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1660929 tn?1319758789

Hello

Hey everyone, it's been a long long time since I've been here. How is everyone doing? Hope all is well. I am doing pretty good. Making some life changes. I have decided to stop the Betaferon Injections and to starting fighting this the natural way, so I am staying mentally positive, bad days would come but I don't unpack and stay, I release and then pick up and keep move forward, improving on my eating patterns, eliminating the things that I know are not 'good' for me, exercising regularly and just doing all that I can and should do to keep healthy and up!

MS LIVES WITH ME I DON'T LIVE WITH MS! So I am not going to allow it to control or dictate my way of living.

I know each one of us has our challenges but let's fight and make that determination to live, love, laugh, be happy everyday.

Take care all
~Hugs & Kisses~
Tricia  
6 Responses
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1660929 tn?1319758789
Hi Lulu yes its been way too long. Thankfully the rains have started, the heat was over bearing the last couple of months.  Unfortunately there are no other DMD option's available in my country.  I wish alot of time's that I had access to an MS specialist who identifies and cares about MS patient's.  I am taking each day in stride.

Supermum_ms yes that is it. :-)
Helpful - 0
1831849 tn?1383228392
MS is a disease that is unique to all of us. So is the path we take to deal with it. I'm glad you seem to have found yours :-)

Kyle
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
It was so nice to see your lovely face pop up :D

I'm always honest about my opinion on DMD's, i do believe in the research and DMD's potential to alter its course or at least slow it down, but the truth is there are many people who for various reasons find DMD's are not an option for them, so their only choice left is to treat sx's and try going natural.

In a perfect world  'natural' would not be a last resort because there are no other DMD's left to try, side effects harder to deal with than their MS sx's, financial, insurance etc the truth is never perfect, it actually kind of su_cks to face reality but accepting your truth can also be (imho) very peaceful and self empowering too.  

Keep you options open, live every moment...............and you go girl!!

Cheers..........JJ

ps "let's fight and make that determination to live, love, laugh, be happy everyday" is actually the only way I know how to be :D


Helpful - 0
572651 tn?1530999357
Hi Tricia.  It is good to see you - many people try this the natural way.  i hope it works for you.  Are any of the other DMDs beside the interferons available to you?  I know your choices were limited.  good luck with the summer heat and  please stay on touch.  hugs, Laura
Helpful - 0
1660929 tn?1319758789
Hi thank you. I have and keep considering it. I just noticed that on the meds and was always feeling sick and frequent flare ups so decided to stop. But keep monitoring.  MS as it is,  unpredictable so one step a day.

Thank you HVAC appreciate it.
Helpful - 0
667078 tn?1316000935
That sounds good. I had to do some soul searching when I went off Copaxone. I have had MS for over 40 years. MS can progress with or with out symptoms. I had to ask myself "Are you willing to take full responsibility if you end up in a wheelchair not taking a DMD?" Whatever way you treat your MS is right for you as long as you understand going it without a DMD is risky.

Alex
Helpful - 0
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