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Hey, everybody!
I'm still here and still reading. I know I don't post very much but I wanted y'all to know I do read and try to keep up. I keep a prayer list going as well.
One thing I've noticed in my reading is a lot of people mention that their sx are on their left side or more left side oriented or started on their left side or in some way favor their left side at some point in their disease.
Is this something anyone else has noticed or something that is prevalent in the MS / UWS world and I just don't know about it or is it possibly just that I pick up more on left side things because that's where all my problems are located?
Just a thought I had and wondered if anyone else had ever noticed or knew anything about it.
Be well, folks! Fall is just around the corner and with it cooler weather, Thank God!
One thing I've noticed in my reading is a lot of people mention that their sx are on their left side or more left side oriented or started on their left side or in some way favor their left side at some point in their disease.
Is this something anyone else has noticed or something that is prevalent in the MS / UWS world and I just don't know about it or is it possibly just that I pick up more on left side things because that's where all my problems are located?
Just a thought I had and wondered if anyone else had ever noticed or knew anything about it.
Be well, folks! Fall is just around the corner and with it cooler weather, Thank God!
How wonderful of you to keep us on your prayer list! I truly believe in the power or prayer.
My symptoms began with optic neuritis in the right eye. At first all of my limbs were affected, but after the initial attack I was left with left sided weakness. My left leg is very weak and spastic and my left foot has foot drop. My left hand has weakened fine motor skills. Luckily it has not spread to my right side at all! I think your observation It was very interesting!
Welcome back :)
Deb
My symptoms began with optic neuritis in the right eye. At first all of my limbs were affected, but after the initial attack I was left with left sided weakness. My left leg is very weak and spastic and my left foot has foot drop. My left hand has weakened fine motor skills. Luckily it has not spread to my right side at all! I think your observation It was very interesting!
Welcome back :)
Deb
Hello..New Here..I Have been Checking Symptoms..I Was Told Migrains.MRI said t2 Flairs Pons Separations scaring at brain stem, Dr said I was just fine But insurance did not allow meds. So Off to a new dr. This one treated for migraine..Alright for awhile.Now i Went blind for 6 months. a dr. looked in my eyes and told me I was faking and a bad parent..Behavior modifier for 35 year to autism..How would she know..IEP Advocate for MHMR..DAH.One Dr. Said MS..I Could Not Stop My Car Literally. Had The Brakes Checked..Could Not feel My Feet.Could Not steer.Could Not feel My Hands..Now This Constant Burning up all extremities.I Sometimes can not talk eat, feel anything.Short term memory gone.Siezure up to 20 times a day..Meds are maxed out..I have had to walk away from family..They are saying no one wants to deal with me..I Fake.I am literally on fire..not a tingle my face i cannot feel anymore dr.says it is migraine..They take MRI constantly..I am Fine..I am Forgetting how to breath..talk walk..speak.my name..God help Me..It Is Like I Am Getting Erased..Day By Day..My Children..Are Even Needing To Walk Away..God Bless Them All..I Am Only 53..
For me this is one question I have, but one issue at a time I guess. I'm still in limbo. My Dr said MS but no "proof" yet other then symptoms.
My issues started about 15yrs ago always tired and terrible, terrible foot/lower leg pain. Was diagnosed with Tarsal Tunnel Syndrome (Almost like Carpal tunnel but of the feet) so all the leg issues/pain, pins and needles I ignored. Which did start on the right lower leg area. Then went to the left lower leg area. Over the years I had issue but of course ignored them. Figured it was the TTS... Last year my left leg would just go dead on me, I assumed it was the TTS so figured this is not good I need to go to the Dr lol He said NO this is definitely not my TTS. So, is it whatever I have going on that has effected my legs so long or is it TTS? No idea and really not sure what side mine started on because I'm not really sure when it would have started.
Also let me add that even left sided people get the keys taken away. I was driving stick when my leg decided to go dead :) Not an easy task to do when shifting eeks... A few times I ended up sitting at lights or stop signs until I could get my leg to do what I needed. Scary and darn well embarrassing!!!
But now, I am more of a left person then right. My right side does have slight issues but not nearly as bad as left. I get muscle spasms on both but twitches on the left and much more pain, numbness and pins and needles on my left.
My issues started about 15yrs ago always tired and terrible, terrible foot/lower leg pain. Was diagnosed with Tarsal Tunnel Syndrome (Almost like Carpal tunnel but of the feet) so all the leg issues/pain, pins and needles I ignored. Which did start on the right lower leg area. Then went to the left lower leg area. Over the years I had issue but of course ignored them. Figured it was the TTS... Last year my left leg would just go dead on me, I assumed it was the TTS so figured this is not good I need to go to the Dr lol He said NO this is definitely not my TTS. So, is it whatever I have going on that has effected my legs so long or is it TTS? No idea and really not sure what side mine started on because I'm not really sure when it would have started.
Also let me add that even left sided people get the keys taken away. I was driving stick when my leg decided to go dead :) Not an easy task to do when shifting eeks... A few times I ended up sitting at lights or stop signs until I could get my leg to do what I needed. Scary and darn well embarrassing!!!
