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I just wanted to make a comment about friendship and what it can mean to us as we fight to find a dx or if already dx, to deal with the everyday challenges we faceFace pain.
I have been a member of this forum since July 2007 and it has been like a haven in a storm. I don't know what I would have done if I hadn't found it.
I have made many friends here that understand my symptoms and are always here to listen, no matter how bad they may be feeling.
I have had the opportunity in the past to talk to one member on the phone a couple of times and it was wonderful. Not as good as meeting in person, but to hear a voice connected to a screen name was great.
Well, today I got to talk to one of my other friends from the forum. We talked our phone batteries into oblivion!!!! It was great fun and I feel even closer to her than I already did. I am still walking around with this huge smile on my faceFace pain!!
I guess what I'm trying to say is friendship, even if it is only through the typed word, means so much to so many. As I read the posts I feel the love, compassion, friendship, and pain that we all share.
I don't know how I found this wonderful place, but my friend and I today talked about all of you and this forum. She and I both believe that this forum is blessed and that we were all suppose to be here to help each other.
Oh, Doni, that was beautiful and brought a lumpLumps in the breasts to my throat. I feel the same way and feel that we create magic here. Thank you. You are a sweet and giving person who deserve's all the love and friends in the world!
Our friendships ARE priceless and I went to bed all teary eyed last night after reading this, but it was all good. Thank you so much for for yesterday, and for being who you are and for all that was shared.
Thank you all from the bottom of my heart for everything you do for me and each other each and everyday.
Thanks for sharing your experience with friendships and this forum. I agree wholeheartedly with you in that this forum and its members are not only helpful with information sharing, but more importantly they are truly caring. I know of support groups that meet once a week that are not even as close as we are with each other. And another thing, our support group can meet 24/7 if need be.
Again, Doni, thanks for sharing this wonderful positive experience.
That was a beautiful way of expressing your feelings my dear! I have also made friends and spoken with one member on the phone a few times and it puts everything into perpective when there is a voice behind the written word...we have become quite close and are able to share things that I am not sure we would even share with our spouses.
This is a special place...like an oasis in a storm...and I don't know that I would have made it this far without having people listen to me but also being able to help others. I have found it very therapeutic to be able to help others when I was stuck in the house all last winter without being able to drive...this is my life line at times and without it I often wonder if I would have drowned!
Well, I know that Craig and I would not have survived the past year if it were not for this forum. It has also been a life line to me and a huge source of support and guidance.
Before I found this place, I figured I must be out of my mind and really thought that I would end up begging my parents to live out my crazy days in their basement.
I'm sorry that others go through so much both before and after diagnosis, but I'm really glad we have each other to share the experiences. I have a lot more hope that I can get through my cruise on the S.S. Limbo knowing I'm not alone and that other great, sensitive, smart and caring folks are on board with me. But please, someone tell the captain "No More Detours!!!!"
Well 'Quizzle' said she had a lump in her throat, but I am here to tell you that I couldn't get past the lump in my throat and just had a good cry. What precious words you spoke. Friendship means everything.
You are right my dear friend. This Forum is so close to 'Heaven Sent' it's kinda scary. I too, don't know how I would have survived the past year and a half without this Forum and all it's members. I have my dear friend, Quix to thank for bringing me here. She saw my post on the Neruology Forum and invited me over here. I still think of that day as one of the luckiest days of my life.
Yes, I have met alot of new friends here on our forum and come here everyday to visit with them all, old ones and New ones...
I sometimes need to vent and chat about things I feel or hear and someone is always here for me... as I try to be for everyone here...
some I can answer, but alot of the times we just are here to hear each other...and be there for each other..
Having friends that you have never met...(and always wished we could)...wouldn't that be something... to find something this SPECIAL in this world is amazing...
Quix
You all somehow have become so much to me.
Support.
Friendship.
Hope.
Answers.
Joy.
Shared Optimism.
Laughter.
Something to look forward to.
Somone to share my day (the good and the bad) with.
THANK YOU.... ALL OF YOU.... FOR ALL THAT YOU DO BY REACHING OUT... TYPING... AND SHARING YOUR THOUGHTS!!!
~Sunnytoday~
Our friendships ARE priceless and I went to bed all teary eyed last night after reading this, but it was all good. Thank you so much for for yesterday, and for being who you are and for all that was shared.
Thank you all from the bottom of my heart for everything you do for me and each other each and everyday.
Love,
Shelly
Again, Doni, thanks for sharing this wonderful positive experience.
Julie
This is a special place...like an oasis in a storm...and I don't know that I would have made it this far without having people listen to me but also being able to help others. I have found it very therapeutic to be able to help others when I was stuck in the house all last winter without being able to drive...this is my life line at times and without it I often wonder if I would have drowned!
Rena
I thank all of you. Without you, I would be lost.
Elaine
WELL SPOKEN!!!
KNOWING THAT WE HAVE THE UNDERSTANDING OF EVEN CYBER FRIENDS GETS US THROUGH OUR ROUGHEST TIMES.
THESE GENTLE WORDS AND THE LOVING CARE FROM EVERYONE HERE IS PRICELESS.
T-LYNN
LOVE YOU ALL...................
HEY T, GOOD TO SEE YOU BACK HERE, MY FRIEND!!!! NOW IF WE CAN JUST GET ZIL RESTED UP AND BACK!!!
DONI
I'm sorry that others go through so much both before and after diagnosis, but I'm really glad we have each other to share the experiences. I have a lot more hope that I can get through my cruise on the S.S. Limbo knowing I'm not alone and that other great, sensitive, smart and caring folks are on board with me. But please, someone tell the captain "No More Detours!!!!"
OK, I'll stop the corny metaphor.
doni54, great idea to start such a positive post!
Happy Labor Day!
You are right my dear friend. This Forum is so close to 'Heaven Sent' it's kinda scary. I too, don't know how I would have survived the past year and a half without this Forum and all it's members. I have my dear friend, Quix to thank for bringing me here. She saw my post on the Neruology Forum and invited me over here. I still think of that day as one of the luckiest days of my life.
Happy Labor Day to you sweetie.
Heather
I sometimes need to vent and chat about things I feel or hear and someone is always here for me... as I try to be for everyone here...
some I can answer, but alot of the times we just are here to hear each other...and be there for each other..
Having friends that you have never met...(and always wished we could)...wouldn't that be something... to find something this SPECIAL in this world is amazing...
thanks everyone...and Medhelp...
andi