Explain how it feels??? I can't?

[Wobbly]

do any of you ever come across feeling in your body that you can't get across on what it feels like?

for the past month or so, my left side is feeling just like that, I can't explain... numbness, pain tingling (not quite), weakness, difficult to hold arm up, feels almost like my left side is buzzing inside.  It's not a good feeling and it's all done my side as well as legs arm, hands etc.  

it's not like the tingling, electric shock feeling I used to get before I started Gabapentin, which I'm taking 2100mg day.
I also hate this heat.. I'm sure alot of us feel that way.

But, how do you explain something when you don't know how too... it's weird.

take care
wobbly

[fig65]

Wow - you hit the nail on the head for me. A low blood sugar feeling, the butterflies... My hubby was driving me somewhere one day, and thankfully I was not driving. I became soooo fatigued and my body just felt like it was going to slide off the seat onto the floor like a pile of jello. Even though I could hold myself up, i felt like I was just going to fall over in a slump. The heat has been doing this to me, this past month has been horrible. I drive little to never anymore mostly d/t the sudden onset of extreme fatigue, but also d/t other sx as well.

[Guitar_grrrl]

I was just trying to explain a similar experience to my neuro last week and couldn't quite hit it.  Along with the buzz, I feel a sort of stiffness, especially in my forearms and lower legs.  I did explain to her that the muscles in my limbs feel like they're "always on", and "exhausted".  They move in space as thought they were filmed in slow motion.  I'm not sure she got it.

[KenDub]

Wow, you almost described the same thing I am feeling to a T. If I have to put a description to it, I would call it buzzing...but not quite. It drives me NUTS when it doesn't hurt. It makes me anxious. It makes me want to jump up and down, and I would if that were possible right now. It doesn't always hurt, but almost always hurts at the end of the day until I force myself to lie down.

Oddly enough, Tegretol doesn't seem to touch the pain. Opiates make me focus on other, more philosophical things until I don't notice the feeling any more, but it's still there. Marijuana has a similar effect. The combination of Opiates and Marijuana makes me not notice it all until I try to stand up without an assistive device and subsequently fall over, lol.

When it doesn't hurt, it feels like a really, really, intense, (wait for it...) feeling. That's all I can do to describe it. So when I describe it to a neuro, I want to tell them it's a buzzing feeling. I want to tell them this, because if I say its a really, really, intense feeling without description, most of them brush it off. The only neuros who have ever listened when I give a non-descript feeling are M.S. specialists...they know whats up!

I think the description you are giving is more than adequate for any nuerologist to listen to, but then again, you know how most neurologists are... I always feel like I have to trump up my symptoms to get them to listen, but I never do that; I just feel like I should.

[johnnymutt]

By far, I am no expert, but what you are describing is exactly what I was going through for 3+ months, and still have show up for a day or two at a time.

If I'm right, it's your muscles going spastic. That feeling like they are continuously firing rapidly. They fire so rapidly that if feels as though there is some sort of vibration in there, almost like a really fast, really strong pulse. For me, as I found out,  the muscle firing so rapidly, were literally wearing my muscles down, draining me of all energy. I felt completely weak, and soon pain followed, as the muscles never got a break. The muscles started pulling at my joints and causing massive amounts of pain.

I truly hope that you are not experiencing spasticity, as it is a mean sucker to deal with. Good luck on sorting this all out.

Johnny

[Wobbly]

thanks everyone.. this is what I was meaning... now I have alot of way to describe it..
I hope it slows down soon... if I call the MS clinic I know it will stop...hahaha
thanks for all the input on this

take care
wobbly
dx

[Sparkysarah]

I think you did a great job of explaining how you are feeling and along wiht other people's input, it sounds like what many of us experience.

I sometimes feel if is like the internal vibration sound of my fridge freezer where you can feel that something is going on inside but we do not have the noise to help us explain what it feels like. I also have previously mentioned that if I put my hand on our computer backup box there is a constant humming vibration when I touch it and that is also a little bit like what I feel particularly in my left leg.

Anyhow great comments from everyone.

Love Sarah x

[moose28]

Thank you soooo much for posting this one! I was just telling my dh last night that I can't describe the sensation I have in my feet all the time. It is kinda a numbness but not, not painful either - hadn't thought of the buzzing sensation - I think that is what it is! I was telling my dh that I can just "feel" my feet when just siting here.

One thing I wonder and seems confusing for me - is this considered a symptom or a relapse and how do you know the difference? - very confusing?

