Going for MRCP in 15 minutes - Wish me luck!

[Sarahsmom46]

I am still in the hospital unfortunately.  I somehow developed pancreatitis and was not discharged as planned last Friday.  I wrote up a journal entry if anyone is interested in reading more about it.  Thanks Beach for your supportive comment.

Anyway, the GI team wants to find out why I got pancreatitis and I've already had an ultrasoud and now I am going for an MRCP - a type of MRI in a few minutes.  I am soooo hopeful that they will find something in this test like a gallstone hiding out somewhere so we can fix it and hopefully know what happened.  

I had my gallbladder taken out almost 2 years ago and thought it was impossible to have problems with stones, but now I learn that even with no gallbladder stones can still develop.

I am in so much pain right now that I have to be on very strong pain medicine.  I haven't had anything to eat or drink other than sips of water with my oral medicine and I AM HUNGRY!!!

I am thankful that this was discovered before I left the hospital, but still depressed with the fact that I am still in the hospital, which will be 3 weeks tomorrow.  

Hope you all are doing well this fine Fall Sunday afternoon.  Please let me know how you guys are doing. I am living vicariously through you guys right now.  Well, gotta go now. Wish me luck.

Julie (Sarahsmom)

[rendean]

So glad no surgery!  Let me know when you're awake and know the game plan. I'll be hear as this is a day in bed for me except the DH id here distrubing my solitude.

Got your hand girlfriend, And Mary's message is very funny, Perhaps  you could a waltz all the way home.

Hugs!

Ren

[twopack]

OK, well that's a little bit mixed up in the good/bad news department but NO surgery and on the rehab unit is wonderful.  I like your plan for the end of the week.

Now....
it sounds like you are able to walk backwards?????
That sounds like an extraordinary rehab!
They might have you doing the tango by discharge.
OK, a waltz.
Just do it ALL the way home!!!

Mary

[Sarahsmom46]

I got the results of the MRCP.  The common bile duct is grossly enlarged so they think that a stone did pass but where it went afterwards is anyone's guess.  The GI team will meet today and decide what to do next, but the GI doc, my attending while here in the hospital, says they might want to do an ERCP to see if the stone is hiding out somewhere that the MRCP could not capture.  He said they can even remove it if they come across it.  No surgery!!!  I am happy to hear that.

Otherwise I am doing ok.  I am still getting this horrendous back pain that is shoooting down both legs.  I am getting through it with the strong pain meds, which i wish I could get off as they make me so sleepy.  I am back in PT and OT in the rehab unit and see that I have taken 2 steps back in what I was able to do last week.  Wel, 2 steps isn't so bad as going back to square 1.  I am hopeful at this point.  I have a good team of doctors and great therapy and hopefully will get to go home by the end of the week.  

Thanks you guys for all the support. I means a lot to me.

Julie

[Sarahsmom46]

Thanks for the support you guys.  Wel, sorry to say the MRCP didn't get done last night.  They told the unit nurse they would come get me after  noon, then it changed to 4 pm, then 5 pm.  When 5:30 came around, my nurse tried calling and when no one answered, she went down to radiology to find that the tech already left for the day.  She was pretty upset about it when she came back.  I guess the weekends are just unpredictable and short of staff so I hope to have it sometime this morning.  

The GI doc came in and said he hopes we find something in this test.  I think we will all be happy to find that the culprit is an errant stone.  

One more thing...I have been warned that if I can't get off the hourly doses of morphine (a very low dose) then I will have to be transferred from rehab to the medicine floor.  Oh the idea of that makes me even more ill.  I am in the heart of DC and trust me, you don't know is in the next bed to you - yep no private rooms here except on the neurology floor and they won't put me there.  So, another reason to find the problem and then get the pain under control without IVs.  

Thanks and again, I need all the positive thoughts and prayers that this all turns out for the best. :)

Julie

[Guitar_grrrl]

((((Julie))))  Speedy recovery, dear!  You need a breather from all of this!

[Lulu54]

Julie, you are just not catching a break these days.  Enough, already!  I hope they find something through this test that will allow the docs to make you better.  Three weeks is way too long and you must be going crazy.
hugs, L

[Quixotic1]

How awful!  I can only commiserate with you on being incredibly miserable.  I hope everything goes well.  Pancreatitis on top of everything else is just MEAN!

I'm thinking of you, Julie.  You really need a break!

Quix

[Sarahsmom46]

Thanks Bev.  I originally came into the hospital for an MS exaccerbation that didn't go quite so well.  I hope this is the end of it.

[cherryrn72]

Good Luck and prayers . I know how difficult life can sometimes be and certainly unfair. . I have  MS and am recovering from an exacerbation.


Bev