Eye Pain and twitching

[spastic]

Hi Everybody! Does anyone have this problem?  I have severe pain in my right eye and it feels like its vibrating a little but its making my vision a little distorted with shadows.  I know at my last dr's appts they commented on my right pupil staying bigger when they shined the light into them.  Could this be ON?  

Big Hugs to All,

Spazie Ada

[ELT]

Wow, that sounds like me.  The vision issues, that is.  I have never been able to explain it quite right.  

I have no diagnosis yet.  I have been seen by a neuro-opthalmalogist, he didn't see anything.  I know my visual field test I had done a few years ago was abnormal.  Only because I found the sheet while looking for something else, LOL.  I had forgotten it, I still don't remember it.  

I had my sixth mri two weeks ago, and I'm having an evoked potentials next month.  That should show something up, by now.  I hope, sort of, LOL.

Good luck all

Erica

[spastic]

Hi, I'm sorry you have had problems like that, it took a long time to get a diagnosis.  The only time I ever had eye pain before like that was the onset of a migraine. They always started in my right eye, I wonder if there is more to it than just a migraine? I go monday to the neurologist. Take care of yourself.

Big Hugs,

Ada

[santana8]

Hi, saw your post the other day and was in the middle of something and couldn't respond to it then. So I have bumped you up and will coment now. I like you do not have a dx yet. My presenting symptoms was with my vision. My vision was distorted bad. It came on suddenlely and worsened over a   period of three weeks. straight things looked curved. peoples eyes looked out of line with eachother , and everything looked ider (blown out on the right side. Then extreme photophobia and total light intolerance. At first my eyes did not hurt and in fact they were completely numb .Everything looked lit up as if it had lights on it, trees , faces, rivers all glistening. Then flashing and flickering lights, Then came the eye pain in both eyes. Deep acheing pain that felt like it was deep inside my eye sockets.Then I had dimmed vision, washed out colors,  looked  like everything was inblack and white. And then the blurred vision . looked like I was looking through a viel with a light shinning trough the other side. The eye pain continued throughout the first year and pressure behind my eyes accompanied the pain. Then when the pain got better, the shadows and floaters and the visual field defect became apparent to me. My eye exams were completely normal. my VA was and is 20/20, and my optic disc and nerve were normal. My retina was normal also. I saw two optomitrist,3 opthalmologist and 1 neuro opthalmologist before one of them finally done a visual field test that showed the quadrant defect.I had all the ON symptoms but they never found it on fundiscopic exam. The neuro-opthalmologist said if I did have it that it was further back( retoubular neuritis ) which they cannot see on fundiscopic exam as it is the portion of the optic nerve that runs from the back of the eyes to the brain. It has the same symptoms, but cannot be seen in the fundiscopic exam.My vision loss was in both eyes, or as the neuro- opthalmologist said not  in both eyes, but in both sides of my brain. I never received any steriods which would have shortened the recovery phase and may have halted some of the damage. They couldn't find anything wrong , so they didn't treat it. By the time that they realized that that the damage had occured it was to late for the steriods to do anything. So I guess you might say my brain has healed the hard way, on it's way. Two years later my visual field defect has improved a lot but is not entirely gone. I still have pain in both eyes some days, but not as bad and usually if I expose my eyes to a lot of bright lighting too long. THe photophobia has improved and so has the dimmed vison. My prognosis depends on whether the field cut completely resoves  and that is up to how   completely my brain heals. I did have the twitching nerves on my face especially around my eyes . This was  my experience with ON, I hope it helps you in some way.
santana8

[spastic]

Thanks for responding. I am not dx'd although it is suspected.  Am seeing neuros next week.  I have never had pain like that it in my eye before.  but I will admit I have been having the shadows and floaters for awhile and have had a persistent fever for two months now.  They have ruled out any infectious or arthritic conditions and have had no explanation to the fevers. they simply just call it fever of unknown origin.  wonder if I have been just having a flare?

[Rena705]

Spazie...from what I have read, I think that if you can you should probably get yourself to a doctor as soon as possible.  Not only would I be concerned about any pain in one's eye due to the fact that we only have two of them for life, the following is just some of the symptoms of Optic Neuritis.  You do not have to have all of these for it to be ON but it might help you make up your mind:

Pain with eye movement (more than 90% of patients)

Tender, sore eye

Mild to severe decrease in central vision  

Dull, dim vision

Reduced color perception

Decreased peripheral vision  

Central blind spot

Fever  

Headache  

Nausea

Decreased vision following exercise, hot bath or shower (activities that elevate body temperature)

I think that even if it isn't ON, this sounds like something that you had better get checked out!  You certainly don't want to lose the sight in one eye!  (Just my opinion!)

Lots of Hugs,

Rena

[kitten o]

HELLO THERE,
I WAS DX WITH ON BACK IN MAY AND THAT IS
HOW I WAS DX WITH MS. I STARTED WITH EVERE RIGHT,
EYE PAIN. HAD A VEP TEST AND SHOWED ON.
I WAS PUT ON STEROIDS FOR 6 WEEKS AND IT HELPED.
NOW I GET THAT SAME PAIN IN MY RIGHT EYE, SOMETIMES
EVERY 2 MONTHS, BUT NOT AS BAD AS LAST YR.
DID YOU HAVE AN VEP TEST? DID YOU SEE AN EYE DOCTOR?
ARE U DX YET WITH MS?  SORRY SO MANY QUESTIONS.
WELCOME AND I HOPE THIS HELPS U ALITTLE.
P.S. I NEVER LOST SIGHT IN MY EYE'S.  THANK GOD.
LOTS OF GREAT PEOPLE HERE, WILL ALSO ANSWER,
KITT