Hey everyone. I’ve never done this before but I’m starting to reach out to various groups to gain some insight, support and maybe a little comradery when it comes to symptoms, doctors and MS. My apologies for the lengthy post but I want to be thorough in case there are others out there going through or have gone through a similar situation. Hopefully this format works.
Patient
36 yo / Male / Caucasian / 183lbs / 5’11’’
History
High blood pressure
LVH at age 30– though that has subsided with BP control
Upper/lower back spasms/locking up and SI joint issues
Localized random electric like sensations on head
Freq. random muscle spasms twitching (left eye/arms) sometimes for days on end
Blurred/cloudy vision, esp. when wearing contact lenses, in left eye
Fatigue/stress (probably due to not knowing what is going on)
Increase in headaches
Radiating left thumb pain
3 distinct episodes
-Numbness/tingling/prickly feeling in both hands lasting 2 months in 2013, worse in evening and at night
-Numbness/tingling/prickly feeling in both hands came back almost one year later and 3 weeks after the initial onset both feet began having the same sensation, off and one for a month – finally went to the doctor. The main hand/feet sensation subsided but was always there after that.
-Two months after that the feet began having the same numbness/tingling sensation and this time the fuzz was all the way up to the knees and thighs. Small electric like (pop rocks type) sensations in legs and definite pins and needles feeling (different than the tingling/fuzz feeling)
Tests/Results
Basic CBC, diabetes, B-12, D-3, thyroid, sedimentation rate, folate, methy. acid, trilodthyronine bloodwork all normal
Nerve conduction study, upper and lower [normal]
OCT [normal]
MRI Spine w/wo contrast [There is disc osteophyte complex making an impression on the anterior aspect of the thecal sac and cervical spinal cord at C6-7.]
MRI Brain w/wo contrast [Gray/White Matter: Several small foci of increased T2 and FLAIR signal scattered throughout the white matter of both vertebral hemispheres. These are all 4 mm or less.]
Echocardiogram w bubble test [small right-left shunt is seen with agitated saline contrast injection suggestive of a patent foramen ovale]
Lumbar Puncture
-Pressure/appearance, CSF: normal/clear
-Lymphocytes, CSF: 100
-Protein, CSF: 38
-Cell Count, CSF: 11
-RBC, CSF: 1
-WBC, CSF: 1
-Herpes Simplex Virus, PCR: Not detected
-IGG: 1340
-IGG, CSF: 3.1
-Albumin: 4450
-Alb, CSF: 24
-Alb Index: 5.4
-IGG, Index: 0.43
-IGG/Alb, CSF: 0
-CSF O-bands #: Negative
-Myelin Basic Pro: 3.04
-So far that is all that has come back
Current Medications
Amlodipine (BP)
Lisinopril (BP)
Protonix (acid reflux)
Next Steps
Waiting to see my Neuro to discuss LP test results and Cardio has scheduled a Transcranial Doppler test to look into the PFO.
So what you think? Comments, questions? What you would be asking your doctor? My neuro (before the LP) was putting the possibility of MS at about 50-60%. I feel like I’m in good hands and getting the tests done that probably should be done but I'm still in the dark. Any one experience anything similar to this before?