Hi Lulu yes its been way too long. Thankfully the rains have started, the heat was over bearing the last couple of months. Unfortunately there are no other DMD option's available in my country. I wish alot of time's that I had access to an MS specialist who identifies and cares about MS patient's. I am taking each day in stride.
Supermum_ms yes that is it. :-)
MS is a disease that is unique to all of us. So is the path we take to deal with it. I'm glad you seem to have found yours :-)
Kyle
It was so nice to see your lovely face pop up :D
I'm always honest about my opinion on DMD's, i do believe in the research and DMD's potential to alter its course or at least slow it down, but the truth is there are many people who for various reasons find DMD's are not an option for them, so their only choice left is to treat sx's and try going natural.
In a perfect world 'natural' would not be a last resort because there are no other DMD's left to try, side effects harder to deal with than their MS sx's, financial, insurance etc the truth is never perfect, it actually kind of su_cks to face reality but accepting your truth can also be (imho) very peaceful and self empowering too.
Keep you options open, live every moment...............and you go girl!!
Cheers..........JJ
ps "let's fight and make that determination to live, love, laugh, be happy everyday" is actually the only way I know how to be :D
Hi Tricia. It is good to see you - many people try this the natural way. i hope it works for you. Are any of the other DMDs beside the interferons available to you? I know your choices were limited. good luck with the summer heat and please stay on touch. hugs, Laura
Hi thank you. I have and keep considering it. I just noticed that on the meds and was always feeling sick and frequent flare ups so decided to stop. But keep monitoring. MS as it is, unpredictable so one step a day.
Thank you HVAC appreciate it.
That sounds good. I had to do some soul searching when I went off Copaxone. I have had MS for over 40 years. MS can progress with or with out symptoms. I had to ask myself "Are you willing to take full responsibility if you end up in a wheelchair not taking a DMD?" Whatever way you treat your MS is right for you as long as you understand going it without a DMD is risky.
Alex