Aa
Here's our "long" story...newbie too
Here's our story,
I'm an MRI tech who's lucky enough to work for a hospital that recently got a new MRI unit. I was really anxious to play with this new toy...so I wrangled up some test patients and started to learn. I convinced my fiance to be a guinea pig, but was not prepared for what was to come! I tossed him on the table and ran a Brain MRI. I first saw scattered lesion on the T2, then came the infamous lesions on the FLARE, oval, perpendicular to the ventricals, scattered, varying in size...and on and on. I nearly choked. I was absent from school the day they handed out medical degrees, but I've seen it plenty of times in my career, I know what I was looking at. I stopped the test right there and sent future hubby on his way...with a smile on my face. I went from knowing nearly nothing about MS to being a Know-it-all. I was ready for every question I thought he could possibly ask me, I just had to tell him. I finally found the fortitude (after about 3 days) and blurted it out. He took it pretty well, well enough that I was like why the heck did I wait so long to tell him. He asked all the questions I had prepared for. I asked him about symptoms, he denied having any. I proceeded to watch him like a hawk for the next couple of days...and with each passing day my heart sank further. I watched him stumble a few times, drop just about everything that passed though his hands, rub his eyes alot, flex and extend his fingers, rub his feet...I chalked everything up to MS symptoms...I told him he had to go see his physician...he said, "yeah, maybe next week, if I have time." I've never been one to mind my own, so I took the liberty of making an appointment for him. Blood tests and legitimate MRI's were ordered and have since been done. We are now waiting to hear the results or the official word. I'm just sick about it, and can only imagine what my fiance must be going through. A dark cloud has been casted over our happy time, were set to be married in just 2 months...I'm trying to be the positive, hopeful, supportive and all that, but I'm just pretty torn up about it. I'd love to be wrong, for the first time in my life I've never wanted to be more wrong, but...I just don't think I am, I really think MS is going to be a part of our future. We have not told anyone, we don't want to cause any unnecessary stress or concern with family. So I'm guessing that's why I landed here and totally unloaded...I just needed someone to listen, so thanks everyone for doing just that. I have been lurking around the forum all evening and you all seem so helpful and informed. I'm sure I will be calling upon you again soon!
Thanks again!
I'm an MRI tech who's lucky enough to work for a hospital that recently got a new MRI unit. I was really anxious to play with this new toy...so I wrangled up some test patients and started to learn. I convinced my fiance to be a guinea pig, but was not prepared for what was to come! I tossed him on the table and ran a Brain MRI. I first saw scattered lesion on the T2, then came the infamous lesions on the FLARE, oval, perpendicular to the ventricals, scattered, varying in size...and on and on. I nearly choked. I was absent from school the day they handed out medical degrees, but I've seen it plenty of times in my career, I know what I was looking at. I stopped the test right there and sent future hubby on his way...with a smile on my face. I went from knowing nearly nothing about MS to being a Know-it-all. I was ready for every question I thought he could possibly ask me, I just had to tell him. I finally found the fortitude (after about 3 days) and blurted it out. He took it pretty well, well enough that I was like why the heck did I wait so long to tell him. He asked all the questions I had prepared for. I asked him about symptoms, he denied having any. I proceeded to watch him like a hawk for the next couple of days...and with each passing day my heart sank further. I watched him stumble a few times, drop just about everything that passed though his hands, rub his eyes alot, flex and extend his fingers, rub his feet...I chalked everything up to MS symptoms...I told him he had to go see his physician...he said, "yeah, maybe next week, if I have time." I've never been one to mind my own, so I took the liberty of making an appointment for him. Blood tests and legitimate MRI's were ordered and have since been done. We are now waiting to hear the results or the official word. I'm just sick about it, and can only imagine what my fiance must be going through. A dark cloud has been casted over our happy time, were set to be married in just 2 months...I'm trying to be the positive, hopeful, supportive and all that, but I'm just pretty torn up about it. I'd love to be wrong, for the first time in my life I've never wanted to be more wrong, but...I just don't think I am, I really think MS is going to be a part of our future. We have not told anyone, we don't want to cause any unnecessary stress or concern with family. So I'm guessing that's why I landed here and totally unloaded...I just needed someone to listen, so thanks everyone for doing just that. I have been lurking around the forum all evening and you all seem so helpful and informed. I'm sure I will be calling upon you again soon!
Thanks again!
