Aa
From Frann
Hi old friends and some new ones too, I know it has been a few months since I last posted, but there has been so much going on & although i check the site, i have not had too much strenght to catch up.
First of all, my cervical spinal surgery rehab has not been too successful... i even have more pain than before... but i am grateful i am not paralyzed... which was a possibility with all my trips and falls... which i do continue to have since there is no changes in my balance issues...
BUT... i am not here for me... i am here for my daughter...
yes, my precious 33 year old daughter who has right sided hemiparesis from birth... She is a speech therapist, who is married, has a 2year old son. She has a history of migraines, she was taking imitrex, in December, she has a strange one, with numbness surrounding her face, neck, jaw... she said it felt like she had novacaine...in January, she had just the numbness, it lasted for about 2 days... i recommended she see an neuro... she was at her son's doctor & the doc saw that something was wrong with my daughter ( numbness of face, severe headache) & sent her immediately to a neuro ... long story... he freaked whe her saw her right sided hemiparesis... thought she had a stroke.. but she filled him in... anyway, he sent her for a mri... 3t closed... results... the radiologist found a lesion on the periventricular white matter... a radioligist friend reviewed it and found another lesion and notified the original radioligst and this is the updated report:
"there is noted a focus of abnormal increased T2 signal in the periventricular white matter perpendicular to the body of the lateral ventricle. Attention is also directed to the posterior fossa, there is vague focus of increased signal measuring apporx. 3mm. in the right middle cerebellar peduncle. Given its location, as well as the history of numbness and the left periventricular lesion, this is suspicious for a focus of demyelination.
ok.so what do you think??? the original neuro feels the lesion on the periventiricular white matter is probably the lesion from birth... her right sided hemiparesis... given the new finding, she is going to see another neuro and get his feedback
Do you think the 3 mm lesion on the right middle cerebellar peduncle... is that a lesion suspicious for MS??
As you can imagine, with my undiagnosed suspicion of MS and now my daughter... i am very concerned.. please any feedback would be so helpful... we are seeing the neuro together on tuesday, so hopefully we will have some answers for her.
God bless,
Frann
First of all, my cervical spinal surgery rehab has not been too successful... i even have more pain than before... but i am grateful i am not paralyzed... which was a possibility with all my trips and falls... which i do continue to have since there is no changes in my balance issues...
BUT... i am not here for me... i am here for my daughter...
yes, my precious 33 year old daughter who has right sided hemiparesis from birth... She is a speech therapist, who is married, has a 2year old son. She has a history of migraines, she was taking imitrex, in December, she has a strange one, with numbness surrounding her face, neck, jaw... she said it felt like she had novacaine...in January, she had just the numbness, it lasted for about 2 days... i recommended she see an neuro... she was at her son's doctor & the doc saw that something was wrong with my daughter ( numbness of face, severe headache) & sent her immediately to a neuro ... long story... he freaked whe her saw her right sided hemiparesis... thought she had a stroke.. but she filled him in... anyway, he sent her for a mri... 3t closed... results... the radiologist found a lesion on the periventricular white matter... a radioligist friend reviewed it and found another lesion and notified the original radioligst and this is the updated report:
"there is noted a focus of abnormal increased T2 signal in the periventricular white matter perpendicular to the body of the lateral ventricle. Attention is also directed to the posterior fossa, there is vague focus of increased signal measuring apporx. 3mm. in the right middle cerebellar peduncle. Given its location, as well as the history of numbness and the left periventricular lesion, this is suspicious for a focus of demyelination.
ok.so what do you think??? the original neuro feels the lesion on the periventiricular white matter is probably the lesion from birth... her right sided hemiparesis... given the new finding, she is going to see another neuro and get his feedback
Do you think the 3 mm lesion on the right middle cerebellar peduncle... is that a lesion suspicious for MS??
