Frustrated

[LisaJF]

This is the second time this year that I have had internal rectal pain and it's happening now. It is so painful.  It's not my anus but deeper inside.  I feel like someone is shoving a baseball bat up my rectum.  I took Motrin 800mg, 8mg of Zanaflex without relief.  My girlfriend said to take the Neurontin, but its an old prescription and I haven't take it for a long time (it makes my gait bad).  

I do not know what to do.  

I try to imagine me going to the ER and explaining my chief complaint to the ER nurse...."My @$$ hurts".  Yeah....I'll be looking like an idiot.

Like I said..frustrated that I have to lay here in pain and not know what to do.

Lisa

[Lulu54]

Lisa, jeez girl.  That UTI gone rogue is a serious deal.  Could that pain been caused by the rigors?   I know that shaking/shivering/vibrating/bouncing/etc from the rigors for me caused all sort of discomfort.  I hope you are on the mend.

[calamfred]

Glad to hear you're better, and it sounds like it's been a rough go! Bladder spasms stink! I think they're the worst part of passing kidney stones, at least to me they are. I rarely have the pain in the kidney area of the back, mine is more burning, cramping, agony feeling like I need to push and give birth...to a goat head sticker looking lil stone! And the chills/nausea..I am hushing about it all now, as its making me shudder just thinking about it.
Hopefully you will keep feeling better each day!
C

[LisaJF]

Thank you Max and cala and MaryLou!

I went to the ER and they admitted me for IV antibiotics and diagnosed me with Pyelonephritis.  I was sicker than a dog when I was in there.  Feeling much better now..

At least the rigors are not present anymore..I hate that "chilled to the bone" feeling.

My urodynamics and cystoscopy is delayed due to my volcanic menses. (would be quite messy) until Jan 6th and 12th or something like that.  I'd have to look again.

Well, maybe I do have hemmys Max!  That would be so cool! Let's add another issue! :P  Teasing.  

Whatever the cause of the rectal spasms (which I only had twice thank god) I'm grateful it went away.....Sooooo grateful.

Bladder spasms...well....I still have it but not as severe as I was last week.  So I'm good.

Thanks again!

Lisa

[calamfred]

Hope the Cipro has kicked in and you have turned the corner toward feeling better!
C

[maxthecat43]

Sorry to hear about the UTI!  Hope that gets under control quickly.  There is another possibility for the pain you describe.  I get it a few times per year too.  In my case, it's hemorrhoids.  That may not be true in your case, but as we all know, not everything is MS related.

Whatever the cause, I hope you feel better soon.
Tammy

[marylou63]

so glad you still have a sense of humour after all this. laughter is a very good medicine but sometimes with embarrassing consequences when you have bowel or nether region spasms and pain. laughed till I cried yesterday over my lack of word finding skills which was hastily followed by my expert toilet finding skills. Good luck with all you're upcoming investigations. ML

[LisaJF]

C

I've had pyelonephritis before and it pretty much feels the same way...flank pain (positive CVA tenderness), nausea, vomiting temp, vigorous rigors...can't get "warm" enough lately and this has been going on well before Thanksgiving...I just finally went to the urogyne because the spasms and pain was beyond belief.  Regardless, treatment is same anyways.  

I'll drink plenty of fluids to keep hydrated..or will try lol


I took my first dose this afternoon and I feel like I'm getting worse rather than better...Perhaps I waited too long...I'm sure I'll feel better in 72 hours...Just had enough of this crap already.

Yeah, no one enjoys procedures...I've had enough of them throughout my lifetime.  Worst ones were the lung surgeries.  I suppose a cystoscopy and urodynamics is considered a breeze...but when you had enough....you had enough already. :D

TEE was a close second. They couldnt sedate me enough due to low B/P 66/36 and was pretty much awake during procedure. That stunk.

Anyways, I'm feeling quite crappy right now and I'm sure I'll be my jovial self in a couple days.

Thank you again...

Yes this place has contributed in helping me keep my sanity throughout the years.  Many people I miss...that are not around anymore and many people I freshly meet are just as wonderful.

Lisa

[calamfred]

You're very welcome! Hope the Cipro clears things up fast...and the pain is more of "referred" pain..that the infection has not gone to ureters and up to kidneys. I hate having procedures, too..Reckon very few peeps enjoy em, eh??! Lol.. But if you have frequent urinary issues, probably best to see if everything is functioning "normally". Term normal used loosely..I had a great friend once say "normal" is a setting on a dryer...so true! :-)

I recall my hubby had a UTI years ago..at the time the Dr said it was unusual for a male to have a UTI if he doesn't have underlying health issues..At that time hubby was completely healthy, as far as we knew. Looking back and piecing everything, we can see where there were subtle symptoms. UTI, 1 time of double vision, urinary urgency, told his bladder was "huge" on CT scan, head and neck aches. But they were few and far between... It wasn't until the left leg weakness and dragging along with the calf muscle wasting that alarm bells went off. And hubby has an aunt with MS, diagnosed years ago.
I know we can't go back, just keep trying to move forward. And share when we can to try and help others. I appreciate all the great help I have read here, too.
Regards,
C

[LisaJF]

Hehe

My Urogynocologist just called...I have a UTI...so ordering Cipro for me...