Thank you everyone for you kind words and encouragement! You have no idea how touched I am. Such a warm welcome!
Congratulations on the upcoming wedding.
You're fiancee is a lucky guy, to have you in his life. I too believe things happen for a reason. There's a reason you found us and a reason you found his potential MS. It might seem like a "dark cloud" but every "dark cloud" has a silver lining. I know, so cliche, but as time goes by, I'm learning they have some actual meaning behind them, and a hint of truth.
I know the not wanting to tell anyone thing, but at least you two have each other to talk to and confide in, and even comfort when needed. There's so much more to say about that than anything. It makes life easier and the shock of it all easier to deal with. Good luck and I wish all the best for the two of you.
Corinne
You're fiancee is a lucky guy, to have you in his life. I too believe things happen for a reason. There's a reason you found us and a reason you found his potential MS. It might seem like a "dark cloud" but every "dark cloud" has a silver lining. I know, so cliche, but as time goes by, I'm learning they have some actual meaning behind them, and a hint of truth.
I know the not wanting to tell anyone thing, but at least you two have each other to talk to and confide in, and even comfort when needed. There's so much more to say about that than anything. It makes life easier and the shock of it all easier to deal with. Good luck and I wish all the best for the two of you.
Corinne
Hey all the best with the wedding. He has one of the most important pieces of the treatment process, one who cares and loves him. I was the caregiver when my wife went through 24 weeks of hep-C treatment. It made us get so close emotionally it's hard to explain. Remember everyday is a new day.
Best of luck.
Best of luck.
Hello from a fellow new person! That is quite a story. I am happy for your fiance that he has such a caring, supportive person to lean on in this life. Congratulations again on the upcoming wedding.
Hugs and take care
Jazzy
Hugs and take care
Jazzy
I do believe you found this site for a very good reason... you can be assured that everyone here will support you.
I know that alot of prayers are going out for you and your fiancee. When you need to vent... we are here.
GOD bless you and your fiancee.
Frann
I know that alot of prayers are going out for you and your fiancee. When you need to vent... we are here.
GOD bless you and your fiancee.
Frann
Hi and welcome!
First of all, I'd like to say "Congratulations" on your upcoming wedding! :)
Wow ~ what a shock you both must have gone through!! I can understand the "dark cloud" that you have above your head. My neuro and I found my "lesions" on accident too! I'm still in limbo, but have had that "dark cloud" above my head for 5 months now. It is starting to lessen.
I agree with Em and that your fiance's reply was just having it all sink it. It does take time. It is a blow, especially if you weren't expecting it. Continue to be hopeful and positive. If he does get the diagnosis, you've caught it early and the DMDs will help. There are also new drugs in Phase I-III testing that look very promising!
Please keep us posted and you can come here to "unload" anytime! Perhaps your finance would like to join us here too at some point!
Take care! Pat :)
First of all, I'd like to say "Congratulations" on your upcoming wedding! :)
Wow ~ what a shock you both must have gone through!! I can understand the "dark cloud" that you have above your head. My neuro and I found my "lesions" on accident too! I'm still in limbo, but have had that "dark cloud" above my head for 5 months now. It is starting to lessen.
I agree with Em and that your fiance's reply was just having it all sink it. It does take time. It is a blow, especially if you weren't expecting it. Continue to be hopeful and positive. If he does get the diagnosis, you've caught it early and the DMDs will help. There are also new drugs in Phase I-III testing that look very promising!
Please keep us posted and you can come here to "unload" anytime! Perhaps your finance would like to join us here too at some point!
Take care! Pat :)
Hi
Im not medicaly trained and by the sounds of it you know far more then i do but things do seem to indicate ms but thats just going by what you saw on the mri.
I do think things happen in life for a reason and i think you running the mri on your fiance was no accident i think he would not of come forward on his own and by this happening it has brought a much needed illness to light that he can get treatment for it (if that is what he has got).
Keep positive as you must know there is so much that can be done for ms treatment wise i know it will be always in his life but at least when you know you can face it straight on together im sure it will pull you closer together.
In my prayers
God BLess
Im not medicaly trained and by the sounds of it you know far more then i do but things do seem to indicate ms but thats just going by what you saw on the mri.
I do think things happen in life for a reason and i think you running the mri on your fiance was no accident i think he would not of come forward on his own and by this happening it has brought a much needed illness to light that he can get treatment for it (if that is what he has got).