As you can imagine, with my undiagnosed suspicion of MS and now my daughter... i am very concerned.. please any feedback would be so helpful... we are seeing the neuro together on tuesday, so hopefully we will have some answers for her.
God bless,
Frann
hi Quix,
I am so sorry, you have so many friends you look out for... i am the dingbat!
yes, I do have antiphospholipid antibody syndrome...my daughter was checked for it before she got pregnant & was negative... so she felt secure in getting pregnant, had an awful pregnancy * hyperemisis, long labor/ 3hrs pushing... her son had 9 apgar, seemed like everything was fine, was not meeting his milestones, orginally low musle tone, then mri read normal by radiologist but by pediatric neuro found decreased volume of white matter... so both my daughter, now my grandson have brain issues... with my history, i just wondered even tho my daughter tested negative for APS, what could be the common denominator... or there is no rhyme or reason???
I know you are busy, if you have any ideas, i would love to hear them.. but i did suggest to my daughter to take her mri cd to the pediatric neuro who sees her son & see if he will review it for her now that she has something going on... in my heart i fear it is MS... but i am praying i am wrong... you know what i mean???
God bless,
Frann
I am so sorry, you have so many friends you look out for... i am the dingbat!
yes, I do have antiphospholipid antibody syndrome...my daughter was checked for it before she got pregnant & was negative... so she felt secure in getting pregnant, had an awful pregnancy * hyperemisis, long labor/ 3hrs pushing... her son had 9 apgar, seemed like everything was fine, was not meeting his milestones, orginally low musle tone, then mri read normal by radiologist but by pediatric neuro found decreased volume of white matter... so both my daughter, now my grandson have brain issues... with my history, i just wondered even tho my daughter tested negative for APS, what could be the common denominator... or there is no rhyme or reason???
I know you are busy, if you have any ideas, i would love to hear them.. but i did suggest to my daughter to take her mri cd to the pediatric neuro who sees her son & see if he will review it for her now that she has something going on... in my heart i fear it is MS... but i am praying i am wrong... you know what i mean???
God bless,
Frann
I'm going to sound like a dufus here, but my memory is failing. Was it you that had Antiphospholipid Syndrome?
Q
Q
Thank you ALL so much for your kind words of encouragment.
I am so blessed by all of you.
Quix, thank you for you opinion & advice... i actually thought the same thing... how can the lesion in the periventicular white matter still be so obvious almost 34 years... i was wondering if it was an older lesion & the one near the right cerebellar peduncle sounds newer.. in fact, the original radiologist missed it... it was picked up by a neuro radiologist... it just shows how they can be missed...
Quix, one more question: do you think there is some kind of link with my daughter born with hemiparesis, my medical issues, my grandson born with decreased white matter causing developmental delays and now my daughter possibly having MS...is there something that can be familial???? maybe i am in left field but i was just wondering what you thought???
we are going together tues. to see the neuro i met in the hospital, hopefully we will have some answers or at least a direction... i pray it isn't MS... she has so much on her plate with her son, you know about him quix, he is doing better but so much more to do.. he has therapy 5 days a week sometimes 2-3 a day...it has been a nightmare for me... worrying so much... more about her & my grtandson than myself... that's what moms do... so everyone keep us in your prayers ... i will let you know how it goes...
once again, sorry about not keeping in touch, but i know you understand.. i have kept all of you in my prayers.
God bless,
Frann
I am so blessed by all of you.
Quix, thank you for you opinion & advice... i actually thought the same thing... how can the lesion in the periventicular white matter still be so obvious almost 34 years... i was wondering if it was an older lesion & the one near the right cerebellar peduncle sounds newer.. in fact, the original radiologist missed it... it was picked up by a neuro radiologist... it just shows how they can be missed...
