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1318483 tn?1318347182

Eyes, eyes, eyes


Okay, I have been getting such great feedback on my other issues, I thought I would give this one a try.  ;0)

I am having some pretty lengthy eye troubles and it worries me that nothing is being done.  It started a year ago and I am getting a little concerned it may become permanent.  I haven't driven in a year.

I have been diagnosed with Dry Eye for a year now and I take OTC drops and Restasis for this.  I also take 4 drugs that could cause dry eye, dry mouth.  I do have both.  I have never had eye trouble before this.   3 years ago my eye doctor commented to me that I had the best eyes he had ever seen in his practice for a late 30's person.  hehe

I have had dry eye for a year now.  I have double vision for a year.  I have blurry vision in right eye for a year...in the last week it has become considerably worse.

One year ago (this was onset of eye probs) I had an episode of uncontrollable eye lid fluttering.  During this episode I also experience my left side of my face drooping and my speech was affected.  

On the 15th of this month I experienced the same eye flutter but this time my mother and daughter saw that my left eye repeatedly floated over towards my nose.  This has happened twice since then, but of course not in front of a doctor.

Since yesterday, my blurry vision has doubled in size.  I am having such difficulty trying to read posts on here and to respond to them.  Something else that started yesterday is that it looks like my vision is jumping??  The picture I see with my eyes jumps.

I see an ophthalmologist.  I had thought I was only seeing a reg eye doc, but was wrong about that.  He has only ever done regular eye exams on me though.  He looks at the back of my eye ball with the light machine you stick your chin on....and says my optic nerve is fine.

I am getting more and more worried about my eye sight.

Do you think I need further testing?  And, if yes, what tests?  

Do I keep my same ophthalmologist or request a new one?

Thanks,
Addi
8 Responses
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338416 tn?1420045702
So can I - before my eye problems, I learned how to move one eyeball at a time.  You cross your eyes, then while keeping one eye crossed, move the other eye.
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1318483 tn?1318347182

Thanks for the info.  I had been thinking of asking to see a neuro-ophthalmologist already.  So, I will definitely bring this up to my pcp tomorrow now.

That is too funny about how you freak people out!  Actually, my daughter does that to me all the time and it grosses me out!  lol  She can move one eyeball at a time.  

Thanks again,
Addi
Helpful - 0
Avatar universal
I would suggest you see a neuro-opthalmologist. They are specialists in neurolgical conditions that cause eye problems. My initial symptom of MS was optic neuritis in my left eye, and since then i've had optic neuritis in my right eye. My biggest symptom last year though was double vision. I feel for you! Double vision is no fun. I had what is called 6th nerve palsy, which was affecting one of my eye muscles. I couldn't pull m y left eye to the far left, and it didn't track well with my right eye.

I have to say, although I hated having double vision, and maybe this is bad, but I enjoyed freaking people out. If I moved my eyes quickly from left to right (or right to left) you could SEE that my left eye didn't move as fast, or as far, as the right. The conversation usually went like  this:

"I'm so sorry, I heard that you have double vision," (this usually is accompanied by a pitying look)

"Yeah, it *****. Wanna see?" (I said this at the same time I moved my  head quickly)

Their response, "Ooeeeaccckk!" LOL great fun. Poor taste, I'm sure, but great fun.

Anyway, the whole point of this post was to say I totally feel for you with the eye issues, and I wanted to suggest a neuro-opthalmologist. They could pinpoint or rule out a neurological cause for your issues.

I hope you feel better soon!
Helpful - 0
1318483 tn?1318347182

Well, I figured that it can't hurt to mention it to PCP.  It is on my list.  ;0)

I still want to make sure all is being done for my eyes that can/should be done....you know?  No matter what my diagnosis may be....

I honestly don't even know if there is help.  My ophthalmologist doesn't seem to be concerned with it.

Addi
Helpful - 0
338416 tn?1420045702
Maybe... who knows!  I think many people have been diagnosed with both.
Helpful - 0
1318483 tn?1318347182

I am mentioning it to my PCP on Wednesday.  I saw that it can be a mimic, so I thought I should tell him about it and see what he thinks.

The only thing I cannot find info about SS is...well, my neuro issues started 5 years before dry eye/mouth/skin started.  And the dryness started when I started on meds that has that as a side effect.  

So, could it still possibly be ss?

Thanks,
Addi
Helpful - 0
338416 tn?1420045702
Have you been evaluated for Sjogren's?

http://www.sjogrens.org/home/about-sjogrens-syndrome
Helpful - 0
1318483 tn?1318347182
bumpitty-bump bump  ;0)
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