Keep positive as you must know there is so much that can be done for ms treatment wise i know it will be always in his life but at least when you know you can face it straight on together im sure it will pull you closer together.
In my prayers
God BLess
Hiya Burbanchick...love the name by the way. Thought I would just say hello and welcome to the forum.
Congratulations on your forth coming wedding too...very exciting.
I read your story and thought wow...! I bet there are a few of us on here who would love a friend like you with access to those facilties. For you, I can only imagine what a shock that must have been but if the other tests come back and a diagnosis of ms is given, then you've probably speeded up the delay in treatment which is a really good thing. As for your future husband saying 'yeah may be next week' that just may be his way of taking it all in, he may just need that time to get his head around it. Alternatively he's probably just acting like most men I know. My husband is very much a...yeah I'll do it tomorrow kind of guy where his health is concerned...!
I'm currently in limboland like many others here, waiting to see an ms specialist. I came on here looking for answers and to confirm that the symptoms I have aren't ms as that scared me to death. Since I've been coming here I've had so much support and really had the chance to talk things through, get the answers that I needed and had the opportunity to meet some great people with ms and others like me who are awaiting diagnosis and I've learnt that even if this is ms, my life will go on and can go on with a positive attitude and a better understanding of it. For me, I've taken time to read up on things, now it's a waiting game. If this is ms for your partner, than you've hopefully shortened that waiting in 'limboland' period which is a really good thing...I know from experience, the waiting for diagnosis can be really hard.
On a personal note, I found out I had cervical cancer 2 weeks before my wedding day. The initial shock was pretty hard to take. I talked things through with my husband and sister (bridesmaid) and made the decision no-one else needed to know until after the wedding as like you I didn't want to cause concern for family and friends. I told my parents the night before I went into hospital for surgery after the honeymoon and then told everyone else after I came out of hospital. For my husband and I it was the right decision and I'm pleased we did that so I can truely understand your way of thinking. We look back on our wedding day as a really happy time and for us we knew it would have been very different if we had told people, especially my parents as it would have taken away the focus of why we were there.
Anyway, I've waffled on enough. Please do stay in touch. May be you can get your husband to log on too when he is ready. This forum has been a really great way for me to learn and prepare myself for every eventuality.
Good luck and enjoy the lead up to your wedding day, it's a wonderful time.
Take care
Em
Congratulations on your forth coming wedding too...very exciting.
I read your story and thought wow...! I bet there are a few of us on here who would love a friend like you with access to those facilties. For you, I can only imagine what a shock that must have been but if the other tests come back and a diagnosis of ms is given, then you've probably speeded up the delay in treatment which is a really good thing. As for your future husband saying 'yeah may be next week' that just may be his way of taking it all in, he may just need that time to get his head around it. Alternatively he's probably just acting like most men I know. My husband is very much a...yeah I'll do it tomorrow kind of guy where his health is concerned...!
I'm currently in limboland like many others here, waiting to see an ms specialist. I came on here looking for answers and to confirm that the symptoms I have aren't ms as that scared me to death. Since I've been coming here I've had so much support and really had the chance to talk things through, get the answers that I needed and had the opportunity to meet some great people with ms and others like me who are awaiting diagnosis and I've learnt that even if this is ms, my life will go on and can go on with a positive attitude and a better understanding of it. For me, I've taken time to read up on things, now it's a waiting game. If this is ms for your partner, than you've hopefully shortened that waiting in 'limboland' period which is a really good thing...I know from experience, the waiting for diagnosis can be really hard.
On a personal note, I found out I had cervical cancer 2 weeks before my wedding day. The initial shock was pretty hard to take. I talked things through with my husband and sister (bridesmaid) and made the decision no-one else needed to know until after the wedding as like you I didn't want to cause concern for family and friends. I told my parents the night before I went into hospital for surgery after the honeymoon and then told everyone else after I came out of hospital. For my husband and I it was the right decision and I'm pleased we did that so I can truely understand your way of thinking. We look back on our wedding day as a really happy time and for us we knew it would have been very different if we had told people, especially my parents as it would have taken away the focus of why we were there.
Anyway, I've waffled on enough. Please do stay in touch. May be you can get your husband to log on too when he is ready. This forum has been a really great way for me to learn and prepare myself for every eventuality.
Good luck and enjoy the lead up to your wedding day, it's a wonderful time.
Take care
Em
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