But now, I am more of a left person then right. My right side does have slight issues but not nearly as bad as left. I get muscle spasms on both but twitches on the left and much more pain, numbness and pins and needles on my left.
Good to "see" you, too, Lisa! I don't how wonderful I am but I know prayers help me so I send them out for others, too. As they say, "couldn't hoit", right? :)
JJ, I love it. Strainer for a brain. That exactly describes me these days. I'm going to steal this and use it over and over. (If I remember it, that is... )
Nice to hear from you! And how wonderful and thoughtful that you say prayers! What a woman!
My input on this topic is that my experience was on the left. Left leg, left hip. However, when I had my CIS event in April, my right arm was jerking across as if someone was pulling it along my stomach toward my left side. Was really weird. However, I had bilateral vibrations of my feet for years and years. My left leg gets goosebumps on it for no reason at all. My "right" eye is the first eye to go blurry (extremely) but my left side was blurry too but not as much.
I don't know what I have -- but whatever it is, it seems to go all over the place, one limb or organ at a time. LOL
Lisa
My input on this topic is that my experience was on the left. Left leg, left hip. However, when I had my CIS event in April, my right arm was jerking across as if someone was pulling it along my stomach toward my left side. Was really weird. However, I had bilateral vibrations of my feet for years and years. My left leg gets goosebumps on it for no reason at all. My "right" eye is the first eye to go blurry (extremely) but my left side was blurry too but not as much.
I don't know what I have -- but whatever it is, it seems to go all over the place, one limb or organ at a time. LOL
Lisa
COMMUNITY LEADER
A lot of my issues are predominently left side and my sight issues are in the right eye but I have to say my right side is starting to catch up with the left now. My language centre is wonkie and language is suppose to be generated from the left side of your brain and then there is balance and isn't that the little brain? lol sorry my brain doesn't work when i want it too. So by my reconning i've got holes in the right, left and little brain lol i've got a strainer for a brain.
cheers........JJ
cheers........JJ
Lu, that's a very interesting observation. I must've missed those conversations but I may have to go search them out. :)
My symptoms are on my right side with occasional pings on my left side.
I know we've talked a bit here before about why the right leg has to be affected so often because that's the foot we neet to drive a car. It's our body's way of taking away the keys.
Lu
I know we've talked a bit here before about why the right leg has to be affected so often because that's the foot we neet to drive a car. It's our body's way of taking away the keys.
Lu
My stuff started in the "right brain." Left arm pain for a few years that the ortho couldn't figure out (neg xrays and neg EMG,) then ON in the right eye. That moved on to right sided TN and right sided weakness in my arm and leg. I also developed right sided spasticity.
So I guess my symptoms started with stuff related to the right side of my brain and then ended up in both sides. Pretty consistent with my MRIs.
Bob
So I guess my symptoms started with stuff related to the right side of my brain and then ended up in both sides. Pretty consistent with my MRIs.
Bob
Hey, Alex!
Yes, I do keep a list of people who have asked me directly or posted here on the forum asking for prayers. I don't trust my poor brain to remember anything these days. LOL And, as I told someone the other day, I write my prayer list in permanent marker. I figure, even if you only need prayers for a short time, a few extra prayers won't hurt anyone and I won't need to add you back in next time since you'll already be on the list. :)
Can't say I always go down the list and name everyone on it but I do mention each time something along the lines of "my friends on the list" or "you know my list, God" or something like that so there is at least somewhat of a "blanket covering" if I don't do a name-by-name thing. (I have a long list! LOL)
I am not yet dx'ed. I have what I (un)affectionately called UWS - undiagnosed weirdness syndrome - but I have noticed several times on many posts the mention of "left side" and wondered about it. I thought I'd throw it out there and see if anyone nibbled.
Be well! :)
Yes, I do keep a list of people who have asked me directly or posted here on the forum asking for prayers. I don't trust my poor brain to remember anything these days. LOL And, as I told someone the other day, I write my prayer list in permanent marker. I figure, even if you only need prayers for a short time, a few extra prayers won't hurt anyone and I won't need to add you back in next time since you'll already be on the list. :)
Can't say I always go down the list and name everyone on it but I do mention each time something along the lines of "my friends on the list" or "you know my list, God" or something like that so there is at least somewhat of a "blanket covering" if I don't do a name-by-name thing. (I have a long list! LOL)
I am not yet dx'ed. I have what I (un)affectionately called UWS - undiagnosed weirdness syndrome - but I have noticed several times on many posts the mention of "left side" and wondered about it. I thought I'd throw it out there and see if anyone nibbled.
Be well! :)
An interesting question because when I first started all my symptoms were equal on both sides. I too had wondered about my symtoms comparted to other MS sufferers. Now a few months in there seems to be slightly more leg weakness on my right side and I have my left hand is now affected. That is the amazing thing with the disease - it affects us all in so many different ways.
It is lovely to hear you have a little prayer list. I believe it absolutely helps.
Blessings
Alex
It is lovely to hear you have a little prayer list. I believe it absolutely helps.
Blessings
Alex
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