Hi - I know there aren't a lot of Gilenya users here but I wanted to see if anyone has struggled with getting their absolutely lymphocyte count to stay above .200.
My counts dropped to .162. I stopped Gilenya for 13 days and got tested again. I was back up to .310 in that time. I started the Gilenya again and 2 weeks later I'm at .210. In all likelihood, I'll be back under .2 in a matter of days. I get tested again in 13 days.
I asked my NP what they would do - and she said they would probably make me come off of the Gilenya again....and we'd go through the process all over again. I asked if they would go to every other day dosing but she said that that hasn't been tested. :-/
I wanted to see if anyone else has gone through this and if so, when your levels started staying about .200.
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