Quix, one more question: do you think there is some kind of link with my daughter born with hemiparesis, my medical issues, my grandson born with decreased white matter causing developmental delays and now my daughter possibly having MS...is there something that can be familial???? maybe i am in left field but i was just wondering what you thought???
we are going together tues. to see the neuro i met in the hospital, hopefully we will have some answers or at least a direction... i pray it isn't MS... she has so much on her plate with her son, you know about him quix, he is doing better but so much more to do.. he has therapy 5 days a week sometimes 2-3 a day...it has been a nightmare for me... worrying so much... more about her & my grtandson than myself... that's what moms do... so everyone keep us in your prayers ... i will let you know how it goes...
once again, sorry about not keeping in touch, but i know you understand.. i have kept all of you in my prayers.
God bless,
Frann
Hi Frann,
So glad you've popped in. I'm glad to know you are able to get to the keys if even briefly. I'll pray for some improve for you, and for your daughters present situation, and her future. I hope the information provided helps get you to your next step.
I've missed you, and think of you often.
Please keep us posted,
Be well,
Love,
SL
So glad you've popped in. I'm glad to know you are able to get to the keys if even briefly. I'll pray for some improve for you, and for your daughters present situation, and her future. I hope the information provided helps get you to your next step.
I've missed you, and think of you often.
Please keep us posted,
Be well,
Love,
SL
I am SO glad to see you post. Of couse I am not happy to hear about your continued pain and of course your daughter.
I am totally lost when it comes to commenting on your daughter's symptoms, so am glad that Quix has cleared that up. Whewww! What would we do without her?
Please come back often and post. WE have missed you SO MUCH.
I send big hugs to you AND your precious daughter.
Heather
I am totally lost when it comes to commenting on your daughter's symptoms, so am glad that Quix has cleared that up. Whewww! What would we do without her?
Please come back often and post. WE have missed you SO MUCH.
I send big hugs to you AND your precious daughter.
Heather
OMG!!! You're back! I am so glad to see you and to hear from you, but not with this news. I'm so sorry your surgery left you in more pain, but at least things are stabilized now.
About your daughter's MRI lesions. Now this is where my lack of knowledge of general neurology comes in, BUT I can't see any way under the sun that a well demarcated lesion in the periventricular area could represent a large stroke from 33 years ago. The most common cause of congenital hemiparesis is from an "in utero" stroke. I believe that it would appear much differently than would a current demyelinating lesion. In fact I believe the area would have been reabsorbed long ago. I totally agree with the 2nd neuro opinion. I wonder if the proper neuro to see would be a pediatric neurologist as they are the ones who follow in utero strokes for the first 18 years. One could immediately tell you (I would think) if this lesion is what a massive stroke as a fetus or small infant would look like decades later.
Yes, the second lesion is suspicious, being that the first is classically shaped, formed and oriented like an MS lesion.
Please drop in more often. This forum is moving like a whizbang, but you can always just post your own thread and hear from your friends who miss you so much!
We are here for you for the long haul, MS in you or your daughter notwithstanding,
((((((((HUGS))))))))))))
Quix
About your daughter's MRI lesions. Now this is where my lack of knowledge of general neurology comes in, BUT I can't see any way under the sun that a well demarcated lesion in the periventricular area could represent a large stroke from 33 years ago. The most common cause of congenital hemiparesis is from an "in utero" stroke. I believe that it would appear much differently than would a current demyelinating lesion. In fact I believe the area would have been reabsorbed long ago. I totally agree with the 2nd neuro opinion. I wonder if the proper neuro to see would be a pediatric neurologist as they are the ones who follow in utero strokes for the first 18 years. One could immediately tell you (I would think) if this lesion is what a massive stroke as a fetus or small infant would look like decades later.
Yes, the second lesion is suspicious, being that the first is classically shaped, formed and oriented like an MS lesion.
Please drop in more often. This forum is moving like a whizbang, but you can always just post your own thread and hear from your friends who miss you so much!
We are here for you for the long haul, MS in you or your daughter notwithstanding,
((((((((HUGS))))))))))))
Quix
Hi Sweetheart!
