Early last year, I began having neurological symptoms. They included tingling in my arms and legs, weakness and feeling tired, muscle cramps, small muscle twitches, and tremors that seem to be related to muscle weakness. All these symptoms came on gradually over several months. I eventually also started having trouble sensing acute pain, heat and cold but I can still feel normal touch. At times, I also feel as if a tourniquet is around my left arm and leg.
My brain MRIs appear to be the most significant evidence of disease other than my symptoms. MRIs show around 30 lesions/plaques in the white matter of my brain. Two small enhancements were seen in the first MRI but a second MRI, interpreted by a different radiologist, called it a "phased artifact".
I have seen 3 neurologists specializing in multiple sclerosis and several radiologists have reviewed these MRIs.
One doctor and three radiologists think I have multiple sclerosis. Another doctor suggested I had acute disseminated encephalomyelitis (ADEM) and a third doctor calls it nonspecific encephalopathy. My spinal tap was negative for oligoclonal bands and EMG, auditory and visual evoked potentials were negative. Lyme disease tests are negative as well. I have other test results as well but none have shown anything specific.
Because of this uncertainty in my diagnosis, I have not been able to receive any treatment.
I would appreciate any ideas you to help me get a diagnosis.
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