt a shock coming on.
They occur very rarely nowadays (2 years on) with generally the same lifestyle. Thankfully =)
I was in vegas aug of last year and out of the blue i felt ( zap) on the left side of my head. Strangest thing i ever felt, first time i ever felt anything like that before, but i have noticed street lights going out as i pass by, always wondered if there was a connection with me and the lights, not every light just like one or two here and there, and it happens anywhere i go. sometimes it had been the tv going off or comming on and i thought it was haunted, once it was a light bulb and i dont know its just strange to me i would have never said anything about all this had i not found this blog, happy to know i am not alone just dont understand it all.
yep, count me in as i have these from time to time. some of them reminds me of the feeling you get when you stuck a knife in the toaster as a kid or touched a house current open wire by mistake. starts in the center of my spine or there abouts.
tell my neuro about it? you are joking, right? but you folks don't see gov doctors, so there is probably a difference in what they listen too unless you are one of their lab rats for research. LOL
I've had the electrical zaps happen for 4 years. They are not always present but are annoying to be sure. I can feel something building up in my head and then whamO. It feels like electricity jumping from one side of my head to the other. I've asked many docs and even my new neuro didn't really address it.
There are all kinds of explanations for it on the internet, but I've never heard a doc speak of them. Not that I know that many doctors. There's got to be an answer somewhere...yes? If anyone has any more info on this please post!
I to get these electric shocks in my L leg. They are very quick, and cause my leg to jump or jolt. They are very annoying. They come for a while and then go for a while. I also have sharp pains shoot through my head sometimes.
I strongly suggest starting a new thread on this. Many members skim through the old posts, and might not notice and then respond with very helpful suggestions.
For new members: It's *always* a good idea to start with a new post. Please give us a little introductory info and then ask your question(s). It's okay if the subject has been covered here before---there's no area that's new, but there are many new people.
I can't believe how many are being bothered by this! Okay, I am undxed, I only recently boarded the limbo train. I a have had this electric shock sensations for at least 2 years. It seemed to happen when I walk, go up or down steps, get up from a chair etc. It sometimes feels very shocking, in my hands feet toes and down my neck to middle of back, down sometimes to my arms. Sometimes it a very strange sensation, almost like an electrical current that runs through different parts of my body. Very strange rippling electric-like currents. They feel horrible.
My neuro said that it's called Lhermitte's sign. He never diagnosed me with ms, but told me that this symptom is very common with ms.
I have another appointment with another neuro late August. I also have hyperacusis, a very very high sensitivity to noise. This causes these same sensations, and also pain through out my body. Different noises send me through the roof. My ENT dr said it's hyperacusis which could be from nerve ending damage or sensory lesions and ms would explain this and the Lhermitte's sign symptoms. When it rains it pours huh!
Oh before I forget! I also get a really sharp electrical type shock and sensation, flash through my head when I start to fall asleep. Wakes me up everytime i try to fall asleep. Happens about 4-6 times before it stops. It's like a flash behind the eyes, but you can tell it's related to the other sensations.
I have to sleep in a recliner, and have been for past 3 yrs, because the bed causes alot of pain in middle of night after everything relaxes, anyway my hubby thinks it might be because my head probably falls forward when I start to fall asleep. Anyway I always say it could always be worse!
That's my profile mood "Sunny with a chance of rain!" Have a good night everybody! Alot of Good People Here!
Sandie
I too have been experiencing alot of electric shocks mainly around my neck & down my spine, At times it seems to make my itching attack worse around my face/neck. There are times they can be quite sharp more like a bee sting/zap feeling & have took my breath away, but other times it just feels like mild zings going through my body.
I really do not know what is causing this as they can happen when I relax or walking around.
I am in limboland & have mentioned this to my doctor, she just looked at me, did not say anything.
Yeah, I have come upon dr's who just look at you also. My first neuro did that to me, and said I never heard of that before. This neuro obviously is no longer my neuro, because, on top of everything else, HE DOESN'T KNOW HOW TO READ FILMS MRI FILMS!