I have been so worried about you! I sent you a private message a week or so ago and was so worried when I didn't hear back!
I am so glad you are okay. I know how worried you are about your daughter, I have been praying for you and her ever since our last talk. Maybe Quix will see this and give you some of her great advice.
You keep in touch now!
Love,
doni
I have been so worried about you! I sent you a private message a week or so ago and was so worried when I didn't hear back!
I am so glad you are okay. I know how worried you are about your daughter, I have been praying for you and her ever since our last talk. Maybe Quix will see this and give you some of her great advice.
You keep in touch now!
Love,
doni
Hi Frann, I too have been wondering how you are. I'm sorry the surgery was a bust. How disappointing for you. We had all hoped that it would bring you much needed relief.
I too have no advice about the MRI results but just wanted to say I will add her into my prayers.
I'm so sad that you are having to go through all this. I pray for better days ahead for you.
Hugs
Moki
I too have no advice about the MRI results but just wanted to say I will add her into my prayers.
I'm so sad that you are having to go through all this. I pray for better days ahead for you.
Hugs
Moki
Hi Frann! It's good to hear from you. I've been wondering. I'm so sorry your back surgery hasn't worked out as well as we'd all hoped. Can anything be done about your pain?
As to your daughter, once again I'm very sorry. I can't say anything intelligent about the MRI results and won't try. But I do urge you to have the neuro do absolutely all the rule-out tests, and make sure she has a thorough neuro exam. Ask lots of questions. You know the drill from being here, and it can be uphill. Be sure to check in here often because others will have lots of suggestions.
Best wishes,
ess
As to your daughter, once again I'm very sorry. I can't say anything intelligent about the MRI results and won't try. But I do urge you to have the neuro do absolutely all the rule-out tests, and make sure she has a thorough neuro exam. Ask lots of questions. You know the drill from being here, and it can be uphill. Be sure to check in here often because others will have lots of suggestions.
Best wishes,
ess
OMG!!!! We have missed you SO much! Shelly (SL) and Quix and I have wondered how your recovery went and your disability situation. I realize the world is round and someone can't just fall off it, but I was afraid that is just what you had done!!
Shelly posted to you dozens of times. I hope you saw we reached out because we missed you and were concerned. I hope you got my private messages. I can see your depression would keep you from wanting to respond. I'm so sorry.
Boy, it just won't let up for you, will it? I'm sorry about your surgical results and I'm guessing the disability didn't work out. And now you're worried about your daughter. Whew! Are you seeing the neuro who you thought seemed promising during your spine crisis? What ever happened with him and your evaluation? Is he as good as you thought he could be? I hope you are still pursuing help for yourself, Frann. You sound miserable.
I am going to have to do some searching around about the questions regarding your daughter. It's confusing because of her hemiparesis since birth. I know Quix will be very interested in helping you with this, too, Frann, Long Lost Friend.
So glad to finally hear from you, although I'm sorry about the circumstances. I know we can help. Please stick around. You're SO missed!
Big hug,
Zilla*
Shelly posted to you dozens of times. I hope you saw we reached out because we missed you and were concerned. I hope you got my private messages. I can see your depression would keep you from wanting to respond. I'm so sorry.
Boy, it just won't let up for you, will it? I'm sorry about your surgical results and I'm guessing the disability didn't work out. And now you're worried about your daughter. Whew! Are you seeing the neuro who you thought seemed promising during your spine crisis? What ever happened with him and your evaluation? Is he as good as you thought he could be? I hope you are still pursuing help for yourself, Frann. You sound miserable.
I am going to have to do some searching around about the questions regarding your daughter. It's confusing because of her hemiparesis since birth. I know Quix will be very interested in helping you with this, too, Frann, Long Lost Friend.
So glad to finally hear from you, although I'm sorry about the circumstances. I know we can help. Please stick around. You're SO missed!
Big hug,
Zilla*
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
