I am not certain how to ask my question. I had been told i had fibromyalgia for years and experienced the muscle fatigue, pain and worst the spasms. Now i have been told I never had fibro but that it has been MS all along. The muscle spasm and pain that i had experienced and defined as fibro comes with repetitive movements and certain tasks~~for whatever reason, standing at the sink handwashing dishes sets off a spasm in my right mid back area. Is this considered a typical MS experience?
I guess I am asking if what I thought was fibro spasm all those years was indeed MS.
wow ms runs in my family I four family members with MS. I have been complaining for months about the spasms Ive been having. Could it be a mild form of ms and how do I find out? I get spasms in my feet, my back, my ribs, behind calf, and worst is in my stomache.This is daily sometimes I lay down and it starts up sometimes like u I can be standing and it will act up. Seen my primary regaurding this she said my sugars will dehidrate me drink more water but I do so I know that is not the answer. So could I have MS? If u know something please tell me.
I was diagnosed with osteoarthritis many many years ago, then in the 1990 I was diagnosed with Hashimoto's disease.In the early 2000's ( I don't remember exactally when) I was diagnosed with Fibromylagia. In 2008 I was diagnosed with PPMS (primary progressive multiple sclerosis). My rheumotologist controls my Fibro, my orthopedist controls my osteoarthritis and my neurologist controls my MS and my endocrinologist controls my Hashimoto's Disease. All seem to have different types of issues... I sometimes wonder if what they thought to be fibro is MS.
Conditions associated with Lyme include Chronic Fatigue, Multiple Sclerosis, ALS, Rheumatoid Arthritis, Fibromyalgia, Parkinson’s, autism, depression, and thyroid disorders. There is a high association between Lyme and Hashimoto’s.
Have you ever considered that all your conditions could be wrapped in one?
Dr. Garth Nicolson is coming back next week at the Autoimmune Community, to answer A/I questions. Check there for information posted by the MH Community Mgr.
I have been tested for Lyme many times over the years and my spinal fluid was check in 2008... I do live in a Lyme prevalant area and I worked in the medical field for years watching all the positive Lyme tests mostly all western blots sent to CA lab. Also, the rheum I see is a Lyme specialist. I hoped that was the answer and 30+ days of docycilline would be my cure... didn't happen that was so I accept my diagnosis and move forward. Interesting piece of information... since being back in touch with the community I graduated from high school in there are many cases of MS... I have not lived there since graduation in 1975 but as neuro feeds me knowledge different instances pop into my mind that seem to follow the MS curve. I will check out the MH community... thanks for the info.
~live as if all your dreams came true~
You were treated according to IDSA protocol for Lyme Disease.
Not the proper treatment for Lyme Disease.
Checkout ILADs and LLMDs for details or your local Lyme Association.
Your case is unfortunately very common these days and should you indeed
have LD (which has the prospect of complete cure), you have a good chance to get your life back. There's a very fine line between MS and LD.
I would pursue LD only with a very reputable LLMD and IGeneX Labs.
Dr. Garth Nicolson's info is posted at the Autoimmune Community.
I will check it out Niko... Thru my own research I think the Dr I see has things covered... He is the medical director for Imugen Labs... they support a variety of tests for Lyme.. see below
MEDICAL DIRECTOR, Rheumatologist in private practice in a highly endemic area for Lyme disease. Dr. Molloy is a member of the Massachusetts Department of Public Health's Lyme Disease Advisory Committee, and the co-author of many publications on the serologic and immunologic characterization of Lyme arthritis patients. He is actively involved in the research on the correlation of clinical features and laboratory findings in patients with various manifestations and stages of Lyme infection.
I have previously been on long term antibiotic's while waiting for all test results to come in, just incase! Where I live Dr's will assume Lyme rather than ignore. Also my primary, the dr I worked for is an osteopath. I was not being tested for MS or had even considered it when I was diagnosed...
I also see a neurologist who has researched Lyme and tests all spinal fluid she draws. I'm feeling comfortable with the care and tests that have been done to rule out Lyme. Thanks for the input :)
~live as if all your dreams came true~
Yeh,my apologies too! I didn't mean to hijack your thread, as very correctly
acknowledged by Debbie.
However, for what it's worth, the topic regarding Debbie, may have to do
with an underlying infectious condition, be it Lyme Disease or any of the following (or as co-infections) HHV-6, Ehrlichia, Babesia, Bartonella, Rickettsia, Pathogenic Mycoplasma, that could be applicable in your condition as well.
Debbie, Imugen's test excludes OspA, an antigen specific for Lyme.
If it still excludes reading bands #31 and #34 which are both specific and exclusive to the Borrelia bacteria, then it still follows the CDC restriction for labs to check these 2 bands , because they were were showing up on all the tests of people who were previously vaccinated with the Lymerix vaccine- which ended up being a total fiasco with some people dying, so it got pulled out, but the restriction remained.
So, have a look into this. Your negative results may not rule out LD.
I know that IGeneX testing includes the above bands and the OspA,
and also has by far the highest accuracy for Lyme testing, according to FDA.
If you have medicare you may want to consider IGeneX, as all you need is to order the kit from them, a willing doctor to sign the form and his nurse to draw the blood. Ref.#6050 for Lyme panel and #5090 for Co-infections.
Another way to test is to do the TOA free Samento challenge.
In about 2 weeks or less you will know because of the herxing!
I promise that I won't post any more on this, unless you have a question!
Here's my opinion. I think fibro is a diagnosis for when a doc hasn't a clue what's wrong with their patient.
I was dx first with MS, and there's on doubt I have it. I was dx with fibro as well a couple of months ago. The sx's of fibro are the exact same as MS, only with MS you can have more/other sx's.
I asked my rheumy how I'm suppose to distinguish btwn the 2, and he said I can't. Well that's a load of crap to me.
Med wise, nothing works for the "fibro". So, to me, I think the dx (of fibro) is crap. Everyone is different, but I'm pretty sure if you already have a dx of a chronic illness that causes pain fibro shouldn't be dx'ed.
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