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Avatar universal

Have I got ms?

Hi,
I am a 24 year old who has no other medical conditions until now.
It all began 8 weeks ago, I started to feel really weak, I am a healthy male who does a practical job  working with metal, I also gym 3 times a week. I started to get bad headaches, sharp pains behind both eyes and feeling dizzy. I went to the doctors and he prescribed me some tablets for dizziness. These didn't help, I then started to develop other symptoms, ringing in the ear every day to this date, pins needles in hands and feet and muscle twitching all over my body. If I sneeze or close my eyes up tightly and re open my eye twitches everytime uncontrollably.
I then started getting double vision, or like a halo around alnything I look at in both eyes, this is permanantly there now, if I look at a White piece of paper or the sky, I see floaters and in the background like little floaters kind of look like load of little flys swarming around in a pack?
I have been to see an opticianand he tried various different kind of prisms nothing helped, he said I needed to see a neurologist.
I have since seen a neurologist and he is puzzled? He said it might be anxiety, I am not happy with this as I am a very placid laid back individual, I don't let stress get to me, and I know this isn't stress. Does stress really cause eye sight to be afftected like this 24/7??? I am now having an MRI scan next week? Will they be able to tell if it's a disease like ms this way? When I do things like running or weights like I used to I feel very sick and can't carry on with normal life?
I would be interested if anybody else has these symptoms and if they found the cause
thankyou dean
18 Responses
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1896537 tn?1381900009
Hi, I've only just read your post and I was wondering whether a severe migraine could perhaps be the cause? There are lots of different types apparently and they can take time to recover from. When I initially presented with Optic Neuritis (I was totally blind in one eye) my gp said it was an optical migraine. In my case it obviously wasn't but it could explain your weakness and eye pain, double vision. Just a thought really! It's so frustrating when you want some proper answers :-(
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Avatar universal
Just wondering if anyone ever had any resolution.  I'm having the same symptoms after taking a quinolone antibiotic, cipro.  
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Avatar universal
I know how frustrating it can be dealing with doctors that think you must be perfectly healthy because you are young and don't show any obvious symptoms.

At this point in time I wouldn't rule anything out but it would make sense if all the symptoms that you have described all have one underlying cause. My suggestion is, think long and hard what could have happened in the last 6-12months (from the start of the appearance of the symptoms) that may have caused your chronic symptoms. Chronic conditions usually have a cause but their causes take a lot of time to fully develop.

In particular, I suggest that you choose 1 or 2 of the most _unique_ symptoms and tell the doctors to focus only on those. The important part is that the symptoms be _unique_ as possible. From the list you supplied, double vision is extremely unique and so are muscle twitches.

The reason I am reading this is because I too started to feel dizzy, have muscle twitches, floaters in the eye, and tired neck. The feeling of dizziness is apparently totally unhelpful to doctors in order to diagnose you. After careful examination of what I changed in the last 6 months (prior to the start of the condition) the only real change I made was in my diet where a eliminated milk consumption. In the end I got a test to see how my PTH (parathyriod hormone level) was and it turned out to be way to high, implying my body was having problems keeping blood calcium levels stable, explaining the twitching. Furthermore, the only reasonable cause of the elevated PTH was vitamin D deficiency so after starting to take the Vitamins I feel a lot better.
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Avatar universal
Hi deano  iwas just wondering if youre feeling any better yet?

ive recently started having some symtoms..
i also have the blood shot eyes, and have had floaters and random tingling and numbness..

