Fybro or ms

[deeaberdeen]

Hello

Me again

I had my first appointment today with neurologist and after 10 mins of questions and reflex check and v short balance check he doubts I have MS and thinks I have fybromyalgia
I have an MRI booked , all bloods taken have come back clear
So even tho I tell him my eyes are so painful when I try move them (that I turn my head instead ) my eyesight is blurred , even with my new glasses on I can't focus well .
Can't walk far without legs "buzzing " and feel like my legs have forgotten what they should do
my ears constant ringing , and I have numb patches on my feet and neck
any one Else been told this ?

[deeaberdeen]

Your so right, thank you so much for all your help, I know my body and how
much it's changed , I also mentioned my frequent sighing I do
"The heavy sigh) and he said it meant nothing !
I'll take your advise Kyle

[kwarendorf]

I would contact the local MS Society and ask for suggestions about MS specialists. I would also talk to my GP about finding an opthamologist.

Kyle

PS This is your health your dealing witgh. It's OK to be a squeaky wheel :-)

[deeaberdeen]

Thanks Kyle, can I ask to see someone else ?
and do I ask my gp about the ophthalmologist ? I should get the MRI in the next month .

[kwarendorf]

DA- -

If your neurologist is using terms like "white patches", and is willing to chalk them up to age, is likely not an MS specialist. Further, if any neurologist is willing to chalk anything up to age I'd replace him,her :-)

Kyle

[deeaberdeen]

The Neuro also said if the MRI comes back with nothing then they wont bother with a lumbar puncture. he said even if i do have white patches with the MRI he would expect this with age?

[deeaberdeen]

Hi Kyle

Thanks for replying,  no i have not had my optic nerve examined by an opthamologist, today when the Neuro was examining my eyes it was so painful for me to focus and scrunch my eyes shut,
how do i see an opthamologist? i have no idea if the Neuro i saw was an MS specialist , i wanted to ask but  wondered if it sounded cheeky.!

[kwarendorf]

Hi DA-

Not knowing is awful. Your MRI should provide more info. What you describe could be MS related, but it could be related to any of a number of other things.

Have you had your eye,optic nerve examined by an opthamologist, rather than an optometrist? Aslo, was the neurologist you saw an MS specialist?

Kyle