Get this party started - what's up this week?

Weekly tradition around here is to share what's going on for the coming week, if you feel up to it.  It can be something simple like getting a haircut to those life-altering neuro appointments.  

So please, tell us what is up this week with you?
Lulu

[HVAC]

Monday I have to do my sales tax quarterly for my business for the $100 I earned and Reiki.

Tuesday I have to fight to keep the States biggest insurance company from taking over the high risk pool which will be the insurance exchange in 2014.

I hope to ride Clara. this week but we are supposed to get ice and snow. This many snow events are unheard of here and I am over it. Sorry you who live in the snow belt.

Polly and I are working on our book we have 62 pages written. We just have to refine it and I have to illustrate it.

I hope everyone has an okay week.

Keep laughing look up Herding Cats on Youtube.

Alex

[figuerpa]

Monday, Tuesday, and Thursday I have school, after school on Thursday I go to the neuro to get my Tspine results.

Making plans to move so will be talking to my new landlord Friday to see how the house is coming along cause he is remodeling right now.

Wednesday I am going to contact Social Security to see what is going on with my dissability case. There has been a decision since December before Christmas and still haven't recieved a decision letter in the mail so not sure what is going on with that.

The weekend I will be playing by ear, the way the weather has been I will probably be staying in cause it is just too darn cold outside lol

Paula

[COBOB]

Monday:  Fly to Atlanta (again.) Call Accredo to see if the Shared Solutions papaerwork is done and order my next 90 days of Copaxone.
Tues - Fri:  Work from Atlanta
Friday night:  Fly home from Atlanta
Sat: Bowling and Game night
Sunday:  Pack to go back to Atlanta (again)

Bob

[RedFlame]

I am happy to report that I have no doctor's appointments this week!!  Thank God!

So, I will be able to do allot of writing, researching and editing.  I really enjoy that.

I am also going to begin the process of itemizing all the contents in my glass studio and look for possible answers to sell the business as a whole instead of breaking it up.

And do some more investigating a way to move into town

Red

[michelleric]

Tomorrow getting my coumadin clinic check, doc appt then off to Orthodontist with a kids. Parents meeting in the evening for boy scouts. (going to try to get to the swim class as well, if my body/mind allows)

Tuesday, working

Wed, EKG to put another check to see if I will be starting Gilenya.  Also Neuro-ophthal. for eye exam before beginning Gilenya. (By the way, I already received the "Greeting, welcome aboard letter from Novartis..makers of Gilenya).  Wasnt too happy with that one...not really sure why.  Guess MS neuro signed me up somewhere along the line, but TONS need to be checked out if I am offically "allowed" to start Glineya (neuros 1st choice), or Tysabri.  Big day.

Thurs. and Friday, just swim classes.  AAhhh, gonna be nice to have some down time.  I might even stay in my jammies...I doubt this will actually happen, but ya never know.

Back to work Sat.  Hope all have a good week too!

[tremors10]

Getting an EEG test done tomorrow. The instructions are for me to go to bed at midnight and get up at 5am. I don't think I sleep more than 5 hours at a time anymore anyway.

I am still venturing down the diagnosis road. Regularly have tremors (especially on right side of body), right sided facial numbness, blurred vision in right eye and also feel very "disassociated" at times. I walk along the street and feel like I'm not really there...(?)

Had a brain MRI that came out clean. Haven't had spinal....hoping EEG might provide some answers.

Hope everyone has a great week.

[sllowe]

Party! Can we have a week-long slumber party? One where we don't have any obligations but to change jammies?

Same ol' same ol' for me.

Good luck to all w/your appts. and testing - be sure to fill us in. Bob - you be safe in your treck. Accredo - that's my pharma too.

-shell

[rendean]

Well, as of this afternoon my week's plans changed from nothing to :

Tuesday: follow-up with neuro-opth regarding optic neuritis and lateral gaze issues and meeting with another doc re SSDI forms

Wednesday: Ketamine

Thursday or Friday : get Holter monitor and possible Cardio appt based on baseline EKG

Ren

[Lulu54]

This is a week of fun and work for me....

The wellness classes restarted today and body sculpting and the tai chi classes are both on Monday and Wednesday.  I also got lucky and was drawn for a personal trainer, again.  I need the motivation to be serious in the gym and these student trainers are great.

Of course there are three home  basketball games this week and our monthly dinner group night out is Friday.  

DH "won" a drawing last year at the women's basketball team (we've been fans of theirs for 15 years!) and we're redeeming it Saturday - we get to go to their shoot around in the morning and join them for their pregame meal.  Then he will go to the game while I  go back to campus for the MS Swim time.  

Anyone else besides me tired of just thinking about it?  LOL

This is my week off from doctors before it starts up again next week.

I wish I could share a bunch of this fun with all of you. -Lu

[jumpinjiminy]

Finished collecting all records for neuroimmuno appointment tomorrow. Follow up with neuro-opth the next day. Then hopefully I will get to take my daughter shopping for her birthday this weekend.

It's been a busy one. It's wearing on me already. Just a couple more days of running, then Friday is sleep day.

[HVAC]

I am proud of myself I kicked advocate butt. I went up against a State Legislative Committee and was able to make my point in a clear and logical manner. I was able to do what all the paid lobbyist for every disability rights group could not because I was not paid and I am a person with a disability. I was so scared I would get intimidated by all these high power people but I stood up and the words just came.

Tomorrow I rest.

Alex

[rendean]

Bravo Alex!!! We need more people like you representing disability groups. It took guts to do what you did. I'm proud of you!!!

Do you give lessons in kicking advocate butt?

Ren

[Audrey_M]

Snow, snow and more snow!

Cold, cold and more cold.

And there's no break in sight; this weather pattern is supposed to persist for at least another two weeks. We are running out of room to pile the cleared snow!

Wish I still lived in the tropics.

Audrey

[maestro1959]

A total break from any medical stuff.  No doctor appointments, no counseling appointments, no physical therapy appointments.  WAHOO!

I am assistant coaching a robotics team, and our first tournament is in Madison, Wisconsin this weekend.  The students are ready so let us hope Chip-apotamus (the robot) is just as ready to kick some electronic butt.

I get to test drive my brand new wheelchair while in Wisconsin, compliments of Delta Airlines.  Their baggage handler destroyed mine when I flew to family over Christmas.  What an exercise in patience this has been.  Cherry red with black trim; I feel like I am getting a new sports car.  HA!

Beth

[mj111169]

I am still recuperating from my lp this past Friday, believe it or not. I had the spinal headache, now I have a sinus infection.  I can't seem to catch a break.  Made a trip to the GP today, and she prescribed augmentin.  I am also taking allegra d.  My 3 year old daughter is having a tough time understanding why Mommy is in bed for the past 5 days, but she has been a trooper.

And we are having a storm right now. More snow forecast for tonight, 8 to 12 inches where I live.  Yuck!  I am ready to move to the tropics tooooooooo!!!

Have a great week all. Happy hump day!

Maureen