Gollie's Crazy Update:
Ok here the scoop so far. I got all the way to the MS dx tuesday 1/19 , Nero says let me know what injection you want then call and leave message at office and I will call it in for you. Ok, So I call them and let them know on Thursday the 21st. Now they call me on friday the 22nd and tell me that they called it in to the pharmacy. (meantime im cooking dinner) then ten minutes later the pharmacy
calls and says its ready. So i go pick it up and stick it in the fridge. Meantime its late friday and the weekend is rollin in so i figure i will be hearing from the copaxone company come monday . Well i didnt hear a word, so i called the copaxone Co. Monday evening 25th to see about getting the auto injector and visiting nurse for my first injection instructions. They said oh my nero has to write a script for that and that can be done threw fax. they took my doctors name and what office i see him at. and said we will take care of it no problem. (my nero works out of 2 different offices). Mean time my neros office calls and say to come on in and pick up
your copaxone welcome kit, tuesaday, i will be there at 12:30 pm. so im thinking ok cool maybe the copaxone co did their fax thing and i can get a copy of the doc report which i signed a release form for at my last appt.(that never got sent to me)and get started on my injections soon. so i get there at 12;30 and secretay IS NOT THERE, but other receptionst(for the other doc on other side of office is there and gives me the kit. I get home and its the usual info. so now im sitting here with my copaxone in fridge and a welcome kit. I called the copaxone co. again on wednesday and they said they sent the request to my doc office the one i go to. So wednesday later in the day the secretary calls me again and says did you get your welcome kit, and I say yes and by the way I said to her did you get the fax and request from the copaxone co?
she says well no i didn t get anything like that, dont know what your talking about; but yes i think a nurse is supposed to come for your first injection. and I explain what they told me. she says to me, well they take care of that kind of stuff in the other office even tho you come to this one. you should call them about it. (meantime i know copaxone co did contact her they told me so beforei talked to her.) so i proceed to ask her why she hadnt mailed me the nero report yet and she said oh we sent those to your pcp he will have the notes. from the nero, I said yea but you had me sign a release form so you could send me a copy. Im like whatever at that point. I had told her i wanted it because before i left my appointment with the neor last time he wanted me to have a follow up with my pc about all this. and i also have a follow up with him on 3/11
And i had a feeling that i should get a report, and bring it with me to my pcp, well I got to my Pcp visit today friday the 29th and guess what , he did not have anything from the nero, OOOOHHHHH I WAS SO AGITATED but not suprised. so now i had to sit threw an appt with my pcp explaining everything without any info from nero office, and still havnt gotten copaxone thing taken care of.
I knew the office workers were bad already because after i had my evp studys done i had all but the somoasensory results sent to me, before my next nero appt. i called the nero office three times to see if they had it and they kept saying it didnt come in yet and never bothered to follow up on it. so I finally got ahold the place i had it at to fax me the results. when i got to my last nero appt, he said humm im missing two of your test results,( I thought to myself NO ...IT ) well i pulled out the copies i made him, cause i just had a feeling. Shoulda seen the look on his face, i didnt bother to tell him about the office ladies i just wanted to discuss my results and dx.
So i tell my pcp all this and he was not happy mean time i had some more blood work done, and my pcp had copies of them in my file he says your blood work looks good just your sugar is alittle high but nothing to worrie about. so i get the copie of it home and start to compare it to my last set and am wondering what the heck, so the sugar is a bit high but some other things were wrong so im trying to concentrate really hard and happen to look at the top on page and see that it is some other patiens blood work...
Please Someone Pinch me and wake me up from this nightmare Gollie