im really worried incase these symptoms are just going to get worse! i was just wondering if youre any better now or any improvments/ diagnoses were made?
thanks, hope youre well.
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Avatar universal
Hi Deano
I have just come back from the hopital as the little lights  u have described sound  the same as the lights I  get   when i look to the side  or  up and down,  I get  what  can  only be described as little floating dots that seem to apear to be coming from the back of my head, and it makes me feel really dizzy when it happens, I get bad head aches concentrating in  my right eye, shooting pains  if  my eye gets cold  or near any bright lights, I am rather scared as I have been told it could be Neurological and should ask for a brain scan,  the optomotrist at the hospital called them flaoters but when I looked them  up  the ones I get look nothing like the ones they are talking abt, I see the little rainbow coloured dots when I look at bright lights and the sky  or  when i strain my eyes.  I also get  numbness in  the tip of my tongue and my finger tips, also have lots of other pains down the side of my body but have always been put down to an undiagnosed  back problem.  Any way the  long and short of it is I have also been worried abt MS  or something called NP that I have read about on this site, do you have any  advise on how to appraoch my GP as my optomotrist and physio have both said it is really hard to get them to agree to a brain scan. Regards Letty
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Avatar universal
Hi everyone, just to let you know I had the results back from the scan and it was all clear, which is good but on the other hand I was hoping they might find something so they can fix me. I still getting all the symptoms, been starting to do a bit of running to keep fit as been off work for 12 weeks now! During running my vision gets worse, I see load of little tadpoles if you like and big round floaters, also my halo vision gets worse or what the neurologist described as unexplained partial seperation of images? After running I feel dizzy and lightheaded and my legs don't feel like they are there almost as if I'm floating. My eye movement feels slow and my right eye becomes extremely bloodshot and very lazy? Muscle twitching uncontrollable and worse, and ringing and hearing loss in right ear Is very annoying. Also I had a new symptom which I never experienced before, pins and needles but in my right knee and lips tingling but not at the same time?
I also get a strange sensation where if I touch my skin lightly I can't feel it that well, if I pull hair on my leg I can't feel certain areas? Same near my spine when I touch back I can't really feel it but when push hard I can? Is that me being paranoid or does anyone else get this feeling?
I am seeing a chiropractor next week because I  have been told that could be a trapped nerve in  my back or neck?  
Getting very fed up and feel as if the doctors   think I am making this up, I know I'm not the only  one who is getting these symptoms and there   must be a reason for it?I would be grateful if anyone else had these symptoms and found the result
I would also like to say thankyou all for commenting on my post there some great people on here that want to help and I really appreciate your feedback, cheers
Helpful - 0
147426 tn?1317265632
Hi, and another welcome to the forum.

Your course sounds more like an infection to me.  Probably viral, but Lyme Disease should be checked out, too.  You also need basic blood work like CBC, Thyroid, B12 level, consider hepatitis panels, CMV, (Cytomegaolvirus) and EBV (mono virus).  Problems with all of these can cause the fatigue, the tingling, and the twitches.

It does NOT sound like MS.  Diffuse (all over) fasciculations (little muscle twitches) are not a part of MS, but they are very common with several kinds infections.  The same thing goes for sudden tingling in all the extremities - not typical of MS.

The MRI is a good idea given the variety of vision problems, though.  Those I do not have an answer for.

Keep us posted.

Quix
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Avatar universal
Did you take a quinolon antibiotic prior to these symptoms such as ciprofloxacin, levaquin, avolox or others?
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Avatar universal
Have you got Arthritis in the neck, that would cause neck pain and it would also cause muscle spasms. If you did have it, it can cause probs in the legs believe it or not, and it can also  cause numbness in the hands and pins and needles in the hands depending on which nerves are being pinched in your neck.
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Avatar universal
i have had pins & needles & numbness in my hands, arms for 4 years and had decompression for CTS - it didn't change a thing and now my symptoms are getting worse.  i get muscle spasms in my neck, neck pains, and have now started to get pains in my legs, worse on my right. also my right leg sometimes gets very weak.  i have been seeing an orthopaedic surgeon for all of this time and they have finally given up and sent me to a pain specialist.  he doesn't seem to think that i have a cervical problem, he thinks it is a neuro prob.  i am worried that I may have MS but am not sure of the symptoms.  some days are better than others, but night time is worse, i also sometimes get soo tired that i cannot keep my eyes open, there is no reason .ie. late nights etc, and no specific trigger for my symptoms. does anyone have any advice on how i can find out if i have ms.  its driving me crazy as i always have disturbed nights sleep.  iv stopped going to the gym because i thought this aggrevated my symptoms but its made no difference.  i also horse ride and do not want to stop doing this but really need to know whether this could be ms or something else.  if anyone can help i would be grateful.
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987762 tn?1671273328
COMMUNITY LEADER
Hey just a thought, but is it possible that whilst you were working with metal, a microscopic sliver entered your eyes? dont know if anyone other than an ophthalmologist would be able to see it. If your grinding the frequency can cause hearing problems too, but it wouldn't really make a lot of sense to have multiple issues happening at the same time, and unless your blood count showed you were fighting an infection it doesn't explain the tingles, that does seem to indicate periferal nerve issue which i think could be from circulary system going haywire. It doesnt seem like MS because of the systemic nature of what you've described, but i think there is something going on thats worth finding.

