Have Chiari--Looking into MS as well...CSF prelim reults
I do have a Chiari Malformation and symptoms from it. On a routine MRI in November, a brain mass was noted and I had surgery on the temporal lobe to remove it in Dec 2010 (3 months post-op today!!!). My CM symptoms have been increasing with great frequency and flaring. My NS feels I am a candidate for decompression surgery, but wants to rule out MS as a contributing factor since I now have more and more brain lesions showing up on MRI's (and the symptoms b/t CM and MS can be so similar). So, here's the preliminary results from the LP yesterday (still waiting on oligiclonal bands). Thoughts???
This is a very technical question which many of us will be unanswer to answer. When was your last MRI scan? I am sorry that you have had to have surgery recenlty and Christmas must have been a hard time for you recovering from major surgery. I confess that I do not know anything about CM and I hope that you have a good neurologist who is able to look at all your symptoms, clinical history and MRI scans. You may want to look at our health pages on the top right hand side to see what is involved in the diagnosis of MS which involves the elimination of other conditions.
I hope that someone else is able to throw some insight into your results for you and look after yourself.
Thanks for responding...much appreciated!!! I currently have 3 different neurosurgeons--all of whom are great at their areas of expertise--and have an appt with a NL who comes highly recommended--and also specializes in MS. The symptoms are so similar between Chiari and MS, but the lesions and 'flares' I have (which I've always attributed it to Chiari) do seem to correspond more toward MS. We shall see what it all shows. I know the symptoms I have and how they effect me...I don't mind which name we give it, but I'd love to get appropriate treatment. And, if I can go without another brain surgery, that would be nice!!!
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