[lmeiser45]

Yes, I get the buzzing.  I used to explain it just as you had mentioned, but now.. I've noticed... it's feeling more and more like my insides are vibrating, like you have to check your cell phone when it's on vibrate, but no cell phone around.  I stopped putting my cell phone in my back pocket because I was constantly checking it.  It was just my backside vibrating!  Sometimes it's more pronounced than others.  For about a month, I was vibrating daily just waist down, then occasionally it was stronger where I was wobbly with the vibrating,but it's all gone now.  I occasionally vibrate. I'm thinking I vibrate when I'm having an exacerbation.  Sometimes it lasts a day, sometimes a couple of weeks. I'm getting used to it though.  When it's really bad, I call the nurses at Swedish where they consult with the neuro and prescribe something to make it stop.  It usually makes me really tired though.  
I hope you feel better soon!!
Take care,
Leah

[tjj3761]

I too totally get what you are saying.

It is like your nerves are going crazy, like a low blood sugar feeling, and butterflies all over underneath your skin.  Heat for me exacerbates this 10 fold.  You just feel "drained" and heavy.

terri

[supermum_ms]

What Tonya said is spot on for me, the only stupid thing about it is that i really really get the analogy when expercising but my fried brain can't get use to it happening when i'm just making up the bed lol!

I was an athletic person for most of my life but for the last 7, i've been getting weaker and weaker and yes weaker. It is all hard to describe, its weird and abnormal and even to my own ears it sounds strange when i come up with words to explain.

When i first tried to explain to my Dr something that wasn't right, I was trying to explain my internal tremor, this was before it was always visible and i think because i didn't understand it enough, i just confused her so it was dismissed. I said "I feel like i'm shaking when i get up in the middle of the night to go to the loo, i thought maybe my heart was racing but whats weird about it, is my heart rate is fine".

That was about 4 years ago and in that time it continued to come and go but always getting worse when it came back, now i feel that same shaking all day every moment of the day, no longer just when i get up from sleep. At the time it was a really weird feeling, I'd felt it on and off since i'd first colapsed but i hadn't a clue how to describe it and it always went away so it must be nothing, right? LOL

The more active i am, the more wobbly and weaker i get and the 'tremor' gets more pronounced, and when i say active i'm really only talking about basic basic with out doing anything strenuous at all, A to B stuff. Hmmm "well Dr you know that shaky feeling i told you about, well now if i dont rest when the shaking gets a bit much, i loose my balance and if i still ignore it, my legs become really jerky and if i keep on ignoring it, i keep falling over and i have to do controlled falls or end up in a worse mess, so any ideas? Still think its hypoglycemia and i need to eat maybe 10 times a day instead of 5 plus snacks!"

Oh i've gone off on a tangent, but i think i was getting around to a point, lol lost it and if you find it please let me know FOFL!! (Falling on the floor laughing).

Cheers........JJ

PS. I've worked out that there is a formular of sorts, energy output = tremor amplification and reduced control of lower limbs.

[fig65]

Yes! I frequently tell dh I just don't know how to describe my symptoms to the docs so they will "get it", especially when half the time they aren't listening anyway.
For example, the feeling I get in my left leg - well, it feels kind of weak and maybe some pain, well but maybe not really pain, maybe more like an ache. I get this weak feeling like butterflies, sort of like that feeling you get in your stomach when you're nervous, but in my leg. Sometimes I feel like it's going to fall out from under me and sometimes I go numb and feel like I'm dragging a cinder block around.
I don't know, maybe I should actually give this description to the doc, but I'm afraid they might have me committed - lol. Somehow they always want to give me a script for pain, when how exactly do I explain to them that it really isn't pain and I don't need the script?

[tonyad]

   Ditto what Lois said..Good Job at explaining!

    I never know what to call it either but to say "Im shaking on the inside".....Kinda like a
Low Blood Sugar feeling, as if you have not eaten all day?? Or perhaps a feeling of lifting to much weight (I use to be a Trainer) and trying to lift that last one or do that last set until failure.....You start shaking becasue you have EXHAUSTED those muscles to the point of failure????? And when you do complete that last set.....your muscles and everything in you is shakey and weak!

     Ok, Ok, I got a little to carries away trying to explain.......
  I guess mine sounds a bit more hard to understand.....See, I told you I have a hard time trting to explain it..Lol       I certainly understand what you are saying though.
Not a nice feeling either.  Not that its painful...just not a nice feeling!

    Another crazy thing to add to the (not so) wonderful MS.

~Tonya

[marymoto]

i beleive they would cause this i get that feeling in my right leg and if i do to much and overheat it increases

[Wobbly]

well, isn't that a strange thing?  Would Nerves cause this type of feeling?

[RedFlame]

Wobbly,  I think you did a very good job explaining the feeling that is going on.  Is it like an internal vibration, shaking thing maybe?