Oh about hyperventilating, i went through a spell in my early drinking years (here thats 18) were i kept having trouble breathing, Dr's said to just carry a paper bag around and breath into it when ever it happened, yes thats it. Well it turned out i was allergic to the preservative in wine and champagne, when i stopped drinking it, it never happened again, problem solved. Good job i believe in cause and affect lol

Cheers........JJ
Helpful - 0
562511 tn?1285904160
Hi Dean.  Your symptoms, particularly the double vision is reason enough to have an MRI.  Did your neurologist do a thorough examination?  Did he mentions any abnormal findings: hyper-reflexes, any numbness, or could he cause more double vision if he had you look up or down?

It is a good idea to find yourself a primary care physician to help guide you.  

For a wealth of information on MRI's, symptoms, and the mimics of MS - look at the Health Pages, upper right hand corner icon.

Good luck to you and keep us posted.  Ask as many questions as you like.


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Avatar universal
Hi Deano!
Hmmm, an ophthamologist (oh boy spelling - something like that) sounds like a good idea.  And maybe a new neurologist?  I HATE when doctors just brush off problems as "anxiety" - I feel like it's such a cop-out.
And I feel a bit like I've done what the doctors do, to some extent, by pushing hyperventilation syndrome so much - yikes.  I'm really sorry about that.  I meant to just throw out an idea, not shove it down your throat!  I, obviously, have no idea what's wrong with you, and I'd hate it if I made you feel like I'm "telling you" what you have.  I absolutely don't want to do that - but I think maybe I did!  
I was thinking, your symptoms sound SO much like migraines.  For me anyway, there's migraine "auras" (which are the visual disturbance you always hear about with migraines), and then there's my "migraine eyesight" - which sounds pretty much exactly like what you described.  The auras are always over pretty quick (by the way, do you ever get sparkly little crescents in your vision?) but the "migraine eyesight" stays weird as long as the migraine is there.  So I wonder if there's something migraine-like going on with you.
I think migraines are caused partially by dilated blood vessels in your head - and, well, you mentioned bloodshot-eyes, and maybe there's some connection?  I have no idea if any of that makes sense!  Just - another thing I was thinking about, reading your post.  
Well, I wish you lots of luck finding out what is wrong!  Good luck to you :)
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Avatar universal
Hi,
thankyou for taking the time to write back, It helps to know that there is others out there that has the same symptoms, that's why I think it strange that the doctors have got such a laid back attitude. I sometimes get the feeling that they put it all down to anxiety and think cos I am young that I am exagerating? The neurologist said I have got so many different symptoms that he doesn't think it is anything sinister? However he said he could not rule It out.
Since seeing the neurologist I keep getting blood shot eyes? I never usually suffer from this either but it is becoming more common?
I haven't seen an orphalmologist as of yet? To be honest I didn't know what one was : )
I will be sure to let you know the outcome of the  MRI, it is in 3 days time, fingers crossed
thanks again for your help  
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Avatar universal
You know, the other thing about hyperventilation is... it's usually not that serious.  This sounds really sudden and really serious (if it's bad enough to keep you from working out, moving around like always, that sounds pretty bad to me).  I want to take back what I said about hyperventilation.  Augggh.  I need to sleep now!  And I really do hope you feel better soon.
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Avatar universal
I'm currently considering chronic hyperventilation syndrome as the root of a lot of my problems - and maybe this might apply to you too?  I don't know, just something to take a look at.  It causes two things: cerebral hypoxia (too little oxygen in your brain) and hypocalcemia (too little calcium in your blood).  You might want to google them.  The cerebral hypoxia can cause dizziness, confusion, visual disturbances like the halos...  The hypocalcemia causes tingling in the extremities and face, muscle twitches, especially eye twitches.  So - on paper anyway, it sounds like an okay fit!  Except for the headaches and the double vision.  You know, migraines can cause all kinds of weird eye symptoms (DEFINITELY the floaters/halos, for instance).  

About chronic hyperventilation, I think that it can be caused by just an extra breath or two every couple of minutes.  So it's not necessarily something you'd notice.  And you don't have to be anxious to have it - it could be from asthma, or just bad wiring that tells your body to breathe a little too much.  But you probably WOULD notice feeling "air hunger" - like you can't quite get enough oxygen sometimes, no matter how deeply you breathe in.

