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Food for thought

Hi Guys, Many times I have read on here about this cure & that cue & I know a lot of heated discussions have arose.

Well here'1 more & I have to admit I want to try it.

Www.abc.net.au/catalyst/stories/3572695.

Dr Paul Thibault & Dr David Wheldon

To make a long story short you take mega doses of 3 antibiotics for a year.

There theory is chlamidia pneumonae is thee cause for many illnesses and diseases including MS

Because I respect everyone"s opinion here I wold love to hear your thoughts.

I really am at the point where I will try just about anything for some relief of my continuous

Symptoms & pain.

Linda
5 Responses
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572651 tn?1530999357
It's always good to see you -  have you considered getting an appointment with a different MS specialist for a consultation to see if there are other approaches that might be more effective for you?  With 10 enhancing lesions, you already know your MS is in a very aggressive state.

Tons of antibiotics could cause other problems and probably are not a good idea.Everyone else has given you a great list of reasons why this is not a miracle cure for MS.

Have you discussed stepping up to Tysabri or doing IVIG?  Those could be the next possible approaches to treatment for you.  Please don't stop trying to do something - the allergic reactions must be horrible but the MS is even worse.
hugs, Laura
Helpful - 0
Avatar universal
Sarah2491, immesco,  Sailorssong. Thank you for your comments, as I said

I really respect the communities opinions!!! I knew it was probably hogwash

But I am always hoping as we all are for an easy or should I say  miracle to

fall in our laps and take our MS away.

My Neuro is great & has tried me on Copaxone, Rebif, Tecfidera and the

Side effects for me are worse than dealing with the daily symptoms & pain.

My last MRI showed at least 10 new enhancing lesions.

I think it was just wishful thinking on my part to think I could just take

antibiotics & viola!! MS would be gone.

As always thanks Linda



Helpful - 0
Avatar universal
It isn't caused by bacteria, so this, like all other "snake oil" treatments, is as others have said "hogwash".  I wish these things would go away.
Helpful - 0
5112396 tn?1378017983
The theory has been out there for a bit with a *possible* connection between Chlamydia pneumoniae and progressive forms (not RRMS). From 2003: http://www.ncbi.nlm.nih.gov/pubmed/12606878 But as so many of us have had this bacterial infection, it doesn't appear that it's been established if the relationship is causal or merely a correlation nor is it posited how it may relate to other forms of MS. That's a big if, and one I'll wait around for. Even if all of this was clear, it is quite a leap to then recommend a specific treatment from a hypothesis with no clinical verification.

The transcript for this (Had to search for it. Your link got a 404) had all the tropes, just the names and theory were changed. Maverick doctor, in a field unrelated to neurology, 'major paradigm shift the neurologists are threatened by' in the form of a theory already mooted by someone else's research, a proposed treatment concocted for an afflicted wife with a heart-wrenching story, dog-piling on neurologists - seriously, it's Zamboni 2.0 with the added 'benefit' of Lyme culture - 'only select labs can test for', 'pharma hates it because it's a cheap treatment', etc.

I file this one under 'nothing to see here'. I'll happily revise that assessment if evidence is found to warrant it. In the meantime, I'm on immunosuppressants (as are an entire subset of the MS community). I'd be happy if people didn't needlessly take a year (as recommended by this doctor) of antibiotics leading to more resistance in the population at large and the proliferation of superbugs.

Is your current neurologist unable or unwilling to prescribe or discuss treatment for your on-going symptoms? I'd much sooner try and find another doctor if that's the case rather than put all my eggs in one unproven treatment basket.
Helpful - 0
645800 tn?1466860955
After reading the transcript this seems to be hog wash.

The first clue to this was that this doctor said he believed in the theory of the doctor that was saying his vein stint procedure cured MS.  That has already been debunked by many studies.

The second clue was when this doctor said that the bacteria were clogging up the veins. I'm not doctor but that just seems so out there I just can't believe it. I would think that in order to have enough bacteria to clog up even one small spot in a vein that would effect blood flow you would be constantly running a high fever or have high white blood cell counts from your natural body defense against the bacteria.

Dennis
Helpful - 0
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