Has anyone had Orthostratic Hypotension with their MS?
I was wandering if anyone has had orthostratic hypotension with their MS? I woke up last tuesday feeling like I was going to faint and it hasn't went away. I did a tilt table and I fainted. The doctors are saying that it is orthstratic hypotension. I have read that some people have had it with their MS. I am just wandering because when I feel like I'm going to faint, I start feeling a tingling, numb feeling in my left leg then in my left arm, sometimes in my spine with a cold chill then up my neck to my head and then I will start sweating and feel like I am going to pass out. I am new with this MS stuff I just haven't gotten better since my episode in September. I only have one lesion on my brain. They did put me on medication for low blood pressure but it doesn't seem to be helping. Yesterday and today I feel so numb. My head even feels numb. It is so hard to explain how I feel. Does anyone else experience this with their attacks?
I did some research on this topic and found that orthostatic hypotension (that is low blood pressure when becoming upsight or standing up) is quite common in MS. Although my MS neuro stated that the autonomic nervous systeim is rarely involved in MS, the medical literature says otherwise. It is common, and is certainly commonly mentioned here. Being mentioned here is not scientific proof of anything, but it can be taken as suggestive.
A large number of the nerve fibers in the autonomic nervous system are UNmyelinated. I think it is because of this that neurologists seem to be reluctant to admit that MS can involve autonomic functions like orthostatic hypotension, sweating abnormalities, and cardiac arrhythmias. At this point I don't know the answers to this question.
I have a quick and dirty description of the Autonomic Nervous System prepared which I will post as it's own thread.
I think this was my first BIG symptom back in 2008. I ignored it, thinking it was stress and the fact that I had just bolted out of bed to help my ailing dog. But now, after being dx'd in August of 2008 and on Copaxone ever since, things have been 'ok' until this weekend when I thought I was really going to faint. Had a pretty normal day but at some point after getting up from sitting at my home office workspace, I felt the floor coming up to get me - I didn't faint, but can't imagine getting closer to doing it. I have been rather dizzy ever since. Weird thing is, before this happend Friday, I told one of my coworkers that I actually felt like I have MS, which normally is not the case. I had an especially tough time finding words, and lots of typos, and also several episodes of 'zoning out' where I couldn't quite get myself to move. So I think the almost-fainting spell was not a coincidence.
I'm pretty sure I have POTS. I've had my eyes "blackout" upon standing in a cyclincal fashion (would last for a few days/weeks and go away for a while) since I was a teenager. I was told that was normal. Now my heartrate will go from 70 bpm to 110-120 bpm just from standing up. I also have tachycardia that can't be explained. But I've wondered for a long time if it's neurological.
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