Okay, all that being said... I'm not entirely convinced that this hyperventilation syndrome is completely legit.  I mean, I think it definitely exists in SOME form - but unfortunately, it's really hard to demonstrate with laboratory results.  That makes me nervous.  I worry that some of the research about this topic has been done using a sample population of people who APPEAR to suffer from a "chronic hyperventilation syndrome" but whose condition hasn't been proven in the lab, and that's not super scientific.  I mean, a syndrome is just any group of symptoms that appear together.  So we could make up all kinds of syndromes if we wanted!  

I think it's something worth looking into, in any case.  I just wish there was some better research!  And again, I have no idea what's actually going on with you :(  I'm just throwing something out there that came to mind when I read your post.  I hope that, whatever is wrong, you find some answers and feel better!
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429700 tn?1308007823
Are you also seeing an opthalmologist or neuro-opthalmologist?  These doctors are who you would need to see concerning the types of problems you are having with your vision.  An optician and optometrist are experts at correcting visual problems (without medicine), but not expert at diagnosing and treating disease of the eye.  

Before my diagnosis, my neuro would mention to me things that it could be besides MS.  Then, he methodically ordered tests and sent me to other specialists to rule out these other problems.  Because my medical history is so complicated, this took several months, but one by one, these other diseases were ruled out.  

I too, have some of the symptoms that you've mentioned, but they're not all-inclusive for MS.  I have ringing in my ears, too.  I first started getting this in one of my ears on and off, and now I have it in both ears with hearing loss.  You probably should go see someone (an audiologist or ENT) about this.  MS can cause hearing loss, but I understand that it is not very common.

I have had some of the eye problems that you've mentioned.  I was also diagnosed with optic neuritis, which is often seen in MS.  I have had double vision for years, and for the last year, I was shocked to see that it disappeared, and I thought this was a permanent symptom.  I still get blurry and double vision, but when I'm tired or overheated.  I also was seeing halos around lights for a while.  

Do you get migraines?  Some of your symptoms sound suspicious for migraines.  I get them.  Because they are so common in the general population, having them does not rule out other problems like MS.  

An MRI is a very important diagnostic tool for MS.  After all the blood work, echocardiograms, CT scan of my lungs, neurological tests, careful examination of my history, LP, etc., it was the MRI that clenched my diagnosis.  It was right after my second MRI that I was diagnosed with MS.  The first MRI was kind of like a baseline.  The second MRI showed growth of lesions and new lesions.  I also had lesions around the corpus callosum which I was told was seen mostly in MS.

I am learning that you can carry on a normal life with MS.  For me, however, I've had to make lots of adjustments.  I would say that if you are fine with exercising and lifting weights then you should keep doing this.  Staying as fit as possible is very important.  Until you are sure you don't have MS though, don't exercise in a hot gym or run on hot days unless you can find a way to make yourself and keep yourself cool.  You may have to take more breaks to keep yourself from getting overheated.  

I would say that your symptoms don't sound like you're stressed out.  You are the person would know that it isn't.   Your doctor sounds like many, who will throw out all the possibilities that are more benign to rule out, to keep the patient from worrying until a firm diagnosis is made.  Also, MS can cause depression and anxiety.  It's not that the bigger picture item is thrown out like MS, it's probably still in the back of his mind.  Plus, some of the symptoms can be relieved until a diagnosis is made.  The best medicine for me prior to my diagnosis was the Provigil for the fatigue.  

Hang in there!  Deb
Helpful - 0
531519 tn?1307632685
Hi Deano welcome to the forum my name is Julie and as yet have not got my dx i have been in LIMBO as its called for almost 2 years now. You have posted your questions on the right forum as there are a lot of people on this site who are dx.
Unfortunately i cant answer your questions on the eyesight questions the only problems i have untill now with my eyes is Flashes of really bright lights and the odd zig zag line and 1 floater in my right eye also focus problems at times.
You asked if an MRI would pick up on problems you might have with indications in the brain, it may or may not show anything. I had an mri and this showed multiple non specific lesions in the white matter the neuro im under is taking the wait and see what happens approach which my GP is not happy with  and has asked for another Neuro to see me.
The reason for telling you this is that the dx process can and most likely will be a very long road to travel on. Just know that there are a lot of us taking this journey also, you have found the right place to be.
The members of this community are a great bunch of people and between them they have a vast wealth of knowledge. Please feel free to ask any questions you might have and someone will always have some advice or wise words for you. There are also a lot of other mimics of MS and thats part of the reason it takes so long for a dx as they have a lot of things they have to rule out first. Sorry i could not be more helpful.
Take care and welcome to the clan
Julie xx
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