I think it may have gone to my kidneys though..since I have low back pain an  bilateral flank pain...However, Cipro should take care of that too.

Now that we know I have a UTI I asked if I had to still get the urodynamics and cystoscopy...(rather not have another damn procedure if you know what I mean...)


Thank you "C"  for the prayers!

Lisa

[calamfred]

Good deal that the pain eased off fairly quickly! Will send prayers your way for all the upcoming "stuff" you have. My mom says if she didn't get to the Drs and pharmacy she would never go anywhere! I guess sometimes we just have to laugh...
Regards,
C

[LisaJF]

Good news!

The pain only lasted about 1 to 2 hours long! Phew!  I laid on my side and shoved a heating pad between my butt cheeks and presto....(probably by the time zanaflex and Motrin kicked in as well as my position relieving my pelvic floor from the intrabdominal pressure.

I'll tell you...that has to be the most embarassing place to have pain....LOL!

Now onto newer issues....

Just got back from my Pulmonologist and he handed me my CTA of chest report:

Moderate, bilateral paraseptal emphysema.  Enlarged heart (Ive had many CT scans and CTAs since 2006 and never seen that one and of course low attenuation liver lesions that I have a new one in my right lobe.  Woo hoo!

Next stop is Neuro--opth, new Neurologist, my cystoscopy and urodynamics.  I'm so excited.....

Oh wait, lets not forget my every 6 months mammo and ultrasound which always turns into more mammo pictures after the intial one and then get told the same crap, "We need to biopsy because of your history of atypia, ADH, radial scarring...etc."  

My life is so exciting.

Meanwhile...my arrythmias are on a daily basis and I was told to go see another electrophysiologist (which I already went to one in 2001 for supraventricular tachycardia) and had an ablation x2 the same day within the same hour....I think I'm going to skip that guy....

Well anyways

THANK YOU ALL for your INPUT and taking the time to post and write to me!

Lisa

xxoo

[PeninaD]

3 years ago my DD at the age of 15 suddenly got that. It was like a sharp ice pick up her rectum, and would go on and on. Pediatrician could find nothing on digital exam....same day referral to Gastroenterologist who told her it was Proctalgia Fugax, but her nerves were making it worse, because Proctagia fugax usually only lasts a few seconds. He scoped her anyway (Sigmiudoscopy), found nothing, prescribed fiber and more water.  She continued to struggle with pain and constipation, to the point a year later, they trued uro-gynecological surgery to see if there was a trapped nerve because of a septate hymen. That did not help the pain (but at least she could finally use tampons, without them becoming stuck inside.)
In the meantime, she struggled with depression, fatigue, and what appeared to be school refusal.
Move up to this year, finally with the very aggressive attack of multiple severe neurological symptoms and thus many MRIs, spinal taps, neuro exams, the diagnosis of MS finally made sense of so much of the struggles she's had the last three years.

[calamfred]

Forgot to add, since that type of pain can be caused by pelvic floor spasms, laying on your side and getting pressure off that area may help. Also maybe heat or ice may help relax you some.
I saw a PT who specializes in pelvic floor dysfunction, including rectal/anal pain. The nerves and muscles for bowel, bladder, sexual organs are all intertwined. So muscle spasms anywhere in pelvic floor can radiate among the whole pelvic area. Constpation would make it worse. The constant feeling of needing to push will keep things in spasm.
C

[calamfred]

I don't know if this will help or not, but have you checked into Proctalgia Fugax? I know it can be very painful, not sure if we can put links to other sites, but just thought I would mention it to you.
As far as what you would say at the ER, I had to laugh at what you wrote...not at you, but with you. Some of the things my hubby and I have gone thru are things I never in a million years would've thought of...and yet they happened. When we're in pain, by gosh, will do a lot of things I never thought of to get it to ease up...legal things, of course. ;-). Just know, the ER peeps have seen and heard it all...main thing is for you to feel better..hard enough managing a chronic condition when one isn't in pain!
On the Neurontin, I am not sure how it is when it's old..some meds just lose strength..but others can be toxic. If you did think of taking it, I would check with your Dr/Pharmacist first.
Hope you feel better soon
C

[HVAC]

I do not know what to tell you if Zanaflex not working. Taking the Neurotin for occasional pain is not a good idea since you have to titrate up and down on it. I am sorry you are having this perhaps they could give you something else for pain at the ER.

Alex