I apologize for clogging up the forum with so many questions- I'm just curious of others' inputs...I will chillax a bit after this, promise.
Here are a few other weird symptoms I deal with, which sound more along the lines of dysautonomia, but may be MS:
I get gooseflesh/goosebumps when for no apparent reason at times- even when I am hot.
If I am hot and sit in from of a fan or wind I get involuntary skin twitches.
At times I have "episodes" (every few months) where my scalp will tingle, usually exact left side, and my spine feels tight until I have a cold chill down my spine which causes it to relax- this will go through several cycles before the "episode" passes.
My main neuro issued that flagged concern with my neuro doc (among my long list) were right foot curling and left side facial/cervical nerve issues.
I do have trigeminal neurlagia, started on L, now bilat. Also my recent BAER test showed auditory brainstem issues- compression by artery has been ruled out by MRI. I do have signs of hemifacial spasm, thought the EMG showed a negative report- hence my doc thinks it is another brainstem issue. He is considering that all of my neuro issues are CNS issues,
It's been a few years since I was an anatomy major in college so I need to look over the CNS to motor pathways, but meanwhile curious if anyone else has been told they have issues with the brain stem, and/or do you have any of these odd symptoms?
Trigeminal neuralgia is nearly always unilateral. In rare cases of bilateral trigeminal neuralgia, individual attacks are usually unilateral, with distinct episodes involving each side of the face at separate times. A change in the location, severity, or quality of the pain should be an alert to the possibility of an alternative diagnosis. Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g., caries, cracked tooth, pulpitis) - Localized; related to biting or hot or cold foods; visible abnormalities on oral examination
I can understand what your going through with the Trigeminal Neuralgia, I myself was just in the ER about a month ago with a severe attack on my left side eye/cheek area. This has turned my TN into Bilateral Trigeminal Neuralgia due to a right sided attack in my cheek and jaw area about 2 years ago. I was ordered to see a Neurologist also and MRI's are being ordered. The TN on my left side has been coming and going ever since but minor and on occasion, Thank god!
I have been told by a few like others said above that Bilateral TN is usually associated with MS, this should be a huge alert.
I think mine if it is MS has progressed over the years from 5 years ago. I also have had a type of Spasticity in my foot a couple weeks ago that caused it to curl and completely cramp up for 24 hours while walking, I couldn't walk without assistance and my foot turned inward when walking, so bizarre to me and came on very sudden.
Pertaining to your tingling in your head, I have had tingling and numbness happen on my head/scalp, this feels strange. I think I have seen others posts that have experienced the paresthesia on their scalps also that may chime in.
Ask away anytime, there is always someone willing to listen and comment :)
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