Eyeball twitching

I have been having the strangest symptom.  At night it feels as though my left eyeball is twitching up and down. I do not notice it during the day only when I am trying to go to sleep. I do however have eye pain in that eye when I move it suddenly during the day. I have also had the whole eyelid area twitch, but this feels different. Sometimes I do have a subtle sensation of the eyelid not wanting to blink?  Weird I know, but I was wondering if anyone else has had it and if you have what is it?  I don't want to go to the doctor just yet, only if I have to.

[Melissa072]

Hi I am not diagnosed but have several ms symptons, I have had a feeling like a worm riggling inside my eyeball for nearly 2 months now in the outer corner of my left eye.
Is this what you mean or is your whole eyeball affected?
Melissa

[dowma]

Hi, I've had that same sensation with the eye "shaking" back and forth though.  It only happened to me once and it sort of freaked me out.  I do frequently get the feeling that my eyelild doesn't want to blink "staring".  I was recently diagnosed with having seizures just had VEEG( video EEG).  It's not epilepsy its seizures being caused by inflammation in the brain an atypical autoimmune disease.  I  know sounds weird, I'm trying to figure it out myself :).  But thought I would let you know that your not alone in your symptoms.  I too have not been dx with MS but in my heart of hearts feel thats what I have, just not enough symptoms and clinical results to make an official dx. Good luck to you.  Mary Beth

[normalfolks]

Do you have any other symptoms or know much about MS? My doctor has been doing work up on me for some time.  First I was diagnosed with Fatty Liver disease (or what they call Non Alcoholic Steato-hepatitis)  Then with fatty lymph nodes (my arm pit lymph nodes swelled up so bad it looked like I had baseballs under them).  Now I have muscle cramps and pains so bad all thru out my body that I have a hard time getting out of bed.

Just recently my eyeballs and the area around them have been jumping.  the eyeball keeps jumping left to right involuntarily.  I have also been getting really weird headaches.

My hemochromatosis was so bad that my ferritin level was 1380 (normal range is around 20 to 200).  I have been going in for therapeutic phlebotomy and thought I would be getting better - but it seems what ever is going on with me is actually now just turning on me in other ways.  Dr mentioned something about MS but found nothing on the MRI then said something about Parkinson.  My RBC count has took a nose dive and is only 4.0 (normal is 4.7 to 6.1

My Cholesterol (HDL) is only 22 (normal is supposed to be 25-75) and my LDL is 31 (normal is supposed to be 80-200) with the total at cholesterol at 98 again normal is supposed to be 140-280.  My bilirubin is 2.1  (normal is supposed to be 0.1 to 1.2)

I am at a loss for what is going on with me!

I am 41 yr old Irish/Italian male with a family history of the men passing on normally by age 60 after being ill for 10 years or more.  All the women lived normal life spans it was only the men that died early.  I am praying that I am not following that same path but a lot earlier!

Sometimes doctors never really know what is going on and some will try to find out, while others will just pass you off as a nut case (my first doctor told me my liver was giving me problems because I was an alcoholic - the odd part is that I do NOT drink at all.. never have.. when I tried to explain that to him he kept insisting on sending me to a therapist so I could "talk" about the pain I had in my side from the liver disease caused from a genetic disorder.  He just plain refused to believe anything I said and thought was only there to ask for pain meds or something.  I was told by several other doctors that this is common for a doctor to completely blow off a patients complaints about pain - even when they are real.  At that point find a NEW doctor and fast!