Anyway, if you find a good neuro, they will tell you that it's either Lhermitte's Sign, or that it means there may nerve damage, or lesions, so they would want to look further into it. Mri's, maybe emg, lp. But according to my second neuro, he said" Lherimette's Sign, and" that's very common with ms, but I'm not sure you have it" I don't know what's wrong with you" He is no longer my neuro either. I am not wasting time with these bozo's anymore. I am not going to be an enabler. If they shouldn't have a degree in their field for failing to keep up with the latest in their field, I am not going to help them make a living. There's nothing worse, than, telling a dr about a symptom, a serious symptom the dr should be knowledgeable about, tells you, ...".I don't know what you're talking about".....or ....... they just look at you, and change the subject, or don't say anything at all, to even acknowledge you've said anything important.
Hang in there, I am, and certainly, there are a lot of fellow limbolanders, and dxed people, here who understand you, know what you are going through, and will never ignore you. Hope we all get our answers soon. I'm moving soon, so I need to wait til I get to PA before I see another neuro, but this time I am seeing one who specializes in ms.
i also have a very painful electrical shock feeling in my left leg. (it is in the front of the bottom of my leg) it sometimes doesn't happen for a while and then it will start to happen all the time again. it feels like someone is holding a stripped electric cord to my wet leg. I had bacterial meningitis over a year ago and this is when it started. just yesterday i got the results to a nerve conduction test they did on my leg and it showed terrrrible neuropathy. they said that this is damage to the nerves in my spine which is usually caused from severe infection or diabeties. i know one thing for sure and that is that if i am walking when this happens it takes me right off my feet, thats how bad the shock is. i am going to try the treatment for neuropathy and hopefully it works. i am glad to hear that i am not crazy because yes all the docs. did look at me like i was crazy and said "never heard of that before" and that is sooooo annoying. i'll let you know what happens, if i get any relief. good luck to all and my thoughts and pains are with you! lol earthangel
I am surprised to hear that others have a similar problem to me. I never considered MS as a possibility but it is worth exploring.
I found this page googling electric shocks in the head. When I am very tired/sleep deprived and about to fall asleep, I get a sudden electric shock feeling in the back of the head where it attaches to the neck. I hear a buzzing sound, like a bug zapper.
I have been diagnosed with migraines and thought the neuro was a quack. I had an MRI back in 2006 and it came out normal. I also have very tight neck muscles.
Supposedly, I have fibromyalgia (2 out of 3 primary Drs. disagree with this diagnosis) and I have similar sensation. Usually it comes along with a slight feeling of vertigo then it goes down the back of my head and down my arm. These symptoms have come and gone over the past couple of years. It seems that stress makes it worse. I have to be very careful to make sure I get just the right combination of rest, exercise, diet, and medication or everything gets out of whack.
I'vebeen actually hanging out in the nurological limbo forum - no dx. but I get these shocks/tingling sensations too, they shoot down my left side in arm and leg..sometimes, and only recently will I get a twinge in a sopt on my right side but it predominandly on left and seems to be more frequent now..I had felt like i was feeling better with my numbness and tingling but now it is mre consistant..I am also experiencing more weakness in muscles in arm and leg.
Cowboy
Again, welcome to the "tingling group." There are alot of "members."
(((HUGS))))
Heather
Things are just so hard right now. I am in school, I have a family of my own, and I also take care of my mentally ill father, so I am pretty stressed most of the time. Problem is that's what everybody wants to blame it on!! The symptoms were there before all of the stress was. The symptoms have been with me for quite a while, I just didn't start to notice all of it until recently, and now my family thinks I'm going nuts....lol
Take care of yourself
Penn
When I start having the sensation it seems to happen a lot for several days to weeks and then it just kind of tapers off for a while, but during the times that it is happening my head seems to be very tender (I am not tender headed at all). I can brush my hair and it cause the shocks, or sometimes just touching a certain place on the top of my head.
Does this happen to anyone?
I get other 'zaps' on different parts of my body, often the arch of my foot, the base of my thumb, wrist, etc. Usually these zaps happen out of the blue, but I have noticed that I often get it in my right foot, immedately after stepping out of the shower. I don't take hot showers so I don't think it's temperature related. It feels like it has more to do with stretching the arch of my foot. Weird.
db1
Mine started in my left calf, and now happen wherever, whenever. No where is safe, even had them in the privates, fingers, and through the head coming out the eye.
Christine
(un-dx)
My first neurologist told me he thought it was muscle spasms. I don't know. I know Neurontin helped, when I could take it. I also find there are periods where it's more intense, and periods where it only happens once or twice a day.
NW - Maybe yours are sending you some kind of Morse Code message?
Quix
Elaine
Laura
I'm thinking you may be right there. It's my diagnosis...lol
I'm thinking maybe I should learn Morse....lol
Christine
This is a part of my life, and I just figured I could tell my dr. and when he gave me that "look" i realized that perhaps it wasn't as usual as I thought.
Another reason to make me glad I'm going to NYU.
~Sunnytoday~
I'll definitely mention this to my MS specialist, for what it's worth.
Kathy
My shocks are somewhat like yours, and go down my back at times. If I reach too far to pick something up it will happen too. Hurts like heck!!
What other symptoms are you having? Tell us about yourself, we always love hearing everyone's stories, and what is happening with them. Have you had any tests yet or are you already dxed?
I ask a lot of questions, huh? Just want to get to know you so that we can all answer any questions you might have.
Have a great day!!
doni
I was in a horrible car accident when I was a teenager and have always thought that was the cause of this strange feeling because I don’t remember it happening prior to the accident. I also exhibit numbness in my fingers and toes especially if I am cold. After the accident I did go through therapy to treat the numbness and it seemed to help for the time being, but it has always come and gone since. The numbness is not just a tingling feeling; my fingers and toes turn completely white and almost feel dead until I run them under hot water or an extended period of time passes and they finally decide to return feeling. “It’s not in all of my fingers or toes at once, generally just one or two at a time.”
(Sorry if I am rambling I just feel very anxious and confused)
I am now beginning to wonder if there is something else going on, I have read some of your struggles you have faced with similar symptoms and so far nothing really seems to match exact but I would appreciate any insight. Below I have listed several things that seem to match my symptoms somewhat but I have been unable to determine if any of them can occur out of the blue, without warning, and attack only one shock at a time. I appreciate any advice you have; I am looking for somewhere to start with the doctors rather then flying blind.
Gallstones? Gallbladder issues? MS? Fibromyalgia? L'Hermittes Sign?
God Bless you in your journey and keep you safe!
Thank you
I'll be watching for it, Lulu
History:
2005 February - double vision
2008 December - went numb from the waste to my right toes
2009 February "optic neuritis" prob 80-90% vision loss at the moment
2009 February started the getting zapped sensations in my waste on my right side last night and still happening but was fine all day and still getting dizzy spells.
Notice how it all happens in the winter months, for me anyways, I live in Ontario where we get a lot of cold winters and lots of snow. I thinks it's time to get my Vitamin D levels checked. It feels like my body is out of control.
Kelly
I couldn't even make it though my first MRI,,,,I thought I was crazy, I ended up in the ER yesterday for this doc gave me Ativan and Neurontin to cope until I get a dx.
The next day I was able to have the MRI but it was on a T1.5
I'm worried its going to be neg, I sneeked a peak and it looked fine but I have all the other MS symptons. I'd take the tingly numbness any day compared to this!
The right side of my body is weaker and I feel sensations different on that side. I had an MRI 2 yrs ago and there was nothing found. So they doc diagnosed me with anxiety. Anyway, I went to counseling and she said that anxiety symptoms done only happen on one side of your body.
So now since they are worse, I might go back to trying to get a diagnosis. I cant live with these everyday.
Happened twice when i was sitting in the chair during the VEP last Thr.
An odd sensation since I'm not touching an exposed wire or poking about in a toaster. ;-)
It may sound crazy but it does effect appliances.. cars. I've always noticed lights going off. Appliances stop working. When I get in a car the check engine light will come on and when I get off after a couple minutes the light will go off. It's a fact.
I'm sure other people have noticed this and I'm not the only one this happens too.
I have electric shock sensations as well as shooting pains from my arm to my finger or neck and back. I'm not sure if they're related, as I do have a bad back do to a large chest, but the shocks are undeniably strange.
It is quite frightening, especially when it happens frequently. On one perticular day I had small shocks almost constantly. I would estimate at least 200 over the day. I also had flu at this period. Unpleasant.
Over months i learned to control them slightly, to 'soften the blow' even, as i felt a shock coming on.
They occur very rarely nowadays (2 years on) with generally the same lifestyle. Thankfully =)
tell my neuro about it? you are joking, right? but you folks don't see gov doctors, so there is probably a difference in what they listen too unless you are one of their lab rats for research. LOL
There are all kinds of explanations for it on the internet, but I've never heard a doc speak of them. Not that I know that many doctors. There's got to be an answer somewhere...yes? If anyone has any more info on this please post!
lala
LL
For new members: It's *always* a good idea to start with a new post. Please give us a little introductory info and then ask your question(s). It's okay if the subject has been covered here before---there's no area that's new, but there are many new people.
ess
I can't believe how many are being bothered by this! Okay, I am undxed, I only recently boarded the limbo train. I a have had this electric shock sensations for at least 2 years. It seemed to happen when I walk, go up or down steps, get up from a chair etc. It sometimes feels very shocking, in my hands feet toes and down my neck to middle of back, down sometimes to my arms. Sometimes it a very strange sensation, almost like an electrical current that runs through different parts of my body. Very strange rippling electric-like currents. They feel horrible.
My neuro said that it's called Lhermitte's sign. He never diagnosed me with ms, but told me that this symptom is very common with ms.
I have another appointment with another neuro late August. I also have hyperacusis, a very very high sensitivity to noise. This causes these same sensations, and also pain through out my body. Different noises send me through the roof. My ENT dr said it's hyperacusis which could be from nerve ending damage or sensory lesions and ms would explain this and the Lhermitte's sign symptoms. When it rains it pours huh!
Oh before I forget! I also get a really sharp electrical type shock and sensation, flash through my head when I start to fall asleep. Wakes me up everytime i try to fall asleep. Happens about 4-6 times before it stops. It's like a flash behind the eyes, but you can tell it's related to the other sensations.
I have to sleep in a recliner, and have been for past 3 yrs, because the bed causes alot of pain in middle of night after everything relaxes, anyway my hubby thinks it might be because my head probably falls forward when I start to fall asleep. Anyway I always say it could always be worse!
That's my profile mood "Sunny with a chance of rain!" Have a good night everybody! Alot of Good People Here!
Sandie
I really do not know what is causing this as they can happen when I relax or walking around.
I am in limboland & have mentioned this to my doctor, she just looked at me, did not say anything.
Anyway, if you find a good neuro, they will tell you that it's either Lhermitte's Sign, or that it means there may nerve damage, or lesions, so they would want to look further into it. Mri's, maybe emg, lp. But according to my second neuro, he said" Lherimette's Sign, and" that's very common with ms, but I'm not sure you have it" I don't know what's wrong with you" He is no longer my neuro either. I am not wasting time with these bozo's anymore. I am not going to be an enabler. If they shouldn't have a degree in their field for failing to keep up with the latest in their field, I am not going to help them make a living. There's nothing worse, than, telling a dr about a symptom, a serious symptom the dr should be knowledgeable about, tells you, ...".I don't know what you're talking about".....or ....... they just look at you, and change the subject, or don't say anything at all, to even acknowledge you've said anything important.
Hang in there, I am, and certainly, there are a lot of fellow limbolanders, and dxed people, here who understand you, know what you are going through, and will never ignore you. Hope we all get our answers soon. I'm moving soon, so I need to wait til I get to PA before I see another neuro, but this time I am seeing one who specializes in ms.
I found this page googling electric shocks in the head. When I am very tired/sleep deprived and about to fall asleep, I get a sudden electric shock feeling in the back of the head where it attaches to the neck. I hear a buzzing sound, like a bug zapper.
I have been diagnosed with migraines and thought the neuro was a quack. I had an MRI back in 2006 and it came out normal. I also have very tight neck muscles.
I'vebeen actually hanging out in the nurological limbo forum - no dx. but I get these shocks/tingling sensations too, they shoot down my left side in arm and leg..sometimes, and only recently will I get a twinge in a sopt on my right side but it predominandly on left and seems to be more frequent now..I had felt like i was feeling better with my numbness and tingling but now it is mre consistant..I am also experiencing more weakness in muscles in arm and leg.
Hope you